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CINDYTW Posts: 5,783
4/29/10 10:43 A

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Thanks for the info Barb!

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GFNOMAD's Photo GFNOMAD Posts: 1,498
4/28/10 9:47 P

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There was a discussion today on my Phoenix Celiac group that will explain your questions - I'm posting the series of replies - most recent first so read bottom up or skip the others and only read the top one which is the best response. Barb

" Yes, lactase is the enzyme that lives on the end of villi, and it is what is required to fully digest lactose, which is milk sugar. Depleted/damaged
villi (with CD) means depleted lactase, which is why virtually all celiacs don't digest milk well. However, not all dairy products contain lactose:
Hard cheeses and truly cultured yogurt (with no added additional milk) contain no lactose.
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It's been 7.5 years since I was dx'ed with CD, and I'm still "scared" of milk. I do eat cheese occasionally, but like many celiacs, even though my
small intestine is fully restored, dairy products just don't seem to agree with me. ~Karen dx 11/02

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This is what I understand. The villi in the intestines that get destroyed with the celiac are responsible for absorption. The very tip of the villi are what absorbs dairy. It takes a while for the villi to grow back fully.
When they do dairy absorption is possible again. I need some dairy. I am tired of living on meat, veggies and brown rice. Had some cheddar last night and it was awesome with no problems to report.
Also, I do not know about wheat allergies and enzymes as I have celiac and do not have a wheat allergy so there may be some relevance to Dot's statement, I do not know. Jill dx 08

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I was totally lactose intolerant before i found out I had Celiac. Now after 5 years of being GF I can tolerate all the dairy I want. It's wonderful!
Jamie RX/2005

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The gluten free diet will heal our small intestines and those enzymes that were destroyed as well. It takes some time for that to happen, but many celiacs find that they can eat dairy with no problem after being on the diet for a while. Diane, diagnosed 1999

----- Original Message -----
I would avoid cheese and all dairy. Supposedly the enzymes to break down dairy are destroyed by the gluten allergy. I am absolutely convinced that dairy is the cause of my Fibromyalgia. Dot

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Hi everyone, I am looking at trying to add in some dairy into my life. Would someone explain to me why some cheese states that it is gluten free and some does not? Do we have to be careful of cheese?
Thanks, Jill


Been to Tombouctou and back! Truely! (Timbuktu in English) photos and more Travel Adventures at www.flickr.com/photos/cdnnomad/sets
Recognizing Celiac Disease www.recognizingceliacdisease.
com/21.html

10 Tests that could save your life www.50plus.com/health/10-tests-that-
could-save-your-life/1676/

Dr. Alejandro Junger - 'Healing the gut' (from Dr. Oz) www.doctoroz.com/videos/3-day-jumpst
art-cleanse


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CINDYTW Posts: 5,783
4/23/10 6:53 P

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It was Oikos plain greek yogurt. I am reacting the same way to cheese too, plus stomach pain, so I think it is definitely back to casein free for me! I was off dairy for 2 weeks, per my doctor's advice.

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GFNOMAD's Photo GFNOMAD Posts: 1,498
4/23/10 11:36 A

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Sinus symptoms are common with dairy sensitivity. Your other reactions are more likely from the yogurt. Was it a plain yogurt? Which brand. Not all yogurts are gluten free.
Anything your body needs to adapt to means your adrenals are working overtime. If you have avoided something for more than 4 days, you should not have a reaction if it is ok for you. If you do have a reaction you should wait a longer period before trying it again to find your tolerance level. Less than 4 days, the previous ingestion ahs not cleared yur system. This is the basis of a rotation diet to uncover food sensitivites.
Barb (gf 29 yrs)

Been to Tombouctou and back! Truely! (Timbuktu in English) photos and more Travel Adventures at www.flickr.com/photos/cdnnomad/sets
Recognizing Celiac Disease www.recognizingceliacdisease.
com/21.html

10 Tests that could save your life www.50plus.com/health/10-tests-that-
could-save-your-life/1676/

Dr. Alejandro Junger - 'Healing the gut' (from Dr. Oz) www.doctoroz.com/videos/3-day-jumpst
art-cleanse


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CINDYTW Posts: 5,783
4/22/10 5:46 P

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I was prepared for having some type of GI problem from it but this was different. Within 20 minutes or 1/2 hour I had a headache, fast pulse, felt panicky for no reason, nauseous, had a weird feeling in the back of my throat...The last time that happenned I had spaghetti and bread! My sinuses are clogged up now too, now that I think about it...Just totally unexpected...

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ILLINITEACHER52 Posts: 7,256
4/22/10 5:36 P

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Dairy for me causes almost immediate sinus problems and also makes me feel depressed. (It must do something to my brain. Little problems that would normally cause no stress for me become major issues with major crying spells. It is NOT worth it for me.)

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CYCLINGGAL Posts: 13
4/22/10 3:55 P

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It's totally common for the two problems to happen, but also remember if it's been out of your system for awhile your body needs to adapt. Your GI flora will change with the food you eat. Technically if it's just an intolerance, you could rebuild the flora back by taking a probiotic and then re-instituting it. But if it is a true allergy, then obviously it's beyond the gut flora.

Just my two cents. I feel ya no doubt about that.

USE2BAGODDESS's Photo USE2BAGODDESS Posts: 2,703
4/22/10 3:43 P

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It is quite common for people w/gluten allergies to also have dairy allergies.

My reactions to dairy are not as pronounced as they are with wheat/gluten, but my energy levels plummet and my fibromyalgia flares up (which happens when my immune system weakens) So, I figure there is definitely a tie-in between the two.

Without dairy I feel better.

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CINDYTW Posts: 5,783
4/22/10 1:52 P

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I went off dairy for 2 weeks and had milk and yogurt this morning. I feel horrible...just like when I ate gluten for the blood test. Is it possible to have the same reaction to dairy? Has anyone had this happen? I don't think it is possible I had gluten...

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