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DEDICATED2HIM's Photo DEDICATED2HIM Posts: 3,562
9/10/14 5:09 P

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I'm sorry Joanna, It may be that it is only in the USA.


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DEDICATED2HIM's Photo DEDICATED2HIM Posts: 3,562
9/10/14 5:08 P

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hi Carynnicki
Thanks so much for looking at the tons of information we have here on this site. You will find, not only information, but caring and concerned people who are full of advice and who will cry with you should you need a shoulder.

Welcome!
Cynthia


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CARYNRICKY525's Photo CARYNRICKY525 Posts: 1,793
9/9/14 8:44 P

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After months and months of being in pain "thinking it was just me working hard in the gym" and don't cry about the pain because I was working on those areas in the gym. The pain was getting worse where I couldn't walk for 2 days while my hip was sore, then recently I couldn't open my hand and my wrist was swollen. My doctor drew tons of blood work and I was just diagnosed with RA. I have an appointment with the Rheumatologist next month.

I already found this Forum very helpful!!

Edited by: CARYNRICKY525 at: 9/11/2014 (12:17)
I'm Making Progress, One Step At A Time!

MY RESOLUTION:
I'm in the process of climbing this mountain until I reach the very top.

MY ULTIMATE GOAL: Take it one day at a time!


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BKWERM's Photo BKWERM SparkPoints: (97,863)
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7/11/14 5:29 P

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Thank you, Cynthia. I looked for this app in the app store but it said nothing was found. Maybe it's only American?

Joanna from Dundas, Ontario
BLC20-26 - Amber Amazon Warriors
Eastern Daylight Time (EDT)

Co-Leader of Living With Rheumatoid Autoimmune Disease (RAD)


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DEDICATED2HIM's Photo DEDICATED2HIM Posts: 3,562
7/10/14 4:50 A

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here is a resource that came to my email today. WEGO is a legitimate group that looks for and then supports "health activists" - particularly people who blog about their illness.

Dear Health Activist,
Have you seen the new rheumatoid arthritis app in the iTunes® store or the Google Play™ store? If not, we encourage you to check it out!
This educational app, developed by Pfizer, is an interactive experience in which users will affect proteins involved in inflammation, some of which promote inflammation and some of which reduce inflammation. The app also provides facts about rheumatoid arthritis and a treatment option!
Interested? Download the app today from either the iTunes® store or the Google Play™ store. Search the stores for “Swiper Pfizer.”
Cheers,
WEGO Health Team


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6/24/14 8:23 A

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Wow!! Great resources!!! Thank you!

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DEDICATED2HIM's Photo DEDICATED2HIM Posts: 3,562
6/2/14 5:15 P

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hi Joanna, thanks for this link...some yummy looking recipes.


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6/2/14 1:11 P

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I just ran across this article and since our Team Links appear to be gone, I'm posting it here:

www.healthline.com/health/rheumatoid
-a
rthritis/seven-day-meal-plan


Joanna from Dundas, Ontario
BLC20-26 - Amber Amazon Warriors
Eastern Daylight Time (EDT)

Co-Leader of Living With Rheumatoid Autoimmune Disease (RAD)


Happy and healthy people have a better chance to live with confidence and contribute value to the world than anyone else. Don't take that for granted. ~ James Clear ~


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JANISMKW's Photo JANISMKW SparkPoints: (56,668)
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4/24/14 11:42 A

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To quote Angel1066 on this thread in 2011:
"Let's not forget a major #1 resource, www.arthritis.org, www.www.arthritis.org/ , with info on the disease drug & non-drug treatments, research, possible local groups & classes, related ailments, all kinds of things."

It is the Arthritis Foundation and addresses RA, PsA, JA, OA, etc.

They now have 6 different free e-newsletters you can receive. I also subscribe to their magazine Arthritis Today. You can get a free issue of it: www.afstore.org/Products-By-Type/Mag
az
ines
. There are also free brochures and other resources, including lots on social media.
Wishing you all a great day! emoticon

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HAPPYLADY1953's Photo HAPPYLADY1953 Posts: 12
4/24/14 10:02 A

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I found this site very interesting. Thanks for sharing.

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HAPPYLADY1953's Photo HAPPYLADY1953 Posts: 12
4/24/14 9:57 A

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Thanks for the website. I checked it out.

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DEDICATED2HIM's Photo DEDICATED2HIM Posts: 3,562
4/11/14 6:40 A

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there is a new RA community and website full of resources on RA at sharinghub.wegohealth.com/ra-
patient-r
esources?_

It is related to a new RA drug: Xeljanz but there is a lot of info on the site about RA ,not just about the drug. I hope you find this helpful.


Edited by: DEDICATED2HIM at: 4/11/2014 (06:42)

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HAPPYLADY1953's Photo HAPPYLADY1953 Posts: 12
3/31/14 9:06 A

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I just recently went to a rheumatologist and have been put on Methotrexate. I read it takes time to get into your system and I wish it would hurry. The pain in my wrists and shoulders are sometimes unbearable.

