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TOPIC:   Along with GF who else is CFSF? 


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HEALTHYBARB1
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5/3/11 4:10 P

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Brandin9- I would take the testing form the naturopath as the real results. After 2 months of no gluten the results from your doctor are most likely not showing the celiac since it was out of his system. Thanks for the info Crasch47 on the cross contamination of soy. I do not show an allergy to soy on tests but have to be careful about it in my diet. Really only have it if it I am making something with gluten free soy sauce. My daughter gets migraines from soy and so we try to not use products that contain soy. Barb

Smiles from Barb!!

"If you want something you've never had...you must do something you've never done!"

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CRASCH47
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5/2/11 10:37 A

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A woman in my local GF group is SERIOUSLY sensitive (and the most educated person I've met regarding GF issues), and says that she avoids soy because almost all soy is contaminated with gluten. Almost all soy is farmed with the same equipment as wheat. She's also had gluten reactions to cow milk, so she's completely dairy free.

I'm edging into CFSF, and it's looking promising.



TANKERBEAR
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5/1/11 5:31 P

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Is it possible for there to be medications that are compromising the test? I know for some of the allergy testing things like singular can create non reliable results. Now I am not sure which of the allergy tests this throws off for sure but it is possible to get false negatives. I believe that there are other medications even over the counter ones that can throw off some tests, an allergist would be able to help you with this. Also, I have both read and talked with an Allergy Doctor and there seems to be some problems with the blood tests for food allergies. If I remember right, it was in false negatives. Personally if it was me, if eating gluten free makes you feel better... eat gluten free and document the specific changes and differences between when you eat gluten and when you don't in a food journal that documents not just the amounts of foods but when you eat, and how you feel both before and say within a couple of hours after... and then talk with the Doctor about what you are finding. If nothing else it will give you both concrete things to work with.


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BRANDIN9
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5/1/11 4:57 P

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HI Everyone: I am confused about my son... I took him to a Natural Path... Tests from the U.S came back he is allergic to the following... casein, all milk and dairy, gluten, glidian, green bean, beef and many more... Took him to the family doctor and she said that he is not allergic to gluten.... But he is border line for anemia... He was 132 and I think you are to be 140... Needs to go back for another blood test in a month... She didn't call it anemia... Don't remember what she said...

We did the Gluten Free for 1 month we both felt good. Then decided to get him tested at the family doctor so that I could claim it... But results came up negative...

The only way I knew that there was something wrong was that he was constipated all the time... He had a leaky bowel from time to time.. Now we put him on Probotics... He is better but, still constipated... No leaky bowel...

Why did the results come up negative at the doctor and not at the Natural Path.. He did gluten for two months before we saw the doctor...



TANKERBEAR
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4/27/11 5:37 P

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I am dealing with the gf and casein issues... and have been off them completely for 5 days. What I can tell you is that the doctors are monitoring me very closely because it has thrown off my potassium levels and my Vitamin D levels as well as causing dramatic loss in swelling (one 24 hour period was 10 lbs lost... and most of the others have been 2 or holding) I have been dealing with C-reactive protein levels 15+ with no explanation that we could find until the doctor and I decided to try this. Considering other health impacts that have been drastically improving we are choosing to hold with this change and monitor things before we investigate further at this point and both my Pulmonary specialist and Primary care are involved in monitoring the changes going on. Basically what may be happening with the doctor is that they are looking at your total care and trying to avoid a detox session or other health issues by gradually bringing your body back to where it needs to be. I know it can be frustrating waiting but there may be serious other medical implications that your doctor knows and my best recommendation is to ask.


