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DOTSLADY's Photo DOTSLADY Posts: 10,018
9/7/07 11:42 A

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Laceylulu83 - need more info. what medication exactly and which reputable site did you find info and are not sure to trust?

Have you called the manufacturer directly and looked at their site's FAQs?

Next, I'm pretty sure I listed a place to check for gf meds on my RESOURCES thread, try that site if you haven't already. or clanthompson.com might have info.

KNOWLEDGE = POWER. BODY = TEMPLE. FOOD = MEDICINE. PREVENTION IS THE CURE. YOU ARE WHAT YOU ABSORB!
One person's food is another person's poison.
__________
Celiac Disease: An autoimmune reaction from eating gluten grains: wheat, rye, barley and contaminated oats=nutrient deficiency=cancer. Have 1 of 300 symptoms? bit.ly/cdsymptoms
CD stories: bit.ly/cdstories
Nutrition/Cancer: bit.ly/Quillinnutrition


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LACEYLULU83's Photo LACEYLULU83 Posts: 8
9/7/07 11:32 A

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Hi,

I thought I'd tag a new question to this thread. I've just been prescribed a medicine that contains "pregelatinized starch." I've found one blogsite saying it's gluten-free, but even thought that's on a reputable celiac site, I'm not sure I trust it. One entry I've found says that it can come from wheat, tapioca, potatoes, or corn. I'm not sure which. Any thoughts? Is something with pregelatinized starch usually automatically considered gluten-containing?

Each day I strive to be the person my dog thinks I am and strive to be the person my cat thinks I’m not.


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BEANSHIPPYMAUM's Photo BEANSHIPPYMAUM Posts: 87
9/6/07 11:45 P

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I was on Meloxicam but it caused wicked dry eyes and it didn't last all day and I could only have 1 pill a day. It worked great but around 15-16 hours later my joints would BURN and swell. Where as they just ache normally unless I'm doing something.

Then I was switched to Naproxen which worked fairly well except for the once in a while hip pains but as I said previously it was giving me HORRIBLE bruises so I stopped taking it and thankfully the bruises went away (which is good because they were freaking me out - they weren't regular looking bruises - they were HUGE and dark with the black dots all over!)

Now I'm not on anything. When I was first diagnosed my doctor said I was young enough that I can almost repair most of the damage by eating properly without gluten - but it's been over a year and the arthritis is getting worse if anything! She said you build bone density on your own until you are in your early 30s.

 
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47LUCAN's Photo 47LUCAN Posts: 131
9/6/07 11:35 P

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I take Evista (for osteoporosis...that was the reason I was tested for celiac in the first place). Take calcium and vitamin D, Prevacid, and CVS's generic version of Centrum Silver.

Gosh, that sounds painful with the weight exercise...are you taking a bone pill? (Sorry if you said that in an earlier post...I can only see the last one as I'm typing). The reason I ask is that I had pain in my bones an joints on the first bone medicine I was prescribed and had to switch. I forget the name...it was a once weekly pill.

 
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BEANSHIPPYMAUM's Photo BEANSHIPPYMAUM Posts: 87
9/5/07 11:54 P

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I have a really hard time with weight bearing exercise. It causes a lot of swelling and burning in my joints - especially my elbows. You can actually feel the heat coming from them and it hurts for days & that is using 1 and 2lb bars!

I am now using resistance (elastics) but I find that I still hurt a lot so I'm wondering if a medication to help along with it would help.

Day 2 of the new shampoo (and I chopped a lot of my hair off today!) and no itching. It's so great!

 
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KJEANNE's Photo KJEANNE SparkPoints: (39,442)
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9/5/07 5:23 P

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I also take a multivitamin supplement. In addition to the multivitamins I take 1 gm C, Omega 3 oil, potassium (I have legs cramps if I donít take extra potassium because of the diuretic BP medication, hot flashes and lots of sweating during my cycling), and an allergy pill (loratidine ). Only one prescribed medication for HBP: Mazide. For the arthritis in both knees I stopped the prescribed medication @6 years ago (under my doctorís supervision) and started on MSM, glucosamine and chondroitin. I am pain and swelling free in my knees (and other joints) as long as I keep taking the MSM, glucosamine and Chondroitin and stay GF!