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DEDICATED2HIM's Photo DEDICATED2HIM Posts: 3,562
3/15/14 11:03 A

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Here is another site....they offer a free symptom log notebook...and some other resources.

www.rheumatoidarthritis.com/Joint-Ca
re
?cid=raf_SO_MIUARAPS0108&c=MIUARAPS0R>108&utm_source=facebook&utm_medium=c
pc
&utm_ad=Icing+Pain+from+RA&utm_c
ampaig
n=2013+RA.com+Joint+Care+Page



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SBECKER526's Photo SBECKER526 Posts: 1,493
6/13/13 12:45 P

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I have rheumatoid arthritis, psoratic arithritis, and vitiligo. I suffer from Barrett's esophagus so many of the newer drugs cannot be used.

I am on my way to better health!


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BETRME100's Photo BETRME100 SparkPoints: (86,423)
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5/17/13 7:54 P

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I'm sure this blog has already been mentioned (heck, I probably found it here), but I thought it was worth mentioning again.

rawarrior.com

I've found a lot of info here. A lot of things that I think, 'oh yeah, now I get it'...and other people do too.

Kit

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BETRME100's Photo BETRME100 SparkPoints: (86,423)
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5/16/13 3:03 P

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As someone just recently diagnosed with RA, this thread is so helpful for me. Thanks!

Kit

Opportunity dances with those who are already on the dance floor.
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KOALA93's Photo KOALA93 SparkPoints: (14,466)
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3/20/13 10:32 P

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Wow!!! what great information in this thread! I can't wait to check into some of these sites and incorporate them into the management of my RA. Thanks for starting this thread.

His Grace is Enough (2 Corinthians 12:9)

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DEDICATED2HIM's Photo DEDICATED2HIM Posts: 3,562
12/13/12 8:26 A

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Debbie, I have PsA (Psoriatic ARthritis)....Normally it is more mild than RA however if you have it bilaterally on the same joints on both sides of your body (as I do), it can be ferocious and destructive.... Definitely get yourself to a rheumatologist who is able to identify it who will give you the medicine you need. I'm glad my link helped.


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DEBBIERNDDHC's Photo DEBBIERNDDHC Posts: 461
12/12/12 11:22 A

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When i saw the post about psoriatic arthritis resources, i about cried. I have been struggling now for several years with a diagnosis. It seems that no one wants to call it something, but that is also preventing me from getting more advanced treatments. I did not test positive for the Ra factor, but i do have psoriasis already and i have gone from just knee pain to bilateral wrist and elbow and hands. Some days i can't even open the darn tube of lipstick. i just got off a second round of steroids, trying to bring this recent flare up under control. but i hope the psoriatic arthritis site will give me some resources. thanks! emoticon

DEDICATED2HIM's Photo DEDICATED2HIM Posts: 3,562
11/9/12 8:35 A

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here is another slideshow of exercises and stretches www.rxlist.com/exercises_rheumatoid_
ar
thritis_slideshow/article.htm



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DEDICATED2HIM's Photo DEDICATED2HIM Posts: 3,562
11/9/12 8:30 A

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here is a slideshow of exercises for RA. At the end of the slideshow is a list of more resources, for RA and for things like healthy spine and spondylosis.

www.spineuniverse.com/resource-cente
r/
ra-lifestyle/rheumatoid-arthritis-exR>ercises-slideshow?page=0#top



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DEDICATED2HIM's Photo DEDICATED2HIM Posts: 3,562
10/9/12 2:02 A

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a resource used to promote awareness of RA...a collage of hands of people suffering from autoimmune disease. My hands are in it also. You can get a photo of your hands put into the collage and they have a poster of the first 400+ people who contributed which would make a great gift to your rheumy for his office. While my hands were far from the best, they were not the worst either. Some people really suffer. My mom's hands look like the worst of these pics. Go and check it out.
http://www.showusyourhands.org/inflammat
ory-arthritis-community-collage/







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DEDICATED2HIM's Photo DEDICATED2HIM Posts: 3,562
10/8/12 9:04 A

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this is an EXCELLENT blog by a man with RA....Please spend some time here reading ....It is well worth it.
http://www.rheumatoidarthritisguy.com/


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ANGRITTER's Photo ANGRITTER SparkPoints: (85,580)
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10/5/12 1:16 P

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This one isn't all about RA, but has a little bit of everything regards types of arthritis in it.

I get a bi-weekly or monthly email form Carol Eustis that shows all the new stuff. But this is the address for the RA specific area. Sign up for the e-mails to get up to date info on all types of arthritis.

arthritis.about.com/od/rheumatoidart
hr
itis/Rheumatoid_Arthritis_Cause_DiagR>nosis_Symptoms_Treatment.htm


Angela, Sparking since 6/18/2012
Jacksonville, FL
*Keep moving forward! Ask for Peace, Believe in Love, & Give Understanding!

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DEDICATED2HIM's Photo DEDICATED2HIM Posts: 3,562
6/8/12 9:38 A

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yet ANOTHER RA website...I haven't looked at this one too closely yet, but I will.
www.risesupport.com/index.html


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DEDICATED2HIM's Photo DEDICATED2HIM Posts: 3,562
6/3/12 8:18 A

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here is something that looks like it could be right down our alleys. Check it out! A site that helps you design an RA specific fitness program.! www.myrafitkit.com/?default.aspx?v=R
A3
40



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DEDICATED2HIM's Photo DEDICATED2HIM Posts: 3,562
5/23/12 1:32 P

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this website keeps popping up on my Facebook page....and if probably does on all of yours as well....so feel free to ignore it if you 've already explored this.

www.rheumatoidarthritis.com/ra/lifeg
ui
de/default.htm?c=MIACRAF511P1169&cidR>=act_we_F009000_P001045&utm_source=F
ac
ebook&utm_medium=FB5


they have all kinds of tips for people with RA. I haven't fully looked it over...but it seems to have quite of a bit of advice. Would be interested to hear if any of you have explored this already or if you are now for the first time, what do you think of it??



