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BRADYSMAMA's Photo BRADYSMAMA SparkPoints: (0)
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6/2/07 9:05 P

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DotsLady:

I don't have any articles about GFCF, but I have found all of my research through an Autism group and by asking questions and more questions. I have also read many books that pertain to the health benefits of GFCF. One is Dr. Bock's book that is called Healing the 4-A Childhood Epidemics: Asthma, Allergies, ADHD, and Autism. What a great book! My son also takes digestive enzymes that have been awesome for him as well. He is also doing Feingold along with the GFCF so he does not have any artificial colors, flavors, or preservatives. We have been doing Feingold since November and have been 100% GFCF for about 3 weeks. Even in that short time his language has improved. He is asking questions and he just seems calmer. He is even making longer sentences. I keep a journal about everything that he eats, his behavior, supplements, and speech. He was 2 when we started speech therapy and he is really making progress. However, still most cannot understand him, but we can almost 100% of the time now!

I can do all things through Christ which strengthen me.
--Philippians 4:13



 
BIGEWE's Photo BIGEWE SparkPoints: (6,759)
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6/1/07 2:04 P

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Julia,

It sounds like a diagnoses would be a good thing rather than a negative thing for you! You may be surprised how wonderful you can feel after feeling bad for many years.

Keep in mind that if you have negative blood work and you have symptoms....don't rule celiacs out. We had some in our family who were negative on blood work but we have seen wonderful changes on the diet. It has been worth all the work. We have a family of 7 all on the gfcf diet and believe me...it is worth it.


Kate





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DOTSLADY's Photo DOTSLADY Posts: 10,021
6/1/07 12:07 P

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Bradysmama - my fave doc's receptionist's son had apraxia and also something I thought sounded like gluten ataxia (muscle uncoordination) ... this gal's a redhead. I told her about gf diet helping with that and even sent articles. She said, "No, it's not that." and ended the conversation like I was a dummy. Her stepdad's my fave doc, so what am I gonna say? He doesn't know his job? I continued to send articles, but she never responded, so I quit. Fast forward a year and I see another med. study article, so I send it with my usual urging to consider. This time she responded that he'd been on a gf diet for a month, did very well (in what regard I do not know) and when they reintroduced gluten his rash came back .... I didn't even know about the rash or I could have been sending DH or eczema articles too! lol Anyway - no thanks or anything. But I'm interested to know how your son's apraxia is doing since gf diet (or how long has he been gfcf?). You're fortunate to have caught it this early. I think the receptionist's son is about 7 now. Any articles you can share that I could forward to her? ;-)

KNOWLEDGE = POWER. BODY = TEMPLE. FOOD = MEDICINE. PREVENTION IS THE CURE. YOU ARE WHAT YOU ABSORB!
One person's food is another person's poison.
__________
Celiac Disease: An autoimmune reaction from eating gluten grains: wheat, rye, barley and contaminated oats=nutrient deficiency=cancer. Have 1 of 300 symptoms? bit.ly/cdsymptoms
CD stories: bit.ly/cdstories
Nutrition/Cancer: bit.ly/Quillinnutrition


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BRADYSMAMA's Photo BRADYSMAMA SparkPoints: (0)
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6/1/07 11:35 A

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My 3 year old does not have celiac, but he remains gluten and casein free in order to help with Apraxia and Sensory Processing Dysfunction.

I can do all things through Christ which strengthen me.
--Philippians 4:13



 
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4GR8KIDZ's Photo 4GR8KIDZ Posts: 12
6/1/07 10:43 A

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My 18m old daughter was just diagnosed, two weeks ago today on the blood test. She has her apt. with the ped. gast. on 6/15. Myself, and my other 3 kids all had our blood done a week ago, and I'm a wreck waiting for the results. I am sure I will be positive, as I've had so many issues since I was a baby, and was told I was lazy, didnt' want to do "X" chore and was "hiding" in the bathroom...course, same thing I got told about my athsma too. Anywho, very depressed, anxious, scared right now. glad to find a GF group on here. Any support would be so appreciated.
Julia

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SHANNONCC Posts: 220
4/23/07 11:51 A

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I suspect it might be an issue with my kids but am not sure. Neither has digestive issues but I didn't at their age either. They are 4 and 8 but my digestion didn't start going kaplooey til my 20's when I was "sensitive". In my mid 30's it just started getting ridiculous how sensitive I was.

