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LUCINDARW's Photo LUCINDARW SparkPoints: (29,265)
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3/15/12 10:37 P

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The only place I have to shop GF is Hy-Vee. They are adding more all the time but it is expensive to buy prepackaged. Udi's bread products are a good choice I just leave it in the freezer and get it out as I need it. Their buns are 4 to a package and are very large, Better than regular buns! I would like to be able to go without the bread products but love them too much. Lucinda

I will do my best to meet and surpass my goal. Never stop learning or trying to achieve success. Never give up keep plugging away. If it is to be it's up to me. .


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FIGGIE3's Photo FIGGIE3 SparkPoints: (7,915)
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3/13/12 12:50 P

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Hi all, I'm Larry's wife. I've been lurking in the background and reading as my hubby started a post. I'm so proud of him and how he has handled his health. I'm also surprised he has been posting, usually he just lets me post so I think you all should be aware how passionate he is about this subject! His diagnosis really impacted our family. I keep a gluten free kitchen and eat gluten free myself now. After not eating gluten for a length of time, I am now sensitive to it myself. Our doctor is very supportive of this. She is very into natural health and puts many of her patients on a gluten free diet as they are diagnosed with heart disease, hyperactivity, diabetes and autism. It is so much easier than it was when we first started this diet of no gluten. After Larry was diagnosed, I went out and bought every cookbook I could find, umm, yea, all of 3 at Barns and Noble. Wait staff at restaurants looked at us like we were speaking martian! Things have really changed...shelves and the computer are full of the best books and recipes! Products galore, even main stream, are available at even our local market(although my favorite is still Whole Foods).

I attended the Gluten Free conference in Dallas last year and plan to go again this fall, just can't make the one in Chicago. The best thing I got there were finally, coupons! My favorite magazine, Living Without, now even has the best coupons in the back(and yes, I've already used most of them already). Oh the money I've wasted on really icky products, but my yummy favorites are so worth it! I still try new ones, but can't be tempted to buy ones that burned me in the past. I have no trouble speaking up in a restaurant, hey, if you chose a career in food, you need to be educated on all aspects of your job, especially since what you serve a person can send someone (and have sent us) to the hospital!

Anyway, sorry Hon, you know how I can get, I love my cooking and don't have any problems entertaining a crowd with food allergies. The time and effort put into learning how to handle food is so worth it. Glad my Hubby loves my cooking. I have put the recipe for gluten free chicken Quinoa on the site here. It is the basic but add what you want. I use lots of garlic and add anything I have that sounds good(I especially love mushrooms and fresh peas, yum).

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CTRAVEL's Photo CTRAVEL SparkPoints: (7,601)
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3/11/12 11:57 P

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LBRAMBLE Thank you so much for your info. I have had Acid Reflux for years and also Gastro- related issues. Like I have said in the past, I was gf when I was checked and of course they said that it was negative. I am so glad that I did diagnose myself after feeling so miserable for years.
Thank you again.

Char

www.celiac.com
I awoke this morning with devout thanksgiving for my friends, the old and the new.
- Ralph Waldo Emerson


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LBRAMBLE's Photo LBRAMBLE SparkPoints: (72)
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3/11/12 6:26 P

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I am also convinced that there are lots of people out there being treated for Iritable Bowel Syndrom, Acid Reflux Disease and any number of other Gastro- related issues who are really Celiac or Gluten sensitive. I was finally diagnosed at age 50 (about 10 years ago) after several years of increasing discomfort after every meal, anemia and other symptoms. I finally found a doctor who pursued the issue after determining that I had rectal bleeding.

When I was 40 I was diagnosed with Diabetes which grew to type 1 diabetes (insulin dependence) over time. Now days adult onset of Type 1 diabetes is recognized as a leading indicator of Celiac disease. Back then there was no connection.

At least we now have forums like this where we can spread the word about the disease.

