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VEGGIEMARJI's Photo VEGGIEMARJI Posts: 195
6/30/10 8:53 P

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Oy. As happy as I am being GF, I find myself craving bread and white knuckling it, just to avoid glutening myself! We moved last week, and have been eating out ALL the time since then. I feel really glutenized, and need to get myself back in action... My stomach is really kicking me for what I've been eating.

Just needed to get that out there, so I can take a deep breath and live GF again.

OAKRUN Posts: 26
6/29/10 10:44 A

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There is a good cookbook called "Gluten Free Vegan" by Susan O'Brien that you might find helpful. There is also a useful blog: glutenfreevegan.wordpress.com/ and many more online as well. Going 100 percent gluten-free is often helpful with IBS according to IBS forums, but it may not be the whole answer.

Also, remember that it takes about 6 months to see real gut healing AFTER being 100 percent gluten free. No gut healing will occur if any gluten is eaten if you are gluten intolerant. Eating a little gluten is exactly the same to the gut as eating a lot - it reacts. To heal the guts a person needs to be strictly gluten free for months as well as halting the intake of any other non-tolerated foods.

So make the jump and go 100 percent gluten-free. If you can eat the non-gluten grains it's not that big of a change from vegan to non-gluten vegan. If you aren't an adventurous cook, there's even an ever growing list of manufactured and processed gluten-free foods to help you make the jump.

I was strict vegan from 2006-2008, but that was before I learned I was intolerant to gluten. One of the things I ran into as a vegan was that my stomach acid levels lowered so greatly during that 2 year period of no animal proteins, that my entire digestive process was disrupted, big-time. Later, through self-testing (modified Coca pulse test) I discovered I reacted negatively to non-gluten grains as well as gluten grains. With that finding, I didn't feel I could regain my health continuing as a vegan who had to exclude grains.

After a year of stumbling around resolving digestive issues with my FNP, (had to add HCL and digestive enzymes to meals) I recently settled on a Paleo eating plan. I eat mostly fresh vegetables, some fruits, some nuts and seeds and a very modest amount of animal proteins (fish, eggs, chicken) excluding out all grains, dairy and legumes. I no longer use manufactured or processed foods, either. So far this real foods, whole foods regimen seems to be very manageable both in digestibility and in daily routine.

But by far the most important thing for anyone with gut issues to do is to stop eating gluten. Clean out your pantry by donating to your local food bank. If money is tight, maybe you can swap food you can no longer eat with friends and relatives for items you can eat. But stop eating gluten!

Keep us posted with your progress and good luck!

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6/28/10 7:45 P

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i'm glad i found you. i have ibs. i've decided to go vegan(4mths ago) after being a vegetarian for 15years. I'm working with my nautropathic dr. I'm going to try going GF. Right now i'm 30% GF. It's going to be a slow process. I'll try to get there.

One day at a time.


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6/28/10 12:04 A

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Alishab3, can you eat brown rice? How about quinoa or teff? Oats?
I went to that bakery, and just the idea of being able to buy anything there was cool. I bought a loaf of bread which did not have to be toasted before eating! It had a crust. I didn't keep it, but it was pretty darn good. I could have bought cheesecake, decorated cupcakes, and on and on. I got a brownie and a cookie. Cookie is gone, and a bite of the brownie. I was pumped!
Must get to bed.
Kate

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6/27/10 9:37 P

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I am gluten sensitive. I also have other sensitivities. I tested negative for Celiacs. But, my sister is sensitive too. I developed debilitating IBS last year after having a kidney/bladder infection (nearly killed me.) antibiotics, stomach bug and antibiotics. Over the course of a year I discovered that gluten just had to go. I don't worry about the cross contamination mostly because I don't eat much commercial foods. When my gut is feeling poorly, I do have some plain yogurt (full fat of course.) I also have trouble with rice, soy, simple carbs (insulin resistant). I had been told when I was 21 that I had PCOS (poly-cystic-ovarian-syndrome.) I avoid soy because of the estrogens. Rice hates my gut and gives me constipation.



