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CINDYTW Posts: 5,783
5/11/11 5:53 P

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I have to say I am feeling a lot better without ANY grains or beans. What I would suggest you try is steamed veggies, meats and fruits, and nuts. Moderate or low fats and lots of lean protein. Oats can be a trigger for people too I have been too afraid to even try them in over a year! See how you feel this way and then reattempt the other stuff after steering clear of it at least a week or 2, longer if possible. I had a problem with high fat initially but now I don't after healing for a while. Try eating to heal for a while and you may be able to go back later!

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DOTSLADY's Photo DOTSLADY Posts: 10,018
5/11/11 12:41 P

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emoticon (I'm not into the Blood Type Diet, either. There's a thread here about it somewhere if you look for it, actually!)

KNOWLEDGE = POWER. BODY = TEMPLE. FOOD = MEDICINE. PREVENTION IS THE CURE. YOU ARE WHAT YOU ABSORB!
One person's food is another person's poison.
__________
Celiac Disease: An autoimmune reaction from eating gluten grains: wheat, rye, barley and contaminated oats=nutrient deficiency=cancer. Have 1 of 300 symptoms? bit.ly/cdsymptoms
CD stories: bit.ly/cdstories
Nutrition/Cancer: bit.ly/Quillinnutrition


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5/11/11 8:23 A

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oooooh ok then. I remember the blood type diet talking about lectins and how i'm to stay away from chickpeas and several other beans. I'm not too sure about what my opinion is about that diet, but what you said makes sense to me.

Thanks for clarifying :)

Sarah
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To succeed in your goals is to go outside your comfort zone, push yourself constantly and realize that you only get back what you put in, so give it 110% all the time, everytime!


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DOTSLADY's Photo DOTSLADY Posts: 10,018
5/10/11 11:14 P

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UGOOGLY - I think you are right about gluten sensitivity vs intolerance/celiac disease and gluten villi damage.

Legumes have lectins, which can also damage the gut lining. Heck, NSAIDS or other medications, virus, stress - all can damage the gut lining. Adding insult to injury to a vulnerable gut is diet, so I had to mention the legumes and egg whites. I just read about the egg whites. There are likely more culprits, but I'll leave it as written for now.

"Lectins may bind to the gut wall and damage the gut lining, are not altered by digestive enzymes, and may alter gut permeability and pass through the gut into general circulation.
Lectins can cause alterations in gut function that may be related to colitis, Crohn's Disease, Celiac-Sprue, IBS and gut permeability."

more from here: bit.ly/dY6gYx , or you can google the subject and see what you think.

Oats can still be hard on your gut, gf or not. Just sayin' for consideration. It's up to each individual based on what is known about their health circumstances, and how much they're willing to change things up based on their symptoms. What if you can't feel your symptom? I'd keep reading about it til I felt comfortable w/my decision.

Re: egg whites and autoimmunity (which you said you didn't have): bit.ly/lOlDTB . I have been tested for leaky gut and have one. I'm trying everything I can to plug the dams as it were (trying). Your mileage may vary.
emoticon

KNOWLEDGE = POWER. BODY = TEMPLE. FOOD = MEDICINE. PREVENTION IS THE CURE. YOU ARE WHAT YOU ABSORB!
One person's food is another person's poison.
__________
Celiac Disease: An autoimmune reaction from eating gluten grains: wheat, rye, barley and contaminated oats=nutrient deficiency=cancer. Have 1 of 300 symptoms? bit.ly/cdsymptoms
CD stories: bit.ly/cdstories
Nutrition/Cancer: bit.ly/Quillinnutrition


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5/10/11 7:33 P

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I did as soon as I found out 2 weeks ago that it was processed on the same machinery as wheat. I bought "only Oats' brand, which is GF and ELISA tested.

Sarah
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To succeed in your goals is to go outside your comfort zone, push yourself constantly and realize that you only get back what you put in, so give it 110% all the time, everytime!


