Author: Sorting Last Post on Top ↓ Message:
TINYBUBBA1's Photo TINYBUBBA1 SparkPoints: (55,593)
Fitness Minutes: (2,109)
Posts: 5,329
12/21/12 9:26 P

My SparkPage
Send Private Message
Reply
I've had the same experience with Methotrexate! I believe it does slow the progression of the disease.

Tiny
One pound at a time ...


 Pounds lost: 26.2 
 
0
11.75
23.5
35.25
47
KJBURDEN's Photo KJBURDEN Posts: 29
12/20/12 4:49 P

My SparkPage
Send Private Message
Reply
I started out on Plaquenil and then added Methotrexate and now am adding Humira. Due to a shortage of MTX, I missed a dose of it, by the time I was due for my next dose, I was in so much pain I was crying and could barely walk across the store to the pharmacy. It definately helped the pain for me. Also, like others have said, it does help with slowing the progression of the disease.

I'm 1/4 way to my goal!


 Pounds lost: 19.0 
 
0
6.25
12.5
18.75
25
TINYBUBBA1's Photo TINYBUBBA1 SparkPoints: (55,593)
Fitness Minutes: (2,109)
Posts: 5,329
12/16/12 10:46 A

My SparkPage
Send Private Message
Reply
LOL emoticon
emoticon

Tiny
One pound at a time ...


 Pounds lost: 26.2 
 
0
11.75
23.5
35.25
47
DEDICATED2HIM's Photo DEDICATED2HIM Posts: 3,521
12/16/12 10:35 A

My SparkPage
Send Private Message
Reply
yes, unfortunately these autoimmune disorders tend to come in "bouquets" rather than the single stem variety lol.


https://www.amazon.com/author/cynthiavogel

www.cynthialottvogel.blogspot.com


soulstrains.weebly.com


 Pounds lost: 13.0 
 
0
10
20
30
40
TINYBUBBA1's Photo TINYBUBBA1 SparkPoints: (55,593)
Fitness Minutes: (2,109)
Posts: 5,329
12/16/12 10:10 A

My SparkPage
Send Private Message
Reply
Cynthia, my doc really wanted me to keep taking the Plaquenil because it helps with pain and inflammation; however, I refused. I discontinued it on my own. (My doc is ok with that because he thinks I live in my body - he doesn't.) And, what do you know - the psoriasis disappeared! I've been diagnosed with RA for 12 years - and no signs of psoriasis until I started on Plaquenil within the last year. My doc thinks I have, RA, psoriasis (which he told me is an autoimmune disease in itself), possibly psoriatic arthritis, and possible lupus also. I get what he says look like "lupus rashes" and have had those for many years.

I DO think the Plaquenil was helpful for pain & inflammation because, when I stopped it, I had a noticeable increase in pain & inflammation.

Anyway, what are ya gonna do??? lol There's always something! I have a lot of medication allergies and adverse reactions, so nothing surprises me.

I always recommend to others who have RAD that they discuss ALL their treatments, drugs, discontinuing drugs, etc. with their rheumatologists and come to an agreeable treatment plan WITH their docs.

Blessings!

Tiny
One pound at a time ...


 Pounds lost: 26.2 
 
0
11.75
23.5
35.25
47
DEDICATED2HIM's Photo DEDICATED2HIM Posts: 3,521
12/16/12 8:36 A

My SparkPage
Send Private Message
Reply
Tiny, I doubt that your psoriasis was caused by the Plaquinil. It sounds rather like you have Psoriatic Arthritis, either in addition to or instead of RA.. It is common to get the arthritis before you get the psoriasis. I have PsA and they tried initially to TREAT it with Plaquinil so I doubt that it caused your problem.


https://www.amazon.com/author/cynthiavogel

www.cynthialottvogel.blogspot.com


soulstrains.weebly.com


 Pounds lost: 13.0 
 
0
10
20
30
40
GR8BY48's Photo GR8BY48 Posts: 149
12/15/12 7:19 P

My SparkPage
Send Private Message
Reply
I have to agree with the person who said that some meds (MTX in particular) are meant for preventing joint damage. So while you may think that there's no difference whether you take it or not, it may have been doing that "behind the scenes job".



