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IDAHONURSE
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4/2/07 2:56 P

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"ok ladies......I've sent the specimen!"
Can you imagine these poor guys at the lab opening like 20 boxes a day of s___?
You know that some of them have to leak or open during transit....eeeeeuwwwwww!
LOL, cracking up.....
Anywhoo.....I talked to Nestle today and all of their baking products, including choc. chips will be marked if they could bother a celiac person. This is good, we're talking C H O C O L A T E here!
If I have a little each day, I don't want to binge on it. It's when I'm deprived that the craving for too much sets in.

"can you see the beauty inside of me?
what happened to the beauty inside of me?"
-Bono


MOMSKI
Posts: 52
4/2/07 8:53 A

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Yes (shock) our family physician (who is a D.O., not an M.D.) pointed us to Enterto to get our teenage daughter tested. We were going down the wrong path and thought she had endometriosis!

(Doctor actually called ME at HOME and said, do it!)

Turns out our doctor is Gluten Sensitive!

Things are going well. She's been in school more often and her grades are coming up. She's a freshman this year - so every day counts!

Middle school (8th grade) was a joke. As long as she passed the No Child Left Behind standardized tests, even though she got D's and F's in class.... she passed.

####



DOTSLADY
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4/1/07 11:47 P

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Momski - A DOCTOR referral to Enterolab? "Liberal" doctor - good for you.

How did it go?

KNOWLEDGE = POWER. BODY = TEMPLE. FOOD = MEDICINE. PREVENTION IS THE CURE. YOU ARE WHAT YOU ABSORB!
One person's food is another person's poison.
__________
Celiac Disease: An autoimmune reaction from eating gluten grains: wheat, rye, barley and contaminated oats=nutrient deficiency=cancer. Have 1 of 300 symptoms? bit.ly/cdsymptoms
CD stories: bit.ly/cdstories
Nutrition/Cancer: bit.ly/Quillinnutrition


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MOMSKI
Posts: 52
4/1/07 10:35 P

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*newbie post*

At the advice of our family doctor, he pointed us to Entero labs to diagnose her gluten sensitivity. They were easy to deal with, answered e-mails promptly and e-mailed results as promised.





DOTSLADY
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3/31/07 3:56 P

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I went to www.pdrhealth.com and input "Vitamin D" (etc) into the search field, upper right side.

You also may want to try "parathyroid disorders" or low glucose; it will bring up all articles with said reference.

KNOWLEDGE = POWER. BODY = TEMPLE. FOOD = MEDICINE. PREVENTION IS THE CURE. YOU ARE WHAT YOU ABSORB!
One person's food is another person's poison.
__________
Celiac Disease: An autoimmune reaction from eating gluten grains: wheat, rye, barley and contaminated oats=nutrient deficiency=cancer. Have 1 of 300 symptoms? bit.ly/cdsymptoms
CD stories: bit.ly/cdstories
Nutrition/Cancer: bit.ly/Quillinnutrition


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IDAHONURSE
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3/31/07 3:02 P

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DOTSLADY: what did you put in on the pdr website. In other words, where on that site did you find info, and what info did you find? I'm having my parathyroids tested this coming week. I'm being referred to an endocrinologist due to the weird thyroid, vit D, and blood sugar results. Looking forward to a direction.

"can you see the beauty inside of me?
what happened to the beauty inside of me?"
-Bono


DOTSLADY
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3/31/07 2:44 P

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I wish my doc would have tested all my fat soluble viatmins after my celiac diagnosis. I DO know that my B12 and ferritin, like I said, are still low. I DO know that my Vit D went up with supplements/Rx. What *I* forgot to mention is how I figured that out: I got to reading the PDR at pdrhealth.com about all vitamins.

