Hello, My son was diagnosed at 7 years old. My daughter was told not to attempt to feed her daughter gluten until at least 15 months so as not to compromise her bowel. When she did give it a try my granddaughter's symptoms were classic and extreme. Her next daughter was the same and her son is only 1 so she has not done the test yet. The best thing is to speak to a specialist and get expert advice.
Yes, that is exaclty why it is important to have a diagnosis for CD if it is that. It can affect income tax claims as a disability, recognition for special meals in hospitals, etc especially with no many going gluten free for ideological reasons. It's treated with a different level of seriousness if it is an official diagnosis. In the USA, it is a double edges sword because in the past some people have been denied medical insurance (no effect in Canada) but I think that has changed with the legislation that has been passed in the last few years.
I understand just making him GF on my own, but without medical documentation, I am concerned about when he starts school (lunches, birthdays, playdoh), medications, etc. I also want to rule out other causes (dairy?). It's odd, regular BMs don't cause diaper rash in my son, but when he seems to have a 'flare-up', that diarhea causes a pretty bad rash. You have to change him ASAP. Does he have the 'rotten/sulphur burp' symptom? Very curious about this as this was the way I KNEW I was going to be sick. (my mom gets them also)
My mom also started with her symptoms in her late 40s, but she has not been to the 'right' doctor yet. She is in denial about cutting out gluten. It is hereditary,and I've read about the genetic testing and would love to get that done. I plan on looking into it and seeing if my insurance will cover it for my kids since i have been diagnosed.
I too am wondering if my 2 year old might be gluten intolerant. My mom discovered her gluten intolerance about 5 years ago after many years eating a diet high in whole grains as recommended by her doctor for her intestinal and stomach issues, even though it didn't help. She was so happy when someone suggested going GF to her after being diagnosed with rheumatoid arthritis and not only did a GF diet help with that, it also eliminated all her other issues she dealt with for years. Anyway, I started to realize last summer that I was having similar issues the my mom said started for when was in her 30s. I tried to deny it for a little bit, but the extreme exhaustion, headaches and intestinal issues wasn't worth it. I continued eating gluten until I saw a GI doctor specializing in Celiacs and Gluten intolerance. I had blood work done and it all came back negative, but my doctor told me that instead of going through having the biopsy done, based on my own testing (I tried GF for a few weeks and noticed a big difference. I was back to eating gluten for several months before seeing the GI doctor) and my mom's history, he said that most likely I was GI and not Celiac and to just follow a GF diet. Most of my issues are now gone that I'm no longer eating gluten.
As for my 2 year old, he has bad diahrea and diaper rashes, which make me wonder if he too is gluten intolerant. I have not been to his pediatrician with it yet, but plan on taking him soon.
Barb, I understand all the testing that needs done to check for either CD or GI (eating gluten for a long time before being tested) but what problems does it create if you don't go through all the testing for diagnosis? You alluded to future problems without a proper dianosis and I'm not sure why someone has to have a proper diagnosis.
I don't know much about diagnosis in children but I do know that you must be eating gluten before getting any tests otherwise the antibodies have disappeared from their systems. The blood test is done first because it is less invasive. Btw, I had the same reactions to cream of wheat cereal as a child but I was still fed bread etc until I suggested the cause of my problems to my doctor when I was in my 30's. It's important that you talk with your doctor before putting him on a gf diet. If you do put him on the diet and see significant changes, you will never know whether it is CD or gluten intolerance. That creates future problems. I know from experience because there were no blood tests when I was diagnosed and my doctor chose not to do a biopsy because they were quite invasive at that time and the changes for me were quite dramatic. But it has left me in limbo for years. The gluten free diet is so difficult to follow particularly for children and generally expensive, a proper diagnosis is important. Good Luck, Barb gf 32 yrs.
I suspect that my 2yr old son has celiac. He has periods where his stomach will stick out, foul diarrhea, foul burps, gas, vomiting(note the foul burps smell the same as the ones i used to have-they make me gag). I plan to get the blood test, but I was diagnosed thru a biopsy, not the blood test (negative). Anyone have similar stories? what were the symptoms? did you get diagnosed or remove gluten from your childs' diet on your own?
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