"You choose, you live the consequences. Every yes, no and maybe creates the school you call your personal experience."
-- Richard Bach


 Pounds lost: 0.0 
 
0
24.6
49.2
73.8
98.4
SEATTLE58's Photo SEATTLE58 Posts: 4,967
12/7/12 8:12 A

My SparkPage
Send Private Message
Reply
I was on Methotrexate for 4 years with on/off liver toxicity. It always cleared up for awhile after my Rheumy would stop it a couple of weeks but then with getting it going again, it did well for awhile and then would be toxic to my liver again. So after the 4th time of messing with the toxicity levels, my Rheumy switched me to Leflumomide, which is a cousin to MTX but can be alot more tolerated than MTX at times. And so far so good! When still on MTX, I would get cold sores something fierce and also sores on my arms and legs and my hair got so thin. I got help for it all but now with the Leflunomide, it's not so severe. I'm in the process of going through the hoops for getting on a Biologic, so I'm hoping that I can eventually be off the Leflunomide, Prednisone and Plaquenil!

I'm starting my ticker over with going low carb.

"Little by little whittling my middle!"

Karen




 Pounds lost: 3.5 
 
0
6.25
12.5
18.75
25
LINDAJOYWK's Photo LINDAJOYWK Posts: 5,485
12/6/12 7:14 P

My SparkPage
Send Private Message
Reply
I'm on Methotrextrate-it has been good for me so far (I've been on it for yrs now).My Rheum
has often mentioned going on a TNF blocker,but they really scare me.Due to a mix up at the pharmacy,I have been without it for 2 weeks(going on 3)-very big difference! Plaquenil was the
1rst thing I tried,but I couldn't take it-messed with my vision. I have found that for me the very
most important thing is to keep moving-it decreases the pain & makes it easier to function.

"It's not the mountains ahead that wear you out-it's the grain
of sand in your shoe"-unknown


 Pounds lost: 6.0 
 
0
13.75
27.5
41.25
55
TINYBUBBA1's Photo TINYBUBBA1 SparkPoints: (55,593)
Fitness Minutes: (2,109)
Posts: 5,329
12/6/12 6:26 P

My SparkPage
Send Private Message
Reply
OMG! I took Methotrexate for awhile, then most of my hair fell out, so I quit taking - with my rheumatologist's blessings. THEN I GOT PSORIASIS!! That was because I was taking Plaquenil ( an anti-malarial drug - psoriasis is a side effect). So I stopped the Plaquenil - on my own - then started back on Methotrexate again - with rheumatologist's blessing. I can't stand the psoriasis - it was on my eyelids!!! I'm also on Remicade, a biologic. Methotrexate is also a treatment for psoriasis - SO I AM TAKING IT!! How does one really know what to do????

Tiny
One pound at a time ...


 Pounds lost: 26.2 
 
0
11.75
23.5
35.25
47
BKWERM's Photo BKWERM SparkPoints: (95,599)
Fitness Minutes: (100,614)
Posts: 8,938
12/6/12 5:05 P

Community Team Member

My SparkPage
Send Private Message
Reply
I also hated it and stopped taking it and I'm also on a biologic that is working without it. Every so often, my rheumy asks if I want to try it again but I always say no.

That said, was it the only RA med you were on? Because the meds don't just reduce pain, they also reduce the chance of deformities so if it was, you probably should tell your doctor and he can prescribe something else for you.

Good luck.

Joanna from Dundas, Ontario
BLC20-26 - Amber Amazon Warriors
Eastern Daylight Time (EDT)

Co-Leader of Living With Rheumatoid Autoimmune Disease (RAD)


Happy and healthy people have a better chance to live with confidence and contribute value to the world than anyone else. Don't take that for granted. ~ James Clear ~


 Pounds lost: 56.2 
 
0
28.5
57
85.5
114
ANGEL1066's Photo ANGEL1066 SparkPoints: (70,701)
Fitness Minutes: (92,818)
Posts: 2,267
12/6/12 4:44 P

My SparkPage
Send Private Message
Reply
I hated methotrexate, too. I ranted and railed until my local doc took me off it and referred me to a rhuemy. She put me on Enbrel injections and wanted to restart the Metho in a smaller dose as backup as well but I refused to take it again. I am still doing fine almost 4 years later. I have tried to augment the benefit of my meds by altering my diet in healthier ways, plus adding appropriate exercise, instead of relying on this or any other med with bad side effects. You are the ultimate arbiter of your own medical treatment. You must decide if the benefits of any med outweigh its negative effects, or not. I'm never taking the nasty stuff again.

