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AUNTIEM60021's Photo AUNTIEM60021 Posts: 39
2/12/12 11:32 P

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hi DJ4 health, have you seen a dermatologist? Or have you had a biopsy? Where do you get the lesions? I get mine on my hands, knees, elbows, tailbone usually. Mostly on knees, elbows and fingers.

If you have not had a biopsy, please do. There are meds you can take to control it. I took dapsone for years and it works great. Unfortunately, for me, since I had the virus that triggered my diabetes and pushed me over the edge on the celiac, I am now allergic to it. So I'm screwed if i get another outbreak.




Thanks for being there, Mary


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DJ4HEALTH's Photo DJ4HEALTH Posts: 41,500
2/11/12 11:11 P

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I get blood blisters all the time with no impact to the area, they just appear out of nowhere.

Dorothy

If you tell God no because He won't explain the reason He wants you to do something, you are actually hindering His blessing. But when you say yes to Him, all of heaven opens to pour out His goodness and reward your obedience. What matters more than material blessings are the things He is teaching us in our spirit.
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2/10/12 1:36 P

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Thanks for checking! Sorry for yours. I have a TON of other stuff from the lupus, so you know how it is. Everybody's got something!

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AUNTIEM60021's Photo AUNTIEM60021 Posts: 39
2/10/12 1:32 P

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I was just curious if you might have DH (Dermatitis Herpetiformis). It is a 2ndary form of Celiac. I break out in painful blood blisters on the knees, elbows, fingers, tailbone and chin.
Fortunately, (or un, depending) I only have flair ups when I'm under extreme emotional stress.
I have never found another person with DH. and I've had that for 40 years. 40 years ago they said DH & Celiac were separate disorders, now they think they are connected.

Glad to hear you don't have it. It' a Bxxxx

Thanks for being there, Mary


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2/10/12 1:28 P

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Nope. It's dry itching but I just can't ignore it, so I keep scratching. When I get "poison" sumac (I live on a ranch surrounded by forests), it itches but I can mostly not scratch. So, it's pretty intense itch, while the only thing that shows is red from my scratching.

I have congenital lupus and rosacea that I believe is exacerbated by the gluten (I've not been GF long enough to get full effects by my skin seems to have less cyst/ discoid issues -- still have them but just less).

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AUNTIEM60021's Photo AUNTIEM60021 Posts: 39
2/10/12 1:22 P

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Lily,
With the itching, do you ever break out in blisters?

Thanks for being there, Mary


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2/10/12 10:09 A

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It's unbelievable when you're dealt with pain so long and you start having LESS!

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CINDYTW Posts: 5,783
2/10/12 9:48 A

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That's great that you are feeling better and have worked out some things baking wise!

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2/10/12 8:55 A

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I'm healing from that week where I'd added wheat and gluten for my elimination testing for lupus triggers (how I learned I'm gluten-intolerant!). It took a couple of weeks cos though ignorance, I made some booboos.

I'm happy to report I've had a few days PAIN-FREE (gut, at least). I've gone decades not having a completely pain-free gut! My face is healing from that last explosion and I hope my hair will fill back in soon. I've had less fevers, too. Those autoimmune symptoms are really getting better GF!

I've still had occasional headaches and I found a "funny" symptom:

I've had two instances where I ate something I knew had gluten in it but less than 2%. I was aware--I was "testing!"

Well, what happens is...

I ITCH! Like crazy. I don't even recall this symptom before but coworkers and family were worried because I'm digging like a dog with fleas! emoticon

It's interesting to note because while I knew both of these instances (the itching began about 4 hours after consuming the contaminated product), in the FUTURE, if I start itching and had a new food, I can assume it contained gluten.

This is actually quite the learning experience. I'm also having some "wins" on baking and cooking, which makes me feel good as I'm a baker-nurturer (I'm the one who makes stuff from scratch and gives you home-cooked foods!).

I'm so thankful to know that I'm gluten-intolerant, so I can be healthier! emoticon

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