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KIMMYWIZZIE1's Photo KIMMYWIZZIE1 Posts: 1,038
1/3/13 6:32 P

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Remicade worked very well for me for 4 months, which seems to be my tolerance level for biologics. It worked for me in a day. It was wonderful stuff. I felt completely normal after the infusion. I hope it works for you.

~~Kim/Kimmy~~

Don't let the fear of the time it will take to accomplish something stand in the way of your doing it. The time will pass anyway; we might just as well put that passing time to the best possible use. ~Earl Nightingale

Never, Never, NEVER, give up!


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DEDICATED2HIM's Photo DEDICATED2HIM Posts: 3,476
12/14/12 6:03 A

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That's strange about the asthma and MTX. Is it because you get more respiratory infections on the drug? I have really really severe asthma and I was on MTX. They stopped it now though because the doc didn't want to have that much of a hit to my immune system once I began Enbrel. I've never been on Remicade or sulfazinimide (sp?) I'm allergic to sulfa.



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TAPPATAPPATAP's Photo TAPPATAPPATAP SparkPoints: (12,120)
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12/12/12 9:24 P

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My daughter has done very well on a remicaid/methotrexate lineup - she's had barely any side effects.

I think the main thing is to find out what works well for your body, because it's all so very individual how everyone's body reacts. Each of them have the same goals, but work a little differently.

Keep up hope, there seem to be a lot of new meds out there that weren't there 10 or 15 years ago.

Marching to the heartbeat of health.

Tappatappatap! www.mit.edu/~jcb/jokes/


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SUNSHINEBLUE77's Photo SUNSHINEBLUE77 Posts: 119
10/9/12 7:44 P

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Thank you everyone!

I can't take mtx bc I have asthma and my dr said there is too much risk for an asthmatic, even though I haven't had an attack n years.. The rheum put me on leflunomide instead and I had a bad reaction to it...messed up my stomach not to mention hair loss. I started last November with prednisone, then prednisone and humira, then humira and leflunomide, then enbrel and leflunomide, and now sulfasalazine and Remicade. All were stopped or changed due to either reaction and no effect at all. Ironically my best numbers were on leflunomide and humira...but then I developed the allergy to humira. I am so ready for some relief. My journey started almost 5 years ago and took until last December for any sort of diagnosis. I had an idiopathic blood clot in my lung four years ago which set the wheels in motion. Prior to that the drs all said my pain was because I had a baby. Having a baby does not cause pain in my hands, wrists and lungs. Lovely right? So now I have the dx of seronegative RA. I just keep hoping for relief :)

Edited by: SUNSHINEBLUE77 at: 10/9/2012 (19:46)
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_LINDA's Photo _LINDA SparkPoints: (176,315)
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10/9/12 7:16 P

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The sulfa was one of the first line tries with RA, didn't work for me. I am surprised they didn't put you on methotrexate -its the first drug they gave me and while they change up everything else they always insist on keeping me on the chemotherapy drug. When I was on Remicade it worked beautifully, but after five years, I developed an anaphylatic shock like reaction to it so wasn't able to have it anymore :(( This is what tends to happen with biologics. Some people were able to tolerate it longer with benedryl injections with it. I sure hope it helps with you. I noticed the difference overnight! I also so someone with badly swollen hands who couldn't work anymore, go back to work after a month on it. It was amazing!
Welcome to the RA team! Feel free to join in the daily chatter tointeract with other people and find out tips to help you cope with this horrible disease!

Never Give Up! When one door closes, I simply kick down another one!!
Stand Tall, Walk Proud-Dani W, Fitness Instructor
You CAN do it!


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4-1HEALTHYCYNDI's Photo 4-1HEALTHYCYNDI Posts: 11,203
10/9/12 2:19 P

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I used Remicade for years with great results until just last year. You do have to be careful with colds and flu's with taking it. But it worked great for me. It took about 3 infusions before I really felt great, but each one at the start helped a little more. Any other questions please feel free to help me. As I'm allergic to sulfa I'm not on sulfasalazine (or at least I assume that's why the doc hasn't suggested it).

HoH Gryffindor, Hogwarts Tri-Term 5, 6, 7
C.A.M.O.Crew, PDT

NEVER GIVE UP, NEVER SURRENDER!

Striving for VES, Vibrant, Elegant & Sexy

www.folhavitoria.com


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SEATTLE58's Photo SEATTLE58 Posts: 4,774
10/9/12 12:38 P

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I'm afraid that I can't help you with any advice on the Remicade or any other biologic because I haven't tried any yet, but are going to, sooner and not later. I'm leaning more and more on having to start on one because the RA regular meds. just aren't kicking it! My next Rheumy appt. is Nov. 19th and then I'll see what more can be done. My insurance isn't all that great, so I'm looking in other avenues to fund them. Medical assistance through the drug co.s and I've also applied for disability and I know that that could help some. It will be intersting to me too, as to what kind of feedback you get along these lines. Good luck to you!
Karen

I'm starting my ticker over with going low carb.

"Little by little whittling my middle!"

Karen




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SUNSHINEBLUE77's Photo SUNSHINEBLUE77 Posts: 119
10/9/12 11:12 A

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Hi all,
After a very rough summer, both RA and nonRA related, I just started Remicade infusions. I had my first last Friday and the next will be I two weeks. Just looking for any feedback or anyone else's experiences. I also started sulfasalazine in August which I have seen no difference with. Any thoughts or advice is greatly appreciated!

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