Author: Sorting Last Post on Top ↓ Message:
CINDYTW Posts: 5,783
2/28/11 9:42 P

Send Private Message
Reply
OK if you feel good then that is all that matters I guess!

 current weight: 186.8 
 
195
181.25
167.5
153.75
140
CRAZYDOGLADYBO's Photo CRAZYDOGLADYBO SparkPoints: (61,232)
Fitness Minutes: (40,683)
Posts: 2,934
2/28/11 9:32 P

My SparkPage
Send Private Message
Reply
Cindy ~ I cook everything from scratch, use homemade deodorant, use my own special "thing" for shampoo. I feel no bloating etc. I did walk into office and say: My Dad has Celiac and I have an intolerance to gluten. So yes, it might have been a genetic marker.

**I will be making my own soap soon too.

Bo

Northern Arizona MDT

I love my dogs! Annie is a fearful dog and is doing great under careful management. I raw feed my dogs.

Diagnosed with Celiac Disease 02/25/2011

Non-smoker after smoking 30 years and was at 3 packs a day.

Former skinny person who never exercised and is now trying to make exercise a habit.


 current weight: 177.0 
 
200
183.75
167.5
151.25
135
CINDYTW Posts: 5,783
2/28/11 9:29 P

Send Private Message
Reply
OK BO the only thing I know of that he could have done, which is unclear without more specifics, is test you for the genetic marker. Otherwise everything you read and that I personally was told by my primary AND the GI specialist says that there needs to be gluten in your system for the tests to be effective. Maybe he did do the genetic test...not as common but possible.

My concern is for you...that somehow you really are still getting gluten and don't know it...hope this isn't the case! emoticon

 current weight: 186.8 
 
195
181.25
167.5
153.75
140
CRAZYDOGLADYBO's Photo CRAZYDOGLADYBO SparkPoints: (61,232)
Fitness Minutes: (40,683)
Posts: 2,934
2/28/11 9:18 P

My SparkPage
Send Private Message
Reply
So I went to my doctor today and we had a discussion about Celiac Disease and the blood test. According to my doctor, who is a family practitioner, he requested a test for Celiac and I came back positive. Per the doctor wheat or gluten does not need to be present for a positive result. My doctor is not a specialist in Celiac, but is familiar enough with the disease to know what to test for (his words). There has been progress in many areas of medicine and maybe in Celiac detection too. I recommend talking to your doctors and asking them if it is necessary to be eating wheat to be detected for Celiac Disease.

Bo

Northern Arizona MDT

I love my dogs! Annie is a fearful dog and is doing great under careful management. I raw feed my dogs.

Diagnosed with Celiac Disease 02/25/2011

Non-smoker after smoking 30 years and was at 3 packs a day.

Former skinny person who never exercised and is now trying to make exercise a habit.


 current weight: 177.0 
 
200
183.75
167.5
151.25
135
CINDYTW Posts: 5,783
2/28/11 9:06 P

Send Private Message
Reply
Suzabella, it does, but you need to be eating gluten for antibodies to show up in the blood tests which is the first step. If you really want to be tested, go back on a normal diet and then wait until you are tested. Also for the endoscopy that they do after the blood work to confirm. I did not get an endoscopy because it would have required "a number of weeks" of going back on gluten. That is way too dismal a thought after 30 days GF! The longer you are off the worse it is going back on.

Many people do not get tested. They simply go off gluten and find they feel better, and stick with it. There is no treatment for Celiac disease other than diet.

Good luck!

 current weight: 186.8 
 
195
181.25
167.5
153.75
140
SUZABELLA67's Photo SUZABELLA67 Posts: 19
2/28/11 2:16 P

Send Private Message
Reply
Gonna see doc later this month and ask him to run the tests; whatever they may be. I am fairly sure that I'm gonna be positive - I will miss more than bagels! I am only on week 2 of living gluten free! Please tell me that it gets easier!

http://www.authorhouse.com/Bookstore/BookD
etail.aspx?BookId=SKU-000408101


 Pounds lost: 5.0 
 
0
5
10
15
20
CRAZYDOGLADYBO's Photo CRAZYDOGLADYBO SparkPoints: (61,232)
Fitness Minutes: (40,683)
Posts: 2,934
2/28/11 12:19 P

My SparkPage
Send Private Message
Reply
JENCORINNE ~ So glad to have that verified! Bob sounds like a very nice guy to do that.

emoticon

Bo

Northern Arizona MDT

I love my dogs! Annie is a fearful dog and is doing great under careful management. I raw feed my dogs.

