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Celiac Disease and Gluten-Free

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TOPIC:   Please Help Me!!! 


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CINDYTW
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8/24/12 12:31 A

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OK Calm down! You are FAR from obese at your stats! ANd the previous advice about letting your body recover from the shock is good. Did you know that too much cardio can be a stressor too and make you gain weight? Maybe stay active but lower intensity and less. It is a HEALING process, as if you had a dire disease (you DO, it is an auto-immune disease) and you can't upset the balance and expect good results. Our bodies WILL rebel and find a way to survive (IE cravings, compulsions to eat random things, getting sick, gaining weight because it doesn't trust you will give it enough.). CALM down, focus on healthy, non processed foods and FEED your starving body with lots of fruits and veggies and protein. Healthy fats, like avocado and olive oil and coconut oil. You WILL get through this! I sense your panic, and it will be OK! emoticon

Cindy

"To get something you never had you have to do something you never did"



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BRITTSHANKS
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8/23/12 9:19 A

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All,

If any of you have time, can you give me an idea of what your healthy, weight loss meal plan looks like? I am trying to find one online but they all have 100 ingredients for each meal. I can't afford that.

Thanks!


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BRITTSHANKS
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8/23/12 9:18 A

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Oh my goodness!!!! That is such scary news for me to hear! I struggle with my image and do NOT want to gain weight. I workout at a very high intensity 2 times a day (at least) and yet I canít figure out why I keep gaining!!!! It makes since that this disease is causing me to gain and then the stress of it causes me to want comfort food. I am struggling so bad!!!! I need to find a simple gluten free meal plan that will help me lose weight. It wonít be easy but I am willing to do it. About two years ago I was 125lbs( and Iím 5í60, I LOVED IT! Felt better then and loved my body. I am not weighting in at around 140 and HATE it!!!! I am not the slender in shape woman. I am desperate and willing to try anything to lose this weight. I am yet to call my doctor to set up a meeting with the nutritionist and I need to do that ASAP. I am anxious to get this weight off.

Were you ever bloated during your healing process? I am not sure if it is water weight or swelling but I feel bloated 24/7. Any remedies for that? Sorry to ask so many questions to you all but I am really trying to get this under control. Thanks for all your help!



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MACKJESS1234
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8/22/12 5:21 P

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When I was diagnosed, I gained almost 1-2 lbs a day after I quit eating gluten. I wanted to do horrible things to my doctor that ended in firey explosions. Ok, not really, but it helped me not bite his head off when I actually did have appointments with him.

Some of his advice REALLY did not sit well with me, but I did it. The easy part - he told me to drink almond milk and have small servings of nutbutter or dry roasted almonds with my salads/snacks. Some chemical in almonds makes you feel satiated longer. He also told me to up the amount of beans and legumes because all that fiber would keep me digesting awhile and fill me up. I also added gluten free oatmeal in at breakfast and gluten free quinoa at lunch. I didn't eat any carbs other than beans at dinner. Also, take a really good multivitamin. I get one at Whole Foods that is made out of raw food. You take 2 at meals for 3 times a day. Yes, 6 vitamins does seem like a lot, but since you have Celiacs your intestines don't absorb as well. Everything crammed into 1 pill a day does not work for us.

BAD part - he told me to quit exercising until I quit gaining weight. I wanted to do fiery explosion things again. He said at most a slow walk with the dogs for 20-25 minutes a day until my body got over the shock, and got out of starvation mode.

I did it. It took almost 4 weeks and I gained almost 30 lbs. I was down to 1 pair of jeans and had to buy new bras because I went from Cs to Fs. It was ridiculous (my husband liked that part). And one day I quit gaining. About a week after that I started back to my workouts. Because I was no longer malnourished my workouts FELT better even though I had taken a month off. And the good news, 15 lbs came right back off very quickly.

