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1/7/07 5:30 P

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before being diagnosed, I was ALWAYS hungry. Some people even wondered if I had a tapewom I ate so much. And I was SO tired. I was terribly skinny and always very tired. I could fall asleep anywhere it felt like.

My daughter was 17 when she was diagnosed, then one year later she went to college. Once there, she really got into the beer! She partied hard, hardly slept or attended classes. After her first year, she got a one year academic suspension due to very low/failing grades. She has since started back to school on a part time basis. That's all they'd allow her back for.

I will talk to my sister about the diet. See what she has to say.

I am very satisified on the GF diet. I don't snack at night like I used to just after being diagnosed. I use to eat at night all the time, but I think between cooking good meals for dinner and making sure I eat regularily, I don't need to snack much anymore. Sometimes if we have a light dinner, I might have some airpopped popcorn at night, but that's about it.

Pyeway

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DOTSLADY's Photo DOTSLADY Posts: 10,019
1/7/07 12:08 P

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Thanks for saying hello Pye.

Well, I have to say I would have been all over your sister a long time ago!

Give her these websites and see if she's up to reading about it:

http://glutenfree.googlepages.com
and
www.glutensensitivity.net

or just read celiac.com's msg boards! THAT's an experience!

I keep telling stories I hear about gluten/celiac to my 17 yr old. She rolls her eyes, but she's eating more gluten free. She realizes it makes her feel better, but it's a hard change, esp if your blood doesn't show the "disease" (but your stool shows the "sensitivity"). I'm backing off and she's trying in her own way. I just want to keep supporting her -- as quietly as I can while I still have her. College is coming!

Also, I was wondering if you found before your diagnosis that you were hungry all the time. I don't know if this is an extra gene for the very overweight/obese patients or not. I used to be hungry all the time, now I'm not and quite easily satiated. It changed for me like a lightswitch not eating gluten.

I have an out-of-state friend who is not obese and is celiac. She's also going through menopause because of an ablation procedure on her uterus. She's gained 10 lbs since diagnosis with celiac in June. Not horrible, but uncomfortable (I gained 20) for her. She can't seem to be satisfied with eating gf. Prior to dx, she ate rice cakes all day (I think that was a sign of pica), but doesn't crave them since gf diet has been in place.

I just think it's an interesting subject. (I do think she's eating a lot of sugar/candy lately though).

Edited by: DOTSLADY at: 1/7/2007 (12:11)
KNOWLEDGE = POWER. BODY = TEMPLE. FOOD = MEDICINE. PREVENTION IS THE CURE. YOU ARE WHAT YOU ABSORB!
One person's food is another person's poison.
__________
Celiac Disease: An autoimmune reaction from eating gluten grains: wheat, rye, barley and contaminated oats=nutrient deficiency=cancer. Have 1 of 300 symptoms? bit.ly/cdsymptoms
CD stories: bit.ly/cdstories
Nutrition/Cancer: bit.ly/Quillinnutrition


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1/7/07 9:18 A

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Hi Dotslady. I am really glad to see you posting once again. I was wondering what happened to you. Welcome back to the team.

I am also happy to see you "backing off" from your mom and trying to get her to see a doctor. We really can't control anyone but ourselves and we have to keep reminding ourselves of that. It is SO hard to do though! When I see my daughter eat foods with gluten in them, I just want to shake her and ask her why she doesn't think she is important enough to herself to do that to herself, but she is 21! She isn't a kid who I can "force" to eat the proper things. She is an adult. Just keep remindering yourself of that with your mom. We can only control ourselves!

My sister is so depressed for so long every year, she is off work on medical leave, for at least 5-6 months. She just got back to work this fall from being off for months, when she had to go off again. She worked her way back up to 4 days a week, and then was off again. Maybe I should tell her to get tested for celiacs. She is and always been very supportive of my diet, although if she had to go on it might be a different story. She is a very emotional eater and she lives alone. The antidepressive meds she is on are almost at psychotic levels, and barely working! I think the next time I talk to her I'll mention it. Nothing else is working for her, might as well give it a shot! She has gained so much weight lately. She also wants to lose for my daughters wedding, so maybe she'll try it.

