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JANISMKW's Photo JANISMKW SparkPoints: (112,087)
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6/14/16 10:25 P

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6/14/16 10:24 P

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A little slide show from the Arthritis Foundation on the best foods to help arthritis:

www.arthritis.org/living-with-arthri
ti
s/arthritis-diet/best-foods-for-arthR>ritis/best-foods-for-arthritis.php


You would expect cold-water fish and colorful berries and cherries to be on the list. But who knew that whole grains can lower C-Reactive Protein, a primary measure of inflammation?!?!

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6/11/16 3:57 P

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Thank you ... so helpful!

JANISMKW's Photo JANISMKW SparkPoints: (112,087)
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3/20/16 11:37 P

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Also from the Arthritis Foundation's website: supplements to avoid:
www.arthritis.org/living-with-arthri
ti
s/treatments/natural/supplements-herR>bs/supplements-avoid.php?_ga=1.20944
91
70.1519739679.1432833921


Scary stuff.

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3/20/16 11:32 P

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From Arthritis Foundation's website: supplements for OA, RA, etc.
www.arthritis.org/living-with-arthri
ti
s/treatments/natural/supplements-herR>bs/9-supplements-arthritis.php


I didn't know that supplements, most of them not crazy or exotic, could even block TNF the same thing biologics act on!

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2/29/16 10:00 P

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From TMJ News Bites:


Blocking a Stress-Related Gene Relieves Chronic Pain
M. Maiarů et al., "The stress regulator FKBP51 drives chronic pain by modulating spinal glucocorticoid signaling," Science Translational Medicine, doi:10.1126/scitranslmed.aab3376, 2016.

"A group of drugs being developed to treat mood disorders could also relieve chronic pain, finds new University College London (UCL) research funded by the Medical Research Council. The study, published in Science Translational Medicine, reveals how a protein that shapes the body's response to stress also drives chronic pain and so offers new targets for future pain treatments. The researchers studied genetically modified mice that lacked a protein called FKBP51. This protein is very important for regulating stress. Variations in the human FKBP5 gene are linked to the risk of developing stress-related psychiatric disorders, such as major depression and post-traumatic stress disorder (PTSD). Previous studies have shown that people with specific FKBP5 variations feel greater physical pain after serious trauma, and the UCL team has now discovered that mice without FKBP51 experience reduced chronic pain from nerve damage and arthritic joints. 'Inhibiting FKBP51 has a very powerful effect in mice with chronic pain,' says lead author Dr Maria Maiaru (UCL Cell & Developmental Biology). 'Not only does it block the pain from their injury without affecting their normal pain response, it also makes them more mobile. We did not find any negative side-effects.' The team then tested an FKBP51-blocking compound called SAFit2, developed by Dr Felix Hausch at the Max Planck Institute of Psychiatry to treat mood disorders by acting in the brain to reduce anxiety. By selectively blocking FKBP51 in the spinal cord, the UCL researchers were able to test its effects on chronic pain independently of its known effects on the brain. They found that SAFit2 substantially alleviated chronic pain in mice, making it a promising candidate for drug development."

Source: www.mdlinx.com/rheumatology/m
edical-ne
ws-article/2016/02/16/6539087/


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2/25/16 4:33 P

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Article from Arthritis Foundation on the future of joint repair: growing cartilage to repair joints by several means, many already available.
www.arthritis.org/living-with-arthri
ti
s/treatments/joint-surgery/candidateR>s/cartilage-restoration.php/?utm_sou
rc
e=enewsletter&utm_medium=ra&
amp;ut
m_campaign=50


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12/27/15 3:17 P

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Here's an interesting article from Pain Scientists on the future of pain treatment -- Personalized Medicine:
www.umaryland.edu/news/archived-news
/d
ecember-2015/newspressreleaseshottopR>ics/pain-scientists-talk-personalize
d-
medicine-.php


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12/2/15 10:38 P

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From the Arthritis Foundation, an article on the Future of Joint Repair:
www.arthritis.org/living-with-arthri
ti
s/treatments/joint-surgery/candidateR>s/cartilage-restoration.php?utm_sour
ce
=enewsletter&utm_medium=at&a
mp;utm
_campaign=176
.

