I went on an elimination diet (with medical supervision) because after chemo it seemed I was reacting to things all day. Gluten is one of the things that seems to set me off, so I'm GF for now. I will re-do the elimination diet next year and see if my system has readjusted. If not, I'll go for the celiac test.
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I did have the test and it came back neg but when I try to eat any wheat it messes me up real bad. Like you I have explosive diarrhea, along with very bad cramping and pain that drives me crazy
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My story is simple and quick. When I was a little younger I was diagnosed with Irritable Bowel Syndrome. I tried to manage it and nothing seemed to work. I was always having stomach problems and they were intense. I was watching an episode of Dr. Oz and he was talking to a woman who was diagnosed with Celiac Disease. Well , I did not have the money to get tested so I decided to give up gluten and see what happened. In two days all of my problems went away. I feel so much better and I never have any problems with my stomach.
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It's almost the end of Celiac Awareness Month! I thought I would start a new discussion in its honor (better late than never).
What's your gluten-free/celiac disease story?
Here's mine. I always seemed to have minor GI issues, but they intensified in the fall of 2009. My mom and I were visiting Savannah and while we were at the airport waiting to board our plane to come home, I had an "event" in the bathroom. (A terrible place for such a thing to happen!) I came back to where my mom was sitting and she said, "You know, you should go to the doctor. It's probably nothing, but it's always good to have it checked out."
When I got home, I called for an appointment. I kept a food log and what GI issues I experienced after eating them the week before my appointment. Sometimes the effects were immediate. I still didn't even consider gluten as the culprit. When I explained my issues, celiac disease was the first thing my doctor thought of. (I later learned that her aunt has celiac.) She took my blood and it came back positive for the antibodies. She referred me to a gastroenterologist and a month later, I had an upper endoscopy. The gastro doc said that my intestine showed signs of "blunting" and that he thought I had celiac.
My diagnosis was quick and to the point. This is not the case of many people with celiac, so I feel very fortunate. No doubt those mild GI issues I suffered for years and years before was undiagnosed celiac... I just never thought to share the embarrassing stories with a doctor.
I went gluten free after the endoscopy and felt better within 2 days. My gassiness was gone, as well as a symptom I didn't even know I had: brain fog. I used to always say that I felt like the squiggles around Pig Pen (the Peanuts character) were in my head. Being gluten free helps me think more clearly.
Feeling better so immediately after going gluten free helps me to stay gluten free.
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