Here's the link to Vitamin D. What's interesting is that too much can lead to anorexia! And too little, depression, as I mentioned. It's all so obvious now ... wish doctors thought of it sooner in my life! So many people in Alaska are on antidepressants!

http://tinyurl.com/yrzkld


KNOWLEDGE = POWER. BODY = TEMPLE. FOOD = MEDICINE. PREVENTION IS THE CURE. YOU ARE WHAT YOU ABSORB!
One person's food is another person's poison.
__________
Celiac Disease: An autoimmune reaction from eating gluten grains: wheat, rye, barley and contaminated oats=nutrient deficiency=cancer. Have 1 of 300 symptoms? bit.ly/cdsymptoms
CD stories: bit.ly/cdstories
Nutrition/Cancer: bit.ly/Quillinnutrition


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IDAHONURSE
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3/31/07 2:31 P

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Forgot to mention that my doc told me last night, when she called at 7pm, that a serum vit d deficiency can cause one to feel terrible. Like a vit B12 deficiency or low thyroid. I'm picking up my 50,000iu of Vit D on Monday. Like DOTSLADY, I will take one per week for 8 weeks. If you have celiac, it's good to have this tested. I live so north, that it's common to have a lack of D. It's not common to have it be 11.

"can you see the beauty inside of me?
what happened to the beauty inside of me?"
-Bono


DOTSLADY
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3/31/07 1:21 P

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When we moved to Alaska it was summer and the sun was out 20 hours a day. But I was inside unpacking boxes and just really depressed anyway. So horrible that the minute I walked into the doc's office Iemoticon balled for an antidepressant (after years of trying to kick it myself - how many people do that one?). I got Prozac, and while it worked, I was still "not right." I felt REALLY weird in the winter without sunshine, can you imagine?

When we moved to the lower 48 again, I went off Prozac. But then I got depressed again and tried to kick it with exercize. Didn't work. I went to psych for daughter's ADD, and he ended up Rx-ing me a script for Provigil - an antinarcoleptic for my sleepiness. I took it a while, then occasionally, then not at all. I still felt "artificial" and unhealthy.

We moved again and I went to another new doc for memory issues, fatigue, thyroid check. He upped Synthroid a bit and I tried diet and exercise again for feeling better and less depressed. Diet had whole grains of course.

Moved again and I was beside myself in fatigue. Went to in-network doc #1 who checked thyroid, ferritin and I got sent to gastro. Didn't really like doc #1, so found Doc #2, who was more thorough but out of network. After celiac dx, he put me on Wellbutrin then Zoloft with little effect. This was by month 3 into trying. Then I stopped and the Vit D worked, or the gut healing in general, like I said.

I have read studies which show it's possible for people with eating disorders may really have celiac. Google it. Sometimes people are innately trying to figure their diets out - I did that and gave up meat by becoming vegetarian. Turned out I needed the meat and not the grains, but oh well. I was trying, and hindsight is 20/20 and all that.

So, this will be interesting. Keep us posted.

KNOWLEDGE = POWER. BODY = TEMPLE. FOOD = MEDICINE. PREVENTION IS THE CURE. YOU ARE WHAT YOU ABSORB!
One person's food is another person's poison.
__________
Celiac Disease: An autoimmune reaction from eating gluten grains: wheat, rye, barley and contaminated oats=nutrient deficiency=cancer. Have 1 of 300 symptoms? bit.ly/cdsymptoms
CD stories: bit.ly/cdstories
Nutrition/Cancer: bit.ly/Quillinnutrition


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IDAHONURSE
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3/31/07 12:51 P

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DOTSLADY: as you know, I'm also a member of the eating disorders support group on sp. I posted there around December that I was feeling suicidally depressed. So, to answer your q about depression, YES, YES, YES, I suffer. I saw a psychiatrist who put me on Cymbalta and kept me on Wellbutrin (which only helps 1 neurotransmitter). I started feeling less depressed within a couple of weeks. I'm hoping that by going gf, I can rid myself of the psoriasis, depression, and many other problems. My calcium level was ok, and I had ferritin tested a year ago. My level was 18. The range is 6-250. I'm usually very anemic, but right at the moment, not too bad.

