Author: Sorting Last Post on Top ↓ Message:
ECHOBLUE1's Photo ECHOBLUE1 Posts: 3,809
3/29/10 2:17 P

Send Private Message
Reply
GREENCHILLI - Sounds like you are starting out well. One thing both my doc's told me is - yeah, be sure of 6 little meals/snacks, but DO NOT get hungry. If get hungry don't wait for whatever time schedule have. People have different systems and have different schedules themselves. Said I should go ahead and eat sooner, and if need be have an extra nutritious snack/meal when I start to feel hungry and make sure I eat soon enough NOT to get hungry. If I wait till I get hungry or wait too long to eat anyway, then the body goes into "starvation mode" and instead of using the nutrition for energy it gets stored as fat. That's why I was steadily gaining weight, too, because I was not eating enough in the first place, besides still eating wheat and not getting my nutrition at all, so am anemic also. And all the other bad stuff. It was a vicious circle. Now I have a handle on the CD and proper schedule and proper nutrition and it's working. It's a long haul, but worth it to feel better and be able to have a life. (not to say I'd still like to have a piece of whipped cream cake) chuckle Good for you, keep it up. Hugs, Echo

Echo from Tucson, AZ
GREENCHILLI's Photo GREENCHILLI SparkPoints: (0)
Fitness Minutes: (148)
Posts: 67
3/29/10 9:09 A

Send Private Message
Reply
Wow, Echo, thank you for that long post. It made me feel better.

I know it's working already and today is just day 4. The gas is almost non-existent already and the bloating is going down. I'm just waiting for the increase in energy and fatigue everyone is talking about. :o) It'll come in time. I'm still paranoid to eat before I have to walk my 2 youngest to school, but man am I hungry. I'll be able to eat in about another hour and 15 minutes. Now, that I have more breakfast foods at home that I can eat, I'm actually looking forward to it.

Have a great day!