HARRYC2022 Posts: 44
3/8/12 8:58 A

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I agree with CTRAVEL. I don't think I could start eating gluten again just to have a test confirm that the diet provides me resolution to my problems.

I also agree with Cindy that the blood test or endoscopy does not test for gluten intolerance. I am 'lucky' in that my positive TTG and endoscopy happened before I went on the diet. Also I feel 'lucky' to have Celiac rather than intolerance because seeing damaged villi in my small intestine is conclusive while people with intolerance do not get that external validation.

I seldom recommend to people who I talk with about this to 'try' the diet or 'aviod' gluetn. To be sure you are eating gluten free requires that you know every ingredient, cooking method, and manufacturing method used related to what you consume. You have to realize that 'Gluten Free' on packging can mean different things to diffeent manufacturers. Sometimes you can't get answers for specific items.

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CINDYTW Posts: 5,783
3/7/12 10:46 P

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ALL the testing can be wrong. It is not very accurate at all unless you have full blown Celiac. Many do not, but are still intolerant. The best thing to do in this case is o try gong without, see how you do and revisit it a few weeks later. After all, gluten free diet is the only treatment and you are risking nothing.

There ARE men here, they are just a lot less likely to post and to ask for help. A lot fewer are diagnosed for this same reason. Men are much less likely to go to the doctor at all, to seek help and to actually follow a resrtictive diet if it is prescribed. Maybe you could help get some men onboard! DO you have male friends here on SP?

Edited by: CINDYTW at: 3/7/2012 (22:49)
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CTRAVEL's Photo CTRAVEL SparkPoints: (7,601)
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3/7/12 4:22 P

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I heard that the blood test is not as accurate as an endoscopy. I have had both of them however; I was then gf so it showed negative. I was not going to go back eating gluten as I get extremely sick. I used to get sick within an hour, now it only takes about 20 minutes or less.

If you are still eating gluten do not stop as the b/w and/or endoscopy will only show negative. That is what happened to me.

Good luck to you and let us know how you do.

Char

www.celiac.com
I awoke this morning with devout thanksgiving for my friends, the old and the new.
- Ralph Waldo Emerson


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HARRYC2022 Posts: 44
3/7/12 3:56 P

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Sun,

Are you eating anything containing wheat? If so, do not stop eating it and go get a blood test. You need the TTG test. The other blood tests for Ceiliac diagnosis are not worth while. If you have the disease and you are eating ANY wheat barley or rye, that could be causing most (or all) of your issues.

Harry

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SUNFLOWER727's Photo SUNFLOWER727 SparkPoints: (1,497)
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3/7/12 3:22 P

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Hi Everyone!

I'm a new member to this group & also new to my gluten problem. I enjoy reading all your posts so I can get some ideas. I've had a Candida yeast problem for many many years, It was not until a few months ago I met Dr. Tom who is getting my balance back in my colon. For many years being on a yeast diet I have not eaten bread, pasta, carackers & pizzza.

Recently I had a bowel test done to see where my levels were. This is where I found out I had a gluten problem. Dr. Tom said once I get my colon in balance my gluten problem will go away.

What are your symptoms when you have a gluten problem? I have a lot of digestive discomfort for many years. The Doctors called it IBS. Even though I was on my yeast diet I stilll had lots of digestive disturbance. It drove me nuts for years with loose bowels. Running to the bathroom all the time. It really runs your life.

So glad I found this group so I can connect with you members. And learn all about my gluten problem..

Sunflower727

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HARRYC2022 Posts: 44
3/7/12 10:26 A

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Firstly, I am a man with Celiac. Diagnosed about 3 years ago and on the diet since then. I'm 44.

Taekwondochick, I see the Ancient Harvest quinoa pasta is a mix of corn and Quinoa. How different is it from corn pasta? We like corn pasta spaghetti but my kids don't like the other corn pastas. I eat anything but I probably prefer the rice pastas.

