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47LUCAN's Photo 47LUCAN Posts: 131
2/18/07 11:28 A

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Thanks for the SillyYaks info! (Just what I need, another site to chat on). Before I got involved in this group, I had never gotten into any on-line communication except emailing people I already know.
I work on the computer all day, so I don't always want to turn mine on at home, but it is always rewarding to touch base with this group!

 
DZSMIMMA SparkPoints: (2,083)
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2/18/07 9:12 A

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I've been GF for a couple of months now, and don't find it too difficult. I've always loved cooking, and prefered using fresh ingredients. Adjusting some ingredeints, such as using Sweet Rice Flour or corn starch (there are many other options as well) instead of Wondra to thicken gravies and sauces, and using alternative bread crumbs and flours for breading or baking is not a difficult as it sounds. In some cases, much tastier!

Joining the yahoo group SillyYaks have helped tremendously. This group has so much information, recipes, and a restaruant guide in thier files. It also has an active list with so many kind people to answer any questions you might have.

Also, in shopping for alternative products it helps if you live in a diverse community. Often Asian, Indian and Mexican markets will have the ingredients you need much cheaper than supermarkets or Whole foods.

I hope these tips help...I'm sure there is much more, but I'm still rather new to this myself.

Also consider, many people are experience relief from symptoms by going GF, even when the blood tests come back negative.

Ann

PS...Whole food makes a frozen ready made pizza dough that is very good...expensive...but good.

"You are never too old to have a happy childhood"


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GMAKATHY's Photo GMAKATHY Posts: 217
2/18/07 7:54 A

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emoticon to all new members dealing with eating GF :} I have been dealing with this for the last 18 years of my life. The bread and so many food that do contain wheat etc products can be dealt with. Today the labeling has improved so it is alot easier to read the labels.. Just feeling so good eating GF is worth any small sacrafice you feel you need to make. Life is good.. be happy you have been diagnosed..
There are so many places on the internet.. one of my favorites is the Glutenfreemall.com
Again welcome everyone..and stick around here and you will find much information to help in your journey.. Hugs Kathy

If you see someone without a smile give them yours



"God determines who walks into your life....it's up to you to decide who you let walk away, who you let stay, and who you refuse to let go."



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KATIEGREEN1's Photo KATIEGREEN1 Posts: 35
2/18/07 2:57 A

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I am also new here, although I have been gluten, wheat and yeast free for about 6 years. I am in Australia and I am not sure that there is anyone else on sparkpeople from Australia. At first I missed bread but now I use other alternatives. There are great gluten free pastas, biscuits and a variety of other products available, although I have to admit yeast can be a problem with some things. I agree with another comment it is certainly not worth cheating - you only punish yourself (unless one of your symptoms is biting your husband's head off emoticon

His Grace is sufficient for me. Kate

His Grace is sufficient for me. Kate


 
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GFNOMAD's Photo GFNOMAD Posts: 1,511
2/17/07 10:18 P

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Welcome Lucaswe,
I believe you have the honour of being diagnosed the longest at 33 years! Some of us are at the 24-26 year marks.
I found the Food Tracker and the fitness Plans the most beneficial. It'surprising where those excess calories are hiding in our daily meals. Mine were the almonds and snacks.

Edited by: GFNOMAD at: 2/17/2007 (22:19)
Been to Tombouctou and back! Truely! (Timbuktu in English) photos and more Travel Adventures at www.flickr.com/photos/cdnnomad/sets
Recognizing Celiac Disease www.recognizingceliacdisease.
com/21.html

10 Tests that could save your life www.50plus.com/health/10-tests-that-
could-save-your-life/1676/

Dr. Alejandro Junger - 'Healing the gut' (from Dr. Oz) www.doctoroz.com/videos/3-day-jumpst
art-cleanse


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LUCASWE's Photo LUCASWE Posts: 29
2/17/07 9:14 P

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Hi, I just joined SparkPeople tonight, after my sister sent information about it. I was diagnosed with celiac 33 years ago. I am the chairperson of the Southern New Jersey chapter of CSA. My downfall has been all of the GF cakes and cookies that are now available, and will have to learn to cut them way back, or out totally. I don't eat much bread, so that's not a problem.

 
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47LUCAN's Photo 47LUCAN Posts: 131
2/16/07 11:01 P

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Ive only been dx about 3 weeks, and I can't believe how good I feel on the gluten-free! Hard to tell what contributes to what, because I have so much more energy that I feel like exercising and that gives me more energy, etc, etc... emoticon

 
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DOTSLADY's Photo DOTSLADY Posts: 10,019
2/16/07 5:48 P

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I hope you find out what's ailing you. I just had my first anniversary eating gf. I started to feel better around month 7. Boy am I grateful for the diagnosis. Now I'm trying to make up for lost life time experiences (I was rocking my life away and always wanted to sleep. I was kinda short-tempered too.) Now I'm back to my old sweet self. emoticon

I was a "C" celiac also -- much better now in that regard - except I just started taking iron supplements and things are a changing again. Drat. Other symptoms abated by my new diet and gut healing include no more depression (BIG YAY), chronic bone and muscle pain and insomnia, TMJ, restless legs, chronic fatigue, whininess about everything that required effort. Every motion seemed too hard and I became quite an efficiency expert at home.

I like what the others had to say about going gf though. It's well worth the trouble.