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6/22/10 2:07 A

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Yes, I do try to keep a sense of humor. I'm also excited to go to a GF bakery this weekend in Hindsdale, Il. Anyone know about it? As I am traveling, I won't buy much, but just the concept is so cool!
I work as a volunteer at our local AAA baseball park. We are a group raising funds for charity. Believe me, if you saw the grossness of the back side of a food stand, you'd never want a cheap, white hot dog bun with a likely nonGF dog in it. You'd cringe from the sickly sweet smell of funnel cakes. The batter is this thick, sticky, icky stuff. I've washed the funnels, and they are sooo hard to get clean.
If anyone wants to conquer their craving for processed junk food, they should work in a large food stand. Before going GF, I seldom ate anything there, but now I never do. (Oops, I eat some broken corn chips.)
We take it in turns to bring food for everyone. I, of course, bring something GF. I do something either with brown rice or quinoa, which all have loved. When someone else brings dinner, if it is forbidden because of ingredients, I say thanks, and that I've brought something from home. I also bring some fresh strawberries or grapes so I have something to much that others do.
You're right, Margie, it is fun to educate others. My middle son prefers quinoa to rice or noodles. It goes great with Thai curry. They also LOVE risotto, which I have perfected. You can get a lot of veggies in it if you try.
Kate

"It is only with the heart that one sees rightly; what is essential is invisible to the eye."
Antoine de Saint Exupery: The Little Prince


"To the world you may be one person, but to one person you may be the world."
Heather Cortez
MARGIE100%PURE's Photo MARGIE100%PURE Posts: 1,513
6/22/10 12:29 A

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Telli, I am delighted you are working your steps and still have a sense of self and of humor, instead of deep denial. Make and take two potluck dishes to give yourself a choice. Then watch the world around you make comments with phrases like..."GEE, I did not know this dish was not normal? If this potluck dish is gluten-free, then I must like 'that stuff'. You may feel over-joyed to share a food thought that the other potluck eaters never tried. Share that 'try it and you will like it' food is right out of classic Dr Seuss 'Green eggs and ham' conversation. You may want to put some assertive pride into the giving of gluten-free facts and foods. Socializing with food is taught to us long before any teeth grow into our mouths. Bring joy to the table, bring yourself.

I made a large stack of pancakes from the Pamela's pancake mix for myself and some for later. When I came back to the kitchen put it away, the family ate it all. They liked a change of texture and flavor from basic buttermilk cakes. I think, by the time the nasty syrup went on, they did not notice an off flavor, just a ready-made meal they did not have to cook.
emoticon emoticon

Edited by: MARGIE100%PURE at: 6/22/2010 (00:33)
The greatest love story is your own.
If you miss out of life to the fullest; they win.
You are the happiness master of your own mind.
Thought is an active dynamic energy to harmonize and corrolate good.
Clear all paths to love thru forgiveness.
I may not recognize the significance until some time later.
Is my resistance to change really that strong?
Impatience does not provide the time to learn the lesson;
Awaken new ways to approach the dissolving of a problem;
VEGGIEMARJI's Photo VEGGIEMARJI Posts: 195
6/21/10 8:43 P

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You all inspire me to stay the course! Thank you!

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6/21/10 3:16 A

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For Father's Day dinner, I made quiche with store bought crust. I made both a smoked salmon and cream cheese one and a spinach/bacon one. I also made a crustless salmon and a tiny spinach one. Of course everyone else ate the regular stuff, but they don't hassle me and when the other is gone, they'll eat the crustless.
I do have the digestive issues. The gas and bloating was embarrassing and my mom always talked about how heavy I'd gotten. It was bloat mostly.

I also have the hypothyroidism and fibro. In the past 11 months, other than 6 weeks after beginning this, which I was told to do, I haven't had any wheat. That one meal of my once fave Nature's Path cereal didn't even taste as good as the way I was eating, so I don't miss it anymore.
After recovering from the cramps, ulcers and other stuff, I haven't tried to eat any wheat and really try to make it all GF. I find that no matter how much GF oats and brown rice, black beans and fruit and veg I eat, I'm rather constipated. This hasn't been a problem since I was pregnant with my youngest who is almost 19. Anyone else have that problem? I'll still take it over the way I felt a year ago.
I'm so much better on the fibro. I have a neck injury, but the spasms are about gone. I'm not complaining about that! I wish I could get the sleep under control, but one thing at a time.
I don't think I can get my guys all to go paleo. If it was absolutely necessary, I might, but I don't do well on nuts and seeds. With the exception of black and garbanzos, beans are a real no! Peanuts and lentils might mean an ER trip for me, so I don't do them.
I feel like I am always saying no to everything, but I travel prepared now. Seldom do I have an Oops. But, black eyed peas last weekend at a potluck were not good.
I'd certainly cook whatever food my husband or one of the boys needed, so I know I shouldn't feel guilty about it. My husband is very good about it now. He saw my one reaction to full gluten, and can now tell when I have been exposed. I am glad I'm not so sensitive that touching it is a problem.
I try to be careful of skin and hair products, too. You know, all the super wheat germ for your hair? Ugh!
Kate

