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POXYFAIRYPLUME's Photo POXYFAIRYPLUME Posts: 1,385
11/1/13 12:35 P

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My acupuncturist told me the same thing. BUT.. if it's celiac disease, then it is a lifetime thing. When I first noticed my problems to the point where I could potentially die, I was intolerant to literally almost every food I ate. The list became less and less, but gluten always remained. Never had the biopsy, which now I wish I had at the beginning. My GI doc was terrible and didn't even bother to bring it up. I learned the hard way, and did my own research. Now, I can eat many more foods, but gluten still bothers me. I've had my gyno do a stool test which ranked me with a very high reaction for being gluten free (for the most part, and to my knowledge) for years. He told me a high possibility of celiac. In cases like this, it's very important to get tested. I'm hoping I'll be able to eat it again in the future, but it's not looking like it. I try every now and then and get the same reaction. The first time is fine, but if it builds up forget it.

FYI, my acupuncturist also told me that it takes 4 days for an allergen to leave your system on average. So (not recommending it) if you want to eat it, do it every 4 days, that way it won't build up. This is just in the case of intolerances, not CD.

Edited by: POXYFAIRYPLUME at: 11/1/2013 (12:38)

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10/28/13 1:52 P

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I was diagnosed with DH at age 19. After I had my second child at age 32, I found that I could eat gluten with no reaction. I went crazy making up for lost time. But that gluten spree caught up with me at age 40 and I had to go back on my GF diet. I think there might have been some hormonal changes that allowed me to eat gluten for awhile.

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MARGIE100%PURE's Photo MARGIE100%PURE Posts: 1,513
10/22/13 5:33 P

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Nice question. Here is my opinion…It is long but several point are made here. I seemed to have learned a few things since this thread first posted.

If the diagnosis was wrong to begin with then yes the wronged person can re-eat.

If the immune system is strongly fortified (well informed doctor intervention is required) in a person with only mild intolerance then it may be so well hidden that a while of using gluten foods medicines and healthy and beauty products may be needed to show a loud obvious symptom. The IBS is real and the holes in the gut are real. The immune weakening is real. The loss of energy slowly over time to evolve into an episode of leaky gut is again possible in a person only mildly intolerant. This may come in with or without a true viral helicobacter ulcer.

We live in habits. If habits are fortifying to protect then a mildly intolerant person may eat without requiring a hospital visit of extreme ouch. Most assured in a true very sensitive Celiac. But quite hidden erosion would still be real.

Here is another idea
The immune system is tied to the adrenal fight and flight response. If stresses ride high and continue to get higher with no relief in sight then the gluten eating would show big in an adrenal weakened poorly slept person. If the stress is low and stays low then maybe the immune system can just barely stay ahead of any negative signs allowing that person to eat or take in through health and beauty products and in formal medicines some gluten.

It works like our police force. We assume they are preventing crime. But some of the daily, you know the actual duties are filled with reporting a crime and apprehending the culprit. Not much prevention going on here. The rest of us do show awful signs over a short time of eating gluten which leads us to a when that we finally stop hoping for the best and actually do prepare for the rest. The crime here is to assume to be able to eat gluten again “The denial of most of my patients can last up to three years,” one great professional celiac/gluten free doctor wrote in his book.

You tell us! Are your habits always and only energy encouraging?
Are you doing strong immune and digestive repair and support work to prevent future trouble? Once Humpty Dumpty falls all his cracks harbor weakness even if the king and his men could put him back together again. Most of us do not even know how to care for IBS without some serious professional nutritional and habit changing guidance. And once a body system deeply declines a domino effect to other organs and systems will stop functioning well also.
Are your hydrochloric acid levels balanced?
Are you getting and supporting gut flora and supplements for current gut repair?
Are you always sleeping enough and sleeping well?
Do you laugh enough and love enough every day?
Do you supplement those good old stock piles of energy and nutrient reserves with new nutrients vitamins and minerals, etc. And do you practice only the healthiest patterns of sleep?
Do you get enough to compensate and stay ahead of most of the signs of the body aging?
Is your own adrenal alert fight and flight responses strong and healthy? It seems next to impossible to get a doctor to check this one. And do you know the ways habits and aggressively ensure that that section of body Armour and immune resilience stays strong?

For me it was not the occasional gut ouch that made me see the gluten light. Tums was a friend. I was gluten antibody ‘negative’ but my white count was too high and my ‘work a day’ energy slipped away becoming too low to ignore. It was the total loss of recharging and rechargeable energy found only in good sleep that made me change my ways. I did not get enough. I worked two jobs. I slept poorly and not full long deep hours.

