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CADYANN1's Photo CADYANN1 Posts: 103
7/8/10 1:31 P

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My family is relatively supportive. I've been GF since March. Eating out is a real issue, but it always was for me. When I'd eat out before, I'd pretty much always get sick. Eating out now is still an issue because it's often difficult to find things on a menu that I can have, which sometimes limits where our family can eat.

My kids are supportive and will point out things that I can't have. Kids and husband still eat gluten and there are plenty of gluteny things in my house. I have my own "safe" cabinet for my GF goodies. I had a GF birthday cake that was pretty awful (my well-meaning mom overbaked it, I think) and that experience made my husband less likely to try anything that he sees me eating. The kids are more flexible and will try new things.

As far as extended family goes, I'm the only one so far who's been diagnosed with gluten intolerance. I strongly believe my 2 sisters and my father (and his father, deceased) have some kind of gluten intolerance. I have urged them to get tested and/or try eliminating gluten and see if it helps them. So far they have not. At family gatherings, my mother makes things that are GF as well as things that aren't. We read labels together and I've shown her how to check online for hidden ingredients. This has been a learning experience for all of us.

Tammy (West Virginia)


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TRABEABE71's Photo TRABEABE71 Posts: 48
7/7/10 9:40 P

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It's just me and my daughter at home. She is a huge help to me. When we go grocery shopping she'll pick things up and read the ingredients and tell me if its ok or not. That way it doesn't take quite as long to shop. She tells me all the time how proud she is of me. She still eats gluten. But, since i've been eating gf i've also been eating healthier. So as a result she has been eating healthier too. My mom has also been great. She still isn't sure what I cant eat, but is learning some of the things I can eat. So when I'm at work and have time to take a lunch break, my mom will have me come to her house and she'll fix me a gf lunch. My grandmother however, she really has no idea of what is what. I know she means well. She had us over for supper a few weeks ago. She made macaroni and cheese and rolls. She said, "I probably shouldn't have gotten the wheat rolls? " LOL!

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CINDYTW Posts: 5,783
5/26/10 11:28 P

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Jen I liked that blog...but they missed some key GF experiences...Getting "glutened" and having to eat just salad with oil and vinegar cause there is nothing else for us!! Entertaining nonetheless!

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JENCORINNE's Photo JENCORINNE Posts: 1,932
5/25/10 7:13 P

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It would be great but I just read a food bloggers experience that took the GF challenge this past weekend seriously. he way they talked about trying to find GF food and how dangerous there own(yet healthy) kitchen would be to someone with gluten issues.
If anything you have to laugh at the name of their blog - www.eatatburp.com/ where there actual GF experience is celiacinthecity.wordpress.com
/2010/05/
25/guest-post-fellow-milwauke
e-blo
ggers-take-on-the-gluten-free-challenge/

I think I'm going to start using their terms of "gluten Cooties"

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ILLINITEACHER52 Posts: 7,256
5/25/10 6:02 P

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I wish everyone could feel the effects of eating well and then decide whether to eat all that junk again. It just isn't worth it.

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USE2BAGODDESS's Photo USE2BAGODDESS Posts: 2,703
5/25/10 1:25 P

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Funny you should ask: A friend has just moved in with us. She recently went through a stressful divorce, lost her job, and is going through menopause.

Since she really has no money she can't run the streets and eat anything she wants. She is stuck eating what I have around the house which is whole foods and no junk food.

When she arrived her eyes were sunk in and she cried all the time. She took anything you said personally and then started crying again.

Surprisingly enough within a week of almost no sugar, no caffeine, and eating super healthy foods she is improving dramatically. I also started her on 5htp (for depression) and peruvian maca (stabilize her hormones and suppport her endocrine system) and B vitamins. Her mood is changing dramatically. She got up early and went to a job seminar held weekly at a dallas church my husband sent her to. She sent me a text that she loved it and was learning lots and happy!

It is amazing what taking artificial sweetners out of your diet (she use to drink diet cokes - a NO-NO around here) Since I am on a no-allergy diet so is everyone else.

We are much happier and healthier.



