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SEATTLE58's Photo SEATTLE58 Posts: 4,775
1/4/14 11:12 P

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Wow, thank you so much for your response! I've had those pea sized lumps for so long now it seems. And ya, mine are still there. I've actually forgotten about them being there from time to time, they seem like such a part of me. Interesting that this is just a part of the disease. I can really believe that. Thanks again!

Thank you to everyone else too!

Edited by: SEATTLE58 at: 1/4/2014 (23:14)
I'm starting my ticker over with going low carb.

"Little by little whittling my middle!"

Karen




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CTHCTH1 Posts: 103
1/4/14 10:30 P

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I have the same little "pea" sized lumps under my skin. My rheumy says they are part of the disease. I have had mine for at least 10 years, no matter what medicine I was taking. They have never grown larger and don't hurt unless I press them. So I leave them alone and don't worry about them. Just another one of the idiosyncrasies of this disease!

Cthcth1


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DEDICATED2HIM's Photo DEDICATED2HIM Posts: 3,476
10/19/13 6:59 P

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The fact that I had huge lumps on my fingers and other joints on my hands --is what sent me to a rheumy in the first place. They preceded ever other symptom and preceded all medicines and have never disappeared with any medicine use.... The only difference is that now Ihave them on the other hand as well. Iremember my mom having these ever since I was a little girl. I recall that once she accidentally banged her finger on something and that caused the node to break and disappear....but it hurt acutely when it broke.



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PAT5858 SparkPoints: (272)
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10/9/13 3:35 P

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Karen, the only thing I know for sure is that they don't know enough about this disease! I'm completely off MTX and still growing lumps. I have developed some on the forearm bone, too, I hope they stay small.

SEATTLE58's Photo SEATTLE58 Posts: 4,775
10/9/13 3:18 P

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Thank you so much for what seems to make sense to me. I can never see any one of them visible, it's just as I feel for them. Also, they seem to be really going away. If MTX is actually the cause of them, then since I've switched to Leflunomide over a year ago because the MTX was too strong for me and the cousin Leflunomide is more tolerable. So maybe that's why the lumps are alot less?! Thanks again for your answer!! emoticon emoticon

I'm starting my ticker over with going low carb.

"Little by little whittling my middle!"

Karen




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PAT5858 SparkPoints: (272)
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10/9/13 11:03 A

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Unfortunately, growing lumps of various forms is part and parcel of living with this. Like we didn't have enough going on, right? :(

I am also prone to mucoid cysts in my fingers. I've had three surgeries thus far to remove them. At first I thought they were nodules, but they are mucoid cysts, an area in the joint that pops up and starts out as a round bubble. Sometimes they go away on their own, and others are stubborn and keep growing and morphing until I need to get them all cut out. I tried going off MTX to get rid of them, but that didn't help.

My personal theory after 20 plus years of living with this disease, is that all those dead white blood cells have to go somewhere when they're done "helping" us. I think for some of us, they all pile up in various cysts and lumps. Sigh.

M

SEATTLE58's Photo SEATTLE58 Posts: 4,775
2/22/13 6:13 P

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Thanks for letting me know that your Rheumy told you that it was a part of the disease. My Rheumy referred me to a Dermatologist and I don't think I'll pursue that. I can't really classify them as nodules because these aren't even noticed at all unless you feel for them. It doesn't seem like their near as bad any more. I'll keep tabs on them though.

I'm starting my ticker over with going low carb.

"Little by little whittling my middle!"

Karen




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JKANT88's Photo JKANT88 SparkPoints: (7,096)
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2/22/13 5:28 P

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I get nodules near my elbows usually right after I get my infusion of Orencia and then they go down after a couple days or a week. I used to get them more often when I was on methotrexate and they would be on my fingers sometimes. My RA doc said they were normal for my illness and it is just something I have to deal with. Sorry that isn't helpful, but at least it lets you know that you aren't alone in this and it is probably not something to worry about too much.

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SEATTLE58's Photo SEATTLE58 Posts: 4,775
8/16/12 11:01 A

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Thanks everybody for your prompt replies. I had an appt. with my General Physician yesterday and she thought that it could be fat cells/deposits. Since I have an appt. with my Rheumatologist on the 22nd of this month, she advised me to ask him too, so I will, as I had thought of that too. When losing weight (-62#), these cells will shrink but never completely go away, even if we weigh a measly 100#! It's just that they can show up more with losing alot of fat. Ugh, I hate that word! So that's her thoughts, but it will be interesting to see what my Rheumy says in less than a week now. Wow, August is going fast! Oh, and yes, TINYBUBBA, I will check out the side effects of Plaquenil. I'm surprised I haven't thought of that. Have mainly zeroed in on MTX! emoticon Have a good day!! emoticon

I'm starting my ticker over with going low carb.

"Little by little whittling my middle!"

Karen




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TINYBUBBA1's Photo TINYBUBBA1 SparkPoints: (49,869)
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8/15/12 11:27 A

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I had nodules under the skin - very visible and mostly on wrists, hands, fingers. I had these BEFORE I started taking Methotrexate and Plaquenil. After I'd been on Methotrexate for about 6 months, they disappeared!

I've had a very serious reaction to Plaquenil and had to discontinue it. You might check out the side effects of it.



Tiny
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LISALOSING52's Photo LISALOSING52 SparkPoints: (63,280)
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8/15/12 5:21 A

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Not me but I've only been on my meds for about 10 weeks. I haven't experienced anything like that. I'd call my PCP like Linda suggested and definitely let us know what You find out.

Edited by: LISALOSING52 at: 8/15/2012 (05:22)
If it is to be, it is up to me.


So often times it happens that we live our lives in chains, and we never even know we have the key.

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LJR4HEALTH's Photo LJR4HEALTH Posts: 32,279
8/14/12 7:58 P

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I would call my PCP and have it checked out I'm not on any prescribed meds so I can't say if I experienced due to meds or not Let us know what happens

Linda (Florida - Eastern Standard Time )

I am " (we are) spiritual beings having a human experience " Pierre Teilhard de Chardin

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SEATTLE58's Photo SEATTLE58 Posts: 4,775
8/13/12 10:23 P

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I feel somewhat scared because of noticing very lumpy arms the last month or so. They're right under the skin and aren't noticeable on top. Strange! I don't know if this is caused by RA or if it's something else. I've also had that overbearig itch on the one arm, that we can get as one of the side effects of Methotrexate or Plaquenil. I see my new Rheumatologist this month on the 22nd, so will get these things addressed then. But , I also just might give my general Dr. a call and hash it over with her before the 22nd. I was just wondering if anyone of you had experienced this strange occurence. emoticon

I'm starting my ticker over with going low carb.

"Little by little whittling my middle!"

Karen




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