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DJ4HEALTH's Photo DJ4HEALTH Posts: 39,863
5/10/11 7:28 P

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You also might want to stop eating oatmeal. It can also cause problems too,

Dorothy





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5/10/11 7:22 P

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Woah woah woah. Legumes are destroying my gut/intestines? And egg whites?

I know if I eat egg yolks I get stomach pains, or anything that is 'higher' in fat (regular ground beef, gravy etc), but I seem to be able to tolerate ONE yolk.

I'm confused now. I dont have celiac, just intolerance, so as far as I understand, gluten intolerance does NOT destroy the villa the same way CD does....

Sarah
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To succeed in your goals is to go outside your comfort zone, push yourself constantly and realize that you only get back what you put in, so give it 110% all the time, everytime!


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MACKJESS1234's Photo MACKJESS1234 SparkPoints: (7,571)
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5/10/11 11:14 A

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I had to also quit eating soy, dairy and eggs, and quit drinking coffee. A few weeks ago, I accidentally ate soy while at my mother in laws house, and I had THE worst gas, stomach pains that night and next morning. It may be more than just glutens.

I'm in the same boat with you with the beans, I have no problem with them at all, and eat them as one of my primary protein sources during the day since I try to eat more fresh meat which is harder to bring for lunch.

Edited by: MACKJESS1234 at: 5/10/2011 (11:21)
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DOTSLADY's Photo DOTSLADY Posts: 10,018
5/10/11 10:14 A

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Legumes, like so many foods, have good and not-so-good properties. It's amazing you can tolerate apparently the gas or fermentation part of the equation, but know, too, that they can damage your gut lining the same as gluten and dairy, and you not feel or realize it (I had no gut pain w/gluten). This was not explained to me, so I share with others who may not realize it. Same with egg whites, actually. (Did I miss something? What's wrong w/yolk and the gut?! :P) I guess it depends on your gut's health.

emoticon

KNOWLEDGE = POWER. BODY = TEMPLE. FOOD = MEDICINE. PREVENTION IS THE CURE. YOU ARE WHAT YOU ABSORB!
One person's food is another person's poison.
__________
Celiac Disease: An autoimmune reaction from eating gluten grains: wheat, rye, barley and contaminated oats=nutrient deficiency=cancer. Have 1 of 300 symptoms? bit.ly/cdsymptoms
CD stories: bit.ly/cdstories
Nutrition/Cancer: bit.ly/Quillinnutrition


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5/10/11 8:09 A

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Thank you to everyone who replied. It makes me feel better that I'm not in this alone.

I have no issues with legumes, infact, sometimes beans are what I turn to because its one of the few things that fills me up and DOESN"T cause any stress on my stomach! (maybe cus I was vegetarian for several years I've built up the enzymes to digest these). As for eggs, if I have no yolk I know I"m safe and soy, I dont eat because of fertility issues.

I will stay off my once a day greek yogurt/cottage cheese parfait (my only source of dairy these days) and see if this helps me feel better. This AM I had Only Oats oatmeal with rice milk, cooked strawberries and molasses and feeling good. Had .5 cup coffee and stomach started to turn acidic, blah.

Thanks for the costco suggestions. I'm due for a costco run this weekend!

Sarah
-----------------------------

To succeed in your goals is to go outside your comfort zone, push yourself constantly and realize that you only get back what you put in, so give it 110% all the time, everytime!


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DOTSLADY's Photo DOTSLADY Posts: 10,018
5/10/11 12:35 A

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It took me about 4 months to feel better (dx w/celiac). I would also say to eliminate dairy, legumes and caffeine as they are hard on the gut. Reintroduce one at a time when you feel better to see how you do.

