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DOTSLADY's Photo DOTSLADY Posts: 10,021
5/26/07 1:28 P

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IDN - I haven't heard of the B12 patch. Interesting. Here's the info from viactiv's site re: gluten:

Q. Do VIACTIV® Calcium Soft Chews contain
gluten?


A. VIACTIV® Calcium Soft Chews do NOT contain gluten.


KNOWLEDGE = POWER. BODY = TEMPLE. FOOD = MEDICINE. PREVENTION IS THE CURE. YOU ARE WHAT YOU ABSORB!
One person's food is another person's poison.
__________
Celiac Disease: An autoimmune reaction from eating gluten grains: wheat, rye, barley and contaminated oats=nutrient deficiency=cancer. Have 1 of 300 symptoms? bit.ly/cdsymptoms
CD stories: bit.ly/cdstories
Nutrition/Cancer: bit.ly/Quillinnutrition


3,187 Days since:  gluten
 
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IDAHONURSE's Photo IDAHONURSE SparkPoints: (0)
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5/26/07 1:20 P

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Thanks for thinking of me, DOTS! My B12 was within range, but I don't know the level. I take sublingual B12 when I remember to. I want to get the fizz stuff from Costco that you add to water. It has tons of B vitamins, plus C and others. A coworker of mine started drinking it after her gastric bypass surgery. She said her blood levels are so high, she's been warned by her dr. I'm considering the B12 transdermal patch that someone on my other support site has recommended. I think the co. is called Vital Science. My hands and feet still go numb 5 or more times per day. I have burns all over my hands and lower arms right now, b/c I don't feel heat and react the same way most ppl do. Its really nice to be handling someone's newborn when your hands are all burned. I'm hoping my depression will go away like yours did. Summer's almost here, and I'm still taking the 50k iu of vitamin D every Monday. Do you know if Viactiv are gf? I'd like to take a supplement I enjoy.

"can you see the beauty inside of me?
what happened to the beauty inside of me?"
-Bono
DOTSLADY's Photo DOTSLADY Posts: 10,021
5/21/07 6:08 P

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Sorry to say, but everyone's different. Some people might not even have villi damage and respond to diet in other ways. The only way to tell would be to undergo another biopsy, which I don't think I need to do based on how well I feel now. However, I DO know that my 6 mo. post gf diet blood test revealed I WAS adhering to the diet and I had no antibodies to gluten.

I did not have nausea before or after diagnosis. I did have headaches before, which got progressively better after. Now I barely ever have headaches. My depression was gone between months 6-8 when it was summertime and I was getting lots of vitamin D. It took about 4 months for my stateorreah (sp) to subside, which I guess I *could* associate with villi damage? I gauged this progress by eating handfuls of pistachios - the longer I was gluten free, the less "stat" stools and into "regular" stools I got.

IDNurse: for your peripheral neuropathies: have you checked your B12 or other B vitamins? There's a good book I've got on my Amazon wishlist written by a nurse about undiagnosed B12 deficiencies called, "Could it Be B12? An Epidemic of Misdiagnoses by Sally M. Pacholok RN, Jeffrey J. Stuart, DO.

From Amazon: "A silent crippler stalks millions of Americans, and you may be one of them..."
Key Phrases: autoimmune pernicious anemia, enlarged red blood cells, high homocysteine levels, United States, New England Journal of Medicine, Internal Medicine, etc."

I've had enlarged red blood cells for YEARS and recently found my homocysteine is high. My B12 is in the low 400s (within range, but still low). I don't remember if I brought this up with you before, so I put it out there.

I hope this helps.


KNOWLEDGE = POWER. BODY = TEMPLE. FOOD = MEDICINE. PREVENTION IS THE CURE. YOU ARE WHAT YOU ABSORB!
One person's food is another person's poison.
__________
Celiac Disease: An autoimmune reaction from eating gluten grains: wheat, rye, barley and contaminated oats=nutrient deficiency=cancer. Have 1 of 300 symptoms? bit.ly/cdsymptoms
CD stories: bit.ly/cdstories
Nutrition/Cancer: bit.ly/Quillinnutrition


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IDAHONURSE's Photo IDAHONURSE SparkPoints: (0)
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5/21/07 11:30 A

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Midwest: I went thru a withdrawal that included nausea and severe headaches, which I never have. I think that when we are eating something that is against the body's health, our body tries to adapt. When we suddenly remove that item, the body is still in adapt mode, and it takes a little time for it to slow down, and then go back to normal. I've heard from celiac friends and from reading that the villi start healing and growing almost immediately, but it takes time for them to be back to a full function size. This is why one needs to be eating gluten when a biopsy is done in order to avoid a false negative. It took me about 7-9 days of eating gf until the diarrhea was decreased. It takes longer for other symptoms to go away, and if the symptoms are related to nutritional deficiencys, they may last until those deficiencys are fixed thru supplementation. I still have numbness in my hands and feet, for example. I've been gf since March.

"can you see the beauty inside of me?
what happened to the beauty inside of me?"
-Bono
MIDWESTGAL2's Photo MIDWESTGAL2 Posts: 53
5/20/07 11:13 P

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I just started the gf diet and was wondering how long it takes (generally) for the villi to grow back in the small intestine?

I've noticed since I've been on the diet that I've felt a bit queasy... is that normal? I've never not had wheat for this length of time before, is my body just having withdrawls?

I went and bought the gluten-free life for dummies book. I hate the name, but I've learned quite a bit so far.

But if anyone has the answer to my question, well, that would be great.
Thanks!


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