But I am back on spark because I got lazy and quit working out. I haven't gained any weight since that initial 15 loss, but I quit losing. Good news is I did quit gaining after I got to gluten free. I have just had way too much fun this summer with drinking, eating (I still dont eat gluten or soy), and no exercising. Thank goodness I have SP to get me back on track.

Edited by: MACKJESS1234 at: 8/22/2012 (17:24)
Mini Goals and rewards:

167-Reached 10/08/2012, allowed myself a McDs sundae for a treat!

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BRITTSHANKS
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8/22/12 2:47 P

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Awesome! Good to know! :) Thanks for the insight.


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CINDYTW
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8/21/12 11:39 P

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Baked Kettle chips are great, and GF, and all types of chcolate are avalable. Most are GF. I like to look for the lowest sugar and soy free. But a lot is out there if you take time to read labels.

Cindy

"To get something you never had you have to do something you never did"



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BRITTSHANKS
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8/21/12 12:53 P

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Thanks for the tips! I do need to do more research online to see what products are gluten free. I would love to have small amounts of chips/chocolate that can curb my cravings but help me with my weight loss. I have stuck to being gluten free for about 3 weeks now and it is slowly getting easier although the craving at night still have not gone away. I am working on finding recipes that will help me not feel deprived but also not through my diet off...I will look into those products! Thanks for helping me.I really appreciate it! You all are SO helpful!


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FRUITBAT3
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8/20/12 9:52 P

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There are some fantastic certified gf chips made by "Food should taste good". They aren't loaded with fat and there is even one with flax seed in. I love the olive ones and the ones with the seeds (sorry can't remember what they're called) Kroger stock them in the health food section. They have small bags too for calorie control!
I haven't really investigated it as I am not that into chocolate but there is some gf chocolate out there. I'm sure you'll find some great high quality dark chocolate if you look.
Have you come across the gf grocery shopping guide by Cecelia's market place? That lists most foods and brands that are gf. It may help you to find some substitutions.
Rebecca

Love and light Rebecca


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BRITTSHANKS
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8/20/12 11:40 A

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Thank you so much for the advice and the insight. That helps a lot. I am trying too hard to cut back on everything and only eat the ďhealthyĒ gluten free products, basically everything that is in the outside edges of the grocery store. I wonít lie though, it has been difficult. Iím not a big junk food person but I did like to have an occasional 100 Calorie pack or crave my sweet tooth with some dark chocolate, or if I was in the mood for chips I would have some baked chips or healthier crackers. I cannot do any of that now and my body is going through withdraws, especially at night!!! Itís awful! I am just praying that will start to see a change and that will give me the motivation I need to keep going. Thanks again for everything!!! All of the tips and suggestions have really helped me.


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MARGIE100%PURE
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8/16/12 10:58 A

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Getting the allotted 5-9 veggies can enhance tummy comfort and essential needs can be met by getting the omega-3 daily oils to stay within calorie limits for goal reaching success at 22 Iuís per day.

The tiny nutrition in a good variety of fruits and veggies have trace sugars that repair and heal for great post exercise recovery and resistance to flu after planned stress.

Fiber;
Fill, Intestines,
Better, Energy,
Regulation, all day long.

EPA and DHA are the 3 carbon molecules of omega-3 vitamin E for continued health and attractive scale readings, as well as supporting a full cascade of hormones for immune strength, and awesome body shaping. The body does not make the 3ís. They must be eaten or consumed in capsules. This oil supply is about 9 calories per gram and well worth it.

Be aware of hormone influence as my own pre-moon time and full moon time seems to demand and I used to respond with that old habit of sweet cravings. Other essential nutrients can supply the feeding that that old sweet message used to cover up. Usually a missing volume of magnesium or a shortage of specific enzymes and amino acids can correct this cycle of discomfort that follows moon times and new habits suppress those cravings for the old less nutritional ways. An extra gram of GLA (gamma-linoleic- acid omega-6) broken into 3 separate 30mg doses or servings can help quiet that monthly craving noise.

