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AUNTIEM60021's Photo AUNTIEM60021 Posts: 39
2/12/12 11:32 P

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hi DJ4 health, have you seen a dermatologist? Or have you had a biopsy? Where do you get the lesions? I get mine on my hands, knees, elbows, tailbone usually. Mostly on knees, elbows and fingers.

If you have not had a biopsy, please do. There are meds you can take to control it. I took dapsone for years and it works great. Unfortunately, for me, since I had the virus that triggered my diabetes and pushed me over the edge on the celiac, I am now allergic to it. So I'm screwed if i get another outbreak.




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DJ4HEALTH's Photo DJ4HEALTH Posts: 39,310
2/11/12 11:11 P

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I get blood blisters all the time with no impact to the area, they just appear out of nowhere.

Dorothy





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2/10/12 1:36 P

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Thanks for checking! Sorry for yours. I have a TON of other stuff from the lupus, so you know how it is. Everybody's got something!

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AUNTIEM60021's Photo AUNTIEM60021 Posts: 39
2/10/12 1:32 P

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I was just curious if you might have DH (Dermatitis Herpetiformis). It is a 2ndary form of Celiac. I break out in painful blood blisters on the knees, elbows, fingers, tailbone and chin.
Fortunately, (or un, depending) I only have flair ups when I'm under extreme emotional stress.
I have never found another person with DH. and I've had that for 40 years. 40 years ago they said DH & Celiac were separate disorders, now they think they are connected.

Glad to hear you don't have it. It' a Bxxxx

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2/10/12 1:28 P

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Nope. It's dry itching but I just can't ignore it, so I keep scratching. When I get "poison" sumac (I live on a ranch surrounded by forests), it itches but I can mostly not scratch. So, it's pretty intense itch, while the only thing that shows is red from my scratching.

I have congenital lupus and rosacea that I believe is exacerbated by the gluten (I've not been GF long enough to get full effects by my skin seems to have less cyst/ discoid issues -- still have them but just less).

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AUNTIEM60021's Photo AUNTIEM60021 Posts: 39
2/10/12 1:22 P

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Lily,
With the itching, do you ever break out in blisters?

Thanks for being there, Mary


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2/10/12 10:09 A

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It's unbelievable when you're dealt with pain so long and you start having LESS!

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CINDYTW Posts: 5,783
2/10/12 9:48 A

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That's great that you are feeling better and have worked out some things baking wise!

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2/10/12 8:55 A

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I'm healing from that week where I'd added wheat and gluten for my elimination testing for lupus triggers (how I learned I'm gluten-intolerant!). It took a couple of weeks cos though ignorance, I made some booboos.

I'm happy to report I've had a few days PAIN-FREE (gut, at least). I've gone decades not having a completely pain-free gut! My face is healing from that last explosion and I hope my hair will fill back in soon. I've had less fevers, too. Those autoimmune symptoms are really getting better GF!

I've still had occasional headaches and I found a "funny" symptom:

I've had two instances where I ate something I knew had gluten in it but less than 2%. I was aware--I was "testing!"

Well, what happens is...

I ITCH! Like crazy. I don't even recall this symptom before but coworkers and family were worried because I'm digging like a dog with fleas! emoticon

It's interesting to note because while I knew both of these instances (the itching began about 4 hours after consuming the contaminated product), in the FUTURE, if I start itching and had a new food, I can assume it contained gluten.

This is actually quite the learning experience. I'm also having some "wins" on baking and cooking, which makes me feel good as I'm a baker-nurturer (I'm the one who makes stuff from scratch and gives you home-cooked foods!).

I'm so thankful to know that I'm gluten-intolerant, so I can be healthier! emoticon

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