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PURPLEWOLF80's Photo PURPLEWOLF80 Posts: 55
3/23/12 2:55 P

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Thank-you very much for the hint/suggestion Cynthia. I will keep that in mind. Since I am a newly diagnosed person I still don't know the best way to let my rheummy know how I feel throughtout the time he doesn't see me.
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DEDICATED2HIM's Photo DEDICATED2HIM Posts: 3,562
3/23/12 2:43 A

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This isn't a resource so much as a suggestion/hint: When you are experiencing a bad day and a body part is red or swollen, just snap a photo of it...bring your camera , laptop or prints to your next rheumy appointment. The tend to go by just how you look the day they see you, never mind that a week ago your couldn't crawl to standing. I did this once and my rheumy was stunned to see how swollen my hands can get and she thanked me fort the pics.


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DEDICATED2HIM's Photo DEDICATED2HIM Posts: 3,562
2/21/12 5:00 P

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For those of us with PsA ((Psoriatic Arthritis)) ...we can find it to be a huge struggle to get information. There is loads of it for RA but almost nothing on PsA....This is because PsA is classified as a Rare Disease because of the relatively low number of sufferers. Here is a website (based in the UK) which is packed full of info on PsA. I felt like I'd stumbled on a treasure when I found this.
www.papaa.org/tiki-custom_home.php

And here is a page in that site with some great hand exercises and other tips we can all benefit from:
(if you go to the following link you can download a number of pamphlets and articles for free. If you download the one called PHyisiotherapy and PsA there are some good exercises in it as well as general advice for sufferers.))

www.papaa.org/tiki-list_file_gallery
.p
hp?galleryId=3


I hope this helps someone.


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DEDICATED2HIM's Photo DEDICATED2HIM Posts: 3,562
2/21/12 4:32 P

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This is important to those of us who take MTX.....AS you may have heard there has been a terrible shortage of the drug...and the injectible MTX has been unavailable for months. Today a new supplier of the med Ben Venue Labs located in Ohio....has JUST BEEN APPROVED...literally moments ago.

GOOD news for us.
AMAZING news for the young kids with lymphoma whose lives depend on this drug!



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ARTIELLE's Photo ARTIELLE Posts: 409
2/21/12 2:35 P

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Thank you all SO MUCH!! I just found this thread and will be back here many times I'm sure to check out the suggested sites. I am especially grateful for the exercises as my hands are starting to get very stiff and hard to use.
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ANGEL1066's Photo ANGEL1066 SparkPoints: (70,701)
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2/17/12 8:04 P

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Thanks, Cyndi! I had also done most of these but unfortunately did not keep doing them regularly. I find that I can now only touch thumb to index finger on both hands, and thumb to second finger only on the left. None of the others will touch without pushing them into position with the opposite hand, and some not then. Wish I had kept exercising them. Will add those I can do to my tri-weekly stretch routine. You younger folk, take the warning! Do what you can to keep what you've still got! emoticon

"Mountains DO move...One stone at a time." ~Rick Beneteau
Do not let what you cannot do interfere with what you can do. - John Wooden, Hall of Fame college basketball coach
With exercise, doing some is always better than doing none. - Spark article
MAKE THE BEST FOOD CHOICES YOU CAN TODAY - and then, try it again tomorrow!- Dr. John La Puma, M.D.


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4-1HEALTHYCYNDI's Photo 4-1HEALTHYCYNDI Posts: 11,606
2/17/12 12:47 P

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Here is a link for some good hand/wrist stretches that came across my inbox today. I have used most of them but some of them were new for me too.

www.realage.com/joint-pain/hand-exer
ci
ses?eid=1010657072&memberid=14982684R>&cbr=pru_pr#fbIndex5


Cyndi Gryffindor,

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1/30/12 7:42 P

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Great site. Thanks!

"Mountains DO move...One stone at a time." ~Rick Beneteau
Do not let what you cannot do interfere with what you can do. - John Wooden, Hall of Fame college basketball coach
With exercise, doing some is always better than doing none. - Spark article
MAKE THE BEST FOOD CHOICES YOU CAN TODAY - and then, try it again tomorrow!- Dr. John La Puma, M.D.


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DEDICATED2HIM's Photo DEDICATED2HIM Posts: 3,562
1/30/12 7:14 P

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here is a website you can give to all your friends and family and tell them to get you stuff from it for birthday and Christmas gifts. It has every imaginable piece of adaptive equipment for people with RA...its' especially designed for RA sufferers! A little pricey..but I want so many of the things there...you can bet I'll be shopping there.

www.arthritissupplies.com/site/37192
8/
page/45029


happy shopping ladies!


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MADS12 Posts: 59
1/19/12 6:08 A

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Message no longer valid, as I completed my requirements.

Thank you,
M.

Edited by: MADS12 at: 2/1/2012 (20:50)
Be Present; you can give yourself a break during the day by taking ONE conscious breath. Slowly follow your inbreath and your outbreath.