"Mountains DO move...One stone at a time." ~Rick Beneteau
Do not let what you cannot do interfere with what you can do. - John Wooden, Hall of Fame college basketball coach
With exercise, doing some is always better than doing none. - Spark article
MAKE THE BEST FOOD CHOICES YOU CAN TODAY - and then, try it again tomorrow!- Dr. John La Puma, M.D.


 current weight: 243.5 
 
260
245
230
215
200
JERIBERI1's Photo JERIBERI1 Posts: 10,230
12/6/12 1:23 P

Community Team Member

My SparkPage
Send Private Message
Reply
They always say you need the added effect of methotrexate, but I know a bunch of people who don't need it with their biologics. I quit taking it in 2005 or something like that. I will never ever take it again.

She woke up one morning and threw away all her excuses...
~ ~ ~ ~ ~ ~ ~ ~ ~ ~ ~ ~
CURRENT PRs:
3K: 16:28
5K: 27:13
10K: 58:10
HM: 2:14:00
MAR: 5:20:51
~ ~ ~ ~ ~ ~ ~ ~ ~ ~ ~ ~
UPCOMING RACES:
Jan 1, 2015: Resolution Run 5 miler
Mar 7, 2015: RJ Corman 10 miler
May 16, 2015: Horse Capital Marathon
Jul 11, 2015: Ironman 70.3 Muncie
KIERAE's Photo KIERAE SparkPoints: (177,778)
Fitness Minutes: (194,442)
Posts: 39,372
12/6/12 12:53 P

My SparkPage
Send Private Message
Reply
The thing with Methotrexate is that even if it does "nothing" for you if taking by itself (ie its considered a secondary line of RA meds), it is used all the time as an additional "booster" to the tertiary line of RA meds such as Enbrel and all of the biologics. So sometimes you do need the combined efffect of the two meds to keep the inflammation process at bay.

I like living. I have sometimes been wildly, despairingly, acutely miserable, racked with sorrow, but through it all I still know quite certainly that just to be alive is a grand thing. Agatha Christie
-----------------------
Kierae

Co-leads:South Beach Diet/Smart Carbing/GLBTQ Spark Network
www.myfitnesspal.com/food/diary/Kier
ae

www.facebook.com/Robinlove60


 Pounds lost: 1.6 
 
0
5.5
11
16.5
22
KRIS-KDK663T's Photo KRIS-KDK663T Posts: 495
12/6/12 10:48 A

My SparkPage
Send Private Message
Reply
I have never used that medication, so I'm glad to know what NOT to take -

Kris
It's a great day to be alive!
-----
"I can do all things through Jesus Christ, who gives me strength." Philippians 4:13


 current weight: 237.2 
 
265
245
225
205
185
JERIBERI1's Photo JERIBERI1 Posts: 10,230
12/6/12 10:11 A

Community Team Member

My SparkPage
Send Private Message
Reply
I stopped it and then told my doctor I won't ever use it again. I hate that medicine.

She woke up one morning and threw away all her excuses...
~ ~ ~ ~ ~ ~ ~ ~ ~ ~ ~ ~
CURRENT PRs:
3K: 16:28
5K: 27:13
10K: 58:10
HM: 2:14:00
MAR: 5:20:51
~ ~ ~ ~ ~ ~ ~ ~ ~ ~ ~ ~
UPCOMING RACES:
Jan 1, 2015: Resolution Run 5 miler
Mar 7, 2015: RJ Corman 10 miler
May 16, 2015: Horse Capital Marathon
Jul 11, 2015: Ironman 70.3 Muncie
ARTIELLE's Photo ARTIELLE Posts: 408
12/6/12 10:01 A

My SparkPage
Send Private Message
Reply
My rheumy will have a cow. I stopped the MTX injections 2 months ago. It happened by accident. I went out of state to visit my son and left my injection tray behind. When I noticed that the RA was not acting up after 2 weeks I decided to see what would happen if I just stopped taking them. I do have twinges on occasion and some stiffness in the morning. And I think the RA may be sneaking back, but 2 months off that awful med is awesome.

I just wonder what will happen next. Well, I guess I will find out.

Artielle

 current weight: 182.0 
 
210
195
180
165
150
Page: 1 of (1)  

Report Innappropriate Post

Other Living with Rheumatoid Autoimmune Disease (RAD) General Team Discussion Forum Posts

Topics: Last Post:
Decorating for Christmas?? 12/27/2013 1:34:35 PM
Anyone else working on understanding ACA insurance 10/6/2013 8:26:40 PM
Anyone pain increase during these sub zero days? 1/10/2014 10:23:12 AM
Anyone also have fibromyalgia? 12/29/2013 11:26:53 AM
Getting Back Up Again... 7/9/2014 8:18:37 PM

Thread URL: http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=0x959x51108470

Review our Community Guidelines