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PETTYJ93's Photo PETTYJ93 Posts: 25
5/20/10 1:28 P

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I guess in some ways I have been lucky in terms of support. My youngest daughter was diagnosed with CD via a blood test and intestinal biopsy. At that point, the gastroenterologist told our immediate family to get tested. Both my older daughter and myself turned out to have CD. My husband, alone, in our home is able to eat gluten, but chooses not to in the house. If he goes out with friends, or we go to a restaurant that serves both gluten and GF food, he will eat gluten. Otherwise, he eats GF with us. He is uber supportive.

For extended family, my brother was so excited to have a possible reason for his intestinal issues, he was tested the day after I got my results and turned out to have CD as well. My sister is the only one of the siblings without it (at this point...). My mom, initially, was not terribly supportive, but then we convinced her to get tested -- she always had a lot of gas and had severe medication-resistant osteoporosis. And it turns out the she has CD as well. So, we are lucky, I guess. When we get together, the GFers out number the non-GFers and we win!! :)

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JENCORINNE's Photo JENCORINNE Posts: 1,932
5/19/10 5:33 P

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I hadn't realized how much my friends look out for me. Last night was my bowling league's end of season dinner. This is the 2nd since going GF, the people in charge of finding the dinner location made sure there was GF food, not necessarily for me they just knew someone needed GF food. It ended up being at a pizza parlor that has GF pizza and takes CC seriously.
After watching people get their fill of breadsticks and pizza, my personal pizza finally showed up. Before I could take a bite my friend asked me how long before symptoms so she could watch out. It all turned out OK, not the greatest pizza but do-able.

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BAILEYS7OF9's Photo BAILEYS7OF9 SparkPoints: (120,974)
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5/19/10 5:08 P

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I really feel for all of you posting that you get no support and people think you are making it up. bummer.

My Family and BF are SUPER supportive! It probably helps w/ my Family that my sister has a highly food allergic son so they have been getting used to certain foods are on a no list for a while.

My mom is the best. She has been buying GF items and makes my meals special for me. emoticon Now my SIL, she is a hypercondriac. Something is always wrong with her and the more exotic it sounds the better. Well she just got tested for Celiac and came back positive. Whatta ya know???





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VELMOOSE's Photo VELMOOSE Posts: 688
5/15/10 9:44 A

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My husband and daughter are very supportive. My daughter would read labels for me in the grocery store and when we go out to eat my husband always asks, can you eat anything good there? My MIL was a little more difficult but that's because she's in her 80's and it's a totally foreign concept to her. She's never offended if I bring my own food though. My stepmother actually makes me pie with gf crust for holiday dinners.
I'm not quiet at all about being gluten free. I figure the more people I tell (and explain if they ask) the more awareness is out there. I post stuff on facebook and I've had a couple of people ask for more info because they think they might be gluten intolerant of celiac too.

Tammy (Vermont)

Oh, yes I CAN!


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LILLMISS2121 Posts: 11
5/14/10 9:03 P

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My family thinks its all in my head too. They roll their eyes, and just think I'm on another diet. I have stopped talking about it with my mom and sister, last time we went out for dinner and I had to talk to the server about GF menus, they said I'm high maintenance and made fun of me. SO no support from them.
My bf is awesome, he so considerate and patient, and is always standing up for me with my family.
All that said, keep the flowers in your garden, and PULL THE WEEDS OUT! even if they are related to you :)
SP is a great site too for support, and hearing other peoples struggles and successes with GF living.

CINDYTW Posts: 5,783
5/14/10 8:16 P

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I have been fortunate to have all but one family member be supportive. My hubby will eat anything I serve him, GF or not, so that is good and all my friends are very supportive after watching gluten put me out of commission for several weeks! My coworkers and boss even look out for me, especially in moments of weakness when I want to shove a whole pizza in my mouth!! It is nice to have support, and the one who isn't just won't be around when I go out to eat. Simple as that. This is too hard already without someone being ready to sabotage you and not care.

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JULIE_MAY's Photo JULIE_MAY Posts: 2,429
5/14/10 7:49 P

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When I was diagnosed 1 1/2 years ago, I explained it in detail to my dh and kids. My kids became my "watchdogs," telling me when I couldn't have something if I was tempted to cheat (early on). I think the thought of me getting cancer scared them. My mom had been telling me for years that she thought I had CD, so when I was actually diagnosed, I think she felt vindicated and has been extremely supportive; even to the point of jumping in and saying, "NO, she can't even have a little bite!" when my sis asked if I could just have a bite of her orange rolls last Easter ('08).