But there are little things that make me wonder about my kids.

I'm reducing their gluten. Even if it's not an issue for them, at the least, it's easier on me. I don't worry about what they eat out of the house but at home, they are limited. I will make a wheat sandwich if they ask (the 4 y/o - the 8 y/o can make her own) but I no longer offer it. Instead of 3 loaves of bread a week, we've been working off the same wheat loaf for 2 weeks now (it's in the freezer). I also replaced all the wheat pasta in the house with various GF varieties. I offer plenty of snacks and food that doesn't have gluten and we've been trying GF baked items from the store as the mood strikes.

Some things have been hit or miss. I'm still having trouble cooking rice pasta without it being gummy. We tried GF pizza (two kinds now) and liked both of them so that's good (though one was made with bean flour and made my dh ill so we're not getting that again - we've all got issues here, LOL!).

I've found plenty of GF junk food they like so that's not an issue at least, LOL!

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IDAHONURSE's Photo IDAHONURSE SparkPoints: (0)
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4/7/07 11:00 A

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I'm waiting for my official lab results for celiac, but I know I'm wheat intolerant. My 10 yr old son has had gi symptoms for years. Finally through allergy testing we realized he's allergic to wheat. So, we are wheat free, which is basically gluten free too. He's had nausea now for about 2 weeks, despite being wheat free. If I test + for cd, he'll have to go totally gluten free too. I am up to here w/meal prep for gf. I'm overwhelmed, frustrated, angry, feel like not eating at all most of the time. Yesterday, I ate wheat thins and graham crackers. I had bad gas and nausea, and today woke up feeling puky. I'm still in a little bit of denial, hoping it's not cd even though it probably is. My son doesn't like much of the gf foods. He doesn't like rice or corn either. He lived on pb&j and pizza before allergy test. My positive attitude is getting less positive by the day. Sorry for the lack of support on my behalf.

"can you see the beauty inside of me?
what happened to the beauty inside of me?"
-Bono
BEANSHIPPYMAUM's Photo BEANSHIPPYMAUM Posts: 87
4/6/07 10:36 P

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I don't have children but I think I've had celiac since I was a child too.

I was always extremely small and when I was a teenager I always had severe stomach pains and a hard time concentrating in school even though I always had great marks. My mom brought me to the doctor all the time about how skinny I was but I wasn't anorexic - I just had chronic constipation followed by diarrhea. I was 5'6 and only 85lbs and I ate like crazy. My mom kept insisting there was something wrong with me.

Then I got sick when I was 18 with mono and the sickness feeling never went away even though the mono did. I couldn't get out of bed half of the time and I gained a ton of weight but never ate anything. I kept getting worse and worse and finally last year (24 years old) my doctor diagnosed me.

I'm upset that my doctor didn't diagnose me when I was child since it was almost obvious that is what I had.

 
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MOMSKI Posts: 52
4/6/07 12:20 P

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My daughter was diagnosed at age 15(December of 2006), but the symptoms were there since age 13.

We originally thought it was endomitriosis/hormonal/puberty related - we were going down the wrong path!

She was also being treated for depression and chronic sinus. We went gluten-free and she's a happy teenager (if there is such a thing!) and the sinus is behaving quite well.

She's not happy being on the diet - as all her teen friends gather at fast food places, but she is happy about not having chronic stomach pain and migraines. To support her efforts, our household has gone GF. She also packs her lunches when she's doing extra curricular events after school.

The husband isn't happy about the diet, but too bad. I remind him that CD is genetic, and he MIGHT have the genes, too.

It's been four months and the hubby is getting over it. I actually think his sinus issues have improved being on the diet! I'm sure he cheats at lunch time (as I do too!).

The School cafeteria is a challenge. I need to visit the cafeteria with her and point out what she CAN eat - not what she can't.

It's a half full/half empty scenario. Show them the half-full - Hey kiddo - this is what you CAN eat and make sure you include them in your buying decisions.

###

Edited by: MOMSKI at: 4/6/2007 (12:27)
KEEZAKIRE's Photo KEEZAKIRE Posts: 29
3/12/07 2:08 P

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Hi, I am new to SP and to this team... I personally am not a Celiac, but my 8 year old autistic son was diagnosed last week. Wow, I really had no idea about any of this before. I have been completely absorbed online since and have been trying to take this all in! My son, Jimmie, has been on the GFCF diet STRICTLY for 5 days now. Poor guy is seriously having withdrawls. So, I am on a diet and now he is too. It is interesting trying to mesh the 2 while preparing meals etc. I am hoping to get a few good tips from here!!