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ECHOBLUE1
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1/19/11 1:19 P

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Haven't had time to check on the casein yet, going to see my kidney dr today, will see if he'll do the test, but think he'll say my PCP will need to do that. I'm beginning to determine that I still have a couple problems to be solved. Four things I need to experiment with. Corn, Tomato, Green Chile/Jalepeno and olive oil. I'm thinking the first three may be big possibilities. It'll come down to not a whole lot left to eat, anyway. And lots more cooking. But, have mastered the GF and Lactose - will have to check into casein, too. I was so frantic trying to get the gf diet figured out then the lactose was next. Now I'm more calm and know more I can work on the rest now.

Echo from Tucson, AZ


DOTSLADY
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1/19/11 11:13 A

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teach - thanks, I guess I'm just not familiar with a serum casein test. I think others here have mentioned them, too. Is this through an naturopathic doc? Did you get a celiac PANEL w/more than "gliadin"? Interesting. Are these allergy panels?

KNOWLEDGE = POWER. BODY = TEMPLE. FOOD = MEDICINE. PREVENTION IS THE CURE. YOU ARE WHAT YOU ABSORB!
One person's food is another person's poison.
__________
Celiac Disease: An autoimmune reaction from eating gluten grains: wheat, rye, barley and contaminated oats=nutrient deficiency=cancer. Have 1 of 300 symptoms? bit.ly/cdsymptoms
CD stories: bit.ly/cdstories
Nutrition/Cancer: bit.ly/Quillinnutrition


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DJ4HEALTH
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1/19/11 12:01 A

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It would not hurt if you went all the way. My guess it that the doctor wants to see how you do on a gluten free first and then do away with the others. I don't do wheat or corn and I don't eat soy not because I have problems but because it it GMO. I also try to stay away from GMO's. Not good for the body, it is mans what of screwing up our food supply and thinking that they can make it better but they can't.

Dorothy





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HEALTHYBARB1
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1/18/11 10:32 P

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I'm sure this all seems like a lot at one time but it is good that you are starting supplements and getting off everything at once so that your body can heal. Take one day at a time and you'll be surprised how much better you'll feel...this alone was motivation for me to keep going! emoticon Smiles Barb

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"If you want something you've never had...you must do something you've never done!"

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TEACH4110
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1/18/11 7:07 P

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Blood tests...
Ferritin 9 supposed to be at least 10
Vitamin B12 low
Thyroid Peroxidase supposed to be less then 35..mine 306
Gliadin supposed to be less then 11...mine greater then 100
Casein supposed to be less then 2...mine 17.4

I emailed the doctor and she said I need to be casein free also. Told me to take calcium, probiotics and digestive enzymes in addition to iron, B12 and iron.

Gluten & casein free for me! My friend who has been doing this for a long time was annoyed that i wasn't tested for corn also. Good grief!

"No matter how sophisticated or wealthy or broke or enlightened you are, how you eat tells all." Geneen Roth

"Knowing is not enough, we must apply. Willing is not enough, we must do." Johann Wolfgang von Goethe


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DOTSLADY
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1/18/11 5:47 P

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What blood tests did you take? What other things were tested or came up?

If you are celiac, I would definitely go casein free at least 6 mos. but maybe longer depending on your symptoms. It's supposed to help heal the gut. Nobody told me that until the past year. All I ever heard about dairy was about lactose intolerance (which I didn't have, so I didn't bother worrying about it). I should have been. So, I'm gluten free, dairy free, soy slips in once in a while, but I try to not have it (it's in supplements), corn free for the most part, nightshade free, lectin free.

I just tried coconut yogurt - it's good, too.
emoticon

KNOWLEDGE = POWER. BODY = TEMPLE. FOOD = MEDICINE. PREVENTION IS THE CURE. YOU ARE WHAT YOU ABSORB!
One person's food is another person's poison.
__________
Celiac Disease: An autoimmune reaction from eating gluten grains: wheat, rye, barley and contaminated oats=nutrient deficiency=cancer. Have 1 of 300 symptoms? bit.ly/cdsymptoms
CD stories: bit.ly/cdstories
Nutrition/Cancer: bit.ly/Quillinnutrition


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ILLINITEACHER52
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1/18/11 3:54 P

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I am also GFCF and eat very little soy. Wheat/gluten and dairy/casein both cause numerous problems for me so it is easier for me to avoid them completely. Perhaps your DR. suggested avoiding one at a time to help you see which symptoms were related to which item but if you think both are bothering you then I would avoid them both (or all 3). There are still plenty of healthy foods to eat!