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DEDICATED2HIM's Photo DEDICATED2HIM Posts: 3,562
1/11/12 5:33 P

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GREAT Joanna, thanks...I have really missed yoga..maybe this one I can try...



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BKWERM's Photo BKWERM SparkPoints: (97,863)
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1/11/12 5:23 P

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If you want a really good yoga DVD, which is good for people who can't get down on the floor, this one is good and it's on sale at collagevideo.com this week for $6.98:

www.collagevideo.com/item.aspx?item=
57
12


Edited by: BKWERM at: 1/11/2012 (17:24)
Joanna from Dundas, Ontario
BLC20-26 - Amber Amazon Warriors
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Co-Leader of Living With Rheumatoid Autoimmune Disease (RAD)


Happy and healthy people have a better chance to live with confidence and contribute value to the world than anyone else. Don't take that for granted. ~ James Clear ~


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ANGEL1066's Photo ANGEL1066 SparkPoints: (70,701)
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1/6/12 12:05 A

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Looks like a very useful item - Thanks for posting! emoticon

"Mountains DO move...One stone at a time." ~Rick Beneteau
Do not let what you cannot do interfere with what you can do. - John Wooden, Hall of Fame college basketball coach
With exercise, doing some is always better than doing none. - Spark article
MAKE THE BEST FOOD CHOICES YOU CAN TODAY - and then, try it again tomorrow!- Dr. John La Puma, M.D.


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DEDICATED2HIM's Photo DEDICATED2HIM Posts: 3,562
1/5/12 8:58 A

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This is my favorite RA helpful utensil of all time...It will open ALMOST any jar or bottle...with EASE...well worth every cent;

home.pronto.com/mpm/compare/kitchen-
an
d-housewares-oxo-good-grips-10800165156


I would recommend it to anyone...


https://www.amazon.com/author/cynthiavogel

www.cynthialottvogel.blogspot.com


soulstrains.weebly.com


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MADS12 Posts: 59
12/27/11 11:23 A

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Hello All,

One of my goals as I mentioned is to bring back daily meditation into my life. Research has shown how beneficial meditation is for individuals suffering from pain. I have an article that I would like to share with you should meditation appeal to you too. See the abstract below. Feel free to send me an email and I will be happy to forward the full article to you.

Abstract: This study compared secular and spiritual forms of meditation to assess the benefits of a spir- itual intervention. Participants were taught a meditation or relaxation technique to practice for 20 min a day for two weeks. After two weeks, participants returned to the lab, practiced their technique for 20 min, and placed their hand in a cold-water bath of 2◦C for as long as they could endure it. The length of time that individuals kept their hand in the water bath was measured. Pain, anxiety, mood, and the spiritual health were assessed following the two- week intervention. Significant interactions occurred (time × group); the Spiritual Meditation group had greater decreases in anxiety and more positive mood, spiritual health, and spiritual experiences than the other two groups. They also tolerated pain almost twice as long as the other two groups. Researchers: Amy B. Wachholtz and Kenneth I. Pargament.
Madeleine

Be Present; you can give yourself a break during the day by taking ONE conscious breath. Slowly follow your inbreath and your outbreath.


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GADGETGEEK's Photo GADGETGEEK Posts: 867
12/26/11 5:12 P

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Hi all,
Bkwerm asked that I post this site here, the site is for Kangoo Jumps. They are rebound boots that allow you to work out and the boots absorb about 80 percent of the impact. They create low impact workouts out of high impact routines. I got a pair for my birthday from DH and I love them. I have a bad back (no disk left between a couple of my vertebrae) plus problems with my lower joints, so any kind of land aerobics were out. With these boots though I have gone bouncing around the house and dancing to really up beat music and no impact pain. I still have to watch that I don't over do it though, still fight the fatigue monster... here is the link if anyone is interested.

www.kangoojumps.ch



I am in the Mountain Time Zone, USA, Southern New Mexico

“Life isn't about finding yourself. Life is about creating yourself.”
-George Bernard Shaw


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ANGEL1066's Photo ANGEL1066 SparkPoints: (70,701)
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12/13/11 9:20 P

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Interesting site. Thanks.

"Mountains DO move...One stone at a time." ~Rick Beneteau
Do not let what you cannot do interfere with what you can do. - John Wooden, Hall of Fame college basketball coach
With exercise, doing some is always better than doing none. - Spark article
MAKE THE BEST FOOD CHOICES YOU CAN TODAY - and then, try it again tomorrow!- Dr. John La Puma, M.D.


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DEDICATED2HIM's Photo DEDICATED2HIM Posts: 3,562
12/12/11 11:59 P

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Another very helpful site I recently discovered: www.patientslikeme.com/ Patients Like Me....which links you up to patients all around the world who have the same illnesses or conditions you do. You can look at their profiles and compare notes. Also you answer questions or fill out surveys...and then you get to compare your answers to those of everyone else (by percentages) and see how close or far you are from the average or norm. You can track and monitor your condition as it progresses...and see during what seasons or in what weather or what conditions exacerbate it.

