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NAVARROOWNER's Photo NAVARROOWNER Posts: 244
7/29/10 10:28 P

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Thanks for all the replies! Yes, I definitely want to get all my ducks in a row. After being GF for a month I just know I have a gluten sensitivity if not CD. I have seen a gastroenterologist. He performed a colonoscopy, found a polyp and removed it. He said it was on the smaller side but uncommon for someone my age. I have a follow up appointment on a 9th. I want to ask him about CD and gluten sensitivity. I asked him about it at my first appointment but he really wanted to see the outcome of the colonoscopy before discussing further possibilities. I did tell him I wanted to go GF and he approved stating that it couldn't hurt. And since I've switched to a GF diet I have never felt better! Hopefully I'll get more answers at my next appointment. I just want to be as healthy as possible for my future pregnancies.

Whether you think you can or think you can't - you are right.
- Henry Ford


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MICHCAT17's Photo MICHCAT17 SparkPoints: (3,359)
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7/22/10 6:39 P

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I agree with Margie...if you plan on having a baby in the next few years, make sure your body is in tune first. You don't want to have to deal with all this when you are ready. When I decided to figure out what was wrong with me, I told myself that if I was going to do this, I was going to do it all and get healthy. Do it for you and for your baby to be. :) Good luck.

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MARGIE100%PURE's Photo MARGIE100%PURE Posts: 1,507
7/22/10 5:41 P

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Nav, I would not wait. After the disrupting factors, I would get tested. I would want all my ducks in a row so when he got home the oven was READY! If, and I do not know but, if you are less than ready the testing with a doctor who shares all the test result details can get the corrections and information completed, you should not wait for harm to get to ‘unrecoverable’. Remember, this is just my opinion, I am not a doctor. Happy balance is the goal. If you have that now, then great; if you are uncertain or may need additional testing to get verifiable fertile readiness, then today is the first day of the rest of your life. You want to learn from other Celiacs, who are pregnant or may share facts of possible prevention needs before you get there. i waited too long in my conditions to get a second opinion. Do you have time?

The greatest love story is your own.
If you miss out of life to the fullest; they win.
You are the happiness master of your own mind.
Thought is an active dynamic energy to harmonize and corrolate good.
Clear all paths to love thru forgiveness.
I may not recognize the significance until some time later.
Is my resistance to change really that strong?
Impatience does not provide the time to learn the lesson;
Awaken new ways to approach the dissolving of a problem;
JENCORINNE's Photo JENCORINNE Posts: 1,932
7/21/10 10:58 P

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NAVARROOWNER, Yeah, I've read that an estimated 5-7% of infertility is undiagnosed CD. It is a common symptom you see listed for CD, but once go GF in about 9 months supposed to be back to normal. I've seen plenty of woman said 9 months after going GF got pregnant. Kind of it takes 9 months to heal and your own re-birth to carry a baby for 9 months.

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NAVARROOWNER's Photo NAVARROOWNER Posts: 244
7/21/10 10:06 P

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You know I have been thinking about this topic a lot lately. While doing research on CD I came across information that stated CD could cause infertility. I didn't read into it too much but it got me thinking about my own menstrual cycle. Since I got my period it has always been irregular, as in I would go months without having it. My doctor diagnosed it as exercise induced Amenorrhea because I was so heavily involved in sports. There was no tests done just my doctor saying this is what she thought it was and not to be worried. I got on birth control pills in my late teens. I went off of them for a year when my husband was deployed and my period was still irregular. I exercised but not as intense as when I was in sports. Since I have been on pill and when I get to my white pills I don't start my period until the day of my last white pill.

I have only been GF for almost a month now and I am interested in seeing if there is a change in my period. I'm sure it will take a few more months to see a change. I'm hoping to see a change because my husband and I want to start try to conceive within the next year or two.

Whether you think you can or think you can't - you are right.
- Henry Ford


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MARGIE100%PURE's Photo MARGIE100%PURE Posts: 1,507
7/21/10 7:40 P

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From what I have learned from my doctors; hormone imbalance occurs when you are under stress. Celiac Disease is internally stressful. Hormones go out of balance when nutrition is insufficient because stress uses them up instead of the tissues getting enough or the hormone cascade is disrupted by adrenal fatigue because the adrenals make the hormones from Human Growth Hormone and DHEA; all the rest (estrogen, testosterone, progesterone, cortisol, androsterones, etc) start with these components. Celiacs causes malabsorption so if you ate the good diet and took vitamin and mineral supplements; stress and digestive troubles failed to normalize monthly cycles. If you do not balance soon, may I suggest you go see an endocrinologist or a naturopathic specialist to test the hormone spectrum and find the dropped links of the hormone cascade chain. The saliva panel (This one helped me a lot!) or the blood work result may help you and the doctor correct the menstrual issues.

