My own purpose in testing was to determine if I was a 'silent celiac', or if a strict GF diet would benefit me. I already knew that the traditional MD celiac tests would not show anything, so I didn't bother with them.
I did want some sort of concrete results before committing to a lifetime of gluten avoidance, since I was not having 'gut issues' but was having other autoimmune issues commonly related to gluten intolerance.
I tested using a combination gene test and fecal analysis through www.Enterolab.com/ . They are the only lab I know that tests for genetic gluten intolerance in addition to celiac genes, and you don't have to be eating gluten before the test. Note that posessing certain genes doesn't mean you are automatically celiac or gluten intolerant. Many people have the genes and they are never triggered.
The gene tests showed I had a double gene copy for gluten intolerance but not classic celiac. The fecal tests showed I was actively reacting to both gluten and casein, (meaning the genes were triggered) and the lab advice was to go strict gluten-free, casein-free to lower risk of future serious health complications.
Now that I've gone gluten and casein free, and especially since I've changed to a strict Paleo diet, I've seen dramatic improvements in my blood labs, inflammation and lipids tests. Additionally, I've begun losing weight now that I'm not eating the trigger foods. This is a huge positive change.
If you feel dramatically better not eating gluten, then really, why test? If you had a positive test they'd likely tell you to avoid gluten, which you are already doing. You don't need 'permission' to feel better.
If you had a negative test, would you go back to eating gluten and feeling awful? Trust your body. If you feel better avoiding gluten, then doesn't it make sense to continue to avoid gluten?
I needed to gene test because I didn't have the typical gut reactions to gluten to guide me, also, it turned out that I was dealing with more than one food reaction. About half of the people who are intolerant to gluten are intolerant to casein (dairy proteins).
The 'gold standard' MD tests are only for celiac, not gluten intolerance. A false negative would have the MD telling you it's just fine to eat gluten, when your gut/body is telling you it's not fine. Your body response is telling you a lot. Why not trust your body reactions to gluten?
Frankly, the more I learn about gluten, and industrialized food processes, I have concluded that nobody should be eating gluten. It is my opinion that Gluten-based foods are convenient and cheap for our corporate agriculture and our industrialized food supply. It doesn't follow that gluten foods are good for you as an individual.
I recently got the blood tests for Celiac (after being GF for more than 4 months) and it came back negative. I know that I need to be on a GF diet, because I get very sick if I eat gluten by mistake. I wasn't expecting a positive b/c I'd been GF so long. I wonder if anyone ever gets a positive if they've been GF for that long?
I have family members who have the same issues as me but will not try a GF diet. If my test had come back positive for CD, perhaps they would have been tested. Now I don't think they will.
Tammy (West Virginia)
current weight: 139.4
Fitness Minutes: (120,512) Posts: 19,158 7/23/10 10:11 A
I said it will likely be negative. Get the bloodwork for celiac antibodies, but the biopsy will more confirm if you have damage to your villi, which I believe is generally only caused by Celiac, and even if not, if you have a bad biopsy and had symptoms, it's a fair bet you have Celiac.
When I had my annual physical and food allergy tests, I asked my doctor if I needed to test for gluten. She told me that since we both knew I needed to go gluten free, what would I accomplish by testing. Sounded good to me and saved money!
Linda C Oklahoma (CST)
"Food is essential to life; Therefore, make it good." --S. Truett Cathy (Chick-Fil-A)
I have not been tested, and I don't feel the need for it. I know the gf diet makes a difference in my life, so I follow it. My goal is to become healthy, including attaining a healthy weight, and if eating gf will help, I am willing to do that. I believe it has even more effects on my body than the ones we notice or have been told about, such as on metabolism and especially absorption of nutrients. I don't need to be tested to know I feel better. I'm just glad I have something I can DO!
I've been GF for about 2 months. I haven't been tested, but my health has improved dramatically. I'm considering getting tested and was wondering if anyone has any advice. I'm afraid of a false negative more than anything else. What would I do with that?
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