Diagnosed with Celiac Disease 02/25/2011

Non-smoker after smoking 30 years and was at 3 packs a day.

Former skinny person who never exercised and is now trying to make exercise a habit.


 current weight: 177.0 
 
200
183.75
167.5
151.25
135
CRAZYDOGLADYBO's Photo CRAZYDOGLADYBO SparkPoints: (61,232)
Fitness Minutes: (40,683)
Posts: 2,934
2/28/11 12:18 P

My SparkPage
Send Private Message
Reply
DJ4HEALTH ~ Thanks for info. I don't use conventional shampoo anymore, I found via online to use 1 to 2 tbsp baking soda in 2 cups of water for wash and for rinse 1 to 2 tbsp of apple cider vinegar for a rinse.

I still use regular soap though, will be making homemade probably this week. Will see how this goes.

Bo

Northern Arizona MDT

I love my dogs! Annie is a fearful dog and is doing great under careful management. I raw feed my dogs.

Diagnosed with Celiac Disease 02/25/2011

Non-smoker after smoking 30 years and was at 3 packs a day.

Former skinny person who never exercised and is now trying to make exercise a habit.


 current weight: 177.0 
 
200
183.75
167.5
151.25
135
DJ4HEALTH's Photo DJ4HEALTH Posts: 39,258
2/27/11 9:28 P

My SparkPage
Send Private Message
Reply
You might want to forget that bagel and go for something that has less calories in it. I read a Real Age that bagels have at least 600 calories in and when you add something on top of it then the calories go up.

For the question about can wheat cause a reaction to your skin, YES for some people and I am one of those that has a bad reaction to wheat in the product and when it gets on my head I have sores for at least two weeks or more. I can't use TRESemme because is makes my head break out in real bad sores and hurts my skin too.

Dorothy





 current weight: 224.0 
 
274
235.5
197
158.5
120
JENCORINNE's Photo JENCORINNE Posts: 1,932
2/27/11 3:49 P

My SparkPage
Send Private Message
Reply
Crazydoglover,
Re: BRM oats. Like was mentioned some people react to oats of any kind but can definitely tell you that BRM oats are GF. It's across town from me and has shared all sorts of info. The oats are grown in dedicated fields in Canada with no gluten grains grown around it. Then they have 2 plants one for gluten grains and the 2nd GF. They still test every run for gluten is down to their standards of GF.

Bob just had his 83rd birthday and hope to be as active as he is by that age. not to mention how generous he is - for his 82nd birthday he gave the company to the employees.

 current weight: 230.0 
 
265
242.5
220
197.5
175
CINDYTW Posts: 5,783
2/26/11 6:01 P

Send Private Message
Reply
Paranoia is normal for a Celiac by the way! Everything we eat litlerally could be out to get us! Did you track your food around the time you had the blood taken? That may give some clues...

 current weight: 186.8 
 
195
181.25
167.5
153.75
140
CRAZYDOGLADYBO's Photo CRAZYDOGLADYBO SparkPoints: (61,232)
Fitness Minutes: (40,683)
Posts: 2,934
2/26/11 2:42 P

My SparkPage
Send Private Message
Reply
Thanks for the input...

Now thinking that it might be the corn starch!

**Some days you have to just sit down and laugh at yourself**

Bo

Northern Arizona MDT

I love my dogs! Annie is a fearful dog and is doing great under careful management. I raw feed my dogs.

Diagnosed with Celiac Disease 02/25/2011

Non-smoker after smoking 30 years and was at 3 packs a day.

Former skinny person who never exercised and is now trying to make exercise a habit.


 current weight: 177.0 
 
200
183.75
167.5
151.25
135
LISED58's Photo LISED58 SparkPoints: (3,911)
Fitness Minutes: (3,126)
Posts: 557
2/26/11 2:32 P

My SparkPage
Send Private Message
Reply
Bo, that sounds like some low budget scifi! My body lotion is oatmeal-based. Hee hee.