I do love GF bread, but I've given up on sandwitches and buns. I've never bought a loaf of GF bread worth eating. My wife makes several types of bread from scratch which are good when warm out of the oven or as toast. I used them for an occastional peanut butter and jelly sandwitch but a non GF person would never pick this bread if they had an option.

A friend recently made Bob's Red Mill Gluten Free bread from a mix for me. Cooked in a pan like cornbread it was good with Chili. But then again, corn bread is good too.

I eat any masa flour tortillas bought from the grocery store. Many of them say Gluten Free and I've never had trouble with them.

I also like the Bisquick GF pancakes which are mostly rice flour. They are very fluffy. My wife uses a mix she makes from scratch for pancakes with flours other than rice that provide more nutrition than rice flour. These are 'flatter' and darker in color but they are good too.

We make a lot of pizza crust at my house as well. My wife buys the flours in bulk as we are making most of our 'breads' from scratch.

Regards,
Harry

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CTRAVEL's Photo CTRAVEL SparkPoints: (7,601)
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3/6/12 10:59 P

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No, I have not tried their hamburger buns I buy a lot of my gf from this gf bakery that is located in Michigan. www.celiacspecialtieshop.com
I just recently bought the tortilla wraps (gf) and they are absolutely wonderful ( they are actually called Wrap and Tortilla shells) If you like Quesadilia then you will like these. Go to their website and see what they have. I also bought their hot dog buns and they are very good as their is not a lot of dough in them. They also carry the Canyon Bake bread which I do buy from them.

Char

www.celiac.com
I awoke this morning with devout thanksgiving for my friends, the old and the new.
- Ralph Waldo Emerson


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DJ4HEALTH's Photo DJ4HEALTH Posts: 44,243
3/6/12 10:59 P

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Wish we had a Whole Foods here where I live but they are on the other side of the state. And yes men have it too but don't seem to talk about it. 1GRNTHMB is gluten free and he posts on another team that I am on.

Edited by: DJ4HEALTH at: 3/6/2012 (22:59)
Dorothy

If you tell God no because He won't explain the reason He wants you to do something, you are actually hindering His blessing. But when you say yes to Him, all of heaven opens to pour out His goodness and reward your obedience. What matters more than material blessings are the things He is teaching us in our spirit.
Charles Stanley


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JENCORINNE's Photo JENCORINNE Posts: 1,933
3/6/12 10:50 P

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Nope, the original Disney hotel at DisneyLAND.

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LBRAMBLE's Photo LBRAMBLE SparkPoints: (72)
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3/6/12 10:41 P

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Still a WOW. Must have been either the Grand Floridian or the Contemporary (there are about 15 Disney hotels in DisneyWorld.)

What an experience. I hope you took lots of pictures.

JENCORINNE's Photo JENCORINNE Posts: 1,933
3/6/12 10:31 P

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It wasn't at the castle it was on the top floor of the Disney Hotel. It was 3 rooms combined to make 1 suite. Master bed with bath to die for - soaking tub, shower with jets from all directions and sauna too, little toilet room, TV imbedded in the mirror, closet with robes and slippers. Living room - chairs that sink into, a remote control that would be any gadget guys dream, a wall of TV's - I thin 9 and could be on different channels or all the same, a magic mirror - when the lights came on Mickey would appear and it was interactive. oh, and a 1/2 bath inside the main door. A wet bar for the kitchen area and formal dining room. then the kids room - had a round bed, all sorts of games and puzzles. The bathroom had glow in the dark grout and Mickey tiles, how cool is that, no night light needed. It was ADA so roll in shower and a Mickey and Minne sink.

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LBRAMBLE's Photo LBRAMBLE SparkPoints: (72)
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3/6/12 10:26 P

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will definately have to try their muffins. And maybe their hamburger buns too. Have you tried the buns?

CTRAVEL's Photo CTRAVEL SparkPoints: (7,601)
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3/6/12 10:20 P

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you are welcome. How true that is about checking out the Internet for food too.

