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ANALOGKIB SparkPoints: (0)
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6/21/07 9:51 A

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I remember thinking the same thing when my daughter was diagnosed.... then I found substitutions for nearly everything.... and some I think taste better than their full of gluten counter parts!

In a month or two you will be giving advise to people! The learning curve is HUGE that first month! And I promise you'll learn to like being gluten free! I have :)



 
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6/20/07 10:01 P

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Welcome HEATHERSLOVE:
Going GF is so wonderful!! I love the way I feel and look on a GF diet.
I fit my clothes because my stomach is not bloated.
I sleep like a baby and wake up refreshed instead of exhausted.
I can concentrate at work
Sex is even better
The list is endless

Youíll find that no food is worth exchanging for how good you feel GF!

But donít wait to until you go to the health food store. You can start today. Grill a piece of meat, put on some rice or roast a potato then steam some vegetables. You have a GF meal. Learn to eat GF without having all the substitute foods.

As for your daughter, there is nothing you can do about it so LET IT GO!


Do not look where you fell, but where you slipped.
African proverb


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HEATHERSLOVE's Photo HEATHERSLOVE SparkPoints: (24,304)
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6/20/07 2:16 P

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That's another thing I'm worried about. My daughter is only 9 months old and if I had known that I was at risk for celiac, I would have breastfed her longer than the 4 months that I did. I remember when I started her on solids, she would throw up and have a sort of allergic reaction to wheat cereal. She's fine with it now (it seems) but I hope that she doesn't have it (if I even have it).

I still haven't started a GF diet yet. I am plannning to go to a health food store today and buy some GF products and see if there's a difference in my bloating and BM. Every single night after eating dinner, I'm so bloated that I look the same as when I was 5 months pregnant. emoticon

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PYEWAY SparkPoints: (884)
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6/20/07 2:01 P

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She was diagnosed with acid reflux disease a few months ago and was still having stomach pains, so the doc decided to test for celiac since it runs in the family. This is the daughter who is doing the paper on celiac disease and dental problems. Once she has that done, I'll forward you a copy.

Pyeway

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DOTSLADY's Photo DOTSLADY Posts: 10,015
6/20/07 12:41 P

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Glad for the update Pye. What a relief to not HAVE to be gf - remind me why she was tested (other than routine check?) again.

KNOWLEDGE = POWER. BODY = TEMPLE. FOOD = MEDICINE. PREVENTION IS THE CURE. YOU ARE WHAT YOU ABSORB!
One person's food is another person's poison.
__________
Celiac Disease: An autoimmune reaction from eating gluten grains: wheat, rye, barley and contaminated oats=nutrient deficiency=cancer. Have 1 of 300 symptoms? bit.ly/cdsymptoms
CD stories: bit.ly/cdstories
Nutrition/Cancer: bit.ly/Quillinnutrition


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6/20/07 12:34 P

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Yup, Skor! How good is that??

And I should clarify, M&M rice krisps are NOT gluten free, just the plain and peanut varieties. Too bad.

My daughter got word finally last week she is NOT celiac! Hooray. I almost cried. This is the second child to be checked and the first one to not be positive. Thank goodness. Younger one still not sticking to diet but can't figure out why stomach hurts all the time. Hello!! Won't listen.

Pyeway

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DOTSLADY's Photo DOTSLADY Posts: 10,015
6/20/07 12:31 P

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Skor? Yippee! ;-)

KNOWLEDGE = POWER. BODY = TEMPLE. FOOD = MEDICINE. PREVENTION IS THE CURE. YOU ARE WHAT YOU ABSORB!
One person's food is another person's poison.
__________
Celiac Disease: An autoimmune reaction from eating gluten grains: wheat, rye, barley and contaminated oats=nutrient deficiency=cancer. Have 1 of 300 symptoms? bit.ly/cdsymptoms
CD stories: bit.ly/cdstories
Nutrition/Cancer: bit.ly/Quillinnutrition


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47LUCAN's Photo 47LUCAN Posts: 131
6/19/07 11:04 P

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Ben & Jerry's is gluten free emoticon (the ice cream, not the cones)

 
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6/19/07 8:36 P

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Hi. I was diagnosed with IBS YEARS after the celiac diagnosis. I have major stomach pains sometimes due to the IBS, but not as much as before. I have never cheated on the GF diet, so I know my diet is not to blame. The only thing I can attribute the IBS to is stress! Lots of stress. When I get bad stomach pains, I drink peppermint tea which helps a lot. You will know in a very short time what you can eat that is GF, but has the sugar kick in it you crave. Oh Henry, Skor, M&M's...... You get the idea.