These are high-tech techniques for repairing cartilage. The caveat, they are not for bone-on-bone OA.

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MIAMIRN's Photo MIAMIRN SparkPoints: (70,502)
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11/11/15 3:12 P

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There is controversy on whether to use the Shingles live vaccine with RA patients who are on biologics, DNR's and drugs like Mtx. Some rheumatologists say take the live vaccine and risk getting an episode of Shingles and some rheumies say, don't take the vaccine and risk getting the full fledged Shingles. There is only one form of the vaccine and it's the live kind. So either was there is a risk. You just have to decide which risk you want to take.

The manufacturer of the Shingles vaccine recommends anyone who is taking medications that suppress the immune system NOT take the vaccine.

I am a patient that chose to get the vaccine while I was on three medications that depressed the immune system, Humira, Sulfazine and Methotrexate. Other than a mild case of anemia, a side effect of Mtx I was active and in good health. My rheumatologist recommended I take the vaccine and if I chose to risk the possibility of getting Shingles. He told me he rather me get a mild case of shingles with the live vaccine vs. getting a full fledged attack of Shingles caused by not taking the vaccine.

Here is a long term study that refutes the recommendation to NOT take the vaccine if you are on a medication(s) depressing the immune system:


www.arthritis-research.com/content/1
3/
5/R174#sec5


I often read RA Warrior. I highly recommend it! Here is where I found the article and other articles about vaccines:

rawarrior.com/can-rheumatoid-arthrit
is
-patients-get-a-flu-shot-15-facts-onR>-vaccinations-autoimmune-disease/


emoticon emoticon

Edited by: MIAMIRN at: 11/11/2015 (15:18)
I am Elona from FLorida .

Love life!

Never, never give up!
Never give in, never give in, never; never; never; never - in nothing, great or small, large or petty - never give in except to convictions of honor and good sense
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-- Your beliefs become your thoughts, Your thoughts become your words, Your words become your actions, Your actions become your habits, Your habits become your values, Your values become your destiny
— Mahatma Gandhi


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11/7/15 11:25 P

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Thanks for that link, Elona. Interesting if kind of tough to wade through.
I had read that we can/do develop antibodies to the biologics (after many years?) which is why it is necessary to switch fro one to another.

The 2nd part of the article was news to me... that "biosimilar" versions (like generic biologics) are coming. In Canada they will be called "subsequent-entry biological." A couple have been approved since 2014 in other countries and a few are in Phase 3 trials in the U.S.

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11/7/15 1:48 A

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Here is a medical article. If anyone needs any help in deciphering the medical jargon I might be able to help with some of it. It's a really good up to date article featured as a continuing education credit for doctors and nurses. If you want to know what's up to date this is it. I already learned something I did not know. The body creates antibodies against the biologic drugs we take like Humira, Embrel, etc. I knew patients got used to taking the meds. I had no idea the body actually built up an antibody immunity against the drugs.

www.globalacademycme.com/fileadmin/p
df
/supplement_pdf/Vindico_Suppl_RheumNR>ews.pdf


emoticon emoticon

I am Elona from FLorida .

Love life!

Never, never give up!
Never give in, never give in, never; never; never; never - in nothing, great or small, large or petty - never give in except to convictions of honor and good sense
-Winston Churchill,
-- Your beliefs become your thoughts, Your thoughts become your words, Your words become your actions, Your actions become your habits, Your habits become your values, Your values become your destiny
— Mahatma Gandhi


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6/17/15 8:34 P

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Hi!

I found a really good social site for RA. It's called myRAteam.com. It's very active and I like it a lot. You can find me by going to "miamirn". At least I think you can. If not just message me and I'll give you my name.

emoticon emoticon

MyRAteam.com

Edited by: MIAMIRN at: 6/17/2015 (21:23)
I am Elona from FLorida .

Love life!

Never, never give up!
Never give in, never give in, never; never; never; never - in nothing, great or small, large or petty - never give in except to convictions of honor and good sense
-Winston Churchill,
-- Your beliefs become your thoughts, Your thoughts become your words, Your words become your actions, Your actions become your habits, Your habits become your values, Your values become your destiny
— Mahatma Gandhi


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JANISMKW's Photo JANISMKW SparkPoints: (112,087)
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1/29/15 9:37 P

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Thanks, Donna

A very interesting article. Nice to hear that our meds offer major side benefits, not just risks and side effects.

