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RYANNE Posts: 35
5/15/07 12:52 P

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I had chronically bad dandruff and adult acne before I began to make sure all the products I use are GF.

My symptoms were:

- brain fog / sluggish /fatigued
- pre-diabetes
- arthritis
- weight gain (that I absolutely could not lose until I went GF, then woosh - 50lbs came off)
- adult acne
- bad dandruff
- headaches/migraines
- painful bloating & gas
- constipation & irregular bm's
- intense cravings, always hungry, never satisfied.
- poor vitamin levels

Etc, etc, etc. Its always so interesting to me the range of symptoms people experience. It makes me realize that we haven't even begun to scratch the surface of this disease.

SW: 190lbs on May 7, 2005.

LW: 137lbs on June 7, 2006


 
DOTSLADY's Photo DOTSLADY Posts: 10,024
5/10/07 1:46 P

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FYI: From the celiac listserve, someone recently said these would be gluten free:


Matrix Vavoom
Matrix Amplifying Shampoo
Matrix (Biolgate) Hydro Foaming Styler


(You can sign up for the listserv yourselves by going to celiac.com's website and joining their msg forum).

Sometimes I'll be quite content with my knowledge of celiac and then BOOM, I'll see a new post which will open a Pandora's box of emotions! Knowledge and information, anecdotal or otherwise, is helpful for a round perspective though. Keep that in mind if you're so inclined.


KNOWLEDGE = POWER. BODY = TEMPLE. FOOD = MEDICINE. PREVENTION IS THE CURE. YOU ARE WHAT YOU ABSORB!
One person's food is another person's poison.
__________
Celiac Disease: An autoimmune reaction from eating gluten grains: wheat, rye, barley and contaminated oats=nutrient deficiency=cancer. Have 1 of 300 symptoms? bit.ly/cdsymptoms
CD stories: bit.ly/cdstories
Nutrition/Cancer: bit.ly/Quillinnutrition


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HIKINGCHIC SparkPoints: (3,341)
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5/8/07 11:11 A

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Funny, I've always had a rotation of different shampoos and conditioners just because my scalp always started to react if I only used one. That was something I started to do sub-conscientiously.

I have started on a quest to make sure my soaps and lotions are gluten-free. I've always have had dry itchy skin too and that hasn't really cleared up since being gf for 7 months now. Even check out my dish soap since my hands are the worst right now.

KITTAH's Photo KITTAH SparkPoints: (32,539)
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5/8/07 10:12 A

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I love this forum.

I can't remember ever not having itchiness from shampoos and conditioners. I can usually use a product for 3 or 4 washings before it becomes intolerable. I then change products... rinse, repeat. That means at any given time I have 4 sets of shampoo and conditioner in my house. =(

Cost doesn't seem to matter much although I can kiss Suave goodbye after two washings. Matrix can survive me up to 8 when I splurge for it.

It has been about 10 years since I lived anywhere near a Whole Foods but I remember buying a natural shampoo there in blue metal bottles that was really expensive *sigh* but awesome. No problems for me at all... and I never knew why. I Really wish I could track that shampoo down now. No idea what the name was. I'd mow lawns to add that into my rotation.

It has been a bit over two months gluten free for me and my skin has changed texture. I am still hoping that this will translate to my scalp. *crosses fingers* But I guess that won't happen if I am piling odd gluten products onto my head each morning.

Ere long I bare fruit, and throve full well,
I grew and waxed in wisdom;
word following word, I found me words,
deed following deed, I wrought deeds. - The Havamal


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DOTSLADY's Photo DOTSLADY Posts: 10,024
5/8/07 12:46 A

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As for itchiness - I remember hearing Dr. Peter Green on Dr. Oz/Roizen's XM show talk about celiac. Dr. Oz's wife, Robin, said Oz has dandruff and somehow they thought this was gluten-related. I haven't really heard much else. My scalp is itching me only now since I'm reading this thread! LOL.

And though alopecia is connected via auto-immune disease link with celiac, and I think my paternal grandmother had it, I don't think I do. I think it's my serum ferritin - that library book covered "hair loss" - I just wanted to clarify. *itching scalp*

(I can't see wheat in my shampoo or conditioner btw.)