 
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ANALOGKIB SparkPoints: (0)
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2/26/07 2:22 P

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I do! My daughter was 18 month old when we found out. She was diagnosed in the same month that symptoms started showing up :)

 
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REDSOXGIRL33's Photo REDSOXGIRL33 SparkPoints: (0)
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2/26/07 1:49 P

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Hi-

My neice who will be 4 in May was diagnosed about a year and a half ago.
She always had a giant, hard belly and seemed small for her age. She was always tired, but always happy.

She got tested in Sept 2005 and has been GF ever since!

It's great that it's becoming more widely known and there are more foods available for these little guys and gals. It makes it easier to grow up eating GF foods rather than trying to change when you're an adult.

Good luck to all the GF kiddies out there! :-)

Lindsay (redsoxgirl)

Get busy living, or get busy dying. ~Andy Dufresne - Shawshank Redemption

Our greatest glory is not in never falling, but in rising every time we fall. ~Confucius

Your stomach shouldn’t be a wastebasket. ~Anonymous


 
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IDAHONURSE's Photo IDAHONURSE SparkPoints: (0)
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2/5/07 8:37 P

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DOTSLADY: thankyou for that history. It's not always easy to divulge a less than perfect past. My son and I have tested negative by blood tests. When my son had endoscopy at age 8, he'd been doing the gf diet, which I did not know can scew results. I've been scoped upper and lower, and I'm not sure if they tested for celiac. I did test positive for H. pylori (a bacteria that causes 90% of stomach ulcers). I took a course of tx, and felt better....for awhile. His demeanor and personality have improved since we've followed the diet. He's been diagnosed w/ a mood disorder of unspecific type. Kind of bipolar-like behavior. I suffer from anxiety and depression. I finally made a loaf of bread from scratch last night and it's delicious.

"can you see the beauty inside of me?
what happened to the beauty inside of me?"
-Bono
DOTSLADY's Photo DOTSLADY Posts: 10,021
2/4/07 11:06 A

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Well, I'm going to respond, even though my daughter tested negative by blood and biopsy for CD.

To give a bit of history, I grew up in an alcoholic home and swore my daughter would live in a loving home without the chaos. I lived up to my word. I didn't know I had ADD (sure my alkie father has it also), and that made life a little more of a challenge. My MIL has CD, and I believe my FIL died from undiagnosed CD as he and I shared many health similarities and he died from non-Hodgkin's lymphoma. He was terribly shy and avoided eye-contact. I say that because I believe my daughter has a touch of undiagnosed Aspbergers (socially uncomfortable and does not make friends easily, no eye contact). I thought this years BEFORE my CD diagnosis and subsequent research.

Fast forward through many doctor visits, psych visits and tests, ENT surgeries, and plain old years of living with a grumpy, angry person. It has not been a picnic. After my CD diagnosis I researched websites ad nauseum. Early in my diet, I had her tested via regular routes-blood and endoscopy: there was enough history that the ped. gastro agreed to endoscopy despite negative blood.

But now after reading more, I'm not surprised she's negative. I think I would have tested negative also at her age. It wasn't until my stools changed from chronic constipation to stateorreah, coupled with gas, that I think I would have tested positive. I had a couple bouts of diarrhea 5-6 years previous to this "stage."

Anyway, my daughter is also chronically constipated. We are both obese. My MIL and FIL are concentration-camp thin. I sent her stool sample to enterolab.com and it came back that she had antibodies to gluten, casein and soy. She tried an elim/rotation diet (under the care of an allergist) and she was a different person - HAPPY! Talk about a hard diet! She has to do this herself, and she's not entirely ready. I provide her gf food at home, and sometimes she still gets gluten food for lunch when at school. I am encouraging to her to make different decisions and she goes back and forth. But we had a glimpse of her HAPPY, and she remembers it too. She's talking about it again ... so wish us luck!

BTW, for great recipes, try Karina's website:

http://glutenfreegoddess.blogspot.com

I just made a pumpkin bread recipe that was to die for!

