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1HOPEFUL1's Photo 1HOPEFUL1 SparkPoints: (0)
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5/8/11 3:55 P

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Thanks to everyone who answered my question. I really appreciate all the feedback. I look forward to reading the links and finding out more helpful information.

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TANKERBEAR's Photo TANKERBEAR Posts: 88
5/8/11 2:14 P

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thank you for the information... working on reading it all and more. I also got gluten free for dummies from the library and another book that I am also working through. I definitely have lots to talk with my doctor about and will be putting in another call to her Monday. Whatever the answers end up being I am very happy to have found something that works and isn't just another band aide medication or shrug of the shoulders... And the other thing is that what I have been finding is helping my Mom who the doctors thought was allergic to gluten and now after testing they are doing the biopsy because the doctors think they missed celiacs. And I am learning a lot more about how to be really gluten free which is helping her. It is looking like we may have different triggers on some things but we are encouraging each other to health and that is helping both of us :D And the information and support from others is priceless in helping us get there :D

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OAKRUN Posts: 26
5/8/11 12:47 P

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There is an excellent article about the connection between gluten and gallstones written by Ron Hoggan at: www.celiac.com/articles/119/1/Gall-B
la
dder-Disease-and-Celiac-Disease---ByR>-Ronald-Hoggan/Page1.html
and another article mentioning the connection at www.gallbladderattack.com/gallstones
.s
html


The medical literature indicates a strong connection between food allergies (particularly the gluten grains) and gallstones. Forum reviews and individual's web pages indicate a number of people find gallstone relief after going gluten-free, but it's not 100 percent. There can be other variables. But gluten intolerance is at least a known factor in gallstone formation. Here's one person's experiences: members.aceweb.com/paden/essays/gall
st
ones.htm


One question you may need to ask yourself (and your MD) is if your pain could be caused by something other than gallstones, (such as low stomach acid.) The point here is that gallbladder surgery 'may' be the answer to your pain, but it may not, too. If your pain is actually associated with a food intolerance or Celiac's then removing the gallbladder won't solve a pain problem that first originates in the gut (or stomach).

If the surgery is elective (meaning not immediately necessary) then going strict gluten free, or even grain free might resolve the pain issue. And I mean strict GF. In gluten intolerance and Celiac's as little as 1/8 tsp gluten can trigger a gut reaction. Plus while many people feel much better within days of going GF, it actually takes 6-12 months for gluten to clear out of the body and a year or more to heal the gut.

Personally I follow use the Paleo eating plan because it excludes most of the common trigger foods that cause problems for Celiac's, namely (grains, dairy, beans (lectins) and I find it easier to follow than the usual GFCF diet. There are many web sites, dedicated to Paleo. Dr. Cordain's revised book "The Paleo Diet' is the most scientific. Mark Sisson's cookbooks are the 'best' cookbooks, though there are lots of free recipes online and at various web sites. Plus, you don't need a doctor's permission to go gluten-free.

So some research. It's your body, your decision.





CINDYTW Posts: 5,783
5/8/11 8:51 A

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I want to say that if you feel like you are hit with a mack truck on gluten then you might want to rethink going back on for testing! It does get worse as you are off and are you really prepared to suffer worse than a mack truck for testing only to confirm what you already know? I was not willing. It is your choice clearly but really think about it...I wish you the best! My hair falls out all over BTW...but I also have thyroid issues.

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DOTSLADY's Photo DOTSLADY Posts: 10,015
5/7/11 12:55 A

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emoticon Best wishes to recovering from what ails you.

