I just watched a Mystery Diagnosis Show: Bizarre Visions was the name of this story.
Jane Strauss, 52, was a sales analyst for a bakery. She was allergic to dairy/lactose intolerant, and watched her diet. She had stomach pain/cramps and diarrhea. Had to visit bathroom sometimes 7 times after breakfast in the morning. Had to excuse herself from lunches with friends which was embarrassing. Upper and lower GI's were negative, so she got an IBS diagnosis from the gastroenterologist. Tended to not eat for fear of not getting to bathroom quick enough. Would eat Chex mix or crackers.
Symptoms grew to include cold fingers/hands and feet with tingling and numbness (peripheral neuropathy). She went to a rheumatologist without diagnosis or relief from her symptoms.
Symptoms then grew to include double vision. The opthamologist said she had dry eyes and suggested she take lubricating drops for possible allergies (no allergy history however).
Sometimes she'd put down her neck and look at her feet to see smoke or fog. When she was looking at a bottle of syrup on the counter, the words were dancing and moving. That really freaked out her husband who rushed her to the ER. On the trip there, her vision dimmed, then she went blind for a period of time. I believe the same day, her vision returned. The ER could find nothing wrong.
She'd been to a neurologist, ENT doctor, opthamologist, and gastroenterologist without relief from her symptoms. The neurologist did "Romberg's Testing" for balance, which was way off. (She'd close her eyes in the shower and have to hold onto the shower curtain.) The Romberg's test included: standing on one foot (she couldn't do it without falling), standing with feet apart about 2-1/2" with eyes open, then eyes closed (she'd tip over when her eyes were closed).
Jane was frustrated. She watched a Mystery Diagnosis episode and made an appt with the doctor in that episode: Dr. Carolyn O'Connor, Drexel University, Philadelphia, PA. Dr. O'Connor was struck most with her balance issues, which she said could be a central nervous system problem. She tested her B12: it was 200 (400 is low range). She then wondered WHY was her B12 so low: then furthered the diagnosis to be PA/Pernicious Anemia.
Most of Jane's symptoms (didn't really get into which ones) were alleviated with Rx for B12. Including the diarrhea, which I didn't realize was associated. Duration of symtpoms until diagnosis: 10 years. I wonder if she was tested for celiac???
Mystery Diagnosis will air again on Oct. 28, 2007 and in Nov. Here's a link to Drexel U's blurb about Dr. O'Connor with air times and a link to Mystery Diagnosis. This site included more diagnosis info re: Jane. It said she'd been diagnosed with Sjogren's (the show only said "dry eyes"), which is another autoimmune condition known for its relation to celiac. tinyurl.com/ysx345
Have you had your B12 checked lately?
Here's a website about B12: bit.ly/B12roseannster
Here's a website about understanding lab reports (I always get a copy of my labs): bit.ly/labtests
Here's a book to find at library/buy/read: bit.ly/c6EHM1
She advocates getting a homocysteine, urinary MMA, and total B12 + folate too I think, for a better overall picture (in addition to reg. labs).
Sometimes it's important to also take folate with B12 ... and she says that methylcobalamin is better than cyancobalamin shots. You need to research and talk with doc! :)
Edited by: DOTSLADY at: 2/10/2010 (23:14)
KNOWLEDGE = POWER. BODY = TEMPLE. FOOD = MEDICINE. PREVENTION IS THE CURE. YOU ARE WHAT YOU ABSORB!
One person's food is another person's poison.
Celiac Disease: An autoimmune reaction from eating gluten grains: wheat, rye, barley and contaminated oats=nutrient deficiency=cancer. Have 1 of 300 symptoms? bit.ly/cdsymptoms
CD stories: bit.ly/cdstories
|2,870 Days since: gluten