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JENCORINNE's Photo JENCORINNE Posts: 1,932
4/25/12 12:04 P

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The test is pretty simple, it's made by ELISA, here is a short video of someone using it youtu.be/_rF5Q6RFbXY It is rather spendy, over $5 per test and takes about 10 min so not something I'd want to use if I was eating out with others.

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4/25/12 9:08 A

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I don't know if I'd trust a home kit BUT it makes sense if it's "just" finding a protein...

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MICHTOTMAN's Photo MICHTOTMAN Posts: 815
4/25/12 7:42 A

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I'd be curious to test both items. I understand (from reading posts, not personal experience) that there is a home-test kit for gluten in food. I don't know how expensive it is or, for that matter, how accurate. But if you're really curious that might be a way to go. Let's see if anyone else here has used such a kit...

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4/24/12 1:02 P

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To conclude:

•Double G (ham) is a local place and they only replied that their products are gluten-free (which didn't impress me as they were abrupt and not at all like other companies I've contacted in displaying that they a) care b) know what they're talking about)

•Foster Farms (whom I've formerly supported for non-freak food) wrote that explicitly they can vouch that their Grilled Chicken Breast Strips SOLD AT COSTCO are GF. I have a pack in my freezer that I'm still afraid of ("broth").



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4/24/12 12:59 P

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Cindy:
At CJ Muggs, I actually heard the manager call out (softly), "That's a Woodpecker, not a Woodchuck--the Woodpecker has GLUTEN!"

I'd have (hopefully) noticed myself but that made me HAPPY to see the manager was "overseeing" his special case (me) even though I had not spoken to him!

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CINDYTW Posts: 5,783
4/18/12 9:25 P

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Bonefish Grill is a chain and I have had good luck at ours. The kitchen staff must not go through the same training, or they are underpaid and don't care. A lot of kitchen staff are not really chefs or anything and may have learned to be a line cook at McDonalds.

I am glad you found at least some good places! We are fortunate here to have a lot wih GF menus, but you are right some just dont get the CC issue. I once had someone throw a roll on top of my GF entree at a local place! WTF!!

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4/18/12 12:33 P

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Thanks, Cindy! I'm just back in from holiday, so I don't know if I've heard back from the local ham place.

I am seeing / learning more: I was in Denver and they are "big" into GF! It's like people talk about (that I say "are you kidding?!" in my area!)!!

However, I saw VERY quickly that about 90% of the places with GF menus are NOT GF in the correct sense (nonCC and what they MEAN is "no wheat" but as we all know broth, other grains, etc contain gluten).

So, even this urban area seemingly "into" GF isn't quite up on it. I ate twice at a place in Littleton (a family restaurant w/ adjacent bar) called Merle's and I recommend them HIGHLY.

I also ate at a place called Bonefish Grill who were VERY knowledgeable but guess what? Got poisoned there. It wasn't horrible, just that night and day but it had to be CC. It's so easy for kitchen help to "not know," I suppose.

What's MOST exciting to me is I ate at a place in STL ("home" although about 80 miles away) that has a GF menu (you have to ask for it but it's quite impressive!).

Oddly, not everybody there knew. I asked the hostess (clueless but sweet and she got the manager for me). Manager was ON IT and he got a waitress who was ON IT. Of course I repeated the CC issues I've had and she said she'd told Cook expressly to prepare my food completely separate from all else.

So far? No problem and I *will* frequent them for their trouble! Well worth a $30 supper if I'm not going to get sick (even though it's simple food, not gourmet). Oh! It's probably a chain? It's called CJ Muggs.

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CINDYTW Posts: 5,783
4/15/12 7:54 P

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Lily I think you are probably right. Ham has cause many issues for us here! The chicken may be GF but may also have something else you react to...casein in the broth, MSG, who knows! Try the chicken alone after you are better and see.

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4/12/12 11:45 A

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Thanks! I heard back yesterday & FF said their COSTCO Chicken products are GF but they would not guarantee others. If I had questions about other products, to contact them & they'd research it. Mine was Costco but I don't know. I still strongly believe it was the ham!

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GFNOMAD's Photo GFNOMAD Posts: 1,498
4/12/12 9:11 A

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Foster Farms raw ''Natural" chicken products are gluten free but once processing starts, there could be so many things such as MSG or nitrates which could cause similar problems.
I have the reaction that you described with any food that has been GRILLED. It's something to do with the charcoal burning, ie if there is any 'burnt' bits.
I looked at Foster Farms website but couldn't find a list of ingredients but I did find their statement of gluten free in their FAQ;s . fosterfarms.com/faq/quality.asp

Would posters please activate their links. Use the 'ADD A LINK' tab right above the message box where you are typing your message. Thanks!