 Pounds lost: 41.0 
 
0
19.25
38.5
57.75
77
CINDYTW Posts: 5,783
2/26/11 2:31 P

Send Private Message
Reply
Well, conventional medicine says that absorbing it through the skin will not do anything as far as creating a reaction. I have talked to people who say it does. I guess it is more likely to cause a reaction if you say, bake with regular flour and inhale it or accidentally ingest it from it being on your hands.

The Bob's Oats may be something. Some Celiacs react to oats just like gluten.

The tea I found at the grocery store in the natural food section. It was with the medicinal teas (Yogi, Traditional Medicinals, etc.).

 current weight: 186.8 
 
195
181.25
167.5
153.75
140
CRAZYDOGLADYBO's Photo CRAZYDOGLADYBO SparkPoints: (61,232)
Fitness Minutes: (40,683)
Posts: 2,934
2/26/11 12:32 P

My SparkPage
Send Private Message
Reply
Cindy,

Thanks for sharing that web site.

www.celiac.com/articles/21634/1/When-Mis
takes-Happen-Focus-on-Comfort-How-Celi
acs-can-More-Quickly-Recover-from-Glut
en-Exposure/Page1.html



Bo

Northern Arizona MDT

I love my dogs! Annie is a fearful dog and is doing great under careful management. I raw feed my dogs.

Diagnosed with Celiac Disease 02/25/2011

Non-smoker after smoking 30 years and was at 3 packs a day.

Former skinny person who never exercised and is now trying to make exercise a habit.


 current weight: 177.0 
 
200
183.75
167.5
151.25
135
CRAZYDOGLADYBO's Photo CRAZYDOGLADYBO SparkPoints: (61,232)
Fitness Minutes: (40,683)
Posts: 2,934
2/26/11 12:18 P

My SparkPage
Send Private Message
Reply
MICHTOTMAN ~ I hope you feel better soon! I am beginning to think that I might have gotten an accidental exposure too. I feel better today though.

Ok, here is another question: What is the opinion on wheat/gluten being absorbed through the skin?

Bo

Northern Arizona MDT

I love my dogs! Annie is a fearful dog and is doing great under careful management. I raw feed my dogs.

Diagnosed with Celiac Disease 02/25/2011

Non-smoker after smoking 30 years and was at 3 packs a day.

Former skinny person who never exercised and is now trying to make exercise a habit.


 current weight: 177.0 
 
200
183.75
167.5
151.25
135
MICHTOTMAN's Photo MICHTOTMAN Posts: 815
2/26/11 12:03 P

My SparkPage
Send Private Message
Reply
CRAZYDOGLADY - It may just be that you need time... I was "glutenated (double dose) over 3 days ago, and every time I eat now (yep, EVERY TIME) I feel sick all over again. Doesn't matter what it is, and I"m 100% sure I've had no more offending gluten. I'm almost to the point of just fasting - since I feel sick if I do eat - and drinking plenty of water!

Cindy - I'll be off today to see if I can find that tea. Where did you find it? Can I find it in my health food store??? I've never even heard of it, and I drink tea pretty often.

That smoothie looked promising - but I don't think I could actually swallow it. If I get desperate, maybe I'll give it a try. But I'll have to be pretty desperate, I think!

The greatest glory in living lies not in never falling, but in rising every time we fall.

NELSON MANDELA


 Pounds lost: 3.2 
 
0
10.5
21
31.5
42
CRAZYDOGLADYBO's Photo CRAZYDOGLADYBO SparkPoints: (61,232)
Fitness Minutes: (40,683)
Posts: 2,934
2/26/11 8:46 A

My SparkPage
Send Private Message
Reply
Ok, I got up this morning and skipped everything that might be my culprit, including the cold meds. I am now thinking that if I am getting some traces it might be from either my cocoa or my Bob's Red Mill oat mill that is labeled Gluten Free.

emoticon

Hopefully this will pinpoint it!

Bo

Northern Arizona MDT

I love my dogs! Annie is a fearful dog and is doing great under careful management. I raw feed my dogs.

Diagnosed with Celiac Disease 02/25/2011

Non-smoker after smoking 30 years and was at 3 packs a day.

Former skinny person who never exercised and is now trying to make exercise a habit.


 current weight: 177.0 
 
200
183.75
167.5
151.25
135
CINDYTW Posts: 5,783
2/26/11 12:45 A

Send Private Message
Reply
You're welcome! Thankfully I have not needed this much. I did get the teas and it did seem to soothe me somewhat.

 current weight: 186.8 
 
195
181.25
167.5
153.75
140
LISED58's Photo LISED58 SparkPoints: (3,911)
Fitness Minutes: (3,126)
Posts: 557
2/26/11 12:25 A

My SparkPage
Send Private Message
Reply
Thanks Cindy! That oughta help for sure.


