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SLACHETKA103145's Photo SLACHETKA103145 SparkPoints: (42,866)
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2/27/13 8:10 A

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For those of us not GF problematic in a Celiac Spru household (I am the cook) what I did was started on pasta first and when I had conquered that I introduced bread in dishes like French Toast or Bread Crumb recipes. I also bake as much bread as I possibly can as I can make it softer and add moisture that isn't always present in other breads. I would be glad to share some recipes via email if you would like!

Jean

Jean

If you think you are beaten, you are.
If you think you dare not, you don't.
If you'd like to win but think you can't,
It's almost certain you won't.
Life's battles don't always go
To the stronger or faster man,
But sooner or later, the man who wins
Is the man who thinks he can. (Walter D. Wintle)



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GFNOMAD's Photo GFNOMAD Posts: 1,507
2/26/13 1:14 P

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Hi MLVALQUEZ, Aveeno has oats which are not gf unless you buy special ones. I have good success with Lubriderm unscented moisture and L'Oreal Revitalift. There are many list of gf products. check out www.celiac.org
My Mom had psoriasis and she too refused to give up bread, milk etc although surely it was adding to her skin problems. Bread/wheat is addictive so no wonder your mother won't give it up. Maybe try her with one of the new breads like Udi's or Rudi's or Kinniikinnick's soft bread. It might be an easier transition. Good luck!

Been to Tombouctou and back! Truely! (Timbuktu in English) photos and more Travel Adventures at www.flickr.com/photos/cdnnomad/sets
Recognizing Celiac Disease www.recognizingceliacdisease.
com/21.html

10 Tests that could save your life www.50plus.com/health/10-tests-that-
could-save-your-life/1676/

Dr. Alejandro Junger - 'Healing the gut' (from Dr. Oz) www.doctoroz.com/videos/3-day-jumpst
art-cleanse


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MLVASQUEZ's Photo MLVASQUEZ Posts: 33
2/26/13 12:57 P

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Hello Everyone, I'm glad to have found this forum as well! I started eating gluten-free about a year ago after trying a low-carb diet and having good results. I also was getting pretty desperate. I had really stinky intolerable gas daily, and I was really embarrased at work. I also notice that when I eat wheat products I get itchy bumps, but they are usually singular (not grouped) and they are light colored and look like when I get a mosquito bite (which I swell up bad for also).

I have had great success in eating a gluten-free diet, however, I'm not feeling like I'm 100% better yet. I get these itchy dry patches near my temples and the bridge of my nose that don't go away. I'm wondering if I'm allergic to something else, or if like the thread mentions earlier, if I have something in my shampoo or makeup or something that could be irritating my skin. I've been buying fairly natural lotions like Aveeno and Kiss my face, but I haven't checked the ingredient lists yet.

My mom has been diagnosed with Psoriasis on her legs, but I wonder if its something more like this. She insists she can't do without bread, and is very resistant to a gluten-free diet.

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2/21/13 9:00 A

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Fruit bat,

I have itchy scabby spots the same places you do- scalp, thighs, butt, and I thought at first it couldnt be DH. Then my Mom read an article on skin problems and underlying conditions, and suggested I stop eating gluten. I did, and my skin slowly but surely cleared up. I find a lot of people experience DH as itchy scabs, not painful blisters like in medical texts!

I got glutened exactly a week ago, and my flare up is juuust starting to calm down. :( it stinks, but it's just more corroboration that I do have a gluten problem! I cant get the bloodwork done, since I've been gluten free for a few months and categorically refuse to do a "gluten challenge." this flare up involved itching, depression, a spike in ravenous hunger, headaches and brain fog. I'm not intentionally doing that for six weeks or longer!

GFNOMAD's Photo GFNOMAD Posts: 1,507
12/26/12 1:50 P

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Gluten Sensitivity, Celiac disease and DH are Not allergies. It is a different mechanism although when in restaurants, it is easier to say an allergy because they understand that and are more careful. The only solution to any of the gluten related issues is a gluten free diet.
Going off the diet can cause a more noticeable reaction and lead to much more serious illnesses and diseases. If you have been off gluten for awhile, and the time is debatable, the tests will return negative because the cause is no longer in your system. Your earlier PCP was probably right when you were told that "years ago my former PCP diagnosed me with gluten intolerance/sensitivity through my blood work ".