All the best,

Pyeway

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HEATHERSLOVE's Photo HEATHERSLOVE SparkPoints: (24,304)
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6/19/07 6:49 P

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Thanks for your input. It's greatly appreciated. Glad to know that I don't have to cut out ALL sweet stuff! emoticon

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PINKPUNKIN63's Photo PINKPUNKIN63 SparkPoints: (11,593)
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6/19/07 4:22 P

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I know where you are coming from. I freaked at first also but after going gluten free my IBS-D is so much better and that's a huge benefit for me. I still regret that I can't have drive thru with the family. But with my life style change and losing weight really that's not where I want to be anyways. If I am dieing to slurge I go go out of my way to find it gluten free. There is so much out there now. You don't have to go without your bread. Or ice cream. I buy gluten free hamberger buns and store them in the freezer so when we bbq with the family in the summer I'm not left out. It works out so great. You will find the ways to get past it. You just have to work at it at first. Read lables but you will get thru it. The benefits are huge.

Good Luck.

"Joy is not in things; it is in us."



*****Nancy******


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DOTSLADY's Photo DOTSLADY Posts: 10,015
6/19/07 4:03 P

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Don't panic! It could be the BEST emoticon thing to happen to you!

GF cakes are more dense, but very good. GF bread and pizza crust: different story, but with trial and error, there's probably something out there to appeal to your tastebuds. Everyone has different opinions regarding this. Except EnerG breads - I don't hear/see a lot of good info about them. All gf breads are better toasted. Keep that in mind. You get used to using lettuce wraps, and using alternate ways to eat. It's not "mainstream" - you just have to shop on the internet or in the health food store.

Look at older threads for ideas on brand names and substitutes.

You are not alone! Recommended reading: Gluten-Free Living for Dummies by Danna Korn. Try the library if you're not ready to invest, otherwise, it's a great intro into the gf world.

If you need to be gluten-free, your immune health will thank you for your trouble. Let us know how your test results come out!

Edit: I was never diagnosed with IBS-C, but learned here that's what I had all my life. I grew to have the looser stools (3x/day or after every meal) toward my diagnosis at around age 45. I ate Kashi for breakfast most days because of high fiber content for 13 years! The good side to that is I have no polyps or diverticuli!

It's not unusual to be misdiagnosed with IBS. But not every IBSer tests positive for celiac either. If you're neg. by celiac panel bloodtest, ideally, I'd submit a stool sample to enterolab.com. After that, I'd try a trial gf diet ... but always talk to your allergist/doctor.

If I want a treat, I bake myself a "Because I'm/You're So Special"?? lemon cake, no frosting. Or peanut butter cookies (1 c pb, 1 c sugar, 1 egg) 350*, 8-10 mins. Or a Snickers bar, or Starburst. I need to lose weight though: I struggle!

Edited by: DOTSLADY at: 6/19/2007 (17:25)
KNOWLEDGE = POWER. BODY = TEMPLE. FOOD = MEDICINE. PREVENTION IS THE CURE. YOU ARE WHAT YOU ABSORB!
One person's food is another person's poison.
__________
Celiac Disease: An autoimmune reaction from eating gluten grains: wheat, rye, barley and contaminated oats=nutrient deficiency=cancer. Have 1 of 300 symptoms? bit.ly/cdsymptoms
CD stories: bit.ly/cdstories
Nutrition/Cancer: bit.ly/Quillinnutrition


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TWEETY4_9's Photo TWEETY4_9 Posts: 32
6/19/07 4:02 P

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I understand how you feel. I was in the same boat as you last year. After lots of trial and error I have found there to be MANY treats that are gluten free but you would never know if you didn't read the label. I bake Kinnikinnik chocolate cake for my whole family (and they are VERY picky eaters) and they love it. Also, you would be surprised to find what candy bars are gluten free (keeping in mind you need to also check with the manufacter for updates). Some of my favorites reese cups, m&ms, snickers.

hope that makes you feel better


HEATHERSLOVE's Photo HEATHERSLOVE SparkPoints: (24,304)
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6/19/07 3:54 P

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HI everyone. I have not been officially dianosed with Celiac, but it is highly probable. i will find out in a couple weeks. Anyways, I'm 25 and I am scared to death that I will never be able to eat another piece of cake or ice cream or bread again.

Even though I am accustomed to my healthy lifestyle, I still like to enjoy the occasional gluten-y treat. HOw do you cope? What do you eat when you want to treat yourself? I guess I'm in a panic because I feel as though I am losing one of my best friends!!! Thanks in advance.

*edit*
I thought that I might add that I was diagnosed with IBS by an ER doctor. My family doctor is the one who thinks I minght have celiac. Have any of you been misdiagnosed with IBS?

Edited by: HEATHERSLOVE at: 6/19/2007 (15:57)
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