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LAURIEGSDFREE
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1/18/11 1:11 P

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I am gluten soy and dairy free. I can have small amounts of casein which I'm thankful for. I am also diabetic so have to find things that are also low glycemic. One of the splurges I enjoy is the new coconut milk ice cream. There are several brands. Now they are also making a low calorie, low fat coconut milk in the dairy section. Thank goodness! I buy almond cheese every week but it does have a tiny amount of casein. I am actually amazed how much food there is still left to enjoy! Try making your chicken bits with garbanzo bean flour...even my husband likes them. I'll update my page today and try to list all the foods I enjoy.


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HEALTHYBARB1
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1/18/11 11:29 A

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I have had to change our diet to contain no gluten, dairy,egg and casein for myself and no soy for my daughter. It was challenging but I find that by reading labels and changing one recipe at a time I have gotten a pretty good menu plan going. Carol Fenster cookbooks have lots of ideas for substitutions for allergies. My favorites are "Cooking Free" and "1000 Gluten Free Recipes" I agree with you that if you are going to change it is easier to just do it all and get on with it. The "Living Without" Magazine and Website would also be helpful for you to check out. Just remember to take one day at a time and make this a lifestyle change that fits in with how you live.
Smiles Barbemoticon

Smiles from Barb!!

"If you want something you've never had...you must do something you've never done!"

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ECHOBLUE1
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1/18/11 10:58 A

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I've never been able to eat soy - I hate the taste when it is in certain forms - especially as a "textured vegetable protein" when it looks like little pieces of meat. My Breast Cancer Estrogen Receptor levels were positive, and since soy does things with estrogen I don't want to mess that up either.

Casein is something I have to check out a little more, as I am lactose intolerant but can't remember - I know casein is in fake cheese, I think, but I guess I need to do some more research.

Echo from Tucson, AZ


NEVERGIVEUP68
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1/18/11 9:53 A

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I am also casein free and avoid soy. I don't have a problem with soy but i have thyroid problem so i just avoid it for health reasons.




CINDYTW
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1/18/11 9:06 A

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I am also casein free and avoid soy. I don't have a problem with soy that I know of I just avoid it for health reasons. Casein hides in a lot, even cheese substitutes so read carefully for things like caseinate. Non-dairy creamers often have it too.

Cindy

"To get something you never had you have to do something you never did"



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LISED58
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1/18/11 9:06 A

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Hi. My system is highly intolerant of all casein and glutens. I drastically reduced all dairy (except Kefir which doesn't cause me too much aggravation) and then started removing gluten. Thankfully, when I get a moment of weakness I suffer self-induced discomfort but never get severely ill. Personally, I find GF more challenging. All the best! At least you've got lots of support here.


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BLEEDINGROSES
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1/18/11 8:01 A

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I'm not but I wish you luck. I eat casein and soy as part of my staples. I can't even imagine cutting them out. Good luck, hang in there!


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TEACH4110
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1/18/11 6:07 A

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Got my blood tests back and gluten was a positive as was casein. My doctor said to worry about the gluten first and we'll figure out the casein later. I was in such shock at my #'s etc and didn't say anything but...I don't think that's a good idea. I mean...why wait? I'm doing the GF research so I might as well go all the way and do the casein/soy too. Don't ya think???? Who else is GFCFSF?
emoticon

"No matter how sophisticated or wealthy or broke or enlightened you are, how you eat tells all." Geneen Roth

"Knowing is not enough, we must apply. Willing is not enough, we must do." Johann Wolfgang von Goethe


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