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MIAMIRN's Photo MIAMIRN SparkPoints: (35,488)
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6/7/14 7:54 P

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Hi!

I don't know your situation or your functional abilities. I'm a retired rehabilitation RN. If you want to message me I can customize a day for you. But staying in bed, even if you are in pain. is a recipe for debilitation and illness and you'll feel worse. I'm used to being like a military sargeant, so don't expect much sympathy from me. I'm compassionate, but never babied my patients. . If I did they wouldn't have ever gotten better. I am even like that with myself today. After I learned the hard way. Lol.

I hope you feel better soon!
emoticon emoticon

Love life!

Never, never give up!
“Never give in, never give in, never; never; never; never - in nothing, great or small, large or petty - never give in except to convictions of honor and good sense”
-Winston Churchill

“Your beliefs become your thoughts,
Your thoughts become your words,
Your words become your actions,
Your actions become your habits,
Your habits become your values,
Your values become your destiny.”
― Mahatma Gandhi


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4-1HEALTHYCYNDI's Photo 4-1HEALTHYCYNDI Posts: 11,606
5/30/14 6:45 P

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Good luck with the gluten free diet. I'm finding it helps a lot with inflammation/soreness, but not so much with the fatigue right now. I've been gluten free for about a year now

Please, if anyone has ideas on how to combat the fatigue, please post. Even sleeping 8 - 10 hours a day doesn't always help. Sometimes gentle morning exercise for about 20 minutes does help though.

Cyndi Gryffindor,

C.A.M.O.Crew, PDT

NEVER GIVE UP, NEVER SURRENDER!

Striving for VES, Vibrant, Elegant & Sexy

www.folhavitoria.com


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SCRAPPINAMANDA's Photo SCRAPPINAMANDA Posts: 166
5/29/14 10:21 P

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I also battle with fatique. My family does not understand. My joint pain and inflammation are way down as we have cut back on some meds and I am using Curcumin which really seems to help....but the fatigue is horrible. Trying to go gluten free to see if that helps.

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JANISMKW's Photo JANISMKW SparkPoints: (56,617)
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5/26/14 9:11 P

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Angela, hope things improve for you. Thanks for keeping us posted, even if it's not all good news.


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ANGRITTER's Photo ANGRITTER SparkPoints: (85,578)
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4/26/14 12:00 P

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I am now drained on a daily basis. Even laying out in the sun and relaxing is like work!!

I got up to eat dinner with my parents the other day, and I had to leave before they even finished because I felt so bas sitting up straight.

Angela, Sparking since 6/18/2012
Jacksonville, FL
*Keep moving forward! Ask for Peace, Believe in Love, & Give Understanding!

Living with RAD Team Co-leader www.sparkpeople.com/myspark/groups_i
ndividual.asp?gid=959


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JANISMKW's Photo JANISMKW SparkPoints: (56,617)
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4/10/14 8:45 P

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Dear dear Cynthia,

emoticon Terrible fatigue is a symptom of RA, plus I think you may have become de-conditioned while you went through illnesses and surgery.

emoticon Today I went back to watercolor class and was almost falling asleep at 2 in the afternoon and had to nap afterward, even though I went for a brisk walk after class.

emoticon I would guess that if you keep exercising, your muscles will get stronger and if you get out of breath doing it you will be getting aerobic conditioning. I think the PT idea is a great one, but with transportation, cost, etc. it might not be feasible.
emoticon emoticon
That said, if you are feeling worse or have sharp pain, maybe back off and seek medical help. And please be careful NOT to FALL! Hold onto things, use whatever you need to. A friend of mine in her 80's walks with 2 trekking poles instead of using a cane. She likes it better and it does look sportier!

emoticon Hang in there, baby!


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4-1HEALTHYCYNDI's Photo 4-1HEALTHYCYNDI Posts: 11,606
4/10/14 5:12 P

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**HUGS**
I'm not sure what to recommend. I don't know your circumstances but could see a physical therapist to help you plan what you can do. Barring that perhaps you could start smaller. Instead of the "normal" amount or type try something different or for less time. When I was first diagnosed (worst flare I ever had) I started by just walking 5 minutes around the house a day. It did wipe me out and I'd have to rest for a long time after, but... I slowly built back up to where I can pretty much walk as far as I want to (if not as fast). I've completed 5K's by walking them.

When I had a bad ankle injury and couldn't do my walking dvds normally I would sit and "walk" on a stability ball or chair, or just sit and do upper body dance moves to some rocking music.

Again, I'd suggest starting small and building back up to where you want to be.

Be kind and take care of yourself.

Cyndi Gryffindor,

C.A.M.O.Crew, PDT

NEVER GIVE UP, NEVER SURRENDER!

Striving for VES, Vibrant, Elegant & Sexy

www.folhavitoria.com


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DEDICATED2HIM's Photo DEDICATED2HIM Posts: 3,559
4/10/14 3:10 P

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that when you start to exercise after a period away that doing exercise--even gentle,easy ones----just WIPE YOU OUT....like so badly that your legs tremble when you stand up and you are afraid to walk across the floor for fear of falling?? I don't know if I'm in a flare.....my flares just kind of bleed one into another no ending and no beginning....just all middle. My back has been horribly horribly painful.....it's been keeping me from doing even things I LIKE to do.
It doesn't feel like exercise is going to make me stronger...it feels like it will just sap my tiny amount of energy and send me tumbling down the stairs. What do I do? Work through it or stay in bed?



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