Complex carbohydrates are slow to digest. Selecting foods for the complex carb value instead of the simple ones is a logical powerful time tool for the gaps between meals. Simple carbs leave us feeling deprived with stronger sweet cravings in the short run. Meals and snacks with protein with a little fat or oil and fruits or vegetables for fiber with natural sweetness may not feel satisfying at the start of this change. It will take the tongue the gut and the mind time to adapt to this altered style. The drastic shift from heavy sweetness with few fiber grams per day to tongue happiness and weight kindness is a mental game.
The more you eat of sweet Ďthangsí the more the body will crave it. Eat less and crave less and weight less. You decide.



Edited by: MARGIE100%PURE at: 8/16/2012 (11:00)
The greatest love story is your own.
If you miss out of life to the fullest; they win.
You are the happiness master of your own mind.
Thought is an active dynamic energy to harmonize and corrolate good.
Clear all paths to love thru forgiveness.
I may not recognize the significance until some time later.
Is my resistance to change really that strong?
Impatience does not provide the time to learn the lesson;
Awaken new ways to approach the dissolving of a problem;


BRITTSHANKS
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8/14/12 2:51 P

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Rebecca,
Thank you SO much for the tips and advice. I will look into the B12 levels and see if that is something I can take to help me. I really appreciate your insight. I was actually all ready thinking about taking dairy out of my diet to see if that helps. Thanks again! You have really helped me.

DIZZYCOCOA,
Thanks for your advice as well! Itís funny you should say all that about the fiber. My Dr is also pushing a high fiber diet but it may be something I am not able to do. I just feel so much pain, and so heavy. I just want to tone down the pain and bring down the weight. Unfortunately when I eat so much food it just makes me gain weight. I am not losing weight. Iím just hungry 24/7. I will try your method and see what happens. I also think itís a great idea to try no dairy for a week and then no oats for a week and keep switching till I find what my body is able to handle. Thanks again for the tips! Iíll let you know how it goes. If you all ever think of any more suggestions or tips, PLEASE message them to me! I can use all the help I can get. I will be going to a Nutritionist /Dietitian this week so we will see what they tell me to do.

Everyone,
:) Thank you so much for all the tips!!!! This is excellent advice. I agree that everyoneís body is different and we are all going to react differently. I know itís a slow process and I am trying to be patient. Itís just so hard. The chronic pain is horrible plus the hunger and weight gain just makes me miserable.



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HEALTHYBARB1
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8/14/12 2:08 P

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So many good ideas here...I was completely dairy free for my 1st 2 years and agree that the celiac diet change and healing is a life time journey. I so agree that this is a very personal journey and though each of us have a similar diagnosis that way our bodies deal with it is very unique. Glad you are getting lots of help from some very knowledge filled sparkers!! Hugs Barb

Smiles from Barb!!

"If you want something you've never had...you must do something you've never done!"

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DJ4HEALTH
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8/13/12 10:11 P

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it maybe the gum that is making you hungry, some of the artificial sweeteners will do that

Dorothy





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DIZZYCOCOA
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8/13/12 9:43 P

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I had the same thing happen too - I was starving all the time plus, before I was diagnosed I was eating literally 4-5000 calories a day and losing weight - 20 pounds in 1 month to be precise. So not only was I still hungry all the time because my body was literally starving but I was also used to eating so much that I had to reprogram my brain to know what a normal serving size is.
Please consider that some of your hunger may be emotional as well. Many of us become anxious, subconsciously even, that our next meal may never come because there's a huge psychological burden to having to limit foods in such an unusual way and the worry that there might be cross contamination and hidden gluten in things. So your brain might be telling you to eat "just in case".