A word of warning. The site is funded by the sale of information. Your information and everyone's who uses the site. do not share anything you don' t want to become public ...however it is all separated from your personal identity...so remains anonymous. All identifying factors are removed from it for sale. I t is sold to researchers. and product developers and drug companies. And ultimately, all that info will only benefit you and others who have the disease as it results in better drugs, treatments, products, and hopefully , ultimately a cure.


https://www.amazon.com/author/cynthiavogel

www.cynthialottvogel.blogspot.com


soulstrains.weebly.com


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DEDICATED2HIM's Photo DEDICATED2HIM Posts: 3,562
12/1/11 6:16 A

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There is a GREAT site, a blog, a facebook page and tons of articles called the :"RA WARRIOR" found at: rawarrior.com/ (please also check out her Facebook page as there is constant discussion and support taking place there...It is a really supportive community of people.) Kelly Young is young minister's wife who suffers greatly from RA and she has decided to do something to help all "RA Warriors" everywhere. She has taken her cause to Washington DC and to many other places, trying to advocate for the cause of people who suffer this disease. She is determined to get it recognized by people as a debilitating disorder despite it's "invisibility." She is also active in the "e-patient" movement (which stands for "empowered patients" - people who 've taken responsiblity for managing their illness and who are insisting that their doctors listen to them and hear them and agree to work with them in treating their illness.

Look around at the link posted and go to her FB page and "friend" her--there is a TON of info there which ranges from practical day-to-day managing to advocating for yourself and your illness both with the people you deal with daily and in government.


https://www.amazon.com/author/cynthiavogel

www.cynthialottvogel.blogspot.com


soulstrains.weebly.com


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PEDODGEBALL's Photo PEDODGEBALL Posts: 413
10/27/11 11:47 A

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I have had Ra for some 16 years. i was able to exercise but now after being put on a walker my exercise level is gone. I have to have a knee replacement nov.7th so my exercise level has gone down. The only exercise I do is my rehab. exercises but it just isnt enough.
I have put about 30lbs on since I have been on a walker and not able too do anything for that long. I can't wait to get back on track and lose some weigh.
Good luck on your venture and stay positive, the weigh will come off.
Jeanne

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ANGEL1066's Photo ANGEL1066 SparkPoints: (70,701)
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To Marnie, especially - When I am in a flare with deep pain I seek out a warm pool or hot tub and do range of motion exercises, as many as I feel able. Back in the stone age, when I was diagnosed, there was little more than aspirin in the medicine cabinet to fight arthritis, but my ol' doc recommended warm water exercise & that is still a good weapon against it. A warm bath tub will help if that is all you have, and if you can still get down & up in it. Gently put those knees thru their paces, hands, feet and ankles, too. Gently done Yoga is another great way to exercise, without getting wet. Stronger Seniors has videos onhow to do it, with sample cuts on Ann Burnell's Blog. Google her for good ways to exercise when your mobility is limited by pain or disability.

Edited by: ANGEL1066 at: 9/12/2011 (22:01)
"Mountains DO move...One stone at a time." ~Rick Beneteau
Do not let what you cannot do interfere with what you can do. - John Wooden, Hall of Fame college basketball coach
With exercise, doing some is always better than doing none. - Spark article
MAKE THE BEST FOOD CHOICES YOU CAN TODAY - and then, try it again tomorrow!- Dr. John La Puma, M.D.


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NEED2BMOVING's Photo NEED2BMOVING Posts: 40
9/12/11 8:01 P

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Hi my name is Mamie and I was here few months ago, when i first started having pains in my legs terribly and i was in the process of being seen by drs. Well i do have some form of arthirits but i dont no if its RA or not..and since then, my med. cabinet has been fillin up and my exercising has been decreasing. I work full time and im on my feet all day, with kneeling and struggling to get back up on a daily basis or shall i say all day basis...got the VitD3, and some others Vit D..pain pills, calcium and other vits, and Im still in so much pain....I wanna exercise but i want to do it pain free...help me

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JUDITHWITHROW's Photo JUDITHWITHROW Posts: 1,119
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Lots of great tips here. Love the pain tracking site!!!!!! Interesting comment about hormones and RA....think that is true for me.

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LOTUSBURGER's Photo LOTUSBURGER SparkPoints: (72,424)
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6/1/11 5:37 P

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lol.... I joined the community and the article loaded up for me.

The site seems to have tons of info, so thanks for the link!



MST


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HONEYSEWS's Photo HONEYSEWS Posts: 627
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Good article, will look into the side sleeper pillow for DH.

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4-1HEALTHYCYNDI's Photo 4-1HEALTHYCYNDI Posts: 11,606
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I got creative, thanks for sharing. I copy/pasted to a word doc during the 15 seconds it was visible. LOL!

Cyndi Gryffindor,

C.A.M.O.Crew, PDT

NEVER GIVE UP, NEVER SURRENDER!

Striving for VES, Vibrant, Elegant & Sexy

www.folhavitoria.com


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ANGEL1066's Photo ANGEL1066 SparkPoints: (70,701)
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5/27/11 12:57 P

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I tried my link below again & stuck around to see if it would change, but it never did.Tried yours, Cyndi, but got a "this page doesn't exist" message. I have no idea why you should be having this problem. Any problems with other links? You could try loading just www.arthritisconnect.com/discussions and navigating further from there.

"Mountains DO move...One stone at a time." ~Rick Beneteau
Do not let what you cannot do interfere with what you can do. - John Wooden, Hall of Fame college basketball coach
With exercise, doing some is always better than doing none. - Spark article
MAKE THE BEST FOOD CHOICES YOU CAN TODAY - and then, try it again tomorrow!- Dr. John La Puma, M.D.