KNOWLEDGE = POWER. BODY = TEMPLE. FOOD = MEDICINE. PREVENTION IS THE CURE. YOU ARE WHAT YOU ABSORB!
One person's food is another person's poison.
__________
Celiac Disease: An autoimmune reaction from eating gluten grains: wheat, rye, barley and contaminated oats=nutrient deficiency=cancer. Have 1 of 300 symptoms? bit.ly/cdsymptoms
CD stories: bit.ly/cdstories
Nutrition/Cancer: bit.ly/Quillinnutrition


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KJEANNE's Photo KJEANNE SparkPoints: (39,604)
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5/7/07 11:15 P

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I am so happy to read this forum. Itís great to know that others are having similar problems and we can share our solutions. Okay: enough gushing!
I have always had problems with itchy scalp but I had just gotten to the point where I wash my hair every day and pile on the conditioner. I have a short natural so I donít need gel or hair spray. Iím going to look for that GF shampoo the next time Iím in Whole Foods.


Do not look where you fell, but where you slipped.
African proverb


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CLABBERGIRL's Photo CLABBERGIRL Posts: 231
5/7/07 10:37 P

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This is fascinating. I read something like this on another non-SP forum. I've been having issues with itchy scalp for a long time, and for the life of me cannot figure out what ingredient it is. I've tried just about every brand of shampoo/conditioner on the market and can't find an answer. I thought it might even be the sulfate in all lathering shampoos so I paid $9 for a bottle of Burt's Bees shampoo without it, and still have the same problem.

I haven't been checking things for wheat, however. I don't have DH, and have only just started thinking I'm celiac or gluten-intolerant. I'd imagine a lot of hair products have it as an ingredient because protein has long been used as a staple in conditioners especially for hair-strengthening properties.

Wow. For hair gel - I have heard of people using pure aloe vera gel (like for sunburns) as a gel, diluted with water. It dries as a very firm hold, and is supposed to be great in humidity and for curly hair especially.

EMDADD Posts: 9
5/7/07 3:30 P

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I dont know about the ingredients in gel, but I haven't used it for a few days, and my scalp and shoulders (where my hair would touch) is no longer itchy. I checked into alopecia too, but it didn't seem to fit.

what I do know is that Whole Foods does make their own brand "365" of GF shampoo and conditioner. My husband was cleaning the drain in the shower every 2 weeks before. I am waiting on a list from Vichy cosmetics about the 30 derivatives found in products, so maybe that list will help. I will update in the future.

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5/7/07 3:00 P

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This one is bizarre...but I used to get really bad hiccups before. Then one day I noticed I hadn't been plagued by the hiccups on a regular basis. emoticon



DOTSLADY's Photo DOTSLADY Posts: 10,024
5/7/07 2:10 P

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I've been losing my hair too - never thought it was the shampoo though, so that's a twist for me to incorporate into my care.

My hair loss is due (I think!) to low serum ferritin - I picked up a book about alopecia/hair loss at the library and it said anything under 70 is ripe for weak hair growth. Mine's been 5 for over a year that I have records for (but I noticed my hair falling out at least 3+ years ago).

What ingredients would gel have in its ingredients list to be wary of? And other than the obvious, what do you look for in shampoo/conditioners?

KNOWLEDGE = POWER. BODY = TEMPLE. FOOD = MEDICINE. PREVENTION IS THE CURE. YOU ARE WHAT YOU ABSORB!
One person's food is another person's poison.
__________
Celiac Disease: An autoimmune reaction from eating gluten grains: wheat, rye, barley and contaminated oats=nutrient deficiency=cancer. Have 1 of 300 symptoms? bit.ly/cdsymptoms
CD stories: bit.ly/cdstories
Nutrition/Cancer: bit.ly/Quillinnutrition


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EMDADD Posts: 9
5/7/07 1:46 P

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I have lost half of the hair on my head due to this wonderful disease! everyone tells me that this is not connected to Celiac, but whe I stopped using regular shampoo and conditioner, I stopped loosing hair. I dont have DH, but seem to be gluten intolerant on my skin. I haave to wear GF make up, lotion, body wash, etc.

Does anyone know where I can find GF gel? this is my new quest!

BEANSHIPPYMAUM's Photo BEANSHIPPYMAUM Posts: 87
4/25/07 1:25 A

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I had pre-clinical hypothyroidism that disappeared. I was .2 pts away from technically being diagnosed with hypothyroidism and it just poof - went away! I was on the pills too - up to the maximum before I started feeling my heart flutter - and it didn't drop it down a pt but going GF and I'm normal - and I mean REAL normal.