That said, I actually had to give up high-fiber foods like quinoa and oats to feel better. In fact, when I get much fiber from grains of any type, it causes a lot of problems. I found that eating protein and basic vegetables helped me the most. As long as I stay away from sugar I don't gain weight no matter how much I eat of those things, in fact I've been losing weight, slowly but surely!

I pretty much have a Larabar every morning for breakfast, a banana for snack then a big spinach salad for lunch. I top it with tons of meat, cheese, nuts, olives, various other veggies like grape tomatoes, zucchini slices, snap peas, carrots etc to be creative. Then for dinner beef or fish and cooked veggies with some kind of starch like a potato or rice. I go for organic if at all possible to limit any chemicals that might also interfere with nutrient absorption and found I don't need a multi-vitamin any more.
Having consistency helped a lot because I get proper nutrition and I'm not thinking about what to eat all the time. Keeps my mind off food too - that helps.
I'd suggest a different ways of eating every week until you find what works for you, personally.
My Dr. pushed the high fiber option but it literally made me sicker - so I had to figure it out the hard way.
I tried a week of vegan, a week of paleo, a week of quinoa, a week of food combining etc. and found what keeps me feeling good.
I truly wish you luck - keep us posted!!




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FRUITBAT3
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8/13/12 9:34 P

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Hi Brittshanks, you have had some excellent advice. There are just a couple of things I would add from my experience.
Did you have your B12 levels checked? Often these are compromised with CD. I found that taking this as a sublingual supplement (the body can't absorb it well any other way) stopped cravings and binges for me. It would be worth checking your levels.
This is a massively stressful time for us. The malnourishment can make us vulnerable emotionally. It is important to find something that nourishes you emotionally. Yoga and mindfulness meditation are proven to be excellent for reducing stress and helping to manage unhelpful eating habits. I have found them useful for me but it's important to find what works for you.
I also found that eliminating dairy helped my stomach issues, especially gas. I was very resistant to it initially (I was only diagnosed 8 weeks ago) but I am definitely better without it.
Yu may want to think about this as our stomachs can't absorb the fat which then goes into the colon and turns into gas and bloats us.
Finally, this is a long recovery. It can take up to two years for our intestines to fully heal although people can feel much better much quicker than that. A friend who has had Celiacs for over 20 years reassured me that in a years time we newbies will realise we have become experts in our condition and how to manage it but she said we need to think about this as a lifelong journey.
Post often when you feel concerned and get support here, there's loads of really good advice from some great people.
Rebecca

Love and light Rebecca


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CINDYTW
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8/13/12 8:57 P

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I had the same problem, I was starving for about a month or two. Add some protein and fat to every mean and snack that does help. Probiotics, fish oil and a good quality multivitamin are essential right now to help heal. I also found aloe juice, Calm magnesium and pure psyllium were helpful in keeping things regular and pain free.

Cindy

"To get something you never had you have to do something you never did"



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BRITTSHANKS
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8/13/12 3:11 P

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Thanks for the tips! I will try that.I am going by the vitamin Shoppe today to see if I can find something that will help me. I am more than discouraged and in so much pain, yet always hungry. I have been trying to eat a lot of fruit and vegitables but maybe I'm not getting enough protein. I'll work on that. Thanks for tips! keep them coming! haha :)


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MZZCHIEF
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8/13/12 3:07 P

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Protein puts a real damper on my appetite.
I make a batch of chicken thighs and keep them in the fridge for snacking.
Alternately, I take a scoop of Jarrow's unflavored whey.

You might want to look into taking glutamine and a probiotic to heal your gut.

: )
Mzzchief

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AROOSTOOK
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8/13/12 2:55 P

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I eat lots of fresh fruit and found that popcorn was helpful too.