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4-1HEALTHYCYNDI's Photo 4-1HEALTHYCYNDI Posts: 11,606
5/27/11 11:48 A

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It loads, I see the page for about 15 seconds and then I get this screen.
www.arthritisconnect.com/discussions
/5
219


Cyndi Gryffindor,

C.A.M.O.Crew, PDT

NEVER GIVE UP, NEVER SURRENDER!

Striving for VES, Vibrant, Elegant & Sexy

www.folhavitoria.com


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ANGEL1066's Photo ANGEL1066 SparkPoints: (70,701)
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5/26/11 9:14 P

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I tried the link & it loaded right up. Try again. Maybe it was a temporary overload,or a problem with your computer.Sorry it wouldn't work for you.

"Mountains DO move...One stone at a time." ~Rick Beneteau
Do not let what you cannot do interfere with what you can do. - John Wooden, Hall of Fame college basketball coach
With exercise, doing some is always better than doing none. - Spark article
MAKE THE BEST FOOD CHOICES YOU CAN TODAY - and then, try it again tomorrow!- Dr. John La Puma, M.D.


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4-1HEALTHYCYNDI's Photo 4-1HEALTHYCYNDI Posts: 11,606
5/26/11 7:23 P

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I like the site but I couldn't get that article to load.

Cyndi Gryffindor,

C.A.M.O.Crew, PDT

NEVER GIVE UP, NEVER SURRENDER!

Striving for VES, Vibrant, Elegant & Sexy

www.folhavitoria.com


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ANGEL1066's Photo ANGEL1066 SparkPoints: (70,701)
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5/26/11 9:54 A

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I FOUND AN ARTICLE with good suggestions about how to get a decent night's sleep with arthritis pain, and thought some of you who might also be dealing with this problem could use its suggestions. See it at
www.arthritisconnect.com/discussions
/6
02-let-s-talk-about-sleep-and-arthriR>tis?continues=5219&utm_campaign=ACN2
01
10526&utm_medium=Arthritis&utm_s
ource=
EmailNewsletter


"Mountains DO move...One stone at a time." ~Rick Beneteau
Do not let what you cannot do interfere with what you can do. - John Wooden, Hall of Fame college basketball coach
With exercise, doing some is always better than doing none. - Spark article
MAKE THE BEST FOOD CHOICES YOU CAN TODAY - and then, try it again tomorrow!- Dr. John La Puma, M.D.


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LOTUSBURGER's Photo LOTUSBURGER SparkPoints: (72,424)
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5/17/11 1:27 A

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Thank you all for your ideas.
I will try to encourage her to
get into a pool! That would be great for her and I know she likes to
swim. I know I'm trying not to be pushy, thanks for the reminder.

I'll ask about a phicysal therapist specializing in RA too. THANKS!

MST


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5/10/11 7:51 P

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LOTSABURGER: I second the pool idea - it is the best, for anyone. If she won't do that, or feels too puny, check out the CHAIR EXERCISE team for ideas - she can start exercising seated and hopefully work up to something more strenuous, as I did. You might try to find a physical therapist knowlegable about RA, they can be a real help & motivator. So can reading the success stories on Spark, such as INDYGIRL'sstory. Those prove that you can come a long way back from disability. Sometimes we give up from lack of hope - we need to see a reason to try. Been there myself. I also have RA in hips, feet, hands, pretty much all over. I'm still moving, tho, since figuring ways around these maladies. God Bless your efforts with her!

"Mountains DO move...One stone at a time." ~Rick Beneteau
Do not let what you cannot do interfere with what you can do. - John Wooden, Hall of Fame college basketball coach
With exercise, doing some is always better than doing none. - Spark article
MAKE THE BEST FOOD CHOICES YOU CAN TODAY - and then, try it again tomorrow!- Dr. John La Puma, M.D.


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4-1HEALTHYCYNDI's Photo 4-1HEALTHYCYNDI Posts: 11,606
5/10/11 1:49 P

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Lotusburger, I would recommend to start with easy stretching and pool exercise if she has access to one. Those two combined really helped me get the flexibility and movement back before I started doing on land exercises. There are a lot of good videos on spark people to help get started. Make sure she has authorization from her doctor to exercise.

Also you might look into several physical therapy sessions with a therapist familiar with RA. They can really help set up a program to get started.

Cyndi Gryffindor,

C.A.M.O.Crew, PDT

NEVER GIVE UP, NEVER SURRENDER!

Striving for VES, Vibrant, Elegant & Sexy

www.folhavitoria.com


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KELBSTAR Posts: 287
5/10/11 9:56 A

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I'd say to take it easy on her. For some, any movement is very difficult. I have found that finding a pool to exercise in is the best for me and the easiest on my joints and pain. I wish you the best of luck, she is lucky to have a daughter like you, willing to learn more to help her out!

LOTUSBURGER's Photo LOTUSBURGER SparkPoints: (72,424)
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5/9/11 7:43 P

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Great thread! I don't have RA but my Mom does.
I am looking into some sites to help her.
She just hurts too much to get up and exercise
and I don't know what to do to encourage her.
I'm checking out some of the links listed.
She has RA in her hips, feet and hands so
if anyone has any other suggestions, I'd really
appreciate it!