Been to Tombouctou and back! Truely! (Timbuktu in English) photos and more Travel Adventures at www.flickr.com/photos/cdnnomad/sets
Recognizing Celiac Disease www.recognizingceliacdisease.
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10 Tests that could save your life www.50plus.com/health/10-tests-that-
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Dr. Alejandro Junger - 'Healing the gut' (from Dr. Oz) www.doctoroz.com/videos/3-day-jumpst
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DJ4HEALTH's Photo DJ4HEALTH Posts: 39,585
4/9/12 11:18 P

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some of those natural spices do have flour in them so you have to be careful and when in doubt then leave out.

Dorothy





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4/9/12 8:10 P

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So sorry to hear that you got accidentally glutened! I'm extremely sensitive, and also completely intolerant of MSG which is also found in a lot of "natural flavors", so I only buy raw meat... nothing precooked other than Boar's Head or Applegate Farms Deli Meats, and I can only buy them at one deli that does not contaminate the slicers with other (non gluten-free) meats.

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4/9/12 5:17 P

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Valerie, Thank you for your support.

While there is a WF over 100miles from where I live, I've never heard of the other one. I live REMOTELY, which most people cannot grasp! I drive across 3 counties to get to the first populace place for jobs.

I grew up on a ranch, where we grew everything (or hunted) that we ate--in season. This probably saved me throughout much of my life! Also, I have congenital lupus, so most of my symptoms were those of lupus--and went unchecked because I didn't have this "IBS" type response (in fact, the opposite because I have a spastic colon--these things are still true, although I now know that I'm Celiac, too).

I've never had this IBS type symptom until my gut got clean from gluten. At least it's a clear message now!

We can't raise our own "everything" now as we're a retired ranch but we do still have a little hunting and we still have about .5 acre of garden in summer (it was 3 acres just for our family when I was a kid--I mean the garden, not our property ;p).

It's hard deciding. I don't mind legumes (grew up eating THEM instead of the meat we raised as that was our INCOME) and I rely on soy as I cannot do dairy (regularly, I can "handle" it but feel very gross--knew that since I was a baby).

I may switch to vegetarian again. I was vegetarian for over 16 years because when you grow up on a ranch (ours was grass-fed, practically open range as they had an entire valley and forests) and TRY anybody else's meat, it's SICK MEAT. I was raised you feed that to dogs or trash it.

Seriously! What passes for meat is scary and it took me almost 20 years to even eat it. Now, I do (because it's easier) but maybe NOW it's not easier anymore... I'll have to think a lot about this.

Thanks, Valerie!

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TAEKWONDOCHICK's Photo TAEKWONDOCHICK Posts: 406
4/9/12 4:27 P

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Just because something is "healthy" and "good", doesn't mean that it's safe for Celiacs. Unfortunately, so many companies use gluten-containing ingredients as fillers. They might be whole grain and so forth, but they are still fillers and for Celiacs they are also very UNhealthy.

I saw the reply from Double G, and that was just not enough information. I would not be reassured by that answer either! I like your reply back to them, asking for more information... hopefully you'll get it.

You might need to start getting your meats at places like Whole Foods or New Seasons, and stick with things like locally farmed, fresh chicken that you freeze yourself. It won't be as convenient, and it won't be as cheap, but at least you'll be safe. Also, start adding other less expensive but protein rich ingredients to your diet. Things like quinoa. There are a bunch of recipes out there, including one for quinoa mac & cheese that I want to try:

http://aroundthetableri.blogspot.com/201
2/02/cheesy-quinoa-mac-cheese.html

Good luck! And I hope you feel better soon. Like you, now that I'm "clean", I find that it's so much easier to notice the effects of being accidentally glutened and how long it takes to clear out. For me, it takes a full 48 hours to get through the symptoms until I feel normal again.

-Valerie


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4/9/12 3:54 P

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Reply to my query about Double G Ham/ Gluten content:

"All of our products are gluten free.
Sincerely,
Double G Brands, Inc."


I appreciate a quick response. My gut however isn't happy...To be honest, I'm not sure if people (on manufacturing side) even understand what is gluten.

Here's what I'm writing back & I hope I don't sound like a JERK:

"Glenda,
Thanks for your timely response. It was brief, however and hasn't reassured. As somebody newly-diagnosed, only 3 months ago, I'm learning every day.

I had a very bad response from yesterday. When I asked some peers who also have Celiac, they warned that ham is OFTEN (not saying your brand) an issue due to caramel coloring (from barley, often, which has gluten: gluten is not necessarily coming from a bag labelled "gluten;" it's a PROTEIN that is in many items, often from wheat but also from other grains, as I mentioned barley).

I understand that securing FDA gluten-free certification is a big deal and there are in fact different kinds of certification. I'm aware your products aren't or it would be part of your packaging.

Is it possible for you to provide an ingredients list that I can ensure what I'm daring to put in my body? While we have loved your products for years, going only by reaction from Easter Dinner, I can't eat it ever again.