Anyway, good luck. Come back if you need us!

Edited by: DOTSLADY at: 2/16/2007 (17:49)
KNOWLEDGE = POWER. BODY = TEMPLE. FOOD = MEDICINE. PREVENTION IS THE CURE. YOU ARE WHAT YOU ABSORB!
One person's food is another person's poison.
__________
Celiac Disease: An autoimmune reaction from eating gluten grains: wheat, rye, barley and contaminated oats=nutrient deficiency=cancer. Have 1 of 300 symptoms? bit.ly/cdsymptoms
CD stories: bit.ly/cdstories
Nutrition/Cancer: bit.ly/Quillinnutrition


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PYEWAY SparkPoints: (884)
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2/15/07 8:07 A

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I have been gluten free for 24 years and like GFNOMAD stated, it was MUCH harder back then to be GF. It is alot easier now with all the new products on the market. I cook dinner every night so the entire family eats the same thing. Other than spaghetti night, we all eat what I make, therefore dinner is always GF. I don't run a restaurant and if someone has a problem with what is for supper, then can find something for themselves. If your family is basic meat and potatoes like of family, it will be easy. The most important rule: don't cheat! It is not worth it.

All the best

Pyeway

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BEANSHIPPYMAUM's Photo BEANSHIPPYMAUM Posts: 87
2/14/07 10:52 P

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El Peto Italian Bread is delicious! Nature's Path Waffles are just as good (better in my opinion) than Eggos - and once you get into the groove of the diet not eating those things won't bother you because just the thought of them will make you want to BLAH (at least for me!)

There are a lot of yahoo groups too with excellent information and support!

 
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GFNOMAD's Photo GFNOMAD Posts: 1,511
2/14/07 10:18 P

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I've been gluten free for 25 years. There was little information back them. They thought it was rare, occuring only in 1:10000.
There is a lot of information in various posts in this forum. More background, experiences, ideas, links etc. They are all listed there.
Barb

Been to Tombouctou and back! Truely! (Timbuktu in English) photos and more Travel Adventures at www.flickr.com/photos/cdnnomad/sets
Recognizing Celiac Disease www.recognizingceliacdisease.
com/21.html

10 Tests that could save your life www.50plus.com/health/10-tests-that-
could-save-your-life/1676/

Dr. Alejandro Junger - 'Healing the gut' (from Dr. Oz) www.doctoroz.com/videos/3-day-jumpst
art-cleanse


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NANAKATIE's Photo NANAKATIE SparkPoints: (0)
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2/14/07 4:20 P

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I just discovered my gluten-intolerance recently. Thanks to someone here at SP who heard me whining about a rash and pointed out that it could be dermatitis herpetiformis, associated with celiac's. Stopped eating gluten, and lo and behold the rash went away. (this was a 10 year rash, btw). A whole host of other symptoms that had been associated with Fibromyalgia also went away (pain, insomnia, restless legs, foggy brain...)
I have not found it that difficult to follow the food plan. I do miss things like pizza and pasta, but there are so many things you can have instead that it's not like you have to go hungry. As a matter of fact, I've had a hard time not gaining weight now that my innards are functioning correctly. I think part of my whole weight problem to begin with had to do with the fact that I was constantly ravenous because I wasn't absorbing the necessary nutrients. Just read labels and keep your "forbidden foods" list handy for double checking suspicious ingredients. There's a good book called "Gluten-Free for Dummies" that has lots of information and recipes! Those "bread-like" substitutes made with bean and rice flours (try Bobs Red Mill and Pamelas) aren't bad for when you think you might die without some toast or a biscuit; but in general, the good health you're going to enjoy will far outweigh any desire for glutenous products.
Hope that helps! And welcome!
Katie

HIKINGCHIC SparkPoints: (3,341)
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2/14/07 3:37 P

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That sounds very familiar to my symptoms before I was diagnosed with Celiac last fall. I hadn't heard of it before then, but I found there was a lot of information between the internet, books, and support groups.

MARTIEROSE Posts: 101
2/14/07 3:17 P

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It sounds like you have a good doctor, sensitive to your symptoms. I have been "gluten sensitive" since Sept. I feel like a new person eating gluten free. It is not too hard. My doc gave me a paper, and it said something like this: "Just imagine that you are in a foreign country and the food is different from what you are used to. You can adapt, and it's not that bad."

Lots of people go about trying to imitate all the products they're used to, but I am learning to just eat what I can. For example, I used to love sandwiches, but now I don't like the GF breads, so I just eat some meat, tomatoes, lettuce, onion, sprouts, cucumbers, ... on a plate. It's pretty that way, and I'm learning to be happy with it. If you have to, you can do it. No more pain!!! It's worth it.

With God, nothing is impossible!


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SSHOUP97's Photo SSHOUP97 Posts: 155
2/14/07 2:49 P

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Hi All!

I just went to the doc's yesterday and I am being sent to be tested for Celiac's. I am a little nervous and unsure of what that means.

My symptoms I complained about are a lot of discomfort, bloating constipation and some pain in area I think is small bowel. frequent headaches and sometime a generally wozzy feeling on certain days. This generally is worse after eating things like Pasta, Pizza, breads etc.

How long have you guys been dealing with Celiac's? If I am diagnosed, is there an easy way to incorporate a gluten free diet into my life and my family's life.

Thanks in advance.

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