"can you see the beauty inside of me?
what happened to the beauty inside of me?"
-Bono


DOTSLADY
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3/31/07 1:38 A

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WOW! Tell me, are you suffering from any depression? I know there are at least three different vit D tests (and one is better than the others). Nonetheless, one of my vit D tests was 21. That yours is an 11, seems crazy. My doc put me on Rx for Vit D: 50,000iu 1x/day for 8 days, then 1x/month for a year, + Posture D 3x/day + calcium citrate 400 mg. - fyi. I took a vit D Rx pill about a week before my one-year celiac followup and my new lab score was 63 - over range a bit.

My point in asking about the Vit D is that some of my recovery was last summer, and I tried to get some sunshine every day (15-20 mins at least over as much exposed skin as possible). By month 7 I wasn't depressed anymore. I always thought that was why. Maybe it was a combined reason, such as getting more of all the nutrients, I don't know.

I hope your doc also tested your ferritin. That's the whole reason I got sent to a gastro! And it's a year later and it's still the same at a 5 (I forget range, but think it's 10-100?) Doc says nothing about it too. *in the background trying not to pull anymore hair out from my balding scalp*. I picked up a book at the library about hair loss: (did I already post this here? I posted this somewhere). Anyway: hair loss occurs when ferritin goes below 70! I'm like, "What?!" And it also occurs with low biotin, which I've never had tested. But my B12 is still low too (in the low 400s).

Low thyroid? Explains fatigue. I can't believe with all your health issues and delivering babies that you went home to cook Kinninikinickickcicickcick. lol You go girl!

KNOWLEDGE = POWER. BODY = TEMPLE. FOOD = MEDICINE. PREVENTION IS THE CURE. YOU ARE WHAT YOU ABSORB!
One person's food is another person's poison.
__________
Celiac Disease: An autoimmune reaction from eating gluten grains: wheat, rye, barley and contaminated oats=nutrient deficiency=cancer. Have 1 of 300 symptoms? bit.ly/cdsymptoms
CD stories: bit.ly/cdstories
Nutrition/Cancer: bit.ly/Quillinnutrition


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IDAHONURSE
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3/30/07 7:55 P

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I just got off the phone w/my dad and younger sister. Both of them have suffered w/gi pain and problems since I can remember. I strongly encouraged both to get the genetic testing w/Dr. Fine.
I got my serum vitamin D results today, and my vitamin D is in the toilet. 20-57 is the normal range, and I am 11.
My t4 and sTSH were both low. I take t3, but not sure what this all means. Waiting for my doc to call back. My wbc is 3.5 and 4-11 is the normal. EEEEEk!
I felt like death today, but went to work anyway. I'd see black when I stood up, and felt like medicine head. I got 10 hours of sleep last night but was tired and headachy this morning. My co-worker/friend at work prayed with me and I felt better and better as the day went on. I did 2 deliveries (of babies), and then got to leave. I'm making burgers tonight on Kinnikinik buns. My counselor says they are sooo good.

"can you see the beauty inside of me?
what happened to the beauty inside of me?"
-Bono


DOTSLADY
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3/30/07 3:49 P

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Thinking of Dr. Fine reminds me of what happened to the doctor who thought mercury fillings were poisoning our systems - he was ruined. But since his career demise others have jumped on the bandwagon, including a reference by Dr. Stephen Sinatra, a "New" cardiologist and in reference to heart disease.

I just wrote a great (if I do say so myself) blog about heart disease and it's relationship to thyroid and a bit about celiac, too. I wish my blog were like Wikepedia where the public could edit as you read. But if you read it, please offer your insights as well. You know how us celiacs "know" nutritional deficiencies are a root cause of "dis-ease."

When I read Mary Shomon, thyroid goddess, and other websites, it's as though they think "their" disease is the root cause and "we" share symptoms! lol Whatever. It's all linked. But celiac is a kingpin! had to say it. thunder's rumbling - tornadoes hover about ...