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BRITTSHANKS
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8/13/12 12:27 P

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HEALTHYBARB1 Thank you SO much for the tips and encouragement. That's exactly what I need. I will certainly try some of your meal ideas. I am going to contact my dr. today and see if he can recommend anything to help me. I feel like after going gluten free I am even hungrier than I was before. I am trying to stay away from all the processed gluten free muffins, cakes, and junk food because I know that will only make me gain more. So, I am trying to think of healthy options that are gluten free and will make me feel full without because more weight gain. I will also try your supplement. I have been taking gluco pills with each meal to help with the fiber and make me feel fuller longer. Not helping though.  Iíll try to stay positive and understand that it will take time. I just hate eating healthy and workout hard only to gain weight. Itís so depressing.


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BRITTSHANKS
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8/13/12 12:16 P

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Thatís true. I never thought of that. I do not take a vitamin as of now only because I am on so many prescriptions I wasnít looking to add more. Haha. But if it will work I will do it. I will try to go by the vitamin shoppe to see what they have gluten free. I am going to see a dietitian and a nutritionist in the near future but as of now I just want to keep training hard and get to my weight goal but this hunger is killing me. I know I am eating way too much but my stomach never feels full. Iím really struggling.

Thanks again for the tips! Iíll try them for sure! And yes, please send me the link. Iím a little overwhelmed with the life change right now.



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HEALTHYBARB1
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8/13/12 12:14 P

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I had the same problem and my doctor said it was because I had not been digesting and absorbing nutrients for so long that my body thought is was starving!! It will get better over time but here are some of the things that helped me...
- I take a digestive aid to help nutrients absorb better...mine is called essential enzymes
- Add more fiber to your diet and protein at every meal, gluten free oatmeal, almonds or nut of choice, fruit smoothies with added fiber, sweet potatoes and stir fried veggies and meat and soups with added beans are some of the items I liked that helped.
-Eat 4 to 5 smaller meals per day to curb the hunger but not add calories
- Find gluten free nutrient dense foods that you enjoy that make you feel full and still stay within your calorie range on sparkpeople. High fiber and high protein seemed to help me the most. (Use the search at the top of sparkpeople and google for lists of foods that meet your needs and that you would like to eat. Remember that food has to take care of your health needs but needs to be delicious too or you will not stick with it.)

Sample meals:
Breakfast: 1) Gluten free Oatmeal(1/2 cup), Almond Milk and add walnuts or pecan and brown sugar
2) Blueberry Pancakes made with Pamela's Baking mix and added oats and grated apple and Blueberries to the recipe on package. 3) Scramble made with eggs, veggies, onions and mushrooms and topped grated cheese of choice with slice of rudi's gluten free multigrain bread
Lunch: 1) Grilled Rudi's Gluten free multigrain bread with deli meat, lettuce and cucumbers and light ranch or mayo added. 2) Smoothie made from Coconut milk ice cream, Frozen Marionberry or Raspberries and almond milk and bag of mini microwavable popcorn. 3) Salad of romaine, spinach, cucumbers, carrots and tomato with deli meat of choice cut in small peices tossed with ranch dressing.
Snack: 1) 1/4 cup of peanuts, almonds or pecans 2) 1/2 cup of fruit, 1 apple or 1 cup of strawberries. 3) Peanut butter and crackers 4) Cup of snack mix (cereal, nuts and craisins mix) or gluten free nutrition bar.
Dinner: Stir fry with meat and veggies served with brown rice, Gluten free pizza, Steak and baked sweet potato, Taco Salad, Pot Roast and Veggies, Salmon and Green beans....note that most dinners in my home are served with a side salad or cut up veggies or fresh fruit.

Hope that gives you some ideas and examples. The most important thing for me has been exercising 60 + minutes per day and tracking my food before it goes in my mouth to make sure I stay in calorie range. Having easy and lower calorie snacks available is also helpful...granola bars, cups of fruit, snack mix, nuts, popcorn.

You can do this one day at a time. I remember being overwhelmed at the beginning too. Remember to do you best each day and realize that this is a life style change and a process and that healing from Celiac disease can take a few years not a few days. It just takes time. Be kind to yourself and patient!!