 Pounds lost: 41.0 
 
0
19.25
38.5
57.75
77
LISED58's Photo LISED58 SparkPoints: (3,911)
Fitness Minutes: (3,126)
Posts: 557
2/26/11 12:22 A

My SparkPage
Send Private Message
Reply
Hi MichTotMan. I use to think that walking would sort of 'move it out' if you know what I mean, until I realised that is wasn't like eating too much brocoli! I'll have to read Cindy's remedy 'cause Pepto Bismol ain't workin'. Let's hope it works! Thanks.

emoticon emoticon

 Pounds lost: 41.0 
 
0
19.25
38.5
57.75
77
CINDYTW Posts: 5,783
2/25/11 9:46 P

Send Private Message
Reply
MICHTOTMAN's Photo MICHTOTMAN Posts: 815
2/25/11 8:36 P

My SparkPage
Send Private Message
Reply
I hear you LISED... I accidentally tasted some non-gf pasta that I was cooking for my family to see if it was done and felt awful within the hour! Then, 3 days later, (just when I started feeling a little better) I let my guard down again and accidentally had something with Barley Malt Powder. That was 2 days ago and I feel HORRIBLE - still. How long will it take to feel better??? And is there ANYTHING that makes it go faster???

The greatest glory in living lies not in never falling, but in rising every time we fall.

NELSON MANDELA


 Pounds lost: 3.2 
 
0
10.5
21
31.5
42
LISED58's Photo LISED58 SparkPoints: (3,911)
Fitness Minutes: (3,126)
Posts: 557
2/25/11 5:52 P

My SparkPage
Send Private Message
Reply
The blood test I had via my naturopath showed my body was highly intolerant to gluten, dairy, casien, etc... so for the last year+ I cut out all the obvious pastas, breads and other gluten-laced foods. The tests via my family Dr. taken in the Fall didn't confirm celiac. Well, this week I ate some cookies and cinnamon rolls and oh my gosh, I've felt like crap since; exhausted and my stomach and every other organ are painfully reminding me why I stopped eating the stuff in the first place. I may not have Celiac Disease but oh boy, my body is screaming it loud and clear to stay clear from glutens. :(

 Pounds lost: 41.0 
 
0
19.25
38.5
57.75
77
CHAPER's Photo CHAPER SparkPoints: (37,406)
Fitness Minutes: (20,053)
Posts: 5,909
2/25/11 2:03 P

My SparkPage
Send Private Message
Reply
I read every label- hubby waited in the car for me one day and made the observation that everyone else was much quicker in the store. I said 'celiac disease' duh! every label every time- never know when a recipe will change. Good luck, it is a tough thing to stay gf.

Cheryl



"How do you go from where you are to where you want to be? I think you need an enthusiasm for life. You have to have a dream, a goal and you need to be willing to work for it." Jim Valvano


 current weight: 153.0 
 
170
165
160
155
150
TEDDYBEARDONNA's Photo TEDDYBEARDONNA Posts: 11,855
2/25/11 2:02 P

My SparkPage
Send Private Message
Reply
I just had my first Udi bagel and it wasn't too bad. Just didn't need all the calories from the cream cheese.



 Pounds lost: 3.8 
 
0
4
8
12
16
CRAZYDOGLADYBO's Photo CRAZYDOGLADYBO SparkPoints: (61,232)
Fitness Minutes: (40,683)
Posts: 2,934
2/25/11 1:59 P

My SparkPage
Send Private Message
Reply
Everything is checked, I need to stop using my cocoa and check my generic advil.

Bo

Northern Arizona MDT

I love my dogs! Annie is a fearful dog and is doing great under careful management. I raw feed my dogs.

Diagnosed with Celiac Disease 02/25/2011

Non-smoker after smoking 30 years and was at 3 packs a day.