"It is only with the heart that one sees rightly; what is essential is invisible to the eye."
Antoine de Saint Exupery: The Little Prince


"To the world you may be one person, but to one person you may be the world."
Heather Cortez
MARGIE100%PURE's Photo MARGIE100%PURE Posts: 1,513
6/21/10 3:00 A

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I am a gluten sensitive person testing out with a score of 3 on the anti-gliaden blood test. I have been seriously gluten-free for two years and cross-contamination issues still dominate my life. I avoid restaurants except the occasional steak dinner with plain salad where I pick out any vegetable known to have sulfites. My salad is never from the communal bowl where a crouton or a speck of grated cheese may fall or reach my serving. I still have other sensitivity issues of sulfites and corn, soy, and anything artificial including sweeteners. I am avoiding stevia extract in the green pouches. My no-no list includes anything fermented: no teas, any vinegar, and yeast sources of flavor, as in Natural Flavor, which is really a corporate secret approved by FDA, or yeast additives and preservatives and there are many. I need to test for the gene questions, how much$?

As my time as a gluten-free eater matures and the gradual recharging of body tissues lose toxins, free radicals, and better eating removes chaotic old habits to be replaced by better cell production, gut repair, and I create better insulin response not insulin-resistance, I have high hopes that my adrenals may recover. It has been 7 years since my adrenal weakness was first discovered. I have physically changed thousands of things and am still playing catch-up with the emotional changes. I battle sleep patterns of limited rest, short broken hours, and do not feel recharged yet. Here is a simple example; when I am sound asleep just rolling from fetal position left to fetal position right, the weak adrenals make me feel like I just ran around the block with a racing pulse, thus I find myself wide awake and unable to fall back to sleep too often, with zero sleep some nights. (I am unable to sleep on front and back or numbness is another form of wake-up call, again low circulation)

I have Hypothyroidism 35 years, Fibromyalgia 4 years, and Sub-Clinical Addison's (formal name of this version of Chronic Fatigue Syndrome) for 7 years. I still wish for my youthful energy making exercise loving old self. I see blogs of 'tired people' recharging, I will keep plugging away to recharge all I can. My Adrenal Fatigue has been the biggest contributing factor to need sensitivity selections of my diet foods, even though I know to avoid soy as a hypothyroid life style.

An additional condition often overlooked is a yeast invasion of Systemic Candida (fungal colony 'gut friend' turned enemy everywhere else via my blood) which left my gut during chronic continuous weeks of irritable bowel trouble and acquired from doctor prescribed antibiotics and steroids. Knowing this, common sense demands I avoid sweeteners, simple carbohydrates, limit complex carbohydrates like fruits, and anything made from or using yeast, as in citric acid, and sulfa family class of antibiotics while living under gluten-free and low glycemic guidelines is showing good results. I am guided by natural 'antibiotic sources' like Olivier (a thousand leaves of power in each capsule), honeysuckle blossom, and nutritional support. I also take an Anti-Candida (A/C capsule) natural formula daily.

I cannot use the popular gluten-free baking powder products or I would use quick breads to replace some of my starch needs. I am aware and work to limit yeast bread. Though I was a hobbyist of daily bread baking, 3 years ago I have stopping making any and still enjoy too many servings per week of the yeast containing gluten-free breads. The commercial bakeries can get sodium-pyrophosphate leavening in commercial volumes but a common person cannot unless cornstarch is added. May be I can find a doctor to write a prescription of this chemical compound by the ounce to last for months? Though I am improving with the facts, details, and newly acquired information, I am still trying to uncover the hidden messages my body expresses. I internet research and ask questions of my doctors about tools both natural and supplemental to get my sleep circadian rhythms with energy recharging ability back, and less painful ways to remove heavy metal toxins. I believe toxins and 24/7 high goals put me down hard. It may be from the amalgam mercury fillings, mercury in cold water deep sea fish like tuna and mackerel, fluoride from multiple sources, including dental experimental treatments before age 12, and cadmium, lead, and sulfuric acids from my electronics jobs that collected.

