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LYNNED53 SparkPoints: (0)
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7/26/09 8:48 P

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Hi
I just joined this team and very happy I did. I just found out I have B12 Deficiency I have to get 2 more shots but also have to take Mentx (spelled it wrong) for the rest of my life. Also, not truly gluten, but wheat free so I may as well be gluten-free since every thing basically has wheat. Need to know what companies make tasty products and need receipes that are tasty. I do bake too and just bought a bread mix from gluten pantry. Hope its good. So any way looking forward to meeting new people that have the same problem as I do.

Lynne

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TALL_LAYDEE1 Posts: 62
5/21/08 8:09 A

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When I was trying to get a diagnosis earlier this year I found out that I had a severe B12 deficiency, my levels came back at 137 the first test. My docs were shocked that I was conscious!
The crazy thing is I had been having a ton of symptoms and was totally oblivious. I got dizzy when I stood up much more often than normal, I had really bad short term memory (my hubby joked about me having the memory of a goldfish), and I was sleeping ridiculous amounts then still feeling exhausted. After starting to get regular shots of B12 I realized (because it was coming back) that I had previously lost feeling in many parts of my body (most dramatically fingers and feet) but had never really noticed.
Now, it's been four months and I am amazed at the difference - I have a much stronger sense of touch, I haven't had the dizziness in over two months (it had been a few times a day), I have more ability to taste things now. AND I now know what it feels like to wake after a night's sleep and truly feel rested. It's incredible to me that I was so totally unaware of what my body was telling me!

Thanks for sharing the story about B12 deficiency. It makes me realize how lucky I am that I didn't get the severe neurological problems that I could have.

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DOTSLADY's Photo DOTSLADY Posts: 10,024
5/19/08 1:43 A

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bit.ly/b12patch

I've never heard of this before, but there's a patch you can put on weekly for b12! $25/month for 4 wks. worth. Interesting.

Edited by: DOTSLADY at: 2/10/2010 (23:15)
KNOWLEDGE = POWER. BODY = TEMPLE. FOOD = MEDICINE. PREVENTION IS THE CURE. YOU ARE WHAT YOU ABSORB!
One person's food is another person's poison.
__________
Celiac Disease: An autoimmune reaction from eating gluten grains: wheat, rye, barley and contaminated oats=nutrient deficiency=cancer. Have 1 of 300 symptoms? bit.ly/cdsymptoms
CD stories: bit.ly/cdstories
Nutrition/Cancer: bit.ly/Quillinnutrition


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ILLINITEACHER52 Posts: 7,257
10/27/07 10:16 A

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I think that is part of the reasoning of my dentist - if the fillings are replaced as needed, the insurance will pay, but not just for "cosmetic" (or so they would think) reasons. On my next visit I will ask the dentist to count how many fillings he thinks are old mercury fillings. That would be interesting to know.

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DOTSLADY's Photo DOTSLADY Posts: 10,024
10/27/07 10:10 A

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I haven't heard about mercury fillings and B12 issues ... but will look around/ask other places. I've thought about taking mine out, but I think my mouth would cave in (+ cha-ching - it'd cost a mint)!
emoticon

Here're some interesting links w/B12 deficiency info/stories:

bit.ly/jccB12
www.b12d.org/info/ expired
bit.ly/dachb12
bit.ly/neurotalkb12

emoticon emoticon emoticon emoticon emoticon

Edited by: DOTSLADY at: 2/10/2010 (23:22)
KNOWLEDGE = POWER. BODY = TEMPLE. FOOD = MEDICINE. PREVENTION IS THE CURE. YOU ARE WHAT YOU ABSORB!
One person's food is another person's poison.
__________
Celiac Disease: An autoimmune reaction from eating gluten grains: wheat, rye, barley and contaminated oats=nutrient deficiency=cancer. Have 1 of 300 symptoms? bit.ly/cdsymptoms
CD stories: bit.ly/cdstories
Nutrition/Cancer: bit.ly/Quillinnutrition


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ILLINITEACHER52 Posts: 7,257
10/24/07 5:50 P

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Thanks for the info. I am working on drinking more water each day. I am 55 years old so I am old enough to have the mercury fillings. The dentist who put them in is no longer alive but my present dentist is of the opinion that they should not be disturbed unless there is a problem with the filling or the tooth. (I am familiar with the mercola site)

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THATSY's Photo THATSY Posts: 938
10/24/07 5:34 P

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Okay, here's the deal with your mercury fillings...
Call your dentist and ask. It's unlikely, but possible. If you do have them they are most likely old and should be replaced. Some are of the opinion that they shouldn't be disturbed unless nessessary. Once again I suggest you check www.mercola.com for more information or do a search on mercury/B12. I just checked my books and could find no such link but that dosen't mean it doesn't exist. I thought I had them and my dentist said we don't do those anymore and you aren't old enough to have them.
Most importantly drink pleanty of water with your B's as they need water to do thier job.
Let us know what you find out.