Take care of you Dotslady. You are number 1!
Pyeway

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DOTSLADY's Photo DOTSLADY Posts: 10,019
1/7/07 12:53 A

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Hi everyone! I've been away and am now getting back into my celiac groove! It's nice to be back with ones who understand and I don't have to explain!

I had depression my whole life, also. About 7 months into the gf diet, I realized it was gone. What a load off to say the LEAST! To have energy again? I can't tell you. What a struggle life was BEFORE ... and what a blessing life is NOW. I also had the dementia/Alzheimers thing going. Not fun to think that slowly.

My mother's side has depression and a suicide in there somewhere. They're up in Canada, I'm in the states, so I don't know them well. My mother doesn't think she's depressed and I can't convince her to go gf. Eating gluten is easier. I keep at it, but have backed off. She is who she is (I'm letting go Pyeway - doing better in that regard)!

I have a nephew who is probably schizo. He had a breakdown when confronted with a crossroads in life (stress) - after high school and now what? He's organic and vegetarian. I think a lot of vegetarians are just trying to find their health - unfortunately that also includes bread instead of meat. That's the way I was anyway. I'm not vegetarian anymore. And I feel sooo much better.

Here's a question: who gets satisfied sooner without gluten foods? I do! Just wondering your experiences.




KNOWLEDGE = POWER. BODY = TEMPLE. FOOD = MEDICINE. PREVENTION IS THE CURE. YOU ARE WHAT YOU ABSORB!
One person's food is another person's poison.
__________
Celiac Disease: An autoimmune reaction from eating gluten grains: wheat, rye, barley and contaminated oats=nutrient deficiency=cancer. Have 1 of 300 symptoms? bit.ly/cdsymptoms
CD stories: bit.ly/cdstories
Nutrition/Cancer: bit.ly/Quillinnutrition


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IAMDIOSA's Photo IAMDIOSA Posts: 356
12/30/06 1:17 P

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Depression is very common. There are actually well over 200 symptoms of Celiacs/gluten intolerance.

I have kept a strict GF kitchen for a year and a half. There's still milk for my husband. I've learned to cook allergen free and my husband and any guests eat GF. The thing I learned is that GF doesn't mean taste-free. :)

There are some great recipe sites out there for ideas and inspirations. Not just meals but sweets as well. :)

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12/29/06 9:03 A

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Our father was depressed the whole time we were growing up, and I'm sure he still is. I haven't talked to him in 20 years, and have no reason to now. My younger sister is chronically depressed as well, and is considerably overweight. Maybe she should be tested for celiac as well. I should advise her to get checked.
Pyeway

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GFNOMAD's Photo GFNOMAD Posts: 1,506
12/27/06 2:44 P

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Along with depression. My mother is 92 and has suffered all her life with anxiety and other issues but refuses medication or assessment. She has always been terrified of being institutionalized.
She is not a diagnosed Celiac but I strongly!!! suspect it.
The rest of the family refuse to consider it and continue blaming and hating her for what she did to us. I know she did her best and couldn't help herself at times.
I behave similarly when I am exposed to wheat. Unfortunately, I didn't realize it until I was in my 50's even though I went gf in my 30's. I just didn't realize the psychological impact on me of hidden glutens and cheating. I thought back them (when dx was 1:10000) that to cheat one day a week was ok.
Barb


Been to Tombouctou and back! Truely! (Timbuktu in English) photos and more Travel Adventures at www.flickr.com/photos/cdnnomad/sets
Recognizing Celiac Disease www.recognizingceliacdisease.
com/21.html

10 Tests that could save your life www.50plus.com/health/10-tests-that-
could-save-your-life/1676/

Dr. Alejandro Junger - 'Healing the gut' (from Dr. Oz) www.doctoroz.com/videos/3-day-jumpst
art-cleanse


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12/27/06 1:58 P

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Hi everybody. Did everyone also know that celiacs have a high rate of schizophrenia also?? I'v heard that as well as the autism one. Very scary for us I think! Like we don't have enough problems already.
Pyeway

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HELENOREGON's Photo HELENOREGON SparkPoints: (1,489)
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12/27/06 2:30 A

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Thank you everyone for the GREAT advice and support!!! I am very excited to be here!!! Hugs to everyone and have a WONDERUL day!!! Hugs, Helen

On the one way track... to FREEDOM from fat!!!