Edited by: LOTUSBURGER at: 5/9/2011 (20:02)
MST


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LINDAJOYWK's Photo LINDAJOYWK Posts: 5,490
4/9/11 6:50 A

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Interesting site!

"It's not the mountains ahead that wear you out-it's the grain
of sand in your shoe"-unknown


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4-1HEALTHYCYNDI's Photo 4-1HEALTHYCYNDI Posts: 11,606
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I found this in my inbox this morning. I think it has a great explanation of good hand exercises to keep the fingers/hands/wrists limber.

www.everydayhealth.com/rheumatoid-ar
th
ritis/6-hand-exercises-for-rheumatoiR>d-arthritis.aspx?xid=nl_EverydayHeal
th
LivingWithRheumatoidArthritis_20110407


Cyndi Gryffindor,

C.A.M.O.Crew, PDT

NEVER GIVE UP, NEVER SURRENDER!

Striving for VES, Vibrant, Elegant & Sexy

www.folhavitoria.com


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LINDAJOYWK's Photo LINDAJOYWK Posts: 5,490
4/3/11 8:18 A

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I really need to get back to this group-I think I like to be in denial about this.Sometimes,
especially as a 50+ woman in the work place-weakness can bring you down. I guess I don't
like to show weakness,but maybe it would be good to be with people who understand.

"It's not the mountains ahead that wear you out-it's the grain
of sand in your shoe"-unknown


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ANGEL1066's Photo ANGEL1066 SparkPoints: (70,701)
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3/31/11 11:20 A

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RA SYMPTOMS frequently flare up in response to hormonal changes - I first felt symptoms at pueberty, tho not diagnosed for a few years. I had a long remission in my twenties, then flared greatly after the birth of my son, another great hormone shift. Do you have a link for Dr. Weil's anti-inflammatory diet? I am interested in learning about nutritional aids. Need all the help I can get. Doing better now with Spark diet counseling, low sugar, no processed foods or white flour foods, lots of fruit & veggies - are his recommendations similar?

"Mountains DO move...One stone at a time." ~Rick Beneteau
Do not let what you cannot do interfere with what you can do. - John Wooden, Hall of Fame college basketball coach
With exercise, doing some is always better than doing none. - Spark article
MAKE THE BEST FOOD CHOICES YOU CAN TODAY - and then, try it again tomorrow!- Dr. John La Puma, M.D.


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KKARIGARDNER's Photo KKARIGARDNER Posts: 57
3/31/11 1:16 A

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My regular Dr., she is actually a family Dr and last year after my baby and RA symptoms which seemed to come on overnight said An anti inflammatory diet is a huge help. That was her first suggestion. And Dr. Weil's is the most livable.

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FLUTTERPHOTOGAL's Photo FLUTTERPHOTOGAL Posts: 10
3/21/11 6:11 P

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Thanks for the link! I've been looking for info on this!!!

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3/20/11 12:17 A

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Thanks for the RAfitkit site - I checked it out & it has good exercise ideas, well organized as to objectives each exercise helps accomplish. Many overlap with Spark. I can better choose which ones to do with this added information. I'll try the site Bkwerm suggests as well - I have the same trouble remembering symptoms over time. Living in the moment, I guess, LOL. emoticon

"Mountains DO move...One stone at a time." ~Rick Beneteau
Do not let what you cannot do interfere with what you can do. - John Wooden, Hall of Fame college basketball coach
With exercise, doing some is always better than doing none. - Spark article
MAKE THE BEST FOOD CHOICES YOU CAN TODAY - and then, try it again tomorrow!- Dr. John La Puma, M.D.


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BKWERM's Photo BKWERM SparkPoints: (97,863)
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3/19/11 7:56 P

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www.reliefinsite.com/

I use this website to track my pain and other RA-related symptoms (It's free). My rheumy was quite impressed with the report that I had printed out and brought to my appointment because I often don't remember from one appointment to the next how I feel.

Joanna from Dundas, Ontario
BLC20-26 - Amber Amazon Warriors
Eastern Daylight Time (EDT)

Co-Leader of Living With Rheumatoid Autoimmune Disease (RAD)


Happy and healthy people have a better chance to live with confidence and contribute value to the world than anyone else. Don't take that for granted. ~ James Clear ~


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JUSTHEATHER2011's Photo JUSTHEATHER2011 Posts: 111
3/14/11 9:21 A

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http://www.myrafitkit.com/Default.aspx

Re-sharing because I did not know this existed. Happy it does!

May 31st 2010 Katie's 5K Scholarship Road Race-36:16 (1st 5K)
December 5th 2010 Hot Chocolate Run for Safe Passage-32:37 (new PR!)


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2/24/11 12:04 P

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A lot of us, including me, have problems finding exercises we can really do, and can get discouraged by the exercise videos produced by & for extremely fit folk. I've found that Yoga
offers a wide range of exercises, many way too tough for me but also many just right. Here is a good introductory video, very easy and only 5 min. long, for anyone curious to try Yoga, or needing a limbering warmup before they try harder poses. See http://www.arthritisconnect.com/videos/407
-basic-yoga-for-beginners-a-5-minute-d
emonstration-by-amy-hyde-at-lifewellne
ss-institute?utm_source=EmailNewslette
r&utm_medium=Arthritis&utm_campaign=ACN20110224

"Mountains DO move...One stone at a time." ~Rick Beneteau
Do not let what you cannot do interfere with what you can do. - John Wooden, Hall of Fame college basketball coach
With exercise, doing some is always better than doing none. - Spark article
MAKE THE BEST FOOD CHOICES YOU CAN TODAY - and then, try it again tomorrow!- Dr. John La Puma, M.D.