Are there medications that build up bone density? Iím sure there are such medications but I do know that weight-bearing exercise will build bone density, which is one of the reasons I exercise. I try to stay away from prescribed medications and make health improvement by diet, exercise and natural supplements (including herbs).


Do not look where you fell, but where you slipped.
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DOTSLADY's Photo DOTSLADY Posts: 10,018
9/5/07 11:03 A

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I was rereading an old Gluten Free Living magazine before sending it to my sister and noticed an ad that might interest you for gf and hypoallergenic personal care products: www.gfsoap.com . I feel for you.

As for the meds I take: after diagnosis I insisted on getting a dexa scan for bone density to use as a baseline. My vit B12 and Vit D were checked (I wish all fat soluble vitamins had been checked) and my D was low. The doc gave me an Rx for 50,000 iu of Vit D, which is normally taken 1x/day for 8 days, then 1x/mo for a year. Plus he had me take Posture D 3x/day and calcium citrate 1x/day. I think that + daily sunshine helped me recover from depression.

Other than that I take Synthroid for my thyroid, and a bunch of supplements: a multi, B12 (cause I'm still low after a year), iron (still low), extra vit C, probiotic, sometimes taurine, CoQ10. I'm just doing this on my own (except for the iron, which I'm seeing a hematologist for), and plan to see a naturopath in a week or so.

KNOWLEDGE = POWER. BODY = TEMPLE. FOOD = MEDICINE. PREVENTION IS THE CURE. YOU ARE WHAT YOU ABSORB!
One person's food is another person's poison.
__________
Celiac Disease: An autoimmune reaction from eating gluten grains: wheat, rye, barley and contaminated oats=nutrient deficiency=cancer. Have 1 of 300 symptoms? bit.ly/cdsymptoms
CD stories: bit.ly/cdstories
Nutrition/Cancer: bit.ly/Quillinnutrition


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BEANSHIPPYMAUM's Photo BEANSHIPPYMAUM Posts: 87
9/5/07 2:08 A

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OH I forgot the whole purpose of the post haha.

I was wondering if anyone is on the medication used to help build your bone density up?

I was wondering if it would be worth it since I'm only 26 but it's suspected that I've had this since I was a child (very skinny, always sick, tons of rashes, lots of problems with food and GI issues etc - it was even in my file that a visiting ER doctor to our local hospital *very small town* suggested that someone test me for celiac when I was brought in for being sick again!) that I may have issues with this since I'm suffering from arthritis. I think I should ask for the bone density to be checked and then for the medication because I hear it works very well?

 
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BEANSHIPPYMAUM's Photo BEANSHIPPYMAUM Posts: 87
9/5/07 2:05 A

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Just wondering what medications people are on!

I'm on a multivitamin - the doctor said to just take any of them because I am pretty good at what I eat and my blood work comes back great. I take an American multivitamin that specifically says Gluten-Free and it's a 2 time a day one because the other ones make me sick. (the iron I think?)

I'm on Singulair for mild asthma and allergies and for a while I was taking a Canadian (I'm Canadian) allergy pill along with it called Aerus which is Des-loratidine which works pretty good while the Singulair kicked in.

I was on naproxen extended release pills but I started getting a lot of bruising and I cut them out and thankfully the bruising is gone (it still happened even when I took 1/2 a pill and I prescribed 2 a day!) It is for the arthritis in my fingers, wrists and hips but it didn't really help with the ip pain which I find the most bothersome. My doctor says it's caused by the celiac that was diagnosed when I was younger.

I now have something called Clobetasol for the sores on my scalp. It burns like CRAZY and I can't decide which is worse - the itch before - the burn or the itch afterward! I went to a store in the area called LUSH which has a lot of natural products that are really neat. Since my husband is a truck driver and I love "easily portable" things I decided to try a shampoo bar! I bought a cinnamon one and it's great! I used it tonight for the first time and it was about 4 hours again and I haven't had an itchy scalp yet! You should see all the shampoo bottles from stuff I have tried laying around. It didn't even matter when I used baby shampoo it itched! Anyhow, my hair is very thin like little kid hair and it tangles very easily but I didn't need conditioner with this at all. I'm very impressed!


 
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