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NAVARROOWNER's Photo NAVARROOWNER Posts: 244
5/9/11 8:36 P

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Thanks for all the input. I have decided to do the first EGD without gluten and not get a second one done that would require me to eat gluten. Thanks for all the feedback! That diabetic example really puts things in prospective.

Whether you think you can or think you can't - you are right.
- Henry Ford


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5/6/11 12:43 A

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The diabetic example is one of the best I've read. Thanks. I must say that after 18 months of being very good, and another couple before that still learning, I am not only feeling better, but when I got inadvertently glutened on Palm Sunday, it led to a full blown yeast infection. I had been struggling with rampant infections before going GF. My DR. couldn't figure it out.
Sometimes it's trial and error. I've also gone to organic milk and corn, which have made a major difference. I have begun losing weight for the first time in many years! I also attribute the changes to an increase in Vitamin D. Whatever the reason, being miserable is no reason to eat something, just to put it on record. And, what if it showed negative? I don't care to do that!
Kate

"It is only with the heart that one sees rightly; what is essential is invisible to the eye."
Antoine de Saint Exupery: The Little Prince


"To the world you may be one person, but to one person you may be the world."
Heather Cortez
CHRISECORLISS's Photo CHRISECORLISS Posts: 30
5/4/11 8:15 A

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Another Celiac friend of mine gave me this explanation. Gluten to a Celiac is like rat poison. So your Dr. is suggesting you consume poison for six weeks to prove to him that it makes you sick. Would he ask a diabetic to forgo insulin and eat candy for six weeks to prove they are diabetic?

NAVARROOWNER's Photo NAVARROOWNER Posts: 244
5/3/11 5:00 P

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Yeah, I had the same mentality towards the test at first. When I got the colonoscopy done last year (he was looking for other possible reasons for my symptoms) he came across a polyp. So, the way I'm looking at it right now is that it might help diagnose me but it also could turn up something else. I think I will decline the other EGD where I'd have to eat gluten. I really don't want to put myself through that. Thank you all so much for your comments and experiences.

Whether you think you can or think you can't - you are right.
- Henry Ford


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5/3/11 1:03 A

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I agree. Why go through six more wks of gluten if you have the answer. An endoscopy does not show intolerance, as I have. My doctor never thought of it, but when I told her, she was way cool with it.
We have gotten sold the lie that we are not smart, and only a professional can diagnose a problem with our bodies, even though we live in them. :)
As an example, my migraines are mostly caused by gluten, MSG and barometric changes, especially the drops. I am rigorous about the first two. My DR. told me I needed to control any other triggers. She didn't believe me at first when I told her how I had charted the problem. The next time I saw her, she told me I was the 3rd person in one week with the barometer problem. BTW: my youngest son has the same weather problem.
So, many of us don't have celiac, which makes troubleshooting harder. If you have the answer, don't go through another expensive and painful test to prove or disprove something unless you need the proof for something.
Okay, off the soapbox!
Kate

"It is only with the heart that one sees rightly; what is essential is invisible to the eye."
Antoine de Saint Exupery: The Little Prince


"To the world you may be one person, but to one person you may be the world."
Heather Cortez
CINDYTW Posts: 5,783
5/2/11 11:14 P

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Unless a diagnosis is important to you for tax purposes or family members, I would just keep eating GF. The end result is the same-NO GLUTEN! I refused my endoscopy for the fact that I was not willing to make myself sick for 6-8 weeks for a label. In the end, the GI and my primary conceded and gave me the diagnosis anyway.

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BLEEDINGROSES's Photo BLEEDINGROSES Posts: 666
5/2/11 10:56 P

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I agree. Eat GF and forget about the doctor. Listento your body!


Haha jump off your degree. That's funny!

Edited by: BLEEDINGROSES at: 5/2/2011 (22:57)
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CHRISECORLISS's Photo CHRISECORLISS Posts: 30
5/2/11 10:46 P

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Why would you agree to be sick for six weeks to get a doctor's blessing? If a GF diet works you have your diagnosis. Tell the doctor to go jump off his degree.

CHRISECORLISS's Photo CHRISECORLISS Posts: 30
5/2/11 10:44 P

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Why would you agree to be sick for six weeks to get a doctor's blessing? If a GF diet works you have your diagnosis. Tell the doctor to go jump off his degree.

NAVARROOWNER's Photo NAVARROOWNER Posts: 244
5/2/11 9:43 P

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Well, I called my doctor and he said I could try to eat gluten until then but he doesn't think it'll be enough time to see damage to my villi. He said he usually requests six weeks of gluten diet before an EGD to get results. So, we decided to keep the gluten free diet and we'll see what he finds or doesn't, Then we'll do another EGD with six weeks with a gluten eating (I'm so not looking forward to that :() and see what comes up.

My blood test came back negative for celiac. And originally he diagnosed me with ISB but my primary care doctor brought up the GF diet and possible gluten intolerance/celiac. Once I went GF all my symptoms went away.

Whether you think you can or think you can't - you are right.
- Henry Ford


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SAGEOWL's Photo SAGEOWL Posts: 9
5/2/11 8:28 P

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I have been Gluten free for 3 years after EGD diagnosis of Celiac. A year later my doctor wanted another to determine how well I was healing, and if I was responding to the Gluten free diet. If you have been gluten free, it will not give you a diagnosis, but perhaps they want to see how well your doing?

With God, NOTHING is impossible.


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CRAZYDOGLADYBO's Photo CRAZYDOGLADYBO SparkPoints: (61,232)
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5/2/11 4:59 P

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I was gluten free when I was tested, when I asked my doctor about it he brushed me off. I would ask your doctor is this was a genetic test or ask if the doctor detected wheat in your system.

My dad's doctor told him it takes 2 years for the wheat to leave your system. This is something that I have not had verified.

Bo

Northern Arizona MDT

I love my dogs! Annie is a fearful dog and is doing great under careful management. I raw feed my dogs.

Diagnosed with Celiac Disease 02/25/2011

Non-smoker after smoking 30 years and was at 3 packs a day.

Former skinny person who never exercised and is now trying to make exercise a habit.


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NAVARROOWNER's Photo NAVARROOWNER Posts: 244
5/2/11 3:41 P

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I'm getting scoped in 2 weeks. I've been gluten free since late July/early August of last year. I've accidently gotten gluten or slipped up only a couple times since then, literally less than a handful. I thought you had to consume gluten for 6 months to get an accurate reading from the EGD? Do you think it would be worth it to eat gluten for the next 2 weeks? Do you think that would alter the results?

Yeah, I'm pretty clueless. I think I was in shock when he said he wanted to do it, so I didn't think of all these questions until I got home.

Any been there done that type information is strongly encouraged. Thanks in advance!

Whether you think you can or think you can't - you are right.
- Henry Ford


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