I have Sub-Clinical Addison’s disease not Celiac disease. I am considered just food sensitive. Maybe I can be listed as an intolerant. Those words ‘an intolerant’ sure do not show in any of my own medical records I have seen. It is from not getting proper care early or soon enough to prevent the domino of damage to other organs and hormone cascade and to get past emotional denial. It takes a lot and really comprehend the consequences of my actions; and to initially find it and fix it before too much damage occurred. Get your hormones checked a flaw here can reveal much.

Sound medical studies show that the irritation to any of the senses or food sensitivities are sure sign before allergies take hold. It stems from malnutrition (missing something no matter how good the diet may seem). Or it may be a mechanical shift sometimes it is inherited and shows later in maturity so the body does not work right and fails to absorb and process a required nutrient or ingested item. Either will cause weakness and intolerance is manifested then further erosion can lead a person to become celiac diagnosed person because one of these or both must show in big ways to be diagnosed by most very busy doctors.

Then adrenal strain is real and wear and tear lead to un-rechargeable energy in this tiny bean shaped organ sitting above the kidneys; (The inability to flush toxins and recharge energy during lots of regular deep REM sleep. The sleep specialists see that this is best done only after the first 6to8 hours are completed then real recharge and toxin removal of the sleep cycle system goes to work).

Another point is the medical world fails the adrenal weakened person no matter how it was caused (accident; grief; illness; surgery; major disaster or any major stress, etc). Life’s stresses catch up and past conditions susceptible to future weakening get re-exposed. It is common for the patient to lose 95 percent of the adrenal organ and lymph system function and is scarred unrecoverable before a diagnosis even gets to a starter testing phase. Too little too late is a flaw in the medical early alert practices regarding adrenal care and the thousands of side symptoms like allergies and intolerances of many kinds get assumed to be caused by other means. It is the only hormone that we cannot live without for even a few minutes.

Adrenal fatigue is only rarely tested and strong signs and symptoms that do show up are often precursors before a doctor is willing enough to perform the cortisol hormone tests. Long lasting tiredness goes ignored by doc and patient as a rule. They hope natural recovery will happen but what if the patient never changes habits that would lead to such an assumed improvement. Take this pill, get some sleep and call me in the morning; sound familiar?

What if you are intolerant for life then silent loss is a threat when playing with gluten intestinal damaging fire. This is true for the celiac or the intolerant person. Repeating things and expecting change is ineffective; not logical. Staying above the damage threshold is required. Being wrongly diagnosed is too real though unintentional are two possible scenarios for being able to eat gluten foods again. These are necessary to believe a person can go back to eating gluten without further -though silent harm- is happening. The rare positive story gets revealed, we all want to believe that we are that special, but most of us get common care and the pit falls of delayed diagnosis and natural aging flaws exist with the domino effects to other body parts.

My answer is yes but only rare cases. For the majority of us, NO! The rest of us will assume greatness and stay in that real denial phase until the pain is too strong, energy recharge fails and repeated bouts of illness show their ugly heads too loudly to ignore.

Welcome to the Celiac Gluten-Free team.
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CITYZOZO's Photo CITYZOZO Posts: 7,776
10/22/13 12:50 A

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i love the way i feel so much off the stuff that it is not a problem not to eat it. i like other things and am losing weight gradually and feel really good.. wooohooo!

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KNYAGENYA's Photo KNYAGENYA Posts: 6,731
10/20/13 2:49 P

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I would not try to put it back in. I am perfectly happy being gf. I do not want to go through that pain ever again.

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OPRAMUM's Photo OPRAMUM Posts: 274
10/18/13 1:33 A

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No. If you are Celiac or Gluten Intolerant you should never eat gluten again. Just because you may not feel any symptoms, your body will be negatively impacted.

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CADYANN1's Photo CADYANN1 Posts: 103
7/5/10 8:37 A

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I was not diagnosed with Celiac (my mom was tested about a year ago and hers came back negative) but my doctor suggested I try a GF diet for 2 weeks to see if it helped. It did, immensely. At this point, I am not going to go back on gluten just to see if a blood test would confirm or deny CD. I've gotten past the point of sulking about what I can't have and accepting that this may be a lifelong thing for me. I have a friend who was also diagnosed with gluten intolerance, and she eats sprouted grain stuff and some other gluten in small amounts without issues now. Honestly, I can't see that I will ever want to eat gluten on purpose after seeing what's happened a few times since being GF and getting glutened accidentally. Was just wondering if any of you had ever heard of it reversing, because it seemed a little odd to me. Thanks for all the feedback. :)

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JENCORINNE's Photo JENCORINNE Posts: 1,932
7/5/10 1:44 A

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I have a friend with gluten intolerance who can handle small amounts of gluten after being GF for a while I cant remember the exact amount of time

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DJ4HEALTH's Photo DJ4HEALTH Posts: 39,750
7/5/10 12:04 A

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I wish but no I don't think so.