KNOWLEDGE = POWER. BODY = TEMPLE. FOOD = MEDICINE. PREVENTION IS THE CURE. YOU ARE WHAT YOU ABSORB!
One person's food is another person's poison.
__________
Celiac Disease: An autoimmune reaction from eating gluten grains: wheat, rye, barley and contaminated oats=nutrient deficiency=cancer. Have 1 of 300 symptoms? bit.ly/cdsymptoms
CD stories: bit.ly/cdstories
Nutrition/Cancer: bit.ly/Quillinnutrition


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HEALTHYBARB1's Photo HEALTHYBARB1 SparkPoints: (115,500)
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5/9/11 11:23 P

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Sarah- I love Rudi's Multigrain gluten free bread and it is available at Costco in a 2 pack. It tastes great toasted and plain for a sandwich. I have been gluten free for 3 1/2 years and was dairy free, egg free and mostly soy free for 2 1/2 years. The last year my immune system has healed some and I have reintroduced some cheese and eggs in to my diet and tolerated it well.
I also missed toasted cheese sandwiches and have been making them lately and enjoying them. I have heard of a lot of people who have to go off of dairy and sometimes eggs and soy when they are first diagnosed with Celiac and then are able to introduce it back in once they have given there body time to heal. Barb

Smiles from Barb!!

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5/9/11 11:18 P

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It took a week before the worst symptoms were gone, but it wasn't totally better for some months. I switched to organic corn, and don't even eat that very often. I also use organic milk, and that has made an incredible difference for me.
I love Rudy's whole grain GF bread the best. Costco sells it. Also I buy nothing made with modified food starch. Good luck.
Kate

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5/9/11 11:07 P

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Thank you so much for this link. I will try out this bread as I have most of these ingredients at home! (I do miss my grilled cheese!)

Sarah
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To succeed in your goals is to go outside your comfort zone, push yourself constantly and realize that you only get back what you put in, so give it 110% all the time, everytime!


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5/9/11 11:06 P

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Thank you Cindy for this response. I just was saying earlier today that sometimes raw veggies or apples can cause stomach pain for me, which is an ibs symptom. Cooked or steamed I have no problems with at all, so its nice to know another person had this issue too.

Sarah
-----------------------------

To succeed in your goals is to go outside your comfort zone, push yourself constantly and realize that you only get back what you put in, so give it 110% all the time, everytime!


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ILLINITEACHER52 Posts: 7,256
5/9/11 10:46 P

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I would suggest going dairy free also until your body recovers for a while and then you can check to see if it still bothers you. (I have to be gluten, dairy, peanut and corn free - and now I am starting to wonder about eggs)

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MICHTOTMAN's Photo MICHTOTMAN Posts: 815
5/9/11 10:07 P

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I make my own bread, but don't use a bread machine, There is a recipe on GingerLemonGirl's blog that is faster and easier than using the machine - really! It's pretty good (for gf bread), and I tweaked it a little bit to add a tad more fiber. I cut it into slices and then just chunk off a piece when I want one... I don't eat much bread anymore.

That said, I don't have a gf toaster, so I toss it in the oven for a few minutes. Works great, but I keep hitting my knuckles on the heating element (3x now). My son is so bothered by it (6 years old) has announced that he is going to buy me a toaster for my gf toast when he saves up enough allowance. Sweetie Pie!

Link to GF Bread Recipe... gingerlemongirl.blogspot.com/2008/05
/m
y-favorite-gluten-free-sandwich-breaR>d.html


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CINDYTW Posts: 5,783
5/9/11 10:06 P

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It varies from person to person, if you have already picked up on a dairy issue, you may need to give that up...totally. For at least several months. I started to tolerate it better after about 8 months GF but still really shouldn't eat it. It can cause the same inflammatory response as gluten, especially if you are already having a response to gluten that has not healed. There are other things that can cause symptoms too...for now, just focus on being diligent for hidden gluten and dairy then in about a month if you are not better try cutting out other grains, soy, eggs, peanuts and beans. These can be allergens or hard to digest. I have also become more sensitive to things like caffeine and when I was first diagnosed I couldn't have many raw veggies. Try using cooked for now. Hope that helps!

Oh and both Rudi's and Udi's bread is OK not toasted...

Edited by: CINDYTW at: 5/9/2011 (22:08)
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5/9/11 9:59 P

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Oh my gosh, never thought of wooden utensils. I use wooden spoons allllllll the time and was using them for my oatmeal once upon a time. Since going GF, I've been using the same spoons for my bobs mighty tasty hot cereal and my hominey!