Been to Tombouctou and back! Truely! (Timbuktu in English) photos and more Travel Adventures at www.flickr.com/photos/cdnnomad/sets
Recognizing Celiac Disease www.recognizingceliacdisease.
com/21.html

10 Tests that could save your life www.50plus.com/health/10-tests-that-
could-save-your-life/1676/

Dr. Alejandro Junger - 'Healing the gut' (from Dr. Oz) www.doctoroz.com/videos/3-day-jumpst
art-cleanse


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FULLFIGUREDGAL's Photo FULLFIGUREDGAL Posts: 353
12/23/12 3:29 P

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OMG...thank God I found this topic in the weekly team digest! Three weeks ago I got a bad rash on my right forearm and my forehead...I thought it was just an allergic reaction to a detergent or something and that would go away on it's own...well it's 3 weeks later and still there...finally was able to see my PCP who just referred me to a Dermatologist...I thought it could be related to lupus as I have been having elevated thyroid and ANA antibodies but I went to a rheumatologist before the rash breakout who tested me and said I don't have lupus...but of course I don't completely rely on the medical profession as years ago my former PCP diagnosed me with gluten intolerance/sensitivity through my blood work and then this year this new pcp said I am not allergic...yet, I can't eat anything with gluten in it so how do you explain that? LOL..I still follow a gluten free diet because I know I'm still having health issues and am still seeking answers...but now thanks to this board when I see the dermatologist I can have tell him about DH...I just looked up pics of it on the 'net and my rash looks exactly like some of the pics...although I do not ooze any liquids from it at all, not even when I scratch...Good luck to everyone and thanks again! :)

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FRUITBAT3's Photo FRUITBAT3 Posts: 114
12/19/12 12:14 P

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This is SO interesting. Thank you so much for all the fab info. I was diagnosed with CD in June. I have wondered whether I might have DH as well as I have spots in my hair that take forever to heal and are madly itchy. I also have spots on my buttocks and back of my thighs no matter what I do from a hygiene perspective. But I have always thought probably not since they don't blister, so it was interesting to hear that there can be as much variation with DH presentation as with CD.
So, last night I checked my shampoo and sure enough, it has tocopherol (?spelling) What shampoos have you found that don't have it?
Many thanks
Rebecca

Rebecca


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KACEYSW's Photo KACEYSW Posts: 2,359
12/11/12 12:41 A

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I also use comfrey and lavender oil to help, as well.

Refuse to be beaten by inanimate objects, inflexible minds, and incompetent practices.


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TEDDYBEARDONNA's Photo TEDDYBEARDONNA Posts: 11,949
11/29/12 5:27 P

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When I do have an outbreak to DH, I have found a cream with cold tar is about the only thing that helps. You might go on line and see pictures and see if your spots look like DH.



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MRKGIRL Posts: 24
11/29/12 3:29 P

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Hi Everyone, I am new to this. I haven't been tested, but I'm pretty sure I'm gluten sensitive. All along, I've always thought it was carbs I was sensitive to. I've noticed in the past year I get a very very itchy rash, but i'm not sure it has blisters. But I have about 3-4 spots. When I don't eat carbs, the itch gets better. I know this is gross, and I apologize ahead of time, but the reason I started researching gluten sensitivity was because I found a symptom somewhere about anal itching with gluten. Does anyone else have this problem, and if so, do you use anything for relief? I haven't gone gluten free yet, I think I'm in denial...and I'm hoping I can find something to fix it without going gluten free...Any feedback would be very greatly appreciated.


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KJEANNE's Photo KJEANNE SparkPoints: (39,537)
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7/28/12 12:30 A

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I was diagnosed with DH after two biopsies of the active lesions. My lesions were all over my body, except my face, and were like weeping blisters. Awful itch too. I also was constipated. The second biopsy came back DH so I went on a GF diet. The lesions healed fast and within 3 days I had a wonderful bowel movement! That was 39 years ago. So I believe the disease has to be active in order to test it.

Do not look where you fell, but where you slipped.
African proverb


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WRITINGDIVA1's Photo WRITINGDIVA1 Posts: 294
5/5/12 11:27 P

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Amen Sister!

The pounds are sliding off...