Thank you, I know this is asking a lot. The thing is, gluten can be "hidden" under collective terms like "spices" or "natural flavors." So, you can imagine how difficult it is finding "normal" foods that won't make me ill.
Lily"

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4/9/12 3:38 P

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You know, I think maybe it is...I'm not at home so I can't look but as I mentioned, those Jerks (seriously, just SAY WHAT'S IN IT) at Foster Farms are better than MOST poultry companies. Double G is known for being really good, too.

Ha! Fooled me.

I do hope they come clean in response to my query. The thing is now that I have the diagnosis and I'm so careful (when I know what I'm doing), that it's amazing how BAD/ clear problems are.



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CINDYTW Posts: 5,783
4/9/12 3:08 P

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Was that the one that had chicken broth in it? There can also be gluten and shockingly enough casein in chicken broth as well. Hope you feel better!

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4/9/12 2:52 P

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Dang! Well, Double G and Foster Farms are sort of known to be some of the better things you can buy at a grocery...no fillers type things.

I just DARED to eat 3 oz of the chicken and it may be steroid-free, anti-biotic-free, etc but unless it's just that my gut is TOTALLY TICKED OFF right now, it was 1 hour later, I'm having cramps.

I'm not going to eat anymore of the chicken (I'd told myself it must be the ham--heck, it might be BOTH) until I hear from the company and I won't eat anymore of the ham until I hear from them.

This may need the next step up but I'm leaving on vacation so work's rather busy and I so do NOT need this pain and anguish (and no sleep!). I'm kind of mad because I did read the labels.

I don't understand why they can legally get away with not STATING "from what" this crap comes. GRRRR

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MICHTOTMAN's Photo MICHTOTMAN Posts: 815
4/9/12 2:45 P

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I had the same thing happen with ham over a year ago - right after I had just gotten well. It was my first accidental exposure. For me, the only questionable ingredient was dextrose, which I researched to find many sources saying that it is safe (made from corn) and others saying that it is often made with wheat.and/or rice as well as corn.

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4/9/12 1:34 P

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To clarify: I don't eat "deli" meats, these are BIG HONKING hunks of meat.



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4/9/12 11:59 A

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I will definitely let you know! I've emailed both companies. If they don't reply, I'll try ringing them but I had not-so-good help from Hershey's (to my surprise).

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TEXASREDFERN SparkPoints: (1,390)
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4/9/12 11:53 A

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Lily,
Let us know what you find out. I, too, had the same thing happen to me a few days ago and I could not track down what it was that caused it. There are "natural flavors" in so many foods!! I thought maybe I had eaten too much fiber. I had been feeling so good for so long that it was a shock to have a relapse and not know why.
Thanks for posting.

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4/9/12 10:45 A

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GREAT point about the glazing. I did email them but didn't specifically ask "how" they do stuff cos when I've rang companies, they get all closed-mouthed about it (like I'm going to steal their recipe).

I *did* state that I'm Celiac and my family loves their product but I needed to know if there was ANY gluten in it. Hopefully, they'll use disclosure.

I am now going to contact Foster Farms about that "natural flavor."

Wanted to add: Foster Farms is one of those "no hormones, no steroids" type places, so when I saw nothing specifically gluten, I hoped they were okay..."

http://fosterfarms.com/products/product.
asp?productcode=606

Edited by: LILY_SPARK at: 4/9/2012 (10:46)
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TAEKWONDOCHICK's Photo TAEKWONDOCHICK Posts: 406
4/9/12 10:18 A

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Yes, there could be gluten in the "natural flavors" or "spices" from some of those items, calling and asking the company is the only way to really figure that out. As for the ham, was it glazed? There may be "caramel color" in the glaze, and that is usually made with barley... which has gluten in it. (This is why Rice Krispies aren't safe... they use caramel coloring.) Again, contacting the company like you did is the only way to know for sure.

It sucks to be accidentally glutened. One thing I've learned (the hard way) is that you can't assume anything. Gluten does hide in the strangest of places.



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4/9/12 10:11 A

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Yesterday, I ate 3 things at dinner: About 3 oz of Double G ham (which to be honest, I only looked up TODAY and so far can't see what may be a problem, so I've emailed the company), mashed potatoes with onions and hard boiled eggs (my paternal granny's recipe, made in my house--no flours of any kind and no contamination) and a kiwi that I cut and peeled on a separate plate.

For my breakfast I had my DAILY soy milk in coffee, Shakeology (also a daily ritual) and some grilled Chicken breast strips from Costco...

After REREADING the chicken breast strips, the only possible is at the end of the ingredients list: "less than 2% of the following: salt and natural flavors."

Okay, so I've read the warnings about gluten HIDDEN in "spices" or "natural flavors." Maybe it's there or maybe it's in the smoking of that ham.

Everything else I ate was my NORMAL food. I had massive GI troubles all night (pain and bloating, couldn't sleep) and then major splattery after effects and I'm still hurting/ scared of having a mishap at work.

What gives? I cannot see how it could've been contamination because I was careful. We did have rolls but those were store-bought, you just warm them and I didn't even look at them!

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