KNOWLEDGE = POWER. BODY = TEMPLE. FOOD = MEDICINE. PREVENTION IS THE CURE. YOU ARE WHAT YOU ABSORB!
One person's food is another person's poison.
__________
Celiac Disease: An autoimmune reaction from eating gluten grains: wheat, rye, barley and contaminated oats=nutrient deficiency=cancer. Have 1 of 300 symptoms? bit.ly/cdsymptoms
CD stories: bit.ly/cdstories
Nutrition/Cancer: bit.ly/Quillinnutrition


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IDAHONURSE's Photo IDAHONURSE SparkPoints: (0)
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2/3/07 6:54 P

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Thankyou both for your encouragement. I made some bread from Anna's breads yesterday and it came out dry, but today made some from Pamela's and it's great. Any bread recipes are welcome.

"can you see the beauty inside of me?
what happened to the beauty inside of me?"
-Bono
BIGEWE's Photo BIGEWE SparkPoints: (6,759)
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2/3/07 12:27 A

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Yes, I have 5 children all with celiacs. My first one was diagnosed when she was 8. Within the year my other children were diagnosed at ages 5, 11, 12, 15 . They have been on the diet for 5 years now and doing great. They are now 11, 13, 15, 17 and 20. This totally changed my kids....two who have Aspergers. We are a totally gluten free casein free household and it is worth every bit of effort it took to figure it all out.

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PEACEFULMOMMA's Photo PEACEFULMOMMA Posts: 5
2/1/07 9:43 P

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Hi! I have a 6.5yr old daughter with celiac disease. She was diagnosed almost 5yrs ago. While the diet is overwhelming at the very beginning, it gets easier...much easier. We are very blessed as it has lead to healthier eating overall, for the entire family. I would love to help and answer any questions that I can in order to help. Please don't ever get discouraged. We are lucky that our ailments can be solved with diet change, and without medicines, surgeries, or other medical intervention.

~Nina

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IDAHONURSE's Photo IDAHONURSE SparkPoints: (0)
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2/1/07 3:49 P

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Hi, I'm new to this team, and new to gluten free living. My youngest son was diagnosed as failure to thrive when he was a little over 1. After many tests and no diagnosis, I put him on a gluten free diet. His skin pinked up and he gained weight. The diet was a huge stress and eventually, I weaned him back to a normal diet. Now, 6.5 years later, it's my older son and myself that need the gluten free diet. I've been eating like this since the beginning of January. I don't have daily stomach aches and diarrhea, and my son doesn't have daily stomach aches. He is so confident that this diet is helping, that he won't even have pizza or cupcakes when everyone else in his 4th grade class is eating it! I'm still learning how to cook and eat like this, and it's not easy. Also, I didn't join sp to lose weight but to adopt healthy eating habits.

"can you see the beauty inside of me?
what happened to the beauty inside of me?"
-Bono
SMASH06MAD Posts: 10
2/1/07 12:18 A

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My 26 month old daughter was just diagnosed 2 weeks ago. Her weight was normal until 8 months, and then she just stopped gaining weight. She basically seemed like our older daughter, so we really didn't worry. Her height was normal until a few months ago. Her temperment has been awful since 8 months, and we just thought she was an angry child, with horrible mood swings. She was a picky eater since about 12 months and only wanted to breastfeed. She would only pick thru 2 meals a day and then would only want to breastfeed, esp. before breakfast and before dinner. When I stopped breastfeeding her in October, her weight did not go up and in fact her anorexia worsened. She started having 15 inconsolable tantrums a day. She never wanted her diaper changed, would not want to leave the house, did not want to sit at the table for meals, wanted to be carried everywhere, and was incredibly clingy. Five days after going gluten free her tantrums went down to 2-3 a day, and last Sunday she went 24 hours without a tantrum. It is like we have been given a new child. She has not had an increase in appetite yet and has not gained any weight, yet, but we are hopeful. I hope this helps. Smashley emoticon

Edited by: SMASH06MAD at: 2/1/2007 (00:19)
 
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MKTHERESA SparkPoints: (4,080)
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1/31/07 8:01 P

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Yes, my little girl was not quite 3. She had grown really well as a baby, then around 9 months was kind of on the small side.... at 15 months she was really small.......anyway, long story short, I had a friend and her dad (who is an MD) convince me to try her on a gluten free diet. She is doing great now, just turned 4.

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CORONALIME Posts: 118
1/31/07 7:44 P

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If so when did you find out?

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