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DOTSLADY's Photo DOTSLADY Posts: 10,018
2/4/07 11:17 A

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I had eczema, but more in my teens. I just read that dairy could be a culprit besides gluten. That's news to me.

If you go stricly gf, then ingest gluten, you could have different reactions, as I understand it. I have been gf for 1 year and not been "glutened" yet ... so I couldn't say personally. However, some people have GI reactions or as my daughter's ped. gastroenterologist said, some people may have anaphylactic shock ... but I'm thinking that's if you're not a celiac and go gf and ingest it by accident. Has anyone else heard this?

enterolab.com is the website to read. I got my daughter tested through them after she tested negative by blood and biopsy. I'm glad I did. We did genetic testing and also added another test for yeast, egg and something else I forget. It cost around $569-ish out of pocket. I never sent it to insurance so they would have "records" of her genetic test (she has genes from both my husband and I).

KNOWLEDGE = POWER. BODY = TEMPLE. FOOD = MEDICINE. PREVENTION IS THE CURE. YOU ARE WHAT YOU ABSORB!
One person's food is another person's poison.
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Celiac Disease: An autoimmune reaction from eating gluten grains: wheat, rye, barley and contaminated oats=nutrient deficiency=cancer. Have 1 of 300 symptoms? bit.ly/cdsymptoms
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GFNOMAD's Photo GFNOMAD Posts: 1,498
2/4/07 10:47 A

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As someone who as a baby would be described today as failure to thrive, I think you should have your child tested. There is obviously something going on with her digestive system whether gluten intolerance, allergies or sensitivities. She can't tell you but her body is.
If you don't want it on inusrance records, try going through Entero Labs. They've receivedmany good recommendations on the ICORS Celiac listserve.
There is a lot of information in early posts on this forum. Also, you could sign up for the celiac listserve which has more than 3000 members. There is an unbelievable amount of information and discussion posted as well as all the links to other sites.
http://listserv.icors.org/archives/celia
c.html - link is not posting correctly, join the two together
ps. - I just read the thread "Anyones children on here have celiac?" I think it will be helpful to you.


Edited by: GFNOMAD at: 2/4/2007 (11:17)
Been to Tombouctou and back! Truely! (Timbuktu in English) photos and more Travel Adventures at www.flickr.com/photos/cdnnomad/sets
Recognizing Celiac Disease www.recognizingceliacdisease.
com/21.html

10 Tests that could save your life www.50plus.com/health/10-tests-that-
could-save-your-life/1676/

Dr. Alejandro Junger - 'Healing the gut' (from Dr. Oz) www.doctoroz.com/videos/3-day-jumpst
art-cleanse


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FROSTYY Posts: 17
2/3/07 10:51 P

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Hi, Omahamama:
Gluten free means exactly that - NO gluten. It's still a condition with no cure except to stay away from the offending foods. Gluten destroys the lining of the intestine, making it difficult, and eventually impossible to absorb nutrients from your food as scar tissue forms. The intestinal lining can repair itself if gluten is not eaten, as long as the damage is not too severe.
For me, I find that when I eat any gluten containing food, my symptoms return within about half an hour - continuous gas, bloating, cramps and diahrea - and these last for about 3 days, the length of time it takes for my body to get rid of the offending food.
Sorry, I haven't checked for GF recipe sites on the web, but perhaps some of the others who use this site will know of some.

OMAHAMAMA's Photo OMAHAMAMA SparkPoints: (13,163)
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1/31/07 12:18 P

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Well I've really been thinking hard about this and I don't think the time is quite right for us to get tested cause I don't need another "pre-existing condition" on my records.

Mind sending me directions to some reputable gluten-free cooking websites? Also, what is the going opinion on paring down your gluten intake? Like no bread, pasta, cookies, cake, etc. but if we happened to say eat something that had a minimal amount of flour in it? How bad is that?
B

“Today was a difficult day. Tomorrow will be better”
― Kevin Henkes, Lilly's Purple Plastic Purse www.goodreads.com/work/quotes/122334
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FROSTYY Posts: 17
1/29/07 11:19 P

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I can also relate to this. I had excema very badly when I was younger, and nothing really worked - until I saw an allergist who told me I was probably gluten intolerant and to stop eating wheat, oats, rye and barley. Within a month, I had started to regain weight and energy. I haven't had touble with the excema either. I never did get the blood test (it wasn't available back then) nor did I go for the biopsy. If I eat gluten, all my symptoms return. If I stay away from it, I'm fine. Also, before they'll do the biopsy, they want you pigging out on gluten containing foods for at least 7 days before the test, so they can see what's happening in the intestine. After being off gluten, there's no way I want to waste a week or more of my life feeling as lousy and lacking in energy as eating gluten makes me feel.
If you can get the tests done very soon, while your daughter is still eating gluten containiing foods, it might be wise to do so. Once she's off of them and feeling better, it'd be hard to put her through the agony of being back on them.
I can't sppeak for insurance, as I'm Canadian and the rules are very different here than in the States.
Hope this helps. It's a tough call when kids are involved, especially tiny ones. emoticon

TWEETY4_9's Photo TWEETY4_9 Posts: 32
1/29/07 2:31 P

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I would say better to be safe than sorry. I would get her tested, if she tests positive then you can start treating her today! Bless her heart, i'm sure she is miserable. I'm sure the costs vary and insurance company's are different. Mine paid for it, but the test was requested by a gastoentrologest (spelling?).

I would also say if she tests negative that doesn't mean she's 100% clear. It's very common for those to test positive with a biopsy and negative with a blood test and vice versa.

Of course you could try just eliminating ALL Gluten (wheat, barley, oats and rye) If her rash goes away within a few months and her stools return to normal then I think you would have your answer!

My Doctor (of alternative medicine) told me to stick to a bland diet with no allergens (dairy, gluten, etc...) and then once I had no symptoms I could add back one thing at a time to see what causes allergic reactions.

Just my personal experience, I'm no expert that's for sure!

OMAHAMAMA's Photo OMAHAMAMA SparkPoints: (13,163)
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1/29/07 2:14 P

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Hi All! I was led here through another forum and as a 3 year diagnosee of lupus with only few symptoms I thought I'd look into Celiac as it appears that it has many things in common with other autoimmune diseses. I have briefly looked at some Celiac websites and they seem to be all over the place with getting a diagnoses. I am now concerned for my daughter whose father is allergice to darn near everything (never tested for Celiac) and with my lupus I wonder if she could be a candidate? She was born 4 wks early and weighed in at 4.5 lbs. Now at 15mo. she is 18 lbs which only puts her in the 3% for growth. We just saw her pediatrician on Friday and he thinks her growth is fine as it has been continuous if not by leaps. I read however that one of the symptoms in children is pot bellies and bulky stools. She has both and last week she was having bouts of diarhea followd by grey-colored stools. I told the doctor and he thought it might be just a bout of lactose intolerance. Lilly has also since about two months old had severe excema that has not cleared up even with medication. Again, her doctor is not concerned telling me that sh just has sensitive skin and that she will outgrow it. Do these symptoms point to Celiac? Can I just request the blood tests? Does insurance pay for this? What if the test comes back negative? Are we in the clear? I know I'm asking for a lot of info but I want to be prepared if I decide to persue this for myself or my daughter.
Thanks!
Bev

“Today was a difficult day. Tomorrow will be better”
― Kevin Henkes, Lilly's Purple Plastic Purse www.goodreads.com/work/quotes/122334
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