I have learned to balance hormones with bio-identical types of replacements of my currently, 2 tired endocrine organs (thyroid and adrenal glands) and menopausal symptoms. I do not have the energized rested body to earn a living at this time. The costs of pharmaceutical grade nutritional supplements (a must for my sensitive needs or shock symptoms will dominate when I use over-the-counter supplies) are always a concern. I often have to do without hormones, vitamins and supplements, knowing the symptoms slip back from lack of aggression. It has been said that finding the problem is half the battle, but just knowing how to 'fix it' does not do the trick. The battle for a productive self-supporting independent me I once had, rages-on. I do not have Lupus, pneumonia, or diabetes I count my blessings.
emoticon

The greatest love story is your own.
If you miss out of life to the fullest; they win.
You are the happiness master of your own mind.
Thought is an active dynamic energy to harmonize and corrolate good.
Clear all paths to love thru forgiveness.
I may not recognize the significance until some time later.
Is my resistance to change really that strong?
Impatience does not provide the time to learn the lesson;
Awaken new ways to approach the dissolving of a problem;
CTRAVEL's Photo CTRAVEL SparkPoints: (7,601)
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6/20/10 2:30 P

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Hi Oakrun
That is an excellent post. Thank you for sharing that with us. I love the part about describing eating gluten vs rat poison. Excellent description.

My house is about 99% gf too. My hubby is not gf but we have a couple of items that are gluten but once they are gone then we will be 100% gf.

Thanks again.
Ctravel

www.celiac.com
I awoke this morning with devout thanksgiving for my friends, the old and the new.
- Ralph Waldo Emerson


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OAKRUN Posts: 26
6/20/10 2:10 P

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I paid to gene test for gluten intolerance through Enterolab.com because I suspected I was gluten intolerant due to the gluten connection with autoimmune issues. Since I didn't have the common gut issues of Celiacs, and am considerably overweight, I was sure that the 'standard' medical tests for Celiacs would show nothing. Plus I'm tired of arguing with MDs about medical issues.

I opted for paying out of pocket to do the gene tests to determine if gluten is a problem for me. Enterolab tests for both celiac genes and for gluten sensitivity genes. They are the only lab that test for both.

My results show I carry 2 genes strongly associated with gluten intolerance (but not celiac) plus I showed that I was actively reacting to both gluten and casein through their fecal tests. The lab's recommendations were to go strict gluten-free and casein-free. I'm taking that advice, literally.

I was happy to finally have an explanation as to why I had developed certain autoimmune disorders and health issues. And the fundamental 'fix' for me is to change how I eat instead of eternally taking life-endangering prescriptions that treat the symptoms but not source of the problem. It's a long road back to health but I'm finally making some progress.

Literature says Celiacs typically manifest gluten intolerance with gut symptoms and damage. Non-celiac gluten sensitive individuals, like myself, often don't have gut issues but often can manifest a variety of non-gut autoimmune disorders (hypothyroidism, lupus, fibromyalgia, MS, etc). Removing the gluten 'trigger' from the diet is the only possible means of reversing the illnesses triggered by gluten. Healing starts by removing the irritant.

If a person is reacting to gluten, then ANY gluten contact is causing a serious health reaction within the body. It seems to me that eating a little gluten for the gluten-sensitive person is like eating a little rat poison. Eating a lot of rat poison at one time might kill you fast. Eating a little at a time just kills you more slowly. Eating gluten when a person is gluten intolerant is like hitting your thumb with a hammer, on purpose.

I've found that I personally react badly to non-gluten grains in addition to gluten grains. This happens to about 40% of people who are reactive to gluten. So I've found I need to avoid all grains.

To simplify my life I've shifted to a 'Paleo diet' eating plan, as has my husband. He is not GFCF so he can eat gluten and dairy when he eats out. But our house is now a GFCF-free zone.

Paleo eating plans are essentially going back to eating real, whole, fresh foods, cooking from scratch, and no grains, no dairy, no legumes, no processed foods (a pre-industrial menu). Since I'm not a person who loves to cook, it's been a challenge but it's not actually that difficult to really do Paleo on a daily basis.

There are quite a number of free Paleo recipes online, as well as Paleo support groups. Fortunately it's a popular eating plan with athletes, so it's easy to get family members on board.

And, after a decade of trying every diet under the sun to drop some of my excess weight, I'm finally losing some pounds eating Paleo-style. This is certainly good news!