*sigh of relief*

My bf doesnt cook except for using the toaster (haha) and since gf bread is expensive, I dont buy it, so I dont use the toaster. I was thinking of getting a bread machine, but if GF bread is only best when toasted, I may just nix that whole idea.

Sarah
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To succeed in your goals is to go outside your comfort zone, push yourself constantly and realize that you only get back what you put in, so give it 110% all the time, everytime!


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MICHTOTMAN's Photo MICHTOTMAN Posts: 815
5/9/11 9:53 P

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Pretty much all of us here know exactly where you're coming from! I started feeling better after about 3 days - but not good. I've been gluten free since October, but I still battle re-contimination and also have to be dairy-free to feel my best. That said, if you're not ingesting hidden gluten in your food, you might start thinking about other hiding places...
1. Your toaster - has tons of gluten bits in there. Get rid of it and get a new one that you use only for gf bread.
2. Bread machines - same problem as #1
3. Cookware - wooden utensils are the worst, and apparently anything scratched can have gluten particles still hiding there.
4. Other utensils... my mixer had little bits of flour stuck in cracks. Who knew that every time I turned it on it was spewing little gluten particles all over my kitchen.
It is extremely difficult when you're the only gf member of your family (as I am). It feels like a constant Russian Roulette game every time I make something. I clean constantly and never put any food anywhere except on a clean plate. I won't even put an apple on the counter any more, just in case someone's sandwich crumbs are lurking about.

Also - your negative test doesn't really mean anything. Listen to your body and this team is full of excellent resources. I don't know where I'd be if I didn't have this team!!!

The greatest glory in living lies not in never falling, but in rising every time we fall.

NELSON MANDELA


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5/9/11 9:42 P

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I've been making everything from scratch, nothing store bought except for items that say 'gluten free' on the box (ie glutino and enjoy life brands). I've contacted several companies that raised suspicions and they claimed they were gluten free. I read somewhere that in Canada, modified food starch is corn starch unless otherwise stated as well as a few other tips and tricks, however, that being said, anything 'modified' I tend to stay away from lol.

A lot of friends and family are saying that its stress thats bothering me. Of course I'm stressed! Everytime I eat, I feel like I"m playing Russian Roulette on stomach aches, headaches and bowel issues.

I'm basically doing this on my own as I dont know anyone personally who has CD. My cousin is gluten intolerant, but she strays from it all the time (she'll eat well for a few days, and then have toast or something with wheat).

Sarah
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To succeed in your goals is to go outside your comfort zone, push yourself constantly and realize that you only get back what you put in, so give it 110% all the time, everytime!


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KEL_CE's Photo KEL_CE Posts: 1,988
5/9/11 9:26 P

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It varies. I felt better in 3 days. Some people it takes over a month. Are you getting help with going gluten free. There are so many hidden gluten ingredients to look out for and so many tricksters out there. For example modified food starch can sometimes contain gluten and it's in soooo many things.

Kel
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5/9/11 9:20 P

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Hi everyone. I am just curious as to how long after going GF that you began to feel better?

I am becoming extremely frustrated as I am going on almost 3 weeks now and although my brain fog and achy body has subsided, I still get horrible stomach pains out of nowhere.

I am self diagnosed as being intolerant, but the IgA test came back negative. My doctor is just shrugging me off as having IBS (and gave me an antiparasitic several years ago believing my IBS was a worm!). She is useless, and living in Canada, since I have a 'doctor' no other doctor will see me unless I pay big $$$ to see a Naturalpathic doc. I have nothing against them, just no insurance for one.

I have noticed that if I accidently ingest gluten, I do have to go dairy free for several days afterwards or else I will get bad lactose intolerance symptoms (nausea, gas, stomach pain).

Someone please tell me it will get better? I had such bad gas pains tonight I actually screamed in pain until it passed :(

Sarah
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To succeed in your goals is to go outside your comfort zone, push yourself constantly and realize that you only get back what you put in, so give it 110% all the time, everytime!


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