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CTRAVEL's Photo CTRAVEL SparkPoints: (7,601)
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7/4/10 6:53 P

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The only difference that I can see between celiac and gluten intolerance is the villi's being destroyed by having gluten in your diet. I have been tested for celiac and it came up negative; however every time I do have gluten the symptoms become worse each time. I have been gf one year this month.

A few times I did try gluten thinking that it might be something else and I got the same symptoms all of the time. My younger sister does have celiac (she was diagnosed over 20 yrs) and she has the same symptoms that I have.

I guess that you can say that it is a Catch 22 but would appreciate any input from other members.

Thanks



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7/4/10 5:38 P

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There are so many things that an intolerance can do, and so I don't know if there is a good answer. When I saw the naturopath last July, my reaction to wheat was so off the charts that I just cut it out.
I don't test negative for oats or spelt, which I do eat. Not every day, though, as I don't want things to get worse. But when I asked him, his answer was that maybe it could become a small part of my diet after much time, but to avoid it for the foreseeable future. I'm going back to see him later this month.
I know some folks who are GF who say they eat sprouted grains, but he told me they were just as bad. Comments?
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DOTSLADY's Photo DOTSLADY Posts: 10,018
7/4/10 4:37 P

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As Julie_May said, if you are celiac, then no; treatment is gf diet for life. I have met celiacs at support meetings who felt better, went back on gluten for 11 yrs then their symptoms came back. They really weren't better; symptoms were silent is all. They should have stayed gf.

I don't know about intolerance. I've not come across anyone who can or would go back on gluten.

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JULIE_MAY's Photo JULIE_MAY Posts: 2,429
7/4/10 4:20 P

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If you have celiac disease then, no, you can never eat gluten again because it is an autoimmune disease which results in damage to the intestine when gluten is consumed.

Gluten intolerance does not cause lasting damage. There is a reaction while the gluten is in your system, but it does not damage the villi in your intestine. That being said, I do not know if gluten intolerance and gluten allergy can possibly go away eventually, due to some kind of treatment, as TEDDYBEARDONNA mentioned below.

americanceliac.org/celiac-disease/

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TEDDYBEARDONNA's Photo TEDDYBEARDONNA Posts: 11,880
7/4/10 2:55 P

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Interesting, but I don't know if I totally agree. A person from another forum was G. intolerant and had been tested by an allergist who told her she was having her issues with wheat and would feel better if she stopped eating wheat. She did for many years and begin to notice she was feeling so much better. She was taking allergy shots at this time also. I know I don't have the story completely correct but many years later after her test were coming back negative she slowly added wheat and gluten back into her diet. She later saw a gastro Dr. who confirmed she was no longer gluten intolerant and saw no reason to continue the diet. Last I knew she was doing great. I understand what previous posters are saying that this can't happen, but I also know that just maybe she is free of the problems due to God's grace.



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IVORY1825's Photo IVORY1825 Posts: 7,669
7/4/10 2:16 P

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If you read about the SCD diet, you'll find there are people who have gut issues, get off gluten for a while, and are able to eat it again without issues.

I tested negative on the antibodies for Celiac, and declined an endoscopy, but I feel like there are so many other possible antibodies and reactions in my gut that could cause my symptoms, that it is safer just to avoid gluten. Plus, i notice trouble after a few days of small amounts.

So, depending on how you react and what causes the gluten intolerance, it may be possible that your gut is reacting to something and will heal (I did that with dairy right after discovering and going gluten free, and now I eat dairy all the time), but it's more likely that your gut is going to continue to be unhappy.

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CTRAVEL's Photo CTRAVEL SparkPoints: (7,601)
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7/4/10 2:14 P

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Gluten Intolerance never goes away. You may feel better as your stomach is healing, but once you eat gluten again it is destroying the little villi's. I do not like having that feeling and definitely try to stay away from gluten. It has been a year this month that I have been gf and I feel so much better.

I am sure this is not what you wanted to hear but it is better to be safe then sorry. Have a good day.
ctravel

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POEKSTER's Photo POEKSTER SparkPoints: (111,030)
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7/4/10 2:00 P

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no, never ... it can be very reactive but also silent and slowly killing you with out you noticing it. It's there to stay!

Tess

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CADYANN1's Photo CADYANN1 Posts: 103
7/4/10 1:57 P

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I know. Wishful thinking, right? I figure I am in this for the long haul, but my acupuncturist seems to think that if you treat the "leaky gut" with supplements, eventually it will be healed and I could possibly eat gluten again. The past few months when I've been glutened accidentally, it has been a strong motivator not to even want to try gluten again EVER. But I was just wondering, have any of you ever heard of this happening? I've invested a lot of time and money into this GF diet and I'm going to be ok with it if you all say, "no way will that ever happen."

Tammy (West Virginia)


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