Signed,
"Dorothy, not in Oz yet"

Edited by: DOTSLADY at: 3/30/2007 (15:50)
KNOWLEDGE = POWER. BODY = TEMPLE. FOOD = MEDICINE. PREVENTION IS THE CURE. YOU ARE WHAT YOU ABSORB!
One person's food is another person's poison.
__________
Celiac Disease: An autoimmune reaction from eating gluten grains: wheat, rye, barley and contaminated oats=nutrient deficiency=cancer. Have 1 of 300 symptoms? bit.ly/cdsymptoms
CD stories: bit.ly/cdstories
Nutrition/Cancer: bit.ly/Quillinnutrition


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BIGEWE
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3/30/07 3:36 P

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Dotslady,

Pioneers....for sure and Dr. Fine doing much of the blazing.

The people I know who tested negative either had relatives with celiac or had digestive symptoms. One little boy who was negative is Asian and even though his test was negative his mom tried the diet and nothing changed.

A friend of mine has had many family members tested with Dr. Fine and some have been negative.

Dr. Fine said in his lecture about 99% of people who have tested with him either have symptoms or celiacs in the family and still only 60% are positive. I find that encouraging. Gives it more validity.

You can order the seminar off his website at http://www.intestinalhealth.org/ It is the Intestinal Health and Beyond conference CD. He has the statistics in his first speech called "Early Diagnosis of Gluten Sensitivity Using Fecal Testing: Report of an 8-year study"

Those who have had negative traditional blood/biopsy and then positive with Enterolabs AND respond to the diet basically just shows the traditional tests are lacking in really showing early stages of gluten sensitivity. They can be trusted if they are positive.

Well, I could go on and on with stuff but my kids are calling for food and I am getting side tracked...did I make any sense??

Kate









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DOTSLADY
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3/30/07 2:25 P

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I'm not an expert at all about blood sugars. Sorry. It sounds scary though.

My only thoughts, not seeing your food journal, is Are you getting enough protein which may sustain you longer? Are you eating fruits and veggies? I mean, I'm glad you ate breakfast, but maybe more would help, and what'd you have for dinner the night before?

I hope someone else has a better idea.

KNOWLEDGE = POWER. BODY = TEMPLE. FOOD = MEDICINE. PREVENTION IS THE CURE. YOU ARE WHAT YOU ABSORB!
One person's food is another person's poison.
__________
Celiac Disease: An autoimmune reaction from eating gluten grains: wheat, rye, barley and contaminated oats=nutrient deficiency=cancer. Have 1 of 300 symptoms? bit.ly/cdsymptoms
CD stories: bit.ly/cdstories
Nutrition/Cancer: bit.ly/Quillinnutrition


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IDAHONURSE
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3/30/07 1:39 P

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I went back and checked out the enterolabs website yesterday. There is a heading on the left side of the page (can't remember what it is specifically), but you can see in detail what percentages of certain testers came out negative. It's very detailed.
I have been vigilant about being gluten free for the past 3-4 days, and I've noticed a bad headache and extreme fatigue. I'm one who NEVER has a headache. I'm sleeping 9-10 hours a night, and feel exhausted all day. I'm thinking it may be a withdrawal thing. I'm hoping, anyway. I'm going to work now. I feel dizzy and see black when I stand up. My dh is pissed at how low my blood sugar was on Monday when I had labs drawn at the hospital. He thinks I starve myself all the time. Well, I had eaten 2 gluten free waffles, some sunflower seeds and 2 cups of coffee w/coffee mate in them only 3.5 hours before the test. I have a history of anorexia, so he assumes I'm still into that. I'm not. I'm confused why my blood sugar was in the 50's. I wasn't even hungry, and didn't eat for another few hours after the test. Any ideas?

"can you see the beauty inside of me?
what happened to the beauty inside of me?"
-Bono


DOTSLADY
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3/30/07 11:59 A

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Kate: has Dr. Fine mentioned in his lecture, or do you know any of those who tested negative? The reason I want to know is why they tested in the first place (simply because a family member was positive, or because of symptoms, and if so, what symptoms).