 current weight: 200.0 
 
203
186
169
152
135
ECHOBLUE1's Photo ECHOBLUE1 Posts: 3,809
3/28/10 6:39 P

Send Private Message
Reply
My really bad - not knowing yet -- was two years ago I had really bad flu for 3 weeks. After I thought it was over, I still had very bad burning "d" and no matter what I did or did not eat it was the same. Also, during that time, I did not lose any weight, it crept up little by little. I was baffled. Having been in the medical field for several years, I decided to do a process of elimination. It took months of experimenting, stopping something to see what happened, adding something else, over and over to get some kind of handle on it. After months of misery and little by little settling into an almost normal -- I figured out that I had what I called wheat allergy - and lactose intolerant, too. I actually stopped eating whatever wheat I knew about and ate so many rice cakes and rice that I never want to see another rice cake again. I bought rice crackers and cookies from health food store. Wasted money as they did not taste good. And a lot of special gf foods had soy. Discussed it with doc and she pronounced "Celiac Disease". Then she scared the heck out of me by describing what it does to the small intestine and rest of the body. That my weight gain was a vicious circle of not eating enough at the proper times so I was always hungry, my body took whatever food I ate and put it to fat instead of nutrients. Then, because of the Celiac no matter what I ate the nutrients that should have been absorbed into my system in the small intestine were going on through and that's why I am anemic, etc. Then she sent me to a nutritionist who scared the stuffings out of me some more --. I came home with 5 pages of okay food and some absolute no-no's, plus the schedule on eating 6 small proper nutritional meals/snacks per day. I went home and threw out flour, pasta, etc. Had not eaten pasta for ages as it always tasted like cardboard anyway. Most other things like pastry, cake, etc, have made me feel bad so did not have them very often. have never been able to eat pie crust. Always just ate the middle. So that part was fairly easy because those things had always made me feel bad anyway. Then the next was learning to read labels - no packaged stuff, no canned baked beans or chili, no canned or pkged soup or anything I had thought was okay to have for quick, small and not too many calories, that I thought was a pretty good nutritional diet along with veggies and meats. I did not eat many fruits, except some canned in Jell-o salads or fruit salads. Also had only one kind of bacon on the okay list. Plus, all sausage, Italian, breakfast, processed meats (did not eat them anyway) all had some kind of wheat products. I had been having Rice Krispies for a long time, with milk of course, and discovered the milk was one of my problems, so stopped that. Then one day, read the label on Rice Krispies -- has "malt" in the process. Malt is barley. Shot down on that one. There are some Chex cereals of corn and rice that are not wheat contaminated. It's been long hard time reading more labels and learning more. My first problem was scheduling the 6 small meals. Then, I bought lots of fresh fruit, more veggies than ever. The basic weight loss diets have things made with wheat, so that made it hard to find the in-between snacks/meals. So, I was frantic for menus and recipes. On-line was still pretty limited for what I needed. Finally, went to library and found two gluten-free cookbooks that have even more info and lots of recipes and tips. Now, I feel better about having down to earth guidelines and recipes that I don't have to tweek. But most of the basic meal recipes are in our regular recipe books, we just haven't looked. It does take some planning and cooking, but it is worth it. I don't count calories and carbs, I use the amounts the doc showed me what I should have on my plate, and use a small plate instead of a large dinner plate. I slip up yet, but the longer I do it the easier it gets. My philosophy about it is that I've been sick for years with the wheat/barley/rye messing up my health and causing a lot of other problems. I don't want to feel bad any more and so it is self survival for me. That is what I hold on to. I'm not on perfectly and it is sometimes hard, and I get sabotaged every once in awhile when I don't pay attention if I go out. I can't have Wendy Burgers any more, but I can have Wendy's chili and baked potato and side salad with italian dressing. When I was only half into the routine, I'd already lost 7 lbs. that was motivating, also. I know it's hard to let go of the junk food, pastry, mac and cheese, cake, etc., but little by little you can do it. One step at a time. My doc and nutritionist said it could not be done all at once. And NOT to keep stressing out if I did not do it right the first few times. Lots more things to learn. My oldest son is lactose intolerant and wheat allergy - but his doc said not actual Celiac. My 4 year old great-grand daughter is very badly CD and other things. They are having a hard time keeping her system figured out. Anyway, I hope my sharing my experiences will help someone a little bit. I know there's husbands and kids to feed. It's hard. But keep up the good work and hang in there. Blessings and Hugs, Echo

Echo from Tucson, AZ
MARGIE100%PURE's Photo MARGIE100%PURE Posts: 1,514
3/28/10 4:35 P

My SparkPage
Send Private Message
Reply
One G-F doctor once said, "It starts with 3 years average of denial. This denial rides right into the days before, during diagnosis, even while learning to eat g-f." The emotional steps are not clearly marked. As you stumble through the steps make plans to reward your family and self for achieving the tiniest of goals. Stretch out the thoughts. Ritualize with celebrations and good conversations about the struggles and the accomplishments to get the needed social therapy in order to keep succeeding with any goals. I have faith in you. Remember you are loved. I have been g-f since 5-08 but some denial remains to strain belief and depress me.

The greatest love story is your own.
If you miss out of life to the fullest; they win.
You are the happiness master of your own mind.
Thought is an active dynamic energy to harmonize and corrolate good.
Clear all paths to love thru forgiveness.
I may not recognize the significance until some time later.
Is my resistance to change really that strong?
Impatience does not provide the time to learn the lesson;
Awaken new ways to approach the dissolving of a problem;
ECHOBLUE1's Photo ECHOBLUE1 Posts: 3,809
3/28/10 1:29 P

Send Private Message
Reply
When I started the gluten free diet it did not take too much because it really had all the best foods to eat and basic good food recipes that we're supposed to eat anyway. It's the bread I miss for sandwiches and I did enjoy a pizza once in awhile. But, pasta and other breads, have been making me feel bad for quite awhile, and now I know why. I have found recipes (in gluten free cookbooks from library) to make gf bread, cake, cookies, etc.,and have almost all the ingredients to make some good stuff. I'm thinking the kids