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4-1HEALTHYCYNDI's Photo 4-1HEALTHYCYNDI Posts: 11,606
2/14/11 5:25 P

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Very interesting. I'm not sure how well I'd do as it doesn't allow any poultry, beef or pork in the pyramid that I could see. You could have fish and dairy products 8 times a week. The rest of the time there is little protein unless you have soy, beans & almonds for 13 meals. Not sure I could live with that.

Cyndi Gryffindor,

C.A.M.O.Crew, PDT

NEVER GIVE UP, NEVER SURRENDER!

Striving for VES, Vibrant, Elegant & Sexy

www.folhavitoria.com


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JUSTIN119 Posts: 10
2/13/11 1:42 P

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Interesting info.I'm going to look into it. emoticon

With God, all things are possible. See the vision, catch the vision, make it happen.....Vikki J


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1/23/11 11:11 A

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Interesting, Bkwerm. Thanks. I've saved that one to consider changes in our diets

"Mountains DO move...One stone at a time." ~Rick Beneteau
Do not let what you cannot do interfere with what you can do. - John Wooden, Hall of Fame college basketball coach
With exercise, doing some is always better than doing none. - Spark article
MAKE THE BEST FOOD CHOICES YOU CAN TODAY - and then, try it again tomorrow!- Dr. John La Puma, M.D.


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BKWERM's Photo BKWERM SparkPoints: (97,863)
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1/22/11 9:15 P

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Dr. Weil's Anti-Inflammatory Diet Food Pyramid:

www.drweil.com/drw/ecs/pyramid/press
-f
oodpyramid.html


Joanna from Dundas, Ontario
BLC20-26 - Amber Amazon Warriors
Eastern Daylight Time (EDT)

Co-Leader of Living With Rheumatoid Autoimmune Disease (RAD)


Happy and healthy people have a better chance to live with confidence and contribute value to the world than anyone else. Don't take that for granted. ~ James Clear ~


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1/20/11 1:07 P

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Thanks for the info. This team is great! I am learning so much.

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TMANNY's Photo TMANNY Posts: 667
1/20/11 11:16 A

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RAwarrior.com has an amazing blog very informative

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GREENRUG's Photo GREENRUG SparkPoints: (7,162)
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1/19/11 6:49 P

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I'll look it up. thx emoticon

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XENA1956's Photo XENA1956 SparkPoints: (67,180)
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1/19/11 4:06 P

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My older sister has some Arthritis problems and she has started this new thing. It is helping her jaw or her teeth and supposely it helps the whole body. I saw the video and I don't think I would do it. Just sounds a bit too strange for me. It is called "Oil Pulling". Do a search of this, seems a lot of people do this.

Teri
TheOlderIGetTheBetterIWas

If you’re going to be able to look back on something and laugh about it, you might as well laugh about it now.
Xena1956


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ANGEL1066's Photo ANGEL1066 SparkPoints: (70,701)
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1/19/11 1:38 P

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GREAT IDEA, & great resources. Let's not forget a major #1 resource, www.arthritis.org, with info on the disease drug & non-drug treatments, research, possible local groups & classes, related ailments, all kinds of things.

"Mountains DO move...One stone at a time." ~Rick Beneteau
Do not let what you cannot do interfere with what you can do. - John Wooden, Hall of Fame college basketball coach
With exercise, doing some is always better than doing none. - Spark article
MAKE THE BEST FOOD CHOICES YOU CAN TODAY - and then, try it again tomorrow!- Dr. John La Puma, M.D.


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GREENRUG's Photo GREENRUG SparkPoints: (7,162)
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1/19/11 2:26 A

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excellent info. thanks

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XENA1956's Photo XENA1956 SparkPoints: (67,180)
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1/19/11 1:09 A

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Thanks for the info. Sounds like a plan.

Teri
TheOlderIGetTheBetterIWas

If you’re going to be able to look back on something and laugh about it, you might as well laugh about it now.
Xena1956


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EGH291's Photo EGH291 Posts: 36
1/19/11 12:09 A

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I'm not sure if there's already a thread like this or not, so let me know if I'm being redundant.

I think we need a place (perhaps even a sticky topic?) to share any RA-related resources we've found helpful (including articles, blogs, etc. etc.).

I'll start:

Rheumatoid Arthritis Guy has a great blog, which includes a handy 60-second guide to help you talk to people about the disease.
Links:
www.rheumatoidarthritisguy.com
http://www.rheumatoidarthritisguy.com/20
09/07
/the-power-of-ten/

The Single Gal's Guide to RA:
singlegalsguidetora.typepad.com

MyRACentral.com is a health website/social network with tons of resources. I have an account, but I forgot my password because I never use it. Let me know if you guys/gals join and I'll start using it again.

MyRAFitKit.com can generate customized workouts for you. I use mine on days when I feel well enough (and then I enter it on sparkpeople).

Obviously, there are tons of other websites, but these are my favorites.

What do you think? emoticon

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