When I do eat out I carry a digestive gluten-enzyme with me to help minimize accidental meal cross-contamination. This type of enzyme taken with a meal can help gluten sensitive folks, but it's not that effective for celiacs. It's not a replacement for strict gluten avoidance, but sort of a first-aid for a dietary disaster moment.

For family events I either bring my own food, eat before the event, or if it's a catered event (like a wedding) I ask ahead of time if a GFCF meal is possible. Corporate events often provide substitutions for people with special dietary needs, they just need advance warning. And in group events you won't be the only one asking for accommodation. For my niece's wedding she's checking with the caterer to provide me with GFCF, and some of her other guests with vegetarian and vegan meal options. Plan ahead.

So, for the gluten sensitive person the literature recommendations are to be strict gluten-free for at least 12 months. It often takes at least 6 months to see some real gut healing if a person has gut issues, and often healing takes a full year. By healing I mean healing the damage. As far as I know, If a person has gluten-sensitive genes and the genes are triggered by gluten, then they don't revert back to dormancy after gluten is removed. Apparently, once gluten sensitive, always gluten sensitive, but it appears a person can stop and/or reverse the health damage by removing gluten (and any other poorly tolerated foods) from the daily diet.

For myself, I plan on being strictly gluten-free, casein-free indefinitely. At the moment it means sticking to non-gluten foods, and avoiding items from shared equipment unless such items pass muster via a celiac group review. I'm very tired of being sickly.

Just my opinion, Hope this helps emoticon

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6/20/10 1:14 P

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I tested okay on other grains, but pretty much stay away from them. I can handle some GF oats, but not others. Kirkland organic and Coaches seem to be okay, but Nature's Path and Quaker are to be avoided by me at all costs.
I used to love the Nature's Path cereals. They tasted sooo good, and I ate a bowl of low cal, high whole wheat and other grains cereal every day. I just got sicker and sicker on mhy high fiber, whole wheat diet.
Soy is a no for me, and corn only occasionally. The fava bean flour makes me ill, too.
This is an adventure, isn't it? I can bake with gluten and fix other things for my family and it doesn't bother me. I just don't eat it.
Kate

"It is only with the heart that one sees rightly; what is essential is invisible to the eye."
Antoine de Saint Exupery: The Little Prince


"To the world you may be one person, but to one person you may be the world."
Heather Cortez
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6/18/10 10:13 P

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I have posted this somewhere else too. I felt the same way about cross contamination and felt it was not a problem. Well it was for me and I will explain. I know that everyone is different and their body reacts differently too.

I was fixing hubby (he is not gf) and myself sandwiches. I fixed his sandwich and then fixed mine. About an hour after that, I got really sleepy and got this horrendous headache along with being dizzy and this time felt sick to my stomach (luckily I did not get sick). I thought back about what happened and was thinking that I did not eat gluten. Then all of a sudden it hit me that I made hubby's sandwich and did not wash my hands before handling my sandwich.

This is something that I have to learn to watch out for as I am very sensitive but did not think it was a problem but in the long run it is.

I hope that this has been of some help to you.

ctravel

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I awoke this morning with devout thanksgiving for my friends, the old and the new.
- Ralph Waldo Emerson


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MARGIE100%PURE's Photo MARGIE100%PURE Posts: 1,513
6/17/10 9:54 P

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Due to the credential proofing nature of our society, some people will not believe it just because a 'person said so'. If a doctor wrote it down in a medical record then nearly god could not disprove it. Relatives in denial will sit up more and the governing bodies of power demand written proof to change laws and general guidelines. We, as the inner group, of a government declared-rare- but 'what I consider common condition' need to help sway the madding crowd. I believe, we are not the minority; we actually are the majority just stressed to show the signs sooner rather than the later in others. Should symptoms negatively progress and compounding of evidence become a most needed and dominating factor later, you will have the facts, the evidence in the arguable 'point-taken' details to guide and help others see the light.

I have not been diagnosed as a Celiac. I understand that if stress in my life alters, or a relative shows weakening health signs of this nature or condition. It will be the evidence of a credential carrying doctor that may help sway the opinions of stubborn family members on gene pool issues to go get the proper care, or an open minded doctor just learning about this digestive condition, not my comments of food preferences based on inner pain and self diagnosed results to convince them.


