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CTRAVEL's Photo CTRAVEL SparkPoints: (7,601)
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6/12/10 3:53 P

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Thanks for your reply. I normally do not eat it if I feel there is a least bit that I could ingest some wheat. Thank you for your second sentence from the bottom about "undetectable damage being done regardless of pain".

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DOTSLADY's Photo DOTSLADY Posts: 10,020
6/12/10 3:39 P

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From what I understand, the product likely tests gluten-free (or the ingredients themselves do not contain gluten), but some people react if say there is even tiny particulates deposited in the food from the air, or if the machinery wasn't cleaned thoroughly (try as they might - "things" happen). There is a spectrum to gluten sensitivity. I may not react when someone on autism spectrum may. I am a celiac, they may not be. We're all different, and based on prior experiences learn what sets us off. However, something I keep in mind is nondetectable damage being done regardless of pain. It's a personal choice to eat such products. I know many who do, and many who do not.

Edited by: DOTSLADY at: 6/12/2010 (15:40)
KNOWLEDGE = POWER. BODY = TEMPLE. FOOD = MEDICINE. PREVENTION IS THE CURE. YOU ARE WHAT YOU ABSORB!
One person's food is another person's poison.
__________
Celiac Disease: An autoimmune reaction from eating gluten grains: wheat, rye, barley and contaminated oats=nutrient deficiency=cancer. Have 1 of 300 symptoms? bit.ly/cdsymptoms
CD stories: bit.ly/cdstories
Nutrition/Cancer: bit.ly/Quillinnutrition


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CTRAVEL's Photo CTRAVEL SparkPoints: (7,601)
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6/12/10 3:32 P

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I need to add something that Veggiemarji said about how they word things on the packaging. I just bought a box of cereal (Puffins Honey Rice) and it says on the outside "Gluten Free" and then I was reading the ingredients and all sounded fine and then at the bottom it says "Made on equipment that also manufacturers products containing wheat, tree nuts, soy and/or dairy.

I have had it before and it never bothered me. I am sure they put this on the packaging to cover themselves. My question is why do they put "Gluten Free" on the front of the package. I now see where Veggiemarji is coming from. I know that I had said something to that fact but have never seen it.

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CTRAVEL's Photo CTRAVEL SparkPoints: (7,601)
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6/9/10 2:48 P

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That is too bad as he is going to pay dearly for it in the long run. There was something that made him get tested for Celiac. All you can do is be there for him if he needs someone to talk to.

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- Ralph Waldo Emerson


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6/9/10 1:52 P

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I am amazed at a guy here at work that was recently diagnosed as Celiac. I offered him some GF bread and he said no thanks, I'm not making any dietary changes, to much trouble.

eek! He is in his 30's and I can only imagine what is up the road for him. His decision though.





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CTRAVEL's Photo CTRAVEL SparkPoints: (7,601)
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6/8/10 6:52 P

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Thank you so much Dotslady. I so agree about doing your homework. I do not like the feeling about getting sick. I have been fortunate enough that I have two sisters (one that has Celiac and the other one's husband has it) don't get wrong me I am not glad they have it but they have helped me along the way and without their help and educating me I would not be where I am now. Believe me I have had my ups and downs having this disease (I guess you would say more downs) but like my sister says "You take time to have your pity party" and then you get on with your life. That is the best advise she could of given to me.

I hope that I am not coming across to harsh because I do have empathy for people that do get sick. I have been there and am sure it will happen again. You just have to be as careful as you can and try to stay healthy. I know it is easier said than done but it is important to hang in there and try your best.