I got the e-newsletter RA Insider that had that article too. It is one of various free e-newsletters available from the Arthritis Foundation on their website arthritis.org. www.arthritis.org/

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DONNA_W's Photo DONNA_W SparkPoints: (89,294)
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1/29/15 2:30 P

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Came across this article today "Can RA Drugs Have Good Side Effects?
Researchers identify various benefits related to other health conditions that may occur from taking your medications."

http://www.arthritistoday.org/arthritis-
treatment/medications/side-effects/goo
d-side-effects.php

"Do. Or do not. There is no try. " - Yoda in the Empire Strikes Back.

"Today's accomplishments were yesterday's impossibilities." -Robert H. Schuller

"Don't wait for inspiration. It comes while one is working." -Henri Matisse

www.donnawalshwarren.com

https://www.facebook.com/DonnaWalshW
arren


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DEDICATED2HIM's Photo DEDICATED2HIM Posts: 3,708
9/10/14 5:09 P

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I'm sorry Joanna, It may be that it is only in the USA.


https://www.amazon.com/author/cynthiavogel

www.cynthialottvogel.blogspot.com





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DEDICATED2HIM's Photo DEDICATED2HIM Posts: 3,708
9/10/14 5:08 P

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hi Carynnicki
Thanks so much for looking at the tons of information we have here on this site. You will find, not only information, but caring and concerned people who are full of advice and who will cry with you should you need a shoulder.

Welcome!
Cynthia


https://www.amazon.com/author/cynthiavogel

www.cynthialottvogel.blogspot.com





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CARYNRICKY525's Photo CARYNRICKY525 Posts: 1,793
9/9/14 8:44 P

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After months and months of being in pain "thinking it was just me working hard in the gym" and don't cry about the pain because I was working on those areas in the gym. The pain was getting worse where I couldn't walk for 2 days while my hip was sore, then recently I couldn't open my hand and my wrist was swollen. My doctor drew tons of blood work and I was just diagnosed with RA. I have an appointment with the Rheumatologist next month.

I already found this Forum very helpful!!

Edited by: CARYNRICKY525 at: 9/11/2014 (12:17)
I'm Making Progress, One Step At A Time!

MY RESOLUTION:
I'm in the process of climbing this mountain until I reach the very top.

MY ULTIMATE GOAL: Take it one day at a time!


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BKWERM's Photo BKWERM SparkPoints: (128,481)
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7/11/14 5:29 P

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Thank you, Cynthia. I looked for this app in the app store but it said nothing was found. Maybe it's only American?

Joanna from Dundas, Ontario

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u-bG6u8X5Db-U3O2tEcrdu5HNG3Wb8Ymzup7oq
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DEDICATED2HIM's Photo DEDICATED2HIM Posts: 3,708
7/10/14 4:50 A

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here is a resource that came to my email today. WEGO is a legitimate group that looks for and then supports "health activists" - particularly people who blog about their illness.

Dear Health Activist,
Have you seen the new rheumatoid arthritis app in the iTunes® store or the Google Play™ store? If not, we encourage you to check it out!
This educational app, developed by Pfizer, is an interactive experience in which users will affect proteins involved in inflammation, some of which promote inflammation and some of which reduce inflammation. The app also provides facts about rheumatoid arthritis and a treatment option!
Interested? Download the app today from either the iTunes® store or the Google Play™ store. Search the stores for “Swiper Pfizer.”
Cheers,
WEGO Health Team


https://www.amazon.com/author/cynthiavogel

www.cynthialottvogel.blogspot.com





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6/24/14 8:23 A

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Wow!! Great resources!!! Thank you!

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6/2/14 5:15 P

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hi Joanna, thanks for this link...some yummy looking recipes.


https://www.amazon.com/author/cynthiavogel

www.cynthialottvogel.blogspot.com





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6/2/14 1:11 P

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I just ran across this article and since our Team Links appear to be gone, I'm posting it here:

www.healthline.com/health/rheumatoid
-a
rthritis/seven-day-meal-plan


Joanna from Dundas, Ontario

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blcnavyninjas.weebly.com

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A/edit?usp=sharing



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JANISMKW's Photo JANISMKW SparkPoints: (112,087)
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4/24/14 11:42 A

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To quote Angel1066 on this thread in 2011:
"Let's not forget a major #1 resource, www.arthritis.org, www.www.arthritis.org/ , with info on the disease drug & non-drug treatments, research, possible local groups & classes, related ailments, all kinds of things."