Wherever you are, be there totally. If you find your here and now intolerable and it makes you unhappy, you have three options: remove yourself from the situation, change it, or accept it totally.

Eckhart Tolle


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ILLINITEACHER52 Posts: 7,257
10/24/07 5:17 P

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I definitely feel better when I take the methylcobalamin type of B12 (more energy and clearer thinking) but then I was told that it isn't good to take that type of B12 if you have mercury fillings (which I think I do). Now I am unsure what I should do. Have you heard anything related to that issue?
I wish more doctors would suggest trying a gluten free diet even if they don't want to be bothered to do testing. They could wait to test after seeing if there was any decrease in symptoms. That makes sense to me but I'm not a doctor.

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DOTSLADY's Photo DOTSLADY Posts: 10,024
10/24/07 12:20 P

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I just watched a Mystery Diagnosis Show: Bizarre Visions was the name of this story.

Jane Strauss, 52, was a sales analyst for a bakery. She was allergic to dairy/lactose intolerant, and watched her diet. She had stomach pain/cramps and diarrhea. Had to visit bathroom sometimes 7 times after breakfast in the morning. Had to excuse herself from lunches with friends which was embarrassing. Upper and lower GI's were negative, so she got an IBS diagnosis from the gastroenterologist. Tended to not eat for fear of not getting to bathroom quick enough. Would eat Chex mix or crackers.

Symptoms grew to include cold fingers/hands and feet with tingling and numbness (peripheral neuropathy). She went to a rheumatologist without diagnosis or relief from her symptoms.

Symptoms then grew to include double vision. The opthamologist said she had dry eyes and suggested she take lubricating drops for possible allergies (no allergy history however).

Sometimes she'd put down her neck and look at her feet to see smoke or fog. When she was looking at a bottle of syrup on the counter, the words were dancing and moving. That really freaked out her husband who rushed her to the ER. On the trip there, her vision dimmed, then she went blind for a period of time. I believe the same day, her vision returned. The ER could find nothing wrong.

She'd been to a neurologist, ENT doctor, opthamologist, and gastroenterologist without relief from her symptoms. The neurologist did "Romberg's Testing" for balance, which was way off. (She'd close her eyes in the shower and have to hold onto the shower curtain.) The Romberg's test included: standing on one foot (she couldn't do it without falling), standing with feet apart about 2-1/2" with eyes open, then eyes closed (she'd tip over when her eyes were closed).

Jane was frustrated. She watched a Mystery Diagnosis episode and made an appt with the doctor in that episode: Dr. Carolyn O'Connor, Drexel University, Philadelphia, PA. Dr. O'Connor was struck most with her balance issues, which she said could be a central nervous system problem. She tested her B12: it was 200 (400 is low range). She then wondered WHY was her B12 so low: then furthered the diagnosis to be PA/Pernicious Anemia.

Most of Jane's symptoms (didn't really get into which ones) were alleviated with Rx for B12. Including the diarrhea, which I didn't realize was associated. Duration of symtpoms until diagnosis: 10 years. I wonder if she was tested for celiac???

Mystery Diagnosis will air again on Oct. 28, 2007 and in Nov. Here's a link to Drexel U's blurb about Dr. O'Connor with air times and a link to Mystery Diagnosis. This site included more diagnosis info re: Jane. It said she'd been diagnosed with Sjogren's (the show only said "dry eyes"), which is another autoimmune condition known for its relation to celiac.

tinyurl.com/ysx345 (expired)

Have you had your B12 checked lately?

Here's a website about B12: bit.ly/B12roseannster


Here's a website about understanding lab reports (I always get a copy of my labs): bit.ly/labtests

Here's a book to find at library/buy/read: bit.ly/c6EHM1

She advocates getting a homocysteine, urinary MMA, and total B12 + folate too I think, for a better overall picture (in addition to reg. labs).

Sometimes it's important to also take folate with B12 ... and she says that methylcobalamin is better than cyancobalamin shots. You need to research and talk with doc! :)


Edited by: DOTSLADY at: 2/10/2010 (23:14)
KNOWLEDGE = POWER. BODY = TEMPLE. FOOD = MEDICINE. PREVENTION IS THE CURE. YOU ARE WHAT YOU ABSORB!
One person's food is another person's poison.
__________
Celiac Disease: An autoimmune reaction from eating gluten grains: wheat, rye, barley and contaminated oats=nutrient deficiency=cancer. Have 1 of 300 symptoms? bit.ly/cdsymptoms
CD stories: bit.ly/cdstories
Nutrition/Cancer: bit.ly/Quillinnutrition


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