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MUSE_CLIO Posts: 15
1/28/07 7:16 P

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what is an "attack" for me? I do not get intense pain as soon as I eat wheat. I wish I did. Sometimes I can eat wheat for days or weeks without an attack. However, eventually my gut becomes inflamed and not only wheat, but nearly anything can bring on an attack. I can ignore the light pain at my breastbone, which is almost like i ate ice cream too fast. If the attack progresses (over days), the pain becomes a diffuse intense pain of having something "stuck" in my breastone that increases towards my middle gut. I also get left side pain, but that's rare. When I realize I'm having an attack, I rest my gut with a couple days of super broth, and then a couple days of super broth with lots of soft veggies and rice. In four cases my attack has morphed into jejunitis-- which is an inflammation of the jejunum, the middle section of the small intestine-- and I landed in the hospital.

A friendly celiac nurse counseled me wisely a couple years ago during my second jejunitis attack. She suggested i find a nutritionist who could help me heal my gut and become a consistently gluten free eater. I suggest the same to you. Doctors get woefully inadequate nutritional training. Find a nutritionist who understands gut healing. Sometimes insurance will pay for nutritional counseling-- I ended up getting mine because of high cholesterol, not celiac (BTW, my cholesterol dropped from 296 to 206 in six months when i went gluten free!)


TWEETY4_9's Photo TWEETY4_9 Posts: 32
1/28/07 6:25 P

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Thank you so much! That sounds like something I could do. I will print it out and ask my Dr. tomorrow.

When you talk about having an attack do you suffer from pain, heartburn, weightloss?

And thank you for praying for me!

Edited by: TWEETY4_9 at: 1/28/2007 (18:25)
MUSE_CLIO Posts: 15
1/28/07 3:32 P

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Hi Tweety4_9,
just a note to let you know that i've been where you are, and you're in my prayers.

when i have an attack, i eat "super-broth," a recipe my nutritionist gave me. You can make it with any meat, but for you, i guess chicken would be best. Check with your doctor first, of course, on the following recipe.

Put a whole uncooked chicken in a large pot with water. Add two onions (skin on), an entire stalk of celery broken into pieces, and a couple broken up carrots (skin on). Add 1/4 cup distilled vinegar to pull nutrients from the chicken bones.

Bring to a boil. Skim off foam. Reduce to simmer. Cook 12-16 hours, adding water to cover chicken as needed. Cut up the chicken at some point.

Don't cook less than 12 hours. (I put soup on and let it cook all night.) When the soup has cooked, STRAIN OUT EVERYTHING BUT THE BROTH. The solids taste like cardboard. But the broth is wonderfully filling, don't ask me how or why, and it's easy on my gut. I put my soup in 32 oz yogurt containers in the fridge overnight and the next day skim off the hardened fat. Then I stick the 32 oz containers in the freezer for when i have an attack.

if you want creamy broth, simply microwave and mash a small red potato and add that to a small amount of broth. (if you can have the potato, that is) Small grain rice, especially arborio rice, also will make the broth creamy. Arborio rice is the Italian rice that's used to make risotto. You can add anything you want/can have to the broth when the broth is cooked. I often add pre-cooked chicken, rice, and parsley. Sometimes I add greens like spinach and sometimes tiny lamb or venison meatballs. Both are very lean.

Best of luck.

TWEETY4_9's Photo TWEETY4_9 Posts: 32
1/26/07 8:57 P

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sorry, i meant couldn't. I appreicate your help and will check out the website.

Thanks!!!

SUZE442003 Posts: 32
1/26/07 8:56 P

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Green beans cooked in fat free chicken broth are good. Have you tried stir frying? GF soy souce adds a change of flavor. Can you have rice? I use chicken broth instead of water. Solid pack tuna in spring water shouldn't be too greasy. I know how boring a restricted diet can be. Hang in there.

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DOTSLADY's Photo DOTSLADY Posts: 10,024
1/26/07 8:54 P

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I'm not sure I understand what you mean about processed meats: could or couldn't. I'm thinking whatever is gf is okay!

I haven't sauteed squash, I've cut it in half and put it face down in an inch or so of water in a baking dish, and baked it. I suppose you could microwave it the same way, then saute if you want. It's very bland. I usually use spag. squash as my spaghetti with spag. sauce - too spicey for you I assume. I also use parmesan and butter - too greasy for you. So bland it is!

As for gf deli turkey - check the labels. I know Target has a brand that's gf, and a local grocer here has a brand from NJ called Thumann's, but I'd never heard of it til I moved to OK. Thumann's oven roasted is gf and very low in fat (no MSG either; that's important).

My brain's fried, but check out that website I sent. It should be helpful (she has a book avail via amazon, maybe your local B&N - I've seen it there). I'd tell you about it, but I lent my copy to a neighbor.

KNOWLEDGE = POWER. BODY = TEMPLE. FOOD = MEDICINE. PREVENTION IS THE CURE. YOU ARE WHAT YOU ABSORB!
One person's food is another person's poison.
__________
Celiac Disease: An autoimmune reaction from eating gluten grains: wheat, rye, barley and contaminated oats=nutrient deficiency=cancer. Have 1 of 300 symptoms? bit.ly/cdsymptoms
CD stories: bit.ly/cdstories
Nutrition/Cancer: bit.ly/Quillinnutrition


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TWEETY4_9's Photo TWEETY4_9 Posts: 32
1/26/07 8:39 P

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do you know what deli turke is gluten free? I was under the impression we could eat processed meats.....

tuna I'm afraid would be too greasy

haven't thought about squash, can i saute? Does it have a good flavor?

Yes, I'm needing bland as can be, trying to heal my gut (as the doctor says) if I eat something with fat or greasy i bloat up badly and feel like i can't breath. These were some of the same symptoms in the beginning before going GF

DOTSLADY's Photo DOTSLADY Posts: 10,024
1/26/07 8:33 P

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Can you eat gf deli turkey? What about tuna? Are those the only veggies you like or have tried new? Have you ever had spaghetti squash? or any of the squashes? They're bland (is that what you're looking for is bland?!)

Have you ever heard of the Breaking the Vicious Cycle Diet? http://www.breakingtheviciouscycle.org/

Edited by: DOTSLADY at: 1/26/2007 (20:34)
KNOWLEDGE = POWER. BODY = TEMPLE. FOOD = MEDICINE. PREVENTION IS THE CURE. YOU ARE WHAT YOU ABSORB!
One person's food is another person's poison.
__________
Celiac Disease: An autoimmune reaction from eating gluten grains: wheat, rye, barley and contaminated oats=nutrient deficiency=cancer. Have 1 of 300 symptoms? bit.ly/cdsymptoms
CD stories: bit.ly/cdstories
Nutrition/Cancer: bit.ly/Quillinnutrition


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TWEETY4_9's Photo TWEETY4_9 Posts: 32
1/26/07 6:58 P

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Due to IBS issues that I have been having for a year, my doctor has placed me on a VERY strict diet. It consists of LEAN meat and certain green vegetables. I have to watch my fat intake because of my gallbladder too. I have only learned to like green beans and broccoli but there's really only 1 way to fix them, plus I'm SICK of chicken.

Any Suggestions?

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