Thank you again for being there for all of us.

ctravel

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I awoke this morning with devout thanksgiving for my friends, the old and the new.
- Ralph Waldo Emerson


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DOTSLADY's Photo DOTSLADY Posts: 10,020
6/8/10 6:23 P

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Ctravel - what I think is great is you/re/we're out there TRYING to be healthy. I know some people who do not go that extra mile, esp in a time pinch and or not having done homework (my gf BIL ... says he's too stressed, but really he's not planning). The more we advocate for ourselves hopefully the more awareness we create so maybe, just maybe, we can get more food choices on the fly w/out so many questions (and subsequent "looks"). I think it's happening already. :)

KNOWLEDGE = POWER. BODY = TEMPLE. FOOD = MEDICINE. PREVENTION IS THE CURE. YOU ARE WHAT YOU ABSORB!
One person's food is another person's poison.
__________
Celiac Disease: An autoimmune reaction from eating gluten grains: wheat, rye, barley and contaminated oats=nutrient deficiency=cancer. Have 1 of 300 symptoms? bit.ly/cdsymptoms
CD stories: bit.ly/cdstories
Nutrition/Cancer: bit.ly/Quillinnutrition


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CTRAVEL's Photo CTRAVEL SparkPoints: (7,601)
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6/8/10 5:28 P

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You are more than welcome. I never took what you said as an argument and am sure everyone else felt the same way. You had a comment and wanted to explain it and it came out fine. This is a weird disease and effects everyone else in a different way. Yes, I so agree that being gf you do feel so much better.

It so important to follow your gut instinct and if you are not sure then I would stay away from it. It is like if I go to a buffet and the people do not know what I am saying (life for instance I will ask them if their meat was dredged in flour( and some of them do know and others look like you have lost your marbles) well I will just do not take it.

Remember we learn from each other, which is why a support group is great.

Thanks for your nice comment wishing that I did not get sick.

Everyone have a great and healthy day.

ctravel


Edited by: CTRAVEL at: 6/8/2010 (17:29)
www.celiac.com
I awoke this morning with devout thanksgiving for my friends, the old and the new.
- Ralph Waldo Emerson


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VEGGIEMARJI's Photo VEGGIEMARJI Posts: 197
6/8/10 4:09 P

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Well said!

I have to admit - as much as I want some things to be GF, I feel so much better without it!

DOTSLADY's Photo DOTSLADY Posts: 10,020
6/8/10 3:56 P

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emoticon GF is challenge enough - now we have to navigate chat boards. It's all okay gf friend.
emoticon emoticon ...sending gf cyber love.

KNOWLEDGE = POWER. BODY = TEMPLE. FOOD = MEDICINE. PREVENTION IS THE CURE. YOU ARE WHAT YOU ABSORB!
One person's food is another person's poison.
__________
Celiac Disease: An autoimmune reaction from eating gluten grains: wheat, rye, barley and contaminated oats=nutrient deficiency=cancer. Have 1 of 300 symptoms? bit.ly/cdsymptoms
CD stories: bit.ly/cdstories
Nutrition/Cancer: bit.ly/Quillinnutrition


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VEGGIEMARJI's Photo VEGGIEMARJI Posts: 197
6/8/10 3:20 P

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Oh no - I just meant that I seem to be arguing with whatever everyone says, and I feel bad! That totally wasn't directed at you! :) You guys are great!

DOTSLADY's Photo DOTSLADY Posts: 10,020
6/8/10 2:59 P

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I didn't think you were starting an argument.(?) I just think MOST people would think of semolina as wheat (and then look at the allergens label to verify). Corn "semolina" is not typical vernacular in my world - but corn "grits" are (per the wiki article).
emoticon
Just trying to help.

Edited by: DOTSLADY at: 6/8/2010 (15:55)
KNOWLEDGE = POWER. BODY = TEMPLE. FOOD = MEDICINE. PREVENTION IS THE CURE. YOU ARE WHAT YOU ABSORB!
One person's food is another person's poison.
__________
Celiac Disease: An autoimmune reaction from eating gluten grains: wheat, rye, barley and contaminated oats=nutrient deficiency=cancer. Have 1 of 300 symptoms? bit.ly/cdsymptoms
CD stories: bit.ly/cdstories
Nutrition/Cancer: bit.ly/Quillinnutrition


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SFISHOME Posts: 197
6/8/10 2:46 P

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I just added you as a friend.