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12/25/06 8:23 P

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Hi Helen, Welcome,

Following a gluten free diet is for life. If you notice an improvement, there is no going back. Avoiding hidden gluten and cross contamination is extremely important. This advice comes from experience!

A member on the Celiac listerve(ICORS) wrote a great email on 'Keeping a gluten free kitchen' which essentially was an expanded version of what Pyeway said.

In my internet searches for recipes, I've come across several Autism/Gluten free sites that offer support and recipes. Here are a couple you may want to check out if you don't know them already:

Many links and recipes at
http://www.geocities.com/ARNFL/diet.html

Noah's Bread recipe (without the essential fatty acids) and more recipes at
http://www.danasview.net/recipe.htm
Another site said "Noah's Bread recipe came from GFCFKIDS group on internet"

good luck, Barb (gf since 1981)

Been to Tombouctou and back! Truely! (Timbuktu in English) photos and more Travel Adventures at www.flickr.com/photos/cdnnomad/sets
Recognizing Celiac Disease www.recognizingceliacdisease.
com/21.html

10 Tests that could save your life www.50plus.com/health/10-tests-that-
could-save-your-life/1676/

Dr. Alejandro Junger - 'Healing the gut' (from Dr. Oz) www.doctoroz.com/videos/3-day-jumpst
art-cleanse


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12/25/06 5:56 P

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Hi Helen and welcome to the group. It is definitely cooking only one meal each time you cook! I only cook GF every night so I can enjoy the same meal as the rest of the family.I'm not running a restaurant, that's for sure. Once you get into the grove, you may realize that cooking GF for an entire family is cheaper than cooking 2 or more meals a day for every diet! Congratulations on getting your family on board and the improvements in your son.
All the best, Pyeway

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WALKSFAR's Photo WALKSFAR SparkPoints: (67,624)
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12/25/06 4:05 P

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Welcome to the team. There is an autistic team too if you'd like to check them out. I am so glad to hear the going GFCF has helped your son! You may find it expensive for the whole family to go GFCF, but if you can afford it; it will make cooking so much easier and safer.

Best Wishes
Eveline

Edited by: WALKSFAR at: 12/25/2006 (22:16)
Being a Christian isn't about religion. It's about a relationship with the One who made us. I'm so thankful to be one of His.

I can do all things through Christ who strengthens me. Philippians 4:13

Do not ask the Lord to guide your footstep, unless you are willing to move your feet.

God grant me the serenity to accept those I cannot change, to change the one I can,
and the wisdom to know itís me.


books.txtriker.org


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HELENOREGON's Photo HELENOREGON SparkPoints: (1,489)
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12/25/06 2:37 P

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Hello!!! I was saw your group on my friend (DOTSLADY) Spark Page and wanted to check it out. My son is Autistic and we have had him on a GFCF Diet for about 2 months and have seen a HUGE improvement! I was talking to a nutrionist last week and she stated that some families find it to be in their chimistry that they can not process Gluten and Casin very easy (hireditary - spelling??). So now the whole family is going to try the diet! I am so excited as we are starting a new life style as a family of eating healthier, getting more exercise and focusing on us as a whole! It is going to make cooking and everything that much easier! YA!!! I was so pumped to see this team and all of the great information on it!!! I wouldn't have found you if it wasnt for DOTSLADY introducing herself. Thank you so much!!!

Hugs to all and have a safe and Merry Christmas!!!
Helen

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