Endometriosis pain - gone.
PCOS - symptoms (gone but I still have really short AF)
Joint Pain - better - not gone but definately better
Migranes - GONE! MY FAVOURITE SYMPTOM THAT HAS DISAPPEARED!! sometimes I honestly thought I was going to die.

Oh - there are so many things.

The biggest change for me was going from 168lbs (last time I checked) to 130lbs - by just going GF. I don't know if it's from actually going GF or if it's because I felt better so I did more (I was really sick - as in on long term disability and in bed ALL DAY LONG because I couldn't MOVE without being in a ton of pain and my joints swelling etc) and by more I mean just living life!

Oh - I also used to have almost monthly kidney infections - haven't had one since going GF - I haven't had 1 infection since going GF and I used to get really bizarre infections (like a cheek infection?!)

:)

 
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WARRIOR_MOMMY's Photo WARRIOR_MOMMY SparkPoints: (0)
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4/24/07 2:14 P

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I can not eat any diary products unless I want to be in the bathroom all day. I can not eat any breads either. So I try to stay away from foods that give me problems.

"its nice to be IMPORTANT...but..its more important to be..NICE.."


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KITTAH's Photo KITTAH SparkPoints: (32,539)
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4/24/07 11:23 A

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I'm still new at this, only a few months gluten free.

1. So far I have noticed big improvements in bloating and gas. I used to be horribly constipated and I thought it was due to my thyroid issues, but celiac was definately part of it.

2. I too had assumed that nervous shaking before and then crashing after eating was a sugar issue. I was afraid it was a sign of diabetes, but it was gluten.

3. Seasonal rhinitis, or desert nose as one doctor called it in Arizona, was a constant bother for me but I haven't had a problem for the past two weeks. (crosses fingers)

4. I'm taking large doses of sublingual B vitamins to counteract my anemia and am not weepy every day now... only every few days... okay, every 20 hours or so instead of every hour... lol

5. I can't remember, or cannot be quite sure, but I think the brain fog is less. Waitaminute, what were we talking about? Oh yes, symptoms...
emoticon

Edited by: KITTAH at: 4/24/2007 (11:39)
Ere long I bare fruit, and throve full well,
I grew and waxed in wisdom;
word following word, I found me words,
deed following deed, I wrought deeds. - The Havamal


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BEIGE.BABY's Photo BEIGE.BABY SparkPoints: (0)
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4/23/07 3:21 P

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Besides the digestion related stuff (painful bloating, gas, diarrhea, constipation and nausea) that stopped I noticed a lot of stuff I never thought was related. Such as:

1. I had what I figured was adult acne - that has totally cleared up
2. I used to get tonsillitis almost every fall that the doctor thought was allergy related and I didn't get it this fall. (finger's crossed)
3. My seasonal allergies are alot better, used to wake up congested but now only when I accidentally eat gluten

My whole family stopped eating gluten and everyone's allergies (mostly nasal congestion) got better. My dad has snored super loud my whole life, when he went gluten free he stopped snoring completely

"It's not that some people have willpower and some don't. It's that some people are ready to change and others are not."
James Gordon, M.D.

I'm working on being ready!


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HORSEYGEORGE's Photo HORSEYGEORGE Posts: 1,412
4/23/07 1:49 P

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I too am intolerant to dairy products and gluten.

My eczema is a lot better since cutting out both. My nails don't break so much either.

I know what you both are saying about the tiredness. I had pizza on Saturday as a treat (being intolerant means I can have a certain amount once in a while before getting too many problems. Usually once a month)

After eating the pizza Friday night, I felt so tired Sunday morning and kept drifting off to sleep all morning. I'm still bloated now and that will probably go down by tomorrow

 
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DOTSLADY's Photo DOTSLADY Posts: 10,024
4/23/07 12:51 P

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Shannon - I guess for me a lot of things just stopped getting worse. I have to think about your question longer and may come back to edit later with a P.S. (So my brain is still at a loss? lol)

I didn't have daily diarrhea, but I did have 3 fatty stools, or one after each meal. Sometimes I wasn't even eating gluten. When I was working, I'd have a Yoplait Nouriche for breakfast sometimes. And I kept trying to exercise the lbs away, even getting a personal trainer at the house to work off my butt. I felt more energy for maybe an hour (the hour I showered and got ready for work). Then I felt like crap. And even that hour I supposedly felt "good" I didn't really feel all that good. I kept complaining I didn't get that high everyone's talking about when they exercised!