Char

www.celiac.com
I awoke this morning with devout thanksgiving for my friends, the old and the new.
- Ralph Waldo Emerson


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LBRAMBLE's Photo LBRAMBLE SparkPoints: (72)
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3/6/12 10:05 P

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ctravel - thanks. I have been checking out their website. Funny how we have become dependent on the Internet even for food.

LBRAMBLE's Photo LBRAMBLE SparkPoints: (72)
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3/6/12 10:01 P

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Wow! XLN staying in the penthouse at the castle!! Bobbie and I went to Disneyworld the first year it opened in 1971 - the year we got engaged - sigh. Over 40 years we have explored every inch of the parks, I think, and stayed in most of the hotels. Over the last 10 years since I have been diagnosed with Celiac we have found that their chefs and restaurants are extremely accommodating and fully understand "Gluten-free". One of our favorites is the pasta restaurant [wish I new names better] with the Lady and the Tramp theme just inside the Magic Kingdom on the right. They actually have gluten-free meat balls with their gluten free pasta. To die for!

LBRAMBLE's Photo LBRAMBLE SparkPoints: (72)
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3/6/12 9:54 P

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Good news. Thank you.

We also like the gluten-free multi-grain bread (not sure of the real name) from Whole Foods - their brand. It makes good sandwiches and is great for stuffing a turkey!!!

JENCORINNE's Photo JENCORINNE Posts: 1,933
3/6/12 9:53 P

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How cool to live in the area. Actually, I used to be a Travel Agent and Disney did a presentation at one of the local movie theaters and this is in the lobby afterward when I won a trip to Disneyland. Airfare for 4, 1 nite in regular room at Disneyland hotel and 1 night at Mickeys Penthouse and 3day passes. I don't know if it's changed but at that time Mickeys Penthouse could only be won or given away.
Sad to say that was my 2nd visit to Disneyland.
Also at that time I had been told to go GF but was in denial, about 8 months later I developed DH and after dealing with it for a few months before finding what the rash was and finally admitting I have CD and went GF.
When GF people ask about being safe at Disney. I always say that "It's the 'Happiest Place on Earth' and they want everyone to have a good safe trip and cater to people with food allergies"

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CTRAVEL's Photo CTRAVEL SparkPoints: (7,601)
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3/6/12 9:50 P

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Here is a link for a good gf bread. I have been ordering for almost two years. The are in Colorado. It is a 7grain bread.

http://canyonbakehouse.com/

My brother-in-law is also Celiac and was diagnosed about 5-6 yrs ago.

Char

www.celiac.com
I awoke this morning with devout thanksgiving for my friends, the old and the new.
- Ralph Waldo Emerson


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LBRAMBLE's Photo LBRAMBLE SparkPoints: (72)
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3/6/12 9:46 P

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My wife, Bobbie, turned me onto this website and she has been posting as well. I haven't found a decent hamburger bun and gave up on that along with hot dog buns. Instead, I make hambergers and put them on a Quaker Oats Rice Cake. I put a slice of American Cheese on the cake first, then Jack Daniel's Original No. 7 Barbecue Sauce, then the burger with maybe some mushrooms on top. Yes it is a little messy but you can actually pick it up and eat it. Yum. Almost a good bun are the kinnikinnick Foods English Muffins (from Publics or Giant). These make a pretty good bun that holds together.

I will search out your recipies too. Thanks for the info.

LBRAMBLE's Photo LBRAMBLE SparkPoints: (72)
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3/6/12 9:39 P

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Jen, you are obviously also a Disney-Holic or you wouldn't have posted that picture. You probably know how much we love Disney (since we live right down the street so to speak) and because they are very much tuned to Gluten-free requirements.

We have our annual passes and go there a lot just to have a nice meal.

