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BRENDAJ21's Photo BRENDAJ21 Posts: 81
3/13/16 8:43 P

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I have had RA since 1992 and it's getting progressively worse. I have been on all the meds that are out there. Embrel worked wonderful for 3.5 years. Rimmicade did not ever work for me and my Doc kept me on it for over 2 years until I got drug induced lupus from it and IGA. It attacked my kidneys. That was very scary.
I've been on Orencia since 2009. It has been wonderful. It worked great! Didn't even know I had RA. But as usual my RA takes over and it has stopped being effective. My Doc wants me to go on Rituxan but I am really scared of the side effects. Infection running rampant through my body and becoming a veggie isn't my idea of a party.
She said we were running out of meds to use. I asked what will I do. She says start the cycle over. They had no meds for RA when I started this journey.
I was very afraid of Orencia when I started but was calmed by a user on this site that had been on it for 4 years. So again I am asking for your help with Rituxan. Thank you.

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PEDODGEBALL's Photo PEDODGEBALL Posts: 413
9/7/12 10:06 A

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I have been on rituxin with very little help for me. I am now on Orencia and that isn't doing much for me either. My rheumatologist and i will be deciding if there will be a switch of meds soon. I hope the rituxin works for you!


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BKWERM's Photo BKWERM SparkPoints: (128,644)
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9/1/12 6:28 P

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Sorry for the late response. I'm on Rituxan. I've been taking it since the summer of 2009 and it appears to be working well for me. I have had no side effects that I know of, which is great since almost everything else I've tried has had side effects.

Joanna from Dundas, Ontario

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TINYBUBBA1's Photo TINYBUBBA1 SparkPoints: (73,025)
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8/2/12 11:55 A

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Hey Myranda!

I've not ever been on Rituxan or heard of anyone who is on it. I've been on Remicade since January and still haven't experienced any relief that I can detect. If that's still the case at the end of the year, I'll be switching - or getting off Remicade.

Wish I could give you more info, but don't know anything about Rituxan.

Good luck. I hope it works for you.

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4CYNDI's Photo 4CYNDI Posts: 13,475
8/1/12 4:49 P

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I've never been on Rituxan but if what you are on has stopped being effective it may be time to make the change. Last year I changed from Remicade to Actemra because I wasn't getting the relief I'd had for the previous 6 years. As for will it work for you? That is something to be discovered as everyone is different in my personal experience. My rheum has used Rituxan for other patients though with great success.

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MYRANDAK's Photo MYRANDAK Posts: 51
8/1/12 4:41 P

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Hi,

My RA is acting up; increased feet swelling, increased fatigue, increased pain/soreness. So, my rheumatologist would like to switch me. Does anyone have anything to share about their experience on rituxan? Side effects? Does it work? Thankfully, if I want it my insurance will cover it.

Any feedback is GREATLY appreciated!
Thanks!

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