KNOWLEDGE = POWER. BODY = TEMPLE. FOOD = MEDICINE. PREVENTION IS THE CURE. YOU ARE WHAT YOU ABSORB!
One person's food is another person's poison.
__________
Celiac Disease: An autoimmune reaction from eating gluten grains: wheat, rye, barley and contaminated oats=nutrient deficiency=cancer. Have 1 of 300 symptoms? bit.ly/cdsymptoms
CD stories: bit.ly/cdstories
Nutrition/Cancer: bit.ly/Quillinnutrition


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TANKERBEAR's Photo TANKERBEAR Posts: 88
5/6/11 9:03 P

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Thank you for the information :D I got to thinking that my posts might have been abrupt and didn't want to offend because I am really greatful for the help... just frustrated with waiting for answers and feeling a lot like a lab rat with no specific answers. Still waiting for the doctor to call back :S we have been on the track of figuring out what is going on for few years now and it can be very frustrating. I have been through multiple testings including some that they want to repeat that I didn't have good reactions to the first time. :( Considering that being gf/cf for almost 2 weeks now is providing more relief than anything they have tried before (ie I can actually do things like the dishes without feeling like I have been run over by a mack truck) I am extremely reluctant to go back to gluten. But I am also warring with the inner desire to actually have results that say yes or no about what is going on. I figure we are going to take this one step at a time.

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TANKERBEAR's Photo TANKERBEAR Posts: 88
5/6/11 2:42 P

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Oh thyroid levels are normal

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TANKERBEAR's Photo TANKERBEAR Posts: 88
5/6/11 2:41 P

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B vitamins tested they were fine. Vitamin D and potassium where low. Iron has never been low actually the opposite all my life in fact... couldn't even take prenatal vitamins with iron and have to have the regular ones without iron because my levels run too high... its a genetic trait common in my family. Mom only ran low after months of undiagnosed gi bleeds they are still working on controlling.
My c reactive they are still trying to figure out... I am interested in what the gfcf diet is doing to the levels. My hair falling out has slowed with the diet and that is raising eyebrows with my doctors.

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DOTSLADY's Photo DOTSLADY Posts: 10,015
5/6/11 2:02 P

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TANKERBEAR: The article was at the bottom of the first post and may have been easily overlooked. Here you go: www.fourhourworkweek.com/blog/2010/0
9/
19/paleo-diet-solution/


Hair loss could also be from low ferritin/iron, or hypothyroidism.

Re: hsCRP or CRP or inflammation markers, know that homocysteine might be a better marker. If you can, in addition to it, ask doc about getting Bs 6 &12, folate, and an MMA for best diagnostics. Homocysteine can be reduced with B vitamins/food. Your doc should know. bit.ly/lYK34p

KNOWLEDGE = POWER. BODY = TEMPLE. FOOD = MEDICINE. PREVENTION IS THE CURE. YOU ARE WHAT YOU ABSORB!
One person's food is another person's poison.
__________
Celiac Disease: An autoimmune reaction from eating gluten grains: wheat, rye, barley and contaminated oats=nutrient deficiency=cancer. Have 1 of 300 symptoms? bit.ly/cdsymptoms
CD stories: bit.ly/cdstories
Nutrition/Cancer: bit.ly/Quillinnutrition


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NORMAMURIEL Posts: 106
5/6/11 7:39 A

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TANKERBEAR
First want to give you some hope, my hair was falling out as well. My husband swore I should be bald with all the hair he kept having to remove from the shower drain every month. My hair dresser was amazed at all the hair lose as well, thank god I had a lot of it, fine but a lot. No more, my hair while a little thin in one area doesn't come out in droves when I run my fingers threw my hair. Also had stomach issues, I would wake up in the morning take a drink of water and get instant heart burn, I am talking the acid reflux kind. That is also gone after going gluten free.
I also want to give you a warning, if you go gluten free now, thinking you will go back on gluten for the test you might get a negative test result. There is no known time frame where going back on gluten will cause a positive test results, some people, I have read, went back on for a month and still tested negative, but was feeling great when they removed the gluten. I had a simple blood test that confirmed mine, and I decided I had enough test at that point and went on the diet (new life style)
Also if you are truly gluten free, when you take that gluten back into your system you are going to feel worse then you ever did before you started all of this and removed the gluten. I liken it to being hit by a mack truck.
Since it seems all of your issues are starting to improve, I wonder do you really need a test that your body already seems to be confirming? If you do, put gluten back in your diet now, do not wait, and give it a while before asking the doctor to test you.
Good Luck.

