10 Things Iíve Learned From Living With Chronic IllnessEmailShare
1. Getting all of the rest that I need does not make me lazy. Even when Iím not moving, my body is expending a huge amount of energy on powering its overactive immune system, and on defending itself from the subsequent pain and inflammation. So while many times it might look like Iím not doing much, Iím still probably doing more than most others.
2. No matter how much it hurts, I still have to find a way to move. (Of course, Iím not advocating for movement that results in injury/harm.) During one of my first major bouts, I thought that the best thing to do was to move as little as possible. This really didnít lower the pain, but it did eventually result in atrophied muscles, months of daily physical therapy, and having to learn how to walk again.
3. If Iím going to be in pain, I might as well be doing something that I enjoy. I may not be able to do certain things like I once used to be able to, but chances are I can still do more than what I thought possible. Learning this lesson, firsthand, is priceless for my mind, body, and soul.
4. And for those moments when itís just not possible to do something, cancelling at the last minute is perfectly acceptable. Iíll be honest, and Iíll tell you the exact reasons why Iím not able to participate. Please donít take it personallyÖIím just as disappointed, if not more, than you are.
5. If you are a doctor or healthcare professional, you must earn my respect. I, the patient, will work just as hard to earn your respect. I will ask lots of questions, and I will listen to what you have to say. When it comes to treatment options, though, I will be the final decision maker. (After all, no one knows my body better than I do.)
6. Achieving acceptance is hard. (I used to think that doing so meant ďgiving up.Ē) Just when it feels like Iíve accepted everything there is about my illness, something pops up, and I want to deny everything, all over again. With chronic illness, I donít think there is such a thing as ďcompleteĒ acceptanceÖthereís just a continuous journey, back and forth, between denial, acceptance, and so many other emotions.
7. No matter how bad Iím feeling, no matter how much pain Iím in, itís *not* okay to take out my anger and frustrations on other people, especially those who are close to me. Yes, itís fineĖsometimes even healthyĖto feel angry and frustratedÖbut I have to know how to release this energy in a way that doesnít harm myself, or those around me.
8. Never, ever, compare my pain and illness to those of others. My illness is mine, and mine alone. Iím completely entitled to feel everythingĖemotions, symptoms, and otherwiseĖthat results from living with my illness. (Iím entitled to feel everything, that is, except shame.)
9. While a positive attitude isnít going to ďcureĒ me of my illness, itís certainly going to make it easier to overcome the challenges that I encounter on a daily basis. Yes, I do have occasional periods of doom and gloomÖbut I make a point to pass through them as quickly as possible. The mind is a powerful tool, and I must use it to my advantage.
10. Just when it feels like my world is going to fall apart, the best thing for me to do is to sit down, and take a deep breath. And another one. And another oneÖuntil I realize that everything is indeed okay.
Stay tunedÖfor the next adventure of Rheumatoid Arthritis Guy!
Thought this would be good reading as well
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