It is the Arthritis Foundation and addresses RA, PsA, JA, OA, etc.

They now have 6 different free e-newsletters you can receive. I also subscribe to their magazine Arthritis Today. You can get a free issue of it: www.afstore.org/Products-By-Type/Mag
az
ines
. There are also free brochures and other resources, including lots on social media.
Wishing you all a great day! emoticon

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HAPPYLADY1953's Photo HAPPYLADY1953 Posts: 17
4/24/14 10:02 A

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I found this site very interesting. Thanks for sharing.

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4/24/14 9:57 A

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Thanks for the website. I checked it out.

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DEDICATED2HIM's Photo DEDICATED2HIM Posts: 3,708
4/11/14 6:40 A

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there is a new RA community and website full of resources on RA at sharinghub.wegohealth.com/ra-
patient-r
esources?_

It is related to a new RA drug: Xeljanz but there is a lot of info on the site about RA ,not just about the drug. I hope you find this helpful.


Edited by: DEDICATED2HIM at: 4/11/2014 (06:42)

https://www.amazon.com/author/cynthiavogel

www.cynthialottvogel.blogspot.com





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HAPPYLADY1953's Photo HAPPYLADY1953 Posts: 17
3/31/14 9:06 A

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I just recently went to a rheumatologist and have been put on Methotrexate. I read it takes time to get into your system and I wish it would hurry. The pain in my wrists and shoulders are sometimes unbearable.

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3/15/14 11:03 A

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Here is another site....they offer a free symptom log notebook...and some other resources.

www.rheumatoidarthritis.com/Joint-Ca
re
?cid=raf_SO_MIUARAPS0108&c=MIUARAPS0R>108&utm_source=facebook&utm_medium=c
pc
&utm_ad=Icing+Pain+from+RA&utm_c
ampaig
n=2013+RA.com+Joint+Care+Page



https://www.amazon.com/author/cynthiavogel

www.cynthialottvogel.blogspot.com





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SBECKER526's Photo SBECKER526 Posts: 1,510
6/13/13 12:45 P

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I have rheumatoid arthritis, psoratic arithritis, and vitiligo. I suffer from Barrett's esophagus so many of the newer drugs cannot be used.

I am on my way to better health!


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5/17/13 7:54 P

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I'm sure this blog has already been mentioned (heck, I probably found it here), but I thought it was worth mentioning again.

rawarrior.com

I've found a lot of info here. A lot of things that I think, 'oh yeah, now I get it'...and other people do too.

Kit

Opportunity dances with those who are already on the dance floor.
Jackson Brown

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5/16/13 3:03 P

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As someone just recently diagnosed with RA, this thread is so helpful for me. Thanks!

Kit

Opportunity dances with those who are already on the dance floor.
Jackson Brown

Co-leader Bloomington,IN Spark team



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KOALA93's Photo KOALA93 SparkPoints: (20,228)
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3/20/13 10:32 P

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Wow!!! what great information in this thread! I can't wait to check into some of these sites and incorporate them into the management of my RA. Thanks for starting this thread.

His Grace is Enough (2 Corinthians 12:9)

Be Still and Know That I Am God (Psalm 16:10



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12/13/12 8:26 A

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Debbie, I have PsA (Psoriatic ARthritis)....Normally it is more mild than RA however if you have it bilaterally on the same joints on both sides of your body (as I do), it can be ferocious and destructive.... Definitely get yourself to a rheumatologist who is able to identify it who will give you the medicine you need. I'm glad my link helped.


https://www.amazon.com/author/cynthiavogel

www.cynthialottvogel.blogspot.com





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DEBBIERNSRMC's Photo DEBBIERNSRMC Posts: 462
12/12/12 11:22 A