That being said, I am alone in my gf, but it is no big deal anymore to take my own food or dessert somewhere if I'm unsure of the menu. My family LOVES their gluten, so it's a good thing that none of them have CD. My mom has bowel trouble and would possibly benefit from gf, but I don't think she would ever give up her bread. (Though she HAS liked several of the gf foods we've tried.) She is always buying gf stuff for me, which is very thoughtful.

I feel so bad for those of you who have no support. It's a difficult enough journey without having to deal with negativity. I can get pretty crabby when we're out and I can't find anything to eat and my family is all munching on fast food or sandwiches!

Co-Leader: West Highland White Terrier Fans


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ILLINITEACHER52 Posts: 7,256
5/14/10 6:04 P

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I live by myself and cook only for myself most of the time so that part is easy. With extended family - my sisters are accepting and also try to be GF as they say it helps them too. We can't convince my Mom to try being GF. We think it would help her a lot (skin, gut and sinus problems) but she has to decide for herself.

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SMURFETTE18's Photo SMURFETTE18 SparkPoints: (18,111)
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5/14/10 12:53 P

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My parents and boyfriend have been so supportive. They go out of their way to make food they know I can eat. My bf makes sure I don't eat anything when I have a craving for something bad. He feels bad putting his foot down but it's nice to know someone's got my back when I'm tempted. I don't have the willpower somedays.

Leah
JENCORINNE's Photo JENCORINNE Posts: 1,932
5/14/10 12:40 P

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I live by myself so no one else to worry about here. My house is 99% GF - My cat won't take hairball medicine thats GF but attacks the gluten med as soon as I pick up the tube. It still took me over a year to actually accept that I have CD and seriously go GF, sadly it took having DH for about 6 months to accept it. My mind was so glutenized that I didn't realize all the symptoms I have.

I think when I first started telling my family about going GF they thought it was a fad thing but have accepted that this isn't going away.

With my family - it was a mixed bag. Some supportive, some can't wrap it around there head. With the latter I just keep explaining that I can't eat certain things. Even after seeing what happens after glutenized didn't quite sink in.

At Thanksgiving I brought my own stuffing and pie, most of the rest was GF. My cousin's wife made mac and cheese in too big and hot dish to pass around the table since it was right in front of me so I ended up serving it. What fell on the table stayed since my DH was flaring and didn't want to make it worse. Once everyone was served my aunt realized I couldn't have it and commented on it. A little late.

I think my Mom would benefit from a GF diet especially I'm 99% sure her Mom had it. Every time I bring it up she just tells me to not even go there.

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VIRGO2010 Posts: 322
5/14/10 10:52 A

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My family is not helping me at all. I am my own in this journey. My family think it's all in my head. In my house, i am the only one is gluten free. Some time i get so depressed about it. Like today morning i get up with stomach pain, only thing come up in my mind what did i eat last night so that i get up with pain. It's very hard to explain to people who does not have any health issue.

Now i do not tell people i can not eat gluten. If i am out i pick only salad, fruits or rice that is all. Before i go out i eat my meal at home and than go. that is the best way to avoid all those questions. they ask my are you on some kind of diet emoticon

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DOTSLADY's Photo DOTSLADY Posts: 10,018
5/14/10 10:29 A

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What was your diet transition like emotionally between family members?

If you have gluten in your home, do you have kids who are not gf and kids who are?

Was your significant other supportive, and in what way? Were they more supportive, the more they learned about the disease?

How about extended family?

What have you done to help them understand?

Do you have loved ones you think would benefit from the gf diet but they are resistant?

emoticon

Edited by: DOTSLADY at: 5/14/2010 (10:32)
KNOWLEDGE = POWER. BODY = TEMPLE. FOOD = MEDICINE. PREVENTION IS THE CURE. YOU ARE WHAT YOU ABSORB!
One person's food is another person's poison.
__________
Celiac Disease: An autoimmune reaction from eating gluten grains: wheat, rye, barley and contaminated oats=nutrient deficiency=cancer. Have 1 of 300 symptoms? bit.ly/cdsymptoms
CD stories: bit.ly/cdstories
Nutrition/Cancer: bit.ly/Quillinnutrition


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