After exercise I'd have a whole wheat turkey sandwich ... and I got the brain fog/tiredness and felt stupid at work for a very demanding boss (who did not eat gluten in his lunch!) - he was sharp. Anyway, I was intimidated and suffered such a lack of self-esteem from not being on my toes; like I just wanted to slap myself in the face to knock myself awake! lol So that the brain fog is gone - that I didn't know about until reading about it after diagnosis.

I also didn't expect my big toenails to have horizontal ridges grow up them (pre and post gluten-free diet). I have a celiac friend dx after me, and this didn't happen to her.

I can sleep through the night also - my insomnia's better since my Vit D is up I'm surmising. Also, I didn't expect my lifelong depression to ease away by months 6-7. I woke up, felt like singing and I thought, "Gee, I think I'm not depressed?!!!" I'd never not known depression, so what a bright day THAT was (and still is!).

That's all for now.

P.S.
Gone:
BRAIN FOG
BONE/MUSCLE & FIBRO-TYPE PAIN AND ACHES
RESTLESS LEGS
DEPRESSION (lifelong!)
CHRONIC FATIGUE
ECZEMA
INSOMNIA
4-5 DAY/WK HEADACHES/MIGRAINES
WORSENING EYESIGHT (started with night blindness about 8 yrs ago ... but only dx cause I was driving in dark wintery AK! This year: no change in eyeglass Rx).

Still have:
INFERTILITY (? not sure, but haven't used birth control for 25 years ... hellooo ... am scared now I'll get pg since I'm getting healthier!)
ADD
HYPOTHYROIDISM (dx 10 years before my celiac. Med dose has been decreased twice this year I've been gf)
SLOW HEALING (? not sure about this one, but when I was in my early 20s I got a burn that wouldn't heal for 9 months -I was neg. for diabetes.)


Edited by: DOTSLADY at: 4/25/2007 (11:58)
KNOWLEDGE = POWER. BODY = TEMPLE. FOOD = MEDICINE. PREVENTION IS THE CURE. YOU ARE WHAT YOU ABSORB!
One person's food is another person's poison.
__________
Celiac Disease: An autoimmune reaction from eating gluten grains: wheat, rye, barley and contaminated oats=nutrient deficiency=cancer. Have 1 of 300 symptoms? bit.ly/cdsymptoms
CD stories: bit.ly/cdstories
Nutrition/Cancer: bit.ly/Quillinnutrition


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SHANNONCC Posts: 220
4/23/07 11:39 A

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I'm curious, what kinds of things have been cleared up by going GF? For me, so far, it's mainly digestion. As in, no more daily diarrhea. Yay! I have problems with dairy, soy and onions too and have had a few issues with those when I don't pay attention but I'm greatly improved overall.

I also used to have what I thought were "sugar crashes". Getting really tired an hour after eating sugary things, to the point where I had to sit down, my eyes drooping, not functioning well at all. It cleared up when I went GF and I suddenly realized that almost all my sugar binges involved gluten. I was big on the baked goods and even though I liked candy and ice cream too, I rarely ate them alone. Now, if I eat gluten-free sugary foods I dont have a crash. Um, not saying I should be binging on GF stuff but still, it's good information to have. Twice in the past month I've had a very mild crash so I'm thinking both times I ingested some gluten by mistake (both times were after handling a wheat product for someone else!).

My mom and aunt went GF with me. None of this is official, we haven't had any doctor's diagnoses (though I am going to do the Entero lab thing when I get my tax return) but all three of us have had obvious, undeniable results.

My aunt was in the worst shape and has had the most dramatic results. And you can't say it's placebo because some things we didn't even think were related. Like back pain. She had chronic back pain for 4 years before this. She told me she went to a doctor, a chiropractor and even had steroid injections and nothing cured it. Her pain was such that she couldn't roll over in bed without spasms and couldn't pick things up off the floor.

Day 4 of GF she had a "good day" (ie: no spasms). And that's it. She's been GF since April 2nd and after day 4 she's had good day after good day. She says she still has some sciatica in her hips, but the lower and mid back pain she's had for 4 years is gone. Not reduced, but GONE.

Then there's peeing LOL! My mom and aunt both now are able to sleep through the night instead of having to wake up to pee (at least once, usually more).

So the back thing and the peeing thing are both symptoms we weren't aware of. Both of them also had the bad digestion (diarrhea, gas, stomach aches) that I've always had. That's the thing you always hear about when you talk of gluten though. The other things were a surprise.



Edited by: SHANNONCC at: 4/23/2007 (11:40)
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