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When i saw the post about psoriatic arthritis resources, i about cried. I have been struggling now for several years with a diagnosis. It seems that no one wants to call it something, but that is also preventing me from getting more advanced treatments. I did not test positive for the Ra factor, but i do have psoriasis already and i have gone from just knee pain to bilateral wrist and elbow and hands. Some days i can't even open the darn tube of lipstick. i just got off a second round of steroids, trying to bring this recent flare up under control. but i hope the psoriatic arthritis site will give me some resources. thanks! emoticon

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11/9/12 8:35 A

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here is another slideshow of exercises and stretches www.rxlist.com/exercises_rheumatoid_
ar
thritis_slideshow/article.htm



https://www.amazon.com/author/cynthiavogel

www.cynthialottvogel.blogspot.com





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11/9/12 8:30 A

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here is a slideshow of exercises for RA. At the end of the slideshow is a list of more resources, for RA and for things like healthy spine and spondylosis.

www.spineuniverse.com/resource-cente
r/
ra-lifestyle/rheumatoid-arthritis-exR>ercises-slideshow?page=0#top



https://www.amazon.com/author/cynthiavogel

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10/9/12 2:02 A

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a resource used to promote awareness of RA...a collage of hands of people suffering from autoimmune disease. My hands are in it also. You can get a photo of your hands put into the collage and they have a poster of the first 400+ people who contributed which would make a great gift to your rheumy for his office. While my hands were far from the best, they were not the worst either. Some people really suffer. My mom's hands look like the worst of these pics. Go and check it out.
http://www.showusyourhands.org/inflammat
ory-arthritis-community-collage/







https://www.amazon.com/author/cynthiavogel

www.cynthialottvogel.blogspot.com





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10/8/12 9:04 A

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this is an EXCELLENT blog by a man with RA....Please spend some time here reading ....It is well worth it.
http://www.rheumatoidarthritisguy.com/


https://www.amazon.com/author/cynthiavogel

www.cynthialottvogel.blogspot.com





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ANGRITTER's Photo ANGRITTER SparkPoints: (97,852)
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10/5/12 1:16 P

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This one isn't all about RA, but has a little bit of everything regards types of arthritis in it.

I get a bi-weekly or monthly email form Carol Eustis that shows all the new stuff. But this is the address for the RA specific area. Sign up for the e-mails to get up to date info on all types of arthritis.

arthritis.about.com/od/rheumatoidart
hr
itis/Rheumatoid_Arthritis_Cause_DiagR>nosis_Symptoms_Treatment.htm


Angela, Sparking since 6/18/2012
Jacksonville, FL
*Keep moving forward! Ask for Peace, Believe in Love, & Give Understanding!

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DEDICATED2HIM's Photo DEDICATED2HIM Posts: 3,708
6/8/12 9:38 A

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yet ANOTHER RA website...I haven't looked at this one too closely yet, but I will.
www.risesupport.com/index.html


https://www.amazon.com/author/cynthiavogel

www.cynthialottvogel.blogspot.com





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DEDICATED2HIM's Photo DEDICATED2HIM Posts: 3,708
6/3/12 8:18 A

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here is something that looks like it could be right down our alleys. Check it out! A site that helps you design an RA specific fitness program.! www.myrafitkit.com/?default.aspx?v=R
A3
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https://www.amazon.com/author/cynthiavogel

www.cynthialottvogel.blogspot.com





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DEDICATED2HIM's Photo DEDICATED2HIM Posts: 3,708
5/23/12 1:32 P

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this website keeps popping up on my Facebook page....and if probably does on all of yours as well....so feel free to ignore it if you 've already explored this.

www.rheumatoidarthritis.com/ra/lifeg
ui
de/default.htm?c=MIACRAF511P1169&cidR>=act_we_F009000_P001045&utm_source=F
ac
ebook&utm_medium=FB5


they have all kinds of tips for people with RA. I haven't fully looked it over...but it seems to have quite of a bit of advice. Would be interested to hear if any of you have explored this already or if you are now for the first time, what do you think of it??



https://www.amazon.com/author/cynthiavogel

www.cynthialottvogel.blogspot.com





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PURPLEWOLF80's Photo PURPLEWOLF80 Posts: 55
3/23/12 2:55 P

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Thank-you very much for the hint/suggestion Cynthia. I will keep that in mind. Since I am a newly diagnosed person I still don't know the best way to let my rheummy know how I feel throughtout the time he doesn't see me.
Jennye