TANKERBEAR's Photo TANKERBEAR Posts: 88
5/5/11 9:10 P

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it is looking more and more like that might be where I am heading... Mom just came back from the allergist with a referral to the gastroenterologist, the allergist said it isn't allergies and highly suspects celiacs... not to mention a lot of other personal symptoms but would really like the tests to be sure. Either way not going back on gluten for anything (except maybe the testing). My hair has finally slowed down on falling out in small handfuls and swelling is leaving not to mention that my sense of taste is coming back (did you know potatos without anything on them are sweet??? I always thought they were bland starchy...) It will be interesting to see where my c-reactive protein is considering it was 15+ last before going gfdf. Anyways, trying to arm myself with information to rationally talk with the dr about getting the testing, not to mention that I already have to be on 4 times the normal dose of stomach pill to keep down the inflammation there... this should be interesting... Wish I had known about the gf thing much earlier, just never suspected for myself and we thought Mom's was allergies...

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WILLIAMSD48 SparkPoints: (0)
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5/5/11 8:02 P

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I had to have my gall bladder removed about three years before I was diagnosed with Celiac. I have heard that this sometimes acts as the trigger for our disease to manifest itself.

TANKERBEAR's Photo TANKERBEAR Posts: 88
5/4/11 7:01 P

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I am trying to find the article that you are referring to about the connection between the gallstones/gallbladder removal and celiacs. I can't seem to locate it. The reason it is of interest is that before starting gfcf, I had to have an emergency surgery to remove my gall bladder, which was folded in half and fused to the duodenum with stones. The surgeon commented on the duodenum having multiple scaring from what looked like old ulcers to me. I mentioned this to my primary but the connection was never made and to be honest I am not sure, not that it makes a difference per say in the treatment but it does make a difference in testing for both myself and my family and things that should be watched for. Anyways wanted to have more than just my own concern to back up what I am wondering.

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DOTSLADY's Photo DOTSLADY Posts: 10,015
5/4/11 10:34 A

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bit.ly/ppgallstones

How much fat do you eat? I have shared this article with people I know who've had gallbladder problems to see if it resonates with their experience, but NONE of them have ever replied. I don't know if the article is too long or what, but I've tried eating some fat with every meal since. (I don't have gallbladder problems that I know of, and I'm also pretty Paleo ...). So my take is that it's not just gluten, but gluten IS suspect in organ damage, I agree.

You may want to ask GFNomad her thoughts. She's been gf for 29 or 30 yrs but had her gallbladder removed after 25 yrs of gf-ness.



Edited by: DOTSLADY at: 5/4/2011 (10:40)
KNOWLEDGE = POWER. BODY = TEMPLE. FOOD = MEDICINE. PREVENTION IS THE CURE. YOU ARE WHAT YOU ABSORB!
One person's food is another person's poison.
__________
Celiac Disease: An autoimmune reaction from eating gluten grains: wheat, rye, barley and contaminated oats=nutrient deficiency=cancer. Have 1 of 300 symptoms? bit.ly/cdsymptoms
CD stories: bit.ly/cdstories
Nutrition/Cancer: bit.ly/Quillinnutrition


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DJ4HEALTH's Photo DJ4HEALTH Posts: 39,228
5/3/11 10:55 P

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My gallbladder was removed because of gallstones but that was 1981 when they did that and now there is a way to remove them by a cleanse. Put in gallbladder cleanse or gallstone cleanse and then follow it. My stones were removing them selves when they took it out. I wish that I never had mine removed because I still have problems with pain where they took it out., Bile juices hitting the intestines all the time is not good.