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SANJMOM's Photo SANJMOM SparkPoints: (3,420)
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5/5/12 6:48 A

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My DH was localized to just my elbows and scalp. For years, I was told it was psoriasis. It wasn't until I started experimenting with removing gluten that it cleared up and then the DR said it must have been DH. I have some permanent scarring on my elbows. I wasn't about to go on a gluten binge just to make it reappear so I could test it. All I know need to know is if I eat gluten DH and all my other symptoms will reappear.

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WRITINGDIVA1's Photo WRITINGDIVA1 Posts: 294
5/4/12 9:14 P

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Whew. My symptoms aren't nearly as severe and I feel grateful. Glad you found out what was going on with your symptoms. I think that a big problem is that the symptoms of Celiac are so varied and it is hard for people (doctors, scientists and others) to come to terms with. There isn't only one symptom anymore. There is a spectrum of symptoms. Everything from fibromyalgia, irritability, headaches, dandruff, and others. DH has a spectrum to it as well. Some people have symptoms that last till 3 am and then go away, some people get rashes and welts that take weeks and months to go away. I'm glad that we can talk about this and get more information.

The pounds are sliding off...


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JSWMAXWELL SparkPoints: (2,557)
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5/4/12 1:42 P

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Hi, new to this group! Finally other people with DH!!! It is hard to find answers sometimes. . .even in celiac groups. I started getting the rash about 3 months after my celiac symtoms began. I went to my primary Dr and she had to break out the dermatology book. . .never a good sign. Based on book, it diagnosed me with DH but Dr said no, that is so rare that it is probably just some weird Exema (sp?) gave me a cream and told me to see a Dermatologist. But that always stuck in my head since I was having just horrible intestinal issues! Then when I had enough, and finally went to a GI Dr. I got lucky because it was actually my DH that the Dr jumped to getting my blood test and biopsy done for celiac. SHe was a GI specialist and said was going to have me try to change my eating habits because she thought I had irritable bowel. . .but then I said well look at this rash and she couldn't believe it. . .that was enough for her! My Ab test came back positive the same day I had my Derm appt. And because I had the diagnosis she was excited! She called like 20 students into the room so they could see the DH because it is something she had never seen but had read about. . ..and was fascinated because mine looked nothing like the textbook!
Although I felt better with the GF diet almost immediately. . .it took several months for the DH to subside.

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WRITINGDIVA1's Photo WRITINGDIVA1 Posts: 294
5/3/12 4:06 P

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Just realized that an oil I was using on my skin and scalp has tocopherol in it. No wonder I itch when I put it on my scalp. I'm giving it to my husband so he can use it. Thanks again for the 411.

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WRITINGDIVA1's Photo WRITINGDIVA1 Posts: 294
5/1/12 2:40 P

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Thanks for the 411 on tocopherol. Had no idea that it could come from wheat. Wow.

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TEDDYBEARDONNA's Photo TEDDYBEARDONNA Posts: 11,949
5/1/12 10:48 A

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Guess I must be fortunate. I have never had a reaction in using shampoo or anything with gluten. With that said I probably shouldn't.



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JENCORINNE's Photo JENCORINNE Posts: 1,933
5/1/12 10:33 A

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I didn't know about peptides but another sneaky one is tocopherol. I couldn't get my DH to clear from my hands then a friend made a comment in passing about tocopherol being Vit E from wheat. What?!?! I came home and it was in my shampoo. Searched and searched and finally found a shampoo without tocopherol and my fingers finally cleared up.

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SEELESSME's Photo SEELESSME Posts: 337
5/1/12 7:01 A

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The products have been the worst. It started 3 yrs go. I couldn't figure out what I was allergic to that gave me bumps. So etimes it fet like I had bugs in my hair - SO itchy! I thought sodium laurel sulfate (which is terrible stuff BTW) but I would still react to product without that. I worked with an aesthetician to help me find natural products and it was a reaction I had to one of the all natural products she recommended. A peptide eye cream - burned and made me look like I had worn goggles too tight. My sister gave me her book The G Free Diet because of the chapter on product and sure enough it says most peptides are wheat based. So that was when I went off gluten.

I should have tried to get in with someone last week when the bumps were more active to have a skin biopsy but even reading about that, apparently if not done just right can easily give false negative. I live in a small area and have little confidence in the medical professionals here.,.

Thank you for haring your stories!

