I am lucky in that my Rheumatologist DOES understand. He has Psoritic Arthrititis and often is trying to work through the pain, nodules, and overall disability that these autoimmune issues cause. On one hand it means that he is awesome at patient understanding and being proactive on the treatment front. On the other it means that I have to be understanding when he has to call in sick because he also is having a flare.
There is usually a wait for my doc. I don't mind. He understands that just because your bloodwork is fine and you look okay does NOT mean that you feel okay. He also asks right off how I am feeling and about any stresses at home (like asking how my husband is doing with his cancer battle). He also understands that pain is VERY subjective and what looks "fine" may be off the charts on pain. Pain management (whether it be through physical therapy, heat/cold, or medications) is one of his strong suits.
I have been with this doc since he first graduated from med school and have seen him move up and gain his own practice (his nurses gladly followed him away from the place he started). There are pluses and minuses to having a doc that has a similar disease--but most are on the good side.
Make sure if you don't have one that understands that you are proactive about your treatment. If you don't feel the regimen is working, speak up and challenge the doc. If they have a problem with this it may be time to find a new doc.
| current weight: 163.0