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VEGGIEMARJI's Photo VEGGIEMARJI Posts: 197
6/8/10 2:41 P

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I swear! I wasn't trying to start an argument. I was just a tad confused and irritated by the labeling!

DOTSLADY - The definition of "corn semolina" is "A meal ground from corn." Shouldn't have anything to do with wheat, although there is obviously a such thing as wheat semolina...

Weird. Thanks for all the links, guys! Appreciate the help!

VEGGIEMARJI's Photo VEGGIEMARJI Posts: 197
6/8/10 2:39 P

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thanks, all! Yes, SFISHOME - I'm a veg! I'd love a GF-Veg buddy!

DOTSLADY's Photo DOTSLADY Posts: 10,020
6/8/10 2:27 P

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emoticon There's never a silly question!

I've only understood that "semolina/farina" was wheat. "Semolina" was your "wheat" allergen tip off - least to me.

You can look for this brand (Food Merchants Inc) which has different flavors, this quinoa being a new one on me :)

www.quinoa.net/145/172.html

I don't know if you were looking for flour or a ready-made product, but I've tried this ready-made brand before without problems as it's gf.

Grains and Flours List: www.csaceliacs.org/gluten_grains.php

Edited by: DOTSLADY at: 6/8/2010 (14:31)
KNOWLEDGE = POWER. BODY = TEMPLE. FOOD = MEDICINE. PREVENTION IS THE CURE. YOU ARE WHAT YOU ABSORB!
One person's food is another person's poison.
__________
Celiac Disease: An autoimmune reaction from eating gluten grains: wheat, rye, barley and contaminated oats=nutrient deficiency=cancer. Have 1 of 300 symptoms? bit.ly/cdsymptoms
CD stories: bit.ly/cdstories
Nutrition/Cancer: bit.ly/Quillinnutrition


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BAILEYS7OF9's Photo BAILEYS7OF9 SparkPoints: (124,970)
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6/8/10 2:14 P

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VEGGIEMARJI, I would contact the mfg'r of the product and ask them how ingredients of CORN can have the may contain wheat warning to find out the answer. Please get back to us if you do!






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SFISHOME Posts: 197
6/8/10 1:41 P

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Veggiemarji, are you a vegetarian? I am and was sort of looking for gluten free vegetarian buddies.

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VEGGIEMARJI's Photo VEGGIEMARJI Posts: 197
6/8/10 1:39 P

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Thanks, Ctravel. So sorry you got sick! The thing that threw me is that is doesn't say "May contain wheat." It's says it does contain wheat! And yet the only ingredient is corn. Clearly, your explanation is correct, however, I think it's worded very poorly. I guess I just need to adjust my product researching! Thanks for the info!

CTRAVEL's Photo CTRAVEL SparkPoints: (7,601)
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6/8/10 12:55 P

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I have read all of your posts and even though the ingredients do not say wheat but the allergy level it says "It may contain wheat" I feel that where the product was made that somewhere along line there was wheat used for another product. Whenever it says that, I just avoid it completely. I do have Celiac and had a case of cross contamination just last week. I cannot take anything that has wheat at all.

I also looked up Gluten Intolerance vs Celiac. It says that 70% of the people are gluten intolerance and the rest have celiac disease. As far as I am concerned, if you have the symptoms no matter if you are gluten intolerance or celiac, it is one in the same. I am also new to this and Celiac. I discovered that I had Celiac last July.

I did a stupid thing the other night. My husband is not Celiac and I was making us both a sandwich. I used his bread and then made my sandwich. I forgot to wash my hands and I got sick that night. I guess that sometimes you have to learn by trial and error.



www.celiac.com
I awoke this morning with devout thanksgiving for my friends, the old and the new.
- Ralph Waldo Emerson


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AROOSTOOK's Photo AROOSTOOK SparkPoints: (3,679)
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6/8/10 12:44 P

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I think this is just like my rice mix last night. Has wheat with no warning posted. I should of saved the container as I believe they are breaking the labeling laws. Arggggggggggggggggggggg.