Edited by: SEELESSME at: 5/1/2012 (07:04)
Peggy


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DJ4HEALTH's Photo DJ4HEALTH Posts: 41,559
5/1/12 12:34 A

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Yes I did get those little itches bumps and they looked like little blisters and itched like crazy. I also found that some shampoos have wheat in them and would have sores all the time on my head and found that Tresame was the worst for me and would cause my head to be sore right after using it. So now I read all shampoos and conditioners, along with everything else. Got to read all labels since they like to put wheat in everything.

Dorothy

If you tell God no because He won't explain the reason He wants you to do something, you are actually hindering His blessing. But when you say yes to Him, all of heaven opens to pour out His goodness and reward your obedience. What matters more than material blessings are the things He is teaching us in our spirit.
Charles Stanley


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WRITINGDIVA1's Photo WRITINGDIVA1 Posts: 294
4/30/12 8:39 P

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I haven't been officially diagnosed, but I went GF almost 2 years ago. I can tell if something has gluten in it because my skin itches big time. Mine isn't as bad as yours, but it is terrible. And it keeps me up at night till 3-4 in the morn. Previously, I thought I was allergic to my cats. Thank goddess I didn't get rid of them. emoticon

Anyhow, I don't know how to test it, but I don't have a lot of faith in tests. My aunt was tested for six years and was diagnosed by her cousin (a doctor in another country). She has been symptom free ever since. I think it is important to do what is best for the body. Also, be careful of grooming products. I made the mistake of putting a product in my hair that had wheat germ oil in it. I thought my scalp was on fire.

Good luck to you!

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TEDDYBEARDONNA's Photo TEDDYBEARDONNA Posts: 11,949
4/30/12 9:47 A

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I have DH. And yes it is the worst itch I have ever had. If you have DH you might also be allergic to iodine. They seem to go together. I was diagnosed with DH in 1977 and told not to eat wheat and to also stay away from iodine. It took about a month for me to clear up. I wasn't told then that if you have DH you have CD. I didn't learn I had CD until about 10 years ago. After my skin cleared up a lot I went back to eating wheat as it was too hard to avoid, at least I thought so at the time. Of course I should have been avoiding other gains too. I would have small out breaks and just cut out the wheat until it got better. I had myself in a vicious cycle for a long time. I have found products with cold tar helped with the itching. Oh, my rash was biopsied. I have a friend who thought her rash looked like DH and when it was biopsied it was negative, but came back as something else.


Have a great day
Donna



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SEELESSME's Photo SEELESSME Posts: 337
4/30/12 7:37 A

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Will try and make long story short...

Decided to go gluten free in January on an "educated whim or experiment" due to various things - vitamin deficiency, hair loss, fatigue, migraines, reactions to certain skin products etc.  My sister has Celiac and my Mom has a host of nasty digestive issues that went away when she stopped gluten (who need Drs.? is her philosophy so no official diagnosis).  So my sister convinced me to try going gluten free.  I did and definitely felt better but also was questioning if that was a placebo effect and I merely thought I had cured myself of all that ails me - voila!! 

Flash forward to last Monday - on the way home from a trip, the only thing in the airport terminal we were in that seemed remotely appetizing was a Sbarro pizza - I ate it, dense crust and all.  About 30 min later I started itching like crazy.  My neck, back, shoulders, knees, shins, hairline, arms all had these raised bumps.  Some look almost blistery, some don't even look red but they itched like CRAZY and under the shower head felt as if hundreds of pins were pricking into my skin.  Lovely.  Finally improved by end of the week but I have all these little scabs where the bumps were worst. I still itch a little but the bumps seem to have subsided although I can feel bumps along my shoulders and arms still they just don't like red and itch anymore. 

Looking back at the past almost 3 years, I have been fighting similar rash outbreaks and blaming chemicals in shampoos, creams, makeups. Have been to the family Dr. and the allergist both on it.  After Monday - I searched gluten and skin rashes wasn't hard to come up with a connection - for both food ingested and topical products.  There are tons of pages and forums that describe this exact rash - Dermatitis Herpetiformis.

I am betwixt and between now - just continue on course gluten free with a strong hunch that I likely have a problem with it or try and push the issue with the family Dr/PA who kind of pooh pooh anything that is of non-concrete.  Not sure having been off gluten (mostly) for the past 4-5 months will allow for accurate testing internally and I don't have a dermatologist so I would be a new patient with one which means a wait to get in.

Did you have any issues with skin rashes or irritation?  WWYD?

Peggy


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