Smiles from Barb!!

"If you want something you've never had...you must do something you've never done!"

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TAEKWONDOCHICK
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8/13/12 12:11 P

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OK, here is the link to recipes for healthy meals that fit into a 1400 cal/day meal plan:

www.sparkpeople.com/myspark/team_messagebo
ard_thread.asp?board=1448x948x46581810


And here is a link to recipes for the GF flour blend I use, condiments, and so on.

www.sparkpeople.com/myspark/team_messagebo
ard_thread.asp?board=1448x948x46582378


I hope these help! Good luck!




TAEKWONDOCHICK
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8/13/12 12:09 P

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You're very welcome. It's a difficult think to adjust to, being gluten free and having your body feel like it's out of control. The thing is, for the time being it IS a little out of control.

I just had another thought. Take a multivitamin if you don't already. I have a friend who is Celiac, seems she was Celiac all her life but was only diagnosed in her mid-30s. There is so much damage done to her small intestines that she doesn't absorb nutrients properly any more. She takes a multivitamin every day so that the nutrients can be absorbed through her stomach instead of her intestines.

I wonder if that is why you're hungry all the time? Your body might be trying to get all the nutrition it's been starved of until now. Perhaps adding a multivitamin (make sure it's gluten free!) to your breakfast will help to curb the hunger.

Beyond that, make sure all your meals are well balanced with protein, starches, and fruits/vegetables. A chicken breast from Schwan's is a single serving and is only about 100 calories. Season with spices instead of heavy sauces, and eat healthy side dishes like brown rice and steamed broccoli. That's a healthy lunch or dinner right there that is NOT huge on calories but still tasty. :)

I had posted a message with links to a bunch of recipes that I use that are also here in SP so you can easily track them if you want to use them. I'll find the thread and I'll give you a link...





BRITTSHANKS
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8/13/12 11:58 A

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Thanks for the encouragement. I am trying to do al the right things but I feel like I am getting worse. I workout on average 2-3 hours a day 5-6 times a week. I am eating all my fruits and vegetables and trying to get protein in as much as I can. I just donít know what foods will help me fight hunger without gaining weight. I have trying to drink as much water as possible and then chewing gum when I feel like I need to eat more. Itís just so difficultÖDoes the hunger eventually go away? Once my body starts getting used to gluten free?


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TAEKWONDOCHICK
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8/13/12 11:48 A

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First of all.... calm down. :) Don't worry about the weight. Right now, your body is adjusting to the change in diet, it is healing itself, and you have to let it do so. Remember, with Celiac Disease, the villi in your small intestine are being attacked so those need time to recover and regrow. This is probably why you feel hungry all the time... you've been malnourished for so long.

If you're feeling hungry, start with a glass of water. Drink a whole 8 oz and wait 15 minutes. If you're still hungry after that, then eat something healthy and nutritious. If you're NOT still hungry, then you really just needed the water. :)

Continue with your exercise, and maybe shake it up a little bit. Our bodies get used to our activities, maybe doing something different will help.

Good luck!




BRITTSHANKS
SparkPoints: (851)
Fitness Minutes: (375)
Posts: 104
8/13/12 11:40 A

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HELP!!! I was recently diagnosed with a severe case of celiac disease. I am very active and eat healthy. I am gaining weight like crazy and I am hungry ALL of the time. The doctors say that is a side effect for Celiac Disease. Do any of you know how to fight hunger and lose weight while having celiac disease? What foods are good for fighting hunger? I have tried apples, vegetables, salads, grilled chicken, and so much more. I am ALWAYS hungry! I have cut out gluten 100% for the past two weeks but I have not seen any changes. Even while I am typing this my stomach is growling and I just ate two small apples. Please help me! I really want to lose the weight I have gained while trying to figure out what was wrong with me.  I am so discouraged and getting depressed. Any suggestions would be GREATLY appreciated. Thank you!


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