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DEDICATED2HIM's Photo DEDICATED2HIM Posts: 3,708
3/23/12 2:43 A

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This isn't a resource so much as a suggestion/hint: When you are experiencing a bad day and a body part is red or swollen, just snap a photo of it...bring your camera , laptop or prints to your next rheumy appointment. The tend to go by just how you look the day they see you, never mind that a week ago your couldn't crawl to standing. I did this once and my rheumy was stunned to see how swollen my hands can get and she thanked me fort the pics.


https://www.amazon.com/author/cynthiavogel

www.cynthialottvogel.blogspot.com





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DEDICATED2HIM's Photo DEDICATED2HIM Posts: 3,708
2/21/12 5:00 P

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For those of us with PsA ((Psoriatic Arthritis)) ...we can find it to be a huge struggle to get information. There is loads of it for RA but almost nothing on PsA....This is because PsA is classified as a Rare Disease because of the relatively low number of sufferers. Here is a website (based in the UK) which is packed full of info on PsA. I felt like I'd stumbled on a treasure when I found this.
www.papaa.org/tiki-custom_home.php

And here is a page in that site with some great hand exercises and other tips we can all benefit from:
(if you go to the following link you can download a number of pamphlets and articles for free. If you download the one called PHyisiotherapy and PsA there are some good exercises in it as well as general advice for sufferers.))

www.papaa.org/tiki-list_file_gallery
.p
hp?galleryId=3


I hope this helps someone.


https://www.amazon.com/author/cynthiavogel

www.cynthialottvogel.blogspot.com





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DEDICATED2HIM's Photo DEDICATED2HIM Posts: 3,708
2/21/12 4:32 P

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This is important to those of us who take MTX.....AS you may have heard there has been a terrible shortage of the drug...and the injectible MTX has been unavailable for months. Today a new supplier of the med Ben Venue Labs located in Ohio....has JUST BEEN APPROVED...literally moments ago.

GOOD news for us.
AMAZING news for the young kids with lymphoma whose lives depend on this drug!



https://www.amazon.com/author/cynthiavogel

www.cynthialottvogel.blogspot.com





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ARTIELLE's Photo ARTIELLE Posts: 488
2/21/12 2:35 P

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Thank you all SO MUCH!! I just found this thread and will be back here many times I'm sure to check out the suggested sites. I am especially grateful for the exercises as my hands are starting to get very stiff and hard to use.
Artielle

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ANGEL1066's Photo ANGEL1066 SparkPoints: (70,742)
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2/17/12 8:04 P

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Thanks, Cyndi! I had also done most of these but unfortunately did not keep doing them regularly. I find that I can now only touch thumb to index finger on both hands, and thumb to second finger only on the left. None of the others will touch without pushing them into position with the opposite hand, and some not then. Wish I had kept exercising them. Will add those I can do to my tri-weekly stretch routine. You younger folk, take the warning! Do what you can to keep what you've still got! emoticon

"Mountains DO move...One stone at a time." ~Rick Beneteau
Do not let what you cannot do interfere with what you can do. - John Wooden, Hall of Fame college basketball coach
With exercise, doing some is always better than doing none. - Spark article
MAKE THE BEST FOOD CHOICES YOU CAN TODAY - and then, try it again tomorrow!- Dr. John La Puma, M.D.


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4CYNDI's Photo 4CYNDI Posts: 13,474
2/17/12 12:47 P

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Here is a link for some good hand/wrist stretches that came across my inbox today. I have used most of them but some of them were new for me too.

www.realage.com/joint-pain/hand-exer
ci
ses?eid=1010657072&memberid=14982684R>&cbr=pru_pr#fbIndex5


Cyndi
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ANGEL1066's Photo ANGEL1066 SparkPoints: (70,742)
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1/30/12 7:42 P

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Great site. Thanks!

"Mountains DO move...One stone at a time." ~Rick Beneteau
Do not let what you cannot do interfere with what you can do. - John Wooden, Hall of Fame college basketball coach
With exercise, doing some is always better than doing none. - Spark article
MAKE THE BEST FOOD CHOICES YOU CAN TODAY - and then, try it again tomorrow!- Dr. John La Puma, M.D.


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