He is your friend, your partner, your defender, your dog. You are his life,
his love, his leader. He will be yours, faithful and true, to the last beat of
his heart. You owe it to him to be worthy of such devotin
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SFISHOME Posts: 197
6/8/10 12:15 P

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I'm new to this too, but you're right. It seems a little strange to me too. Have you tried looking at the company's website? A lot of times, it will have more specific information.

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VEGGIEMARJI's Photo VEGGIEMARJI Posts: 197
6/8/10 12:09 P

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okay... But wheat is NOT one of the ingredients - that's why I'm confused. Like, it's on the allergy statement, but not on the ingredient list. So I guess i am to assume it's cross contaminated, right? So, even though the ingredients only lists corn, there's probably traces of wheat in it. Correct?? Again - wheat is NOT an ingredient on the list, so it's just somehow lurking in there...

Correct?

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6/8/10 11:49 A

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Because it contains wheat and wheat is an allergen. When I check ingredient lists, I don't bother reading the ingredients first as there are names of items that contain wheat gluten that you might not know. HVP is one. So I skip to the end to look in bold for the included allergens.

You can get polenta w/o wheat.

As for gluten intolerant vs Celiac, it is the same deal, you cannot tolerate it, so avoid it. Gluten intolerant may be able to handle some cross containination, maybe not, this is pretty much up to each individual and your degree of senstivity.





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AROOSTOOK's Photo AROOSTOOK SparkPoints: (3,679)
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6/8/10 10:33 A

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That isn't just the additional warning? Like the processed in? I myself got glutened last night on a product that had changed it's formula. Now has vermaceli with no wheat warning! Argg they need to make it simple. It either has or hasn't wheat.

He is your friend, your partner, your defender, your dog. You are his life,
his love, his leader. He will be yours, faithful and true, to the last beat of
his heart. You owe it to him to be worthy of such devotin
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VEGGIEMARJI's Photo VEGGIEMARJI Posts: 197
6/8/10 9:26 A

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Yes, I understand that, but why then, does it say "contains wheat"??

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6/8/10 8:28 A

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Semolina is the finely ground endosperm of durum wheat. When other grains, such as rice or corn, are similarly ground, they are referred to as "semolina" with the grain's name added, as in "corn semolina" or "rice semolina." Cornmeal is milled dried whole corn kernels. Meaning they are not the same. Semolina is just part of the grain. Meals are milled whole grain

He is your friend, your partner, your defender, your dog. You are his life,
his love, his leader. He will be yours, faithful and true, to the last beat of
his heart. You owe it to him to be worthy of such devotin
~~~Author Unknown~~~


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VEGGIEMARJI's Photo VEGGIEMARJI Posts: 197
6/8/10 7:08 A

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Okay, I'm a newbie to this, so please forgive me if this is a silly question. I believe I am gluten sensitive - not Celiac, so I'm not sure if that makes a difference. I don't seem to be sensitive to things that say, "Processed in a facility that uses wheat," or anything like that.

Anyway, the other day I bought some polenta. The ingredients list says, "Precooked Corn Semolina." That's it. So I bought it.

Then, when I looked more carefully, at home, I saw that under the ingredients list, it says, "This product contains wheat, soy, and milk ingredients." Um, I don't understand this. If it CONTAINS those ingredients - not traces, not same equipment, but actually CONTAINS them - how come it's not on the ingredient list? Do I assume they mean "traces," or just scrap it? Again, I am NOT sensitive to traces (it seems), so if that's all it is, I am not too concerned. Any thoughts on this? It really annoys me! Thank you, my wise, new Celiac friends!

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