The greatest love story is your own.
If you miss out of life to the fullest; they win.
You are the happiness master of your own mind.
Thought is an active dynamic energy to harmonize and corrolate good.
Clear all paths to love thru forgiveness.
I may not recognize the significance until some time later.
Is my resistance to change really that strong?
Impatience does not provide the time to learn the lesson;
Awaken new ways to approach the dissolving of a problem;
SFISHOME Posts: 197
7/21/10 6:43 P

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This is an interesting topic. I was on BC pills for the last three years. I stopped taking them shortly after I stopped eating gluten. I'm also 47, so there's a good chance I'm perimenopausal. In other words, I'm a bloated crampy mess all the time. I figure my hormones should settle down to their natural state in a couple of months or so, whatever that is at 47.

One thing I have noticed is the abdominal pain I felt from gluten is worse when I menstruate.

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LASTINGONE's Photo LASTINGONE Posts: 2,315
7/21/10 4:16 P

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I stopped ovulating last year for several months which of course scared the beans out of me, because my period went wonky. I went gluten-free last October and while it took a few months, my period went back to normal, or perhaps I should say even better than before. I started ovulating regularly and my flow actually lightened up (I'm one of those gals that has a very heavy flow). Also instead of a persistent 7 days I've tailed back to 5-6 days which is very nice.

I hope you heal soon and you have found encouragement!

~Christa~ 30 year old massage therapist


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MICHCAT17's Photo MICHCAT17 SparkPoints: (3,359)
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7/21/10 3:52 P

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Interesting and thanks for the info. No, not TMI as long as we are all mature enough to handle it. :) This is turning out to be an interesting topic... It's tough with Doctors won't look into issues that you bring up - one of the reasons I was on 8 pills at the end of last year. Thought he could fix it with pills instead of tests. Sometimes they just don't listen...

I'm glad to hear that after a long battle, you are feeling better and your cycle is more like it should be. I'm hoping mine will be too....

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JENCORINNE's Photo JENCORINNE Posts: 1,932
7/21/10 3:45 P

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My cycle was affected and in a different way than others seemed to have been, or at least I've never found someone with the same reaction. This might be TMI but its my story.
I feel my CD was activated at 13, my cycle wasn't normalized quite by then but followed family history of heavy week long cycles, by my late teens a heavy month was 2 days and light tampons/pads were too much. I constantly craved red meat and at times I had to stop myself from eating it raw. I also bruised easily. I repeatedly asked my Dr's about my cycle and to be tested for iron deficiency. I suspect I ate so much red meat(burgers) I had enough to be on the normal range for iron but my cycles suffered. The Dr's would'nt look into it and just say if its normal for me that it was fine. Not to complain, since at times it was great to have a 1-2 day cycle but I just knew something wasn't right.

Now in my late 30's and I went GF 2 years come Oct, last year at the 1 year mark I actually had a 4 day period. It seems to have normalized at 3 days, still use light tampons and rarely eat or crave red meat, and rarely bruise. I suspect I was infertile during those years but no way of knowing for sure and it's water under the bridge.

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MICHCAT17's Photo MICHCAT17 SparkPoints: (3,359)
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7/21/10 3:37 P

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Thank you for your reply. I've been wondering if the two were related somehow. Of course, if you think about it, having gluten when your body has a gluten disorder leads to malnutrition in the body. I'm hoping in time my cycle and PMS will get back to normal but will also go see the Doc in the meantime. Thank you again.
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JUNEBUGABEE's Photo JUNEBUGABEE Posts: 58
7/21/10 3:16 P

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Thank you so much for posting this topic! It's definitely something I can relate to, and something that's been only vaguely backed up by other things I've read, without anything definitive.

I had problems with my period for years before my diagnosis, with my period occasionally taking a vacation for up to seven months with no explanation. I had all kinds of tests run with no results. Then, I was diagnosed celiac, stopped eating gluten, and my period returned on a regular basis.

Whenever PMS rolls around, though, I have a recurrence of symptoms that I had before I went gluten-free, which I've also read on various sites (nothing definitive again) can happen due to the effect of gluten on hormonal balances.

Hopefully, once you've been off the gluten for a while, all will return to normal! Best of luck.

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7/21/10 2:56 P

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I was diagnosed Celiac in May 2010. Since January of this year I have had PMS (bloating/moody) for roughly 2 weeks before my period started, usually 2-3 days before. Also, my cycle is every 35-36 days now instead of my usual 28 day cycle. Has anyone else experienced a problem with their menstrual cycle? I plan to go see my Dr soon regarding this. I did see a gynecologist early this year and there were no problems that they could see so, I'm at a bit of a loss.

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