The greatest love story is your own.
If you miss out of life to the fullest; they win.
You are the happiness master of your own mind.
Thought is an active dynamic energy to harmonize and corrolate good.
Clear all paths to love thru forgiveness.
I may not recognize the significance until some time later.
Is my resistance to change really that strong?
Impatience does not provide the time to learn the lesson;
Awaken new ways to approach the dissolving of a problem;
1GRNTHMB's Photo 1GRNTHMB Posts: 4,791
6/16/10 10:13 A

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Amy, Oats used to be listed as a gluten containing grain. They really do cantain gluten but in a different chemical structure. Because of the cross contamination with wheat it was considered completely unsafe. But then someone discovered that most celiacs are not synsative to oats if they are pure. So gluten free oats became available. If youeat none gluten free oats there is a very strong chance that there is wheat in it. Also a study a tanford university found that .7% of celiacs are still synsative to even pure oats. I am in that catagoy and find it frustrating that I have to read the lables on itmes labled gluten free to make sure they are also oat free.

Mark
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CINDYTW Posts: 5,783
6/4/10 9:58 A

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The last time I had gluten (other than accidental traces) was the night before my blood test. I had pasta and bread for dinner and never felt so horrible! But yet I felt like I couldn't stop eating it!! There is a theory that I have been meaning to look into more myself that the things you crave and overeat you are probably allergic to (or intolerant). For me it has been true so far (dairy and gluten). I also felt like I was having a panic attack for no reason about 30 minutes after eating the last gluten supper, so I don't know what your "anxiety issues" look like but see if you are calmer gluten free as well.

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AKHEILA's Photo AKHEILA Posts: 27
6/4/10 8:35 A

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I don't know if the cravings are a typical reaction...but its one that hubby gets everytime he slips up too.

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VEGGIEMARJI's Photo VEGGIEMARJI Posts: 195
6/4/10 7:32 A

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Thanks for your input. This thread has been really interesting. I have dealt with IBS symptoms for many years, and have been constantly searching for a solution. When I recently told my DH that I am seeing a connection to gluten, he did the classic eye roll, because he thinks it's just "thing" that I think might be a solution. He is a physician, and thinks that most of my symptoms are due to anxiety issues. Anyway, I have been doing my best to stay gluten free, and i find that the second I allow myself a non-GF treat, I crave them and binge on them. Is this a typical reaction? I'm not sure. Also, I haven't been vigilent about cross contamination, but I don't think that is making a difference for me.

I hope more people write. I am so interested in this!

CINDYTW Posts: 5,783
6/3/10 7:25 P

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I agree that it really doesn't matter if you are sensitive or Celiac...the end result is the same...No more gluten! I refused the biopsy because I will not willingly make myself as sick as that again!

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POXYFAIRYPLUME's Photo POXYFAIRYPLUME Posts: 1,384
6/3/10 5:07 A

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I was just diagnosed last week with a gluten sensitivity. I am unsure whether or not it's CD, and don't know that I actually care that much to go through all that stuff to get a diagnosis, when I know I can't eat it. I cut out all gluten. I was about a week completely GF, and JUST starting to feel better... then I ate some oats. A couple days later I felt like I had the flu and was extremely achey, and my mind went haywire (I literally felt like I could've admitted myself into the loony bin, it was kind of scary actually). The next two days (which would lead up to right now) I've just been so tired and cranky. That's enough for me to tell me to stay away from it completely!

Edited by: POXYFAIRYPLUME at: 6/3/2010 (05:12)

=^..^=
Amy

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1GRNTHMB's Photo 1GRNTHMB Posts: 4,791
6/3/10 12:44 A

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Doctors sometimes call gluten synsitivity pre-Celiac Disease. Gluten Intolerence and gluten sysativity are basically the same thing according to my doctor. As my doctor orriginally told me. "If you feel better by not eating gluten then by all means, do not eat it."


Mark
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MARGIE100%PURE's Photo MARGIE100%PURE Posts: 1,513
6/2/10 5:16 P

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I made a homemade meal of chicken nuggets; theirs was gluten batter on chicken breast pieces and my own was gluten-free using Pamela's mix with extra spices. I usually fry mine first then park it in the oven to make theirs. M roommate was in a hurry to get to work so I fried gluten batch first. What a mistake! I hurt all the next day and it was a lesson I shall never repeat. Just the tiny particles from gluten batter in the same frying oil cause a bad head and gut ache. I tested negative for Celiac with a score of three. I avoid in all hidden places and all obvious places never to eat wrong again.