Former skinny person who never exercised and is now trying to make exercise a habit.


 current weight: 177.0 
 
200
183.75
167.5
151.25
135
CINDYTW Posts: 5,783
2/25/11 1:55 P

Send Private Message
Reply
emoticon I didn't want to hear that news any more than you did! I agree though, if your antibodies are still active then you are getting glutened somehow. Probably regularly. I had mine checked every 3 months for a year and they went down to normal in the first few months. I would look at things people don't often think of...herbal teas, vitamins (look for wheat grass too), meds, cross contamination from eating out (fried foods especially), things made with soy sauce, oatmeal, and shared condiments. Hope you figure it out so you can get better!

 current weight: 186.8 
 
195
181.25
167.5
153.75
140
CRAZYDOGLADYBO's Photo CRAZYDOGLADYBO SparkPoints: (61,232)
Fitness Minutes: (40,683)
Posts: 2,934
2/25/11 1:35 P

My SparkPage
Send Private Message
Reply
Chaper ~ I will have to check them out, thanks.

emoticon

Bo

Northern Arizona MDT

I love my dogs! Annie is a fearful dog and is doing great under careful management. I raw feed my dogs.

Diagnosed with Celiac Disease 02/25/2011

Non-smoker after smoking 30 years and was at 3 packs a day.

Former skinny person who never exercised and is now trying to make exercise a habit.


 current weight: 177.0 
 
200
183.75
167.5
151.25
135
CRAZYDOGLADYBO's Photo CRAZYDOGLADYBO SparkPoints: (61,232)
Fitness Minutes: (40,683)
Posts: 2,934
2/25/11 1:35 P

My SparkPage
Send Private Message
Reply
NORMAMURIEL ~ My dad was told by his doctor that wheat stays in your system for 2 years, yes 2. I am tending to believe that this is true as I have a drastic reaction when I eat wheat on accident.

My culprit for today is the med's I took for my head cold. Will be getting different ones for the future.

Bo

Northern Arizona MDT

I love my dogs! Annie is a fearful dog and is doing great under careful management. I raw feed my dogs.

Diagnosed with Celiac Disease 02/25/2011

Non-smoker after smoking 30 years and was at 3 packs a day.

Former skinny person who never exercised and is now trying to make exercise a habit.


 current weight: 177.0 
 
200
183.75
167.5
151.25
135
CHAPER's Photo CHAPER SparkPoints: (37,406)
Fitness Minutes: (20,053)
Posts: 5,909
2/25/11 1:26 P

My SparkPage
Send Private Message
Reply
Udi's makes an excellent bagel.



Cheryl



"How do you go from where you are to where you want to be? I think you need an enthusiasm for life. You have to have a dream, a goal and you need to be willing to work for it." Jim Valvano


 current weight: 153.0 
 
170
165
160
155
150
NORMAMURIEL Posts: 106
2/25/11 1:20 P

My SparkPage
Send Private Message
Reply
Sorry to tell you this but if your test came back that you have Celiac Disease after being gluten free for so long, you are not eating gluten free like you think you are. Your test should have come back negative if you have been truly gluten free. You better check what you are eating.

CRAZYDOGLADYBO's Photo CRAZYDOGLADYBO SparkPoints: (61,232)
Fitness Minutes: (40,683)
Posts: 2,934
2/25/11 1:13 P

My SparkPage
Send Private Message
Reply
I have been Gluten Free since October 2009 and I finally went to the Doctor this month. I just got off the phone with them and it is confirmed. I have Celiac Disease.

emoticon

I was really hoping that it was something else, I miss bagels you see, but alas it just ain't so.

emoticon

Bo

Northern Arizona MDT

I love my dogs! Annie is a fearful dog and is doing great under careful management. I raw feed my dogs.

Diagnosed with Celiac Disease 02/25/2011

Non-smoker after smoking 30 years and was at 3 packs a day.

Former skinny person who never exercised and is now trying to make exercise a habit.


 current weight: 177.0 
 
200
183.75
167.5
151.25
135
Page: 1 of (1)  

Report Innappropriate Post

Other Celiac Disease and Gluten-Free General Team Discussion Forum Posts

Topics: Last Post:
Fiber 12/8/2013 5:53:31 AM
Pizza Lessons 10/23/2013 11:51:56 AM
I *think* I have a gluten intolerance 4/11/2014 4:59:07 PM
Need help FAST! 9/22/2013 4:49:09 PM
Calories in pizza toppings 11/22/2013 10:45:37 AM

Thread URL: http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=0x948x40166044

Review our Community Guidelines