I hate the part you wrote about people testing negative by blood and biopsy and then being positive by enterolabs. This confuses so many people because it's so new. We are blazing a trail here people!

Here's my "blaze":

My life's story is in my blog, and I've posted it here before, so I'll spare you the details. Suffice it to say I was positive for biopsy, then got the positive blood labs to seal the deal. That started the whole ball rolling in my family. I immediately had my DD tested and she was negative blood and biopsy. Her symptoms to me: cantankerous cuss all her life or you might say ODD if you were a psychologist - but gosh, so argumentative about every little thing it wears me out (even AFTER diagnosis), ADD which has a life all it's own, chronic fatigue, chronic constipation, history of ear infections, ear tubes, colds from 3 weeks old, tonsilectomy and 2 adenoidectomies (hers grew back of course), depression, anxiety. Her iron levels are fine (one of my symptoms).

I did the gene test (positive from both sides) and soy, corn, egg, yeast package (can't remember the details). She was positive to gluten, casein, and one I didn't think of, soy.

She tried an elimination diet and got sucked into the bread basket by day 4. She tried again and did it for 10 days, lost weight and was smiling for the first time ... ever (like the happy kids you see on commercials or greeting cards). Has she remained on it? No. It's too hard when she's out to go to the grocery store for a piece of fruit than Chic Filet (sp?) for that chicken (glutenous)wrap. Sigh. She's gf at home and it's a start I have to live with and I encourage.

If ONLY I'd have had this information at the start of her life!

emoticonfor Enterolab.

Edited by: DOTSLADY at: 3/30/2007 (12:02)
KNOWLEDGE = POWER. BODY = TEMPLE. FOOD = MEDICINE. PREVENTION IS THE CURE. YOU ARE WHAT YOU ABSORB!
One person's food is another person's poison.
__________
Celiac Disease: An autoimmune reaction from eating gluten grains: wheat, rye, barley and contaminated oats=nutrient deficiency=cancer. Have 1 of 300 symptoms? bit.ly/cdsymptoms
CD stories: bit.ly/cdstories
Nutrition/Cancer: bit.ly/Quillinnutrition


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BIGEWE
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3/30/07 9:43 A

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I have had positive experiences with Dr. Fine and Enterolabs.

After my first daughter was diagnosed with celiacs I had my other 4 children tested with a blood test. The doctor who ran the test only tested for Ttg and their tests were negative.

I knew some of my kids had pretty severe symptoms and I started with one child just doing the gene test. He has the main celiac gene, he also had some severe symptoms and had lost 30lbs. We started the diet and the symtoms went away and he started gaining weight.

My other daughter didn't appear to have any symptoms but when we started the diet her bloated tummy went away and her life long constipation was gone. She thought shs didn't need the diet so for my peace of mind and for her I did the whole stool panel and gene test with Enterolabs. Her numbers were really high, she has a main gene for celiacs and her numbers for cows milk protein was very high as well. We started the diet for the second time with her and again things we didn't know were symptoms went away. The testing is a tangible thing for her to be able to know we didn't just make this up for her.

I did the gene test for myself as well.

We started a support group and many of the people in it were diagnosed with Dr. Fines test. Several of those had negative blood work and negative biopsies and have responded to the diet. Dr. Fines test helped to know for sure.

I also know several people who have had negative tests with Dr. Fine as well.

I went to his conference last year and was very impressed. Even though most of the people he tests have either symptoms or a celiac relative still only 60% of them test positive. I find that information good to know that not everyone is positive.

I am very convinced he is ahead of his time. Maybe another 10 years the medical profession might catch on.

Kate gfcf diet manager of 7



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IDAHONURSE
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3/29/07 8:06 P

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Please post if you have experience with dr fine or entero labs. Also post if a friend or relative has had experience with dr fine or entero labs.

"can you see the beauty inside of me?
what happened to the beauty inside of me?"
-Bono


 
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