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1/31/13 12:11 P

I have been gluten free for 6 years & never thought about tea bags! Thank you so much. I am careful about everything I use, but have become a little lax in checking every ingredient in every food. I wasn't aware of problems with baking powder or chili powder, but it all makes sense. Sometimes I feel so overwhelmed with label reading & figuringing out what i can & can't have, but I know I have to get back to it because I don't always feel good. Thanks for renewing my resolve to check ingredients!

Posts: 21
1/28/13 7:04 P

Hi FRUITIBAT,

Yes, I understand that, and I have checked everything. I'm not getting gluten from any obvious sources. What I was saying is it doesn't look like there is a way for me to have answers until it is time for my vitamin and iron levels to be checked again.

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1/28/13 4:24 P

The post that suggest checking vitamins, I think meant, checking any vitamins/ medicines/ supplements for gluten rather than having your bloods checked again.
Rebecca

current weight: 133.0

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126

Posts: 21
1/28/13 3:50 P

I literally don't put anything in my mouth without knowing. The only cereal I get is Rice Chex, the only oatmeal is Bob's Red Mill certified gluten free. I haven't drank any tea and I never lick envelopes.

I've never stopped being tired so that really isn't a signal. I've never had an issue with dairy products and still don't.

It wouldn't do any good to have my vitamins checked because it is too soon.

The only product I use with gluten is nail polish and my doctor and nutritionist assured me that if I don't bite my nails, that isn't an issue. They've both said the gluten needs to be ingested to cause an issue and since my DH is on my leg, the polish doesn't go anywhere near there.

I guess until I can get my labs done again, there isn't really any way for me to know.

Posts: 1,921
1/26/13 6:25 P

I agree about checking all your beauty products, I couldn't get my DH to clear up till I found it was in my shampoo. Switched to a GF shampoo and finally cleared up.

I thought I didn't have any other symptoms till a few months after I went GF, my friend didn't finish her fries, I knew they were CC but thought a few wouldn't hurt. Boy was I wrong, within 15 min I felt like I hadn't slept in a week, could feel brain fog marching across my brain, and when I got up to bowl I couldn't stand straight to throw the ball. Although I was feeling better I hadn't realized those symptoms were better it had been a slow detox of gluten out of my system and all brought back by a few lousy fries.

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1/26/13 4:32 P

Oh and I realised tiredness is the other thing I feel when glutened. Since that was what you noticed most, maybe you could use that as your guide to figuring out what might be hitting you still....
Rebecca

current weight: 133.0

146 141 136 131

126

SparkPoints: (3,973)
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1/26/13 4:29 P

I also didn't have many obvious sysmptoms prior to diagnosis other than aneamia. But There are other symptoms that aren't related to your stomach which having done a lot of reading and reflecting I realise I had. Some people notice that their mood improves whether it is that don't feel so down or low or even depressed. Others notice an improvement in anxiety. The other one I experienced was pins and needles in my arm especially at night. The professionals call it neuropathy. I also had really restless legs at night, but now as I sit here and think, I could never sit still on the sofa either and I can now...
I have been gf since June. If I get glutened I now have stomach issues and I notice my mood plummets, I get anxious and stressy, as well as having really bad pins and needles in my arm at night.
Everyone's different though.... Good luck figuring it out. All the professionals talk about food diaries as a really good tool for being able to dispassionately identify what's going on - maybe you could also rate anything you wonder about as a possible symptom...
Rebecca

current weight: 133.0

146 141 136 131

126

Posts: 30,158
1/25/13 10:06 P

Also check what products that you put on your skin too. They do have gluten in them too. What you put on your skin is also absorbed into your body and will also cause a reaction too. IE shampoos, conditioners, lotions, toothpastes etc. Just make sure that you read everything and if you are not sure then don't get it until you look up what it is. Some are called by different names and that will also mess with your body

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120

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1/25/13 6:41 P

Did you check your supplements, minerals, vitamins?
Did you know that some envelopes,(the ones you lick) the glue is gluten?
So do some tea bags, its what keeps the tissue paper together.
Do you drink beer or whiskey, Ovaltine(malt flavors), anything with malt flavoring?
What about cereals like Cheerios?
Some oatmeal is cross contaminated by gluten grains.
Baking powder.... baking soda is okay.
Spices, especially spice mixtures like chili powder.

If your gut is in disrepair you will have problems digesting milk sugar... lactose... so that's one way to tell.

Some Celiac is refractory, but most of it isn't. It does take time to heal.

I found an article for you that may help you identify "Stealth Gluten::

celiacdisease.about.com/od/copingwiththedi
et/a/Gluten-On-Food-Labels.htm

Keep reading labels and hang in there...

: )
Mzzchief

current weight: 143.0

156 150.75 145.5 140.25

135

Posts: 21
1/25/13 2:46 P

I was recently diagnosed with Celiac. I’ve been anemic as long as I can remember, but never had any kind of stomach issue when I eat gluten. Because of my uncontrollable anemia and finally, after 5 years, a diagnosis of DH on my leg, I asked to be tested for Celiac. I am considered, "asymptomatic."


Here is my issue, I’ve been gluten free for 4 weeks and I don’t feel any better, but other than being tired from the anemia, I didn’t feel bad to begin with. So how do I know if I’m getting “hidden gluten” or cross contamination or…? I’ve only eaten at a restaurant once in the past 4 weeks and had a steak and baked potato from their gluten free menu. I’ve removed gluten every where I can think of in my house (my whole family is gluten free to support me). We got a new toaster and got rid of the bread machine and sanitized every surface and read every label… I just have no way of knowing if it is helping… The DH isn’t even improving yet :-( I’m afraid I’m missing something.

Eventually I can be retested by my doctor, to see if the blood work still shows the markers and if my nutrition absorbance is better, but she says to wait 6 months for that.

Any ideas?