Dorothy





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MACKJESS1234's Photo MACKJESS1234 SparkPoints: (7,571)
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5/2/11 5:02 P

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Hi there! I don't have any gallstone problems, but I remember when my doctor was first telling me about having Celiac I remember him saying how it can mess up how all of your organs function if you continue to eat gluten, and specifically mentioned pancreas and gall bladder problems. I would say its worth a try!

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1HOPEFUL1's Photo 1HOPEFUL1 SparkPoints: (0)
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5/2/11 9:42 A

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I don't believe there is harm in going gluten free. Quite the opposite. In fact, I bought the book, "Living Gluten-Free for Dummies" 3 days ago and that is when I started a gluten-free diet. I did it because of all my medical issues, but was curious to know if going GF would help with gallstones in addition to everything else I am sure it will help.

Thanks for your insight. I appreciate it.

Edited by: 1HOPEFUL1 at: 5/2/2011 (09:42)
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NORMAMURIEL Posts: 106
5/2/11 8:31 A

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OK, my question to you is "what would be the harm to go gluten free?" While it's not fun sometimes when the family is enjoying pizza or those coney dogs, it sure beats having your gallbladder removed doesn't it. I mean what is the worse that will happen? You will have to have your gallbladder removed, which sounds like that is what they want to do in the first place. My daughter had hers removed and a friend had his removed, they both have to run to the bathroom now after eating. I mean they can not go anywhere, I know the one friend will not eat with friends for that reason. My daughter couldn't wait 10 minutes or so until we got home and had to stop at a gas station. I think if giving up gluten would stop that issue, it would be well worth it in my book. Also it is so much easier then it was even just a few years back. You can start to get the regular off the shelve foods, like hamburger helper or chex cereal. I say give it a shot, and if it works, don't look back. Just be aware you will test negative at that point since we start to heal as soon as we remove the gluten from our system. I also suggest getting the book gluten free for dummies. Will give you a lot of insight into your issues. You might even discover that other problems you have, disappear when you remove gluten like I did. Never even correlated the two until I noticed it after a few months of being gluten free. Good Luck.

1HOPEFUL1's Photo 1HOPEFUL1 SparkPoints: (0)
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5/2/11 7:44 A

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Hello everyone!

I am new here. I recently saw a link on the thread "FAVORITE WEBSITES, BOOKS, PRODUCTS & why" that interested me. Although the title of the article was a little gross, I was drawn to a section regarding glutten and gallstones.

Here is the section under FULL OF BILE:

"The function of the gall bladder is to release bile salts into a meal as it is emptied into the duodenum from the stomach. When the intestinal wall is damaged, the chemical messenger, cholecystokinin (CCK), is not released. CCK usually sends the “on” switch to the gall bladder and the secretion of pancreatic digestive enzymes. When this signal is blocked, we do not properly digest our foods, particularly fat and protein. The lack of bile release allows cholesterol crystals to form in the gall bladder, which leads to gall stones. The standard medical practice of removing the gall bladder is effectively killing the “canary in the coal mine.” Gall stones are a symptom of a problem, an alarm. Instead of treating the cause (remove grains) we cut out the gall bladder. People who have had gall bladder removal are almost certainly undiagnosed celiacs and likely have a number of other progressive diseases. In my experience, these individuals are plagued with digestive problems, culminating in dysphagia, or difficulty swallowing."

This seems to say that if you remove grains it will help with gallstones. Does anyone know about this?

My doctor wants to remove my gallbladder because of gallstones and I don't want to do it. I would like to go gluten free and see if the gallstones break up and the pain subsides. I will try anything to not have the surgery. By the way, my gallstones are small and are not blocking any ducts, so the surgery isn't mandatory, just to relieve the pain.

I appreciate your responses.

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Here is the link to the article I refer to:

www.fourhourworkweek.com/blog/2010/0
9/
19/paleo-diet-solution/


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