Like an alcoholic, one slip is hard. I have sulfite issues and artificial avoidances too so my diet is very limited and I understand why and I plan to stay squeaky clean to avoid pain, inflammation, and hormone imbalances and all the other bodily harm a single mistake can cause in me. Cross contamination stories are out there; every one has bad experiences when getting started and the hidden things will trip you up years after knowing what you are doing.

Like a Celiac condition, it has many people affected but the main stream has not caught up to the whole facts. Gluten-free eating has done wonders for my digestive tract inflammation and the ability to absorb the good nutrients while blocking out the harmful things from crossing at an IBS open sore in the intestine.
Adrenal fatigue is causing my food sensitivities I never had before in this extreme. I was slightly sulfites and did now I had a gluten condition and headache prone but now I must avoid many foods.


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BAILEYS7OF9's Photo BAILEYS7OF9 SparkPoints: (120,890)
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6/2/10 11:53 A

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I have removed all gluten from my diet. My blood test was negative, but I was told by many people that they are not very accurate, I was not on gluten long enough before the test and to do it again... He** no! Not willing to go thru the pain!







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6/2/10 9:53 A

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I'm newly Gluten-free. I also come from an Italian family. Such irony. I have come to the conclusion that the only thing I can control is the food in my house and not what is beyond it. I do my best to reduce most of the gluten I could take in--that is what makes the difference for me. I also acknowledge that sometimes I will need to eat it because of circucmstances beyond my control (Italian/Jewish wedding this weekend). I've decided free-days are fine but I still try to minimize the the damage. I too get the brain fog really bad and REALLY crabby--that's enough to prevent me from eating say 5 breadsticks when 1 will do. I also really pile on the veggies. I agree w/everyone, it's trial and error and I'm still learning.

Nancy

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CINDYTW Posts: 5,783
6/1/10 11:39 P

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I am a "presumed" Celiac because I refused to get the biopsy...but I have found that some products will be an issue and others won't. It is a lot of trial and error and depends on the sensitivity of your system. Also, if your symptoms are manageable I wouldn't worry too much if you make a mistake. If they are really bad you may want to not eat those questionable items.

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AKHEILA's Photo AKHEILA Posts: 27
6/1/10 9:59 P

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hubby has found that if he is to partake in a meal that isn't GF there are pills out there. Now we don't believe he is a celiac...more on the sensitive side also...stuff like gluten ease have been able to help him with some of the digestion issues that creep up. I don't think they help with his brain fog he gets...but thats an ongoing "discussion" that we have. As to how these supplements help for any internal damage I can't speak...but may be worth considering in circumstances that you can't be truly GF...he mostly uses them in times when he is travelling with work and is expected to eat what's put in front of him. SO for us....mostly the in a facility that processes haven't been a problem.

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NJORDGAL's Photo NJORDGAL Posts: 1,484
6/1/10 6:43 P

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I'm also gluten intolerant, not celiac.

I *prefer* items labeled "gluten free" and from dedicated facilities, but I don't often have problems with stuff that is from a non-dedicated factory.

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SUN_CLAY's Photo SUN_CLAY Posts: 16,255
6/1/10 6:33 P

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I am gluten sensitive, probably celiac too as there are now 2 confirmed cases in my family, one being my sister. I eat as much as can that is gluten free, including oats. I have not had a problem with the occasional processed on equipment...., but I don't eat that every day.

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ILLINITEACHER52 Posts: 7,256
6/1/10 6:06 P

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I do eat some things that say "processed in facilities that also process...." I have tried some oats. Some give me reactions (joint pain, etc and others don't. I am not going to eat any more unless they say gluten free.) I guess it depends on your reaction. Gluten makes me grunpy so it really isn't worth it. ( in addition to what it might be doing to my insides.)

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VEGGIEMARJI's Photo VEGGIEMARJI Posts: 195
6/1/10 5:53 P

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I believe i am gluten sensitive, as I've been tested for Celiac Disease, and the result has been negative. I have awful IBS though, and have found that cutting out gluten seems to be very helpful. My question is, for those who have found themselves "Gluten Sensitive," do you cut out every single speck of gluten from your diet, or just MOST of it. Do you eat things that say on the label, "Processed on equipment that processed wheat," or are you 100% ZERO gluten? Do you eat oats? I am looking for my balance here - is it all or nothing? Or is there something in between?

Thanks!

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