TAEKWONDOCHICK's Photo TAEKWONDOCHICK Posts: 406
3/6/12 9:29 P

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It is definitely an accomplishment to serve GF food that nobody knows is GF! She must be an amazing cook... it sounds like you're completely thrilled with her culinary prowess. :)

Thanks for the tips on the pasta and pancake mix. I have been using the Ancient Harvest quinoa pasta and I really like it. To me, it tastes like "normal" pasta and I can serve it to my whole family and they eat it without knowing it's GF. But I'm always open to trying new things. :)

I didn't know about the Whole Foods biscuits, I will have to give them a try. What about hamburger buns? I typically use Rudi's Multigrain buns, they're pretty good, but not quite big enough for a decent hamburger. Grilling season is almost upon us!

If your wife would be willing to share her chicken and quinoa recipe, I'd appreciate it very much. And I'd be happy to share any of my GF recipes with you. In fact, look for a thread in the recipes folder titled something like "Recipes that fit into a 1400 calorie diet", I listed a bunch of recipes that I put here in SP that my whole family loves.

Thanks!!

-Val


JENCORINNE's Photo JENCORINNE Posts: 1,933
3/6/12 9:27 P

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emoticon
There is at least one guy that lurks around and posts every now and then. I believe he's the moderator of another GF board.

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LBRAMBLE's Photo LBRAMBLE SparkPoints: (72)
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3/6/12 9:17 P

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Well now I will have to get my wife involved - she is the one that cooks the quinoa and makes it really GOOD. She does a chicken and quinoa dish that is just great. I am having trouble just spelling it.

For bread, the only respectable bread is the Whole Foods Cheezy Biscuits - and their regular Biscuits. They are in the Whole Foods Gluten-free frozen cooler - the one that contains only their own stuff from their Gluten-free bakery. Those are good for breakfast or you can make small sandwiches out of them. For pancakes, we have recently discovered Carbon's Golden Malted Pancake and Flour mix - Gluten Free - order it on-line at http://shop.goldenmalted.com/ . Simple mix made from rice flour and soy - best tasting pancakes I have had in 10 years.

But typically, I don't miss the breads - I stick with simple "naked food" when I eat out at restaurants and I cook my own food in hotel rooms. My wife is the genious - she has found the best spaghetti is Tinkyada PastaJoy White Rice Pasta and other items that make life worth living when I can get home. When family or friends visit, they don't know they are eating gluten-free. That's an accomplishment.

TAEKWONDOCHICK's Photo TAEKWONDOCHICK Posts: 406
3/6/12 9:04 P

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Hello! Yes, you're right, men have it too... maybe they just don't like to talk about it? I don't know.

And you know, I'm with you on the breads and such. Periodically I like to bake cookies and muffins, and I've found that a GF flour blend works just fine for things like that. Bread, however, is difficult to get right (I haven't found one that's "right" yet!) and for the most part, I've given up on it. Once in a while I'll get a small loaf of GF bread for toast... and I almost never use it up before it goes bad. I just don't have cravings for bready items any more.

I'm looking for good quinoa recipes, if you know of any please point me in the right direction. Thanks!

-Val


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3/6/12 8:54 P

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I am surprised that only women seem to be communicating on this thread. Men have Celiac too - are you out there? I was diagnosed about 10 years ago when I turned 50 after several years of terrible gastrointestinal problems. The gluten-free diet cleared it all up over night.

Yes, I am Type 1 diabetic as well - probably caused by the Celiac. I now rely on an insulin pump to manage my blood sugar levels.

I am a traveling consultant - still - and spend much of my time in the air and away from home. Although we have a Gluten-free kitchen at home, it is tough on the road.

I am surprised how many comments in the other thread are about finding bread and pancakes and other bread-like products. Give it all up, folks, stop trying to eat the stuff your body won't process. I live on rice and potatos and quimwa for starches and don't miss the bread at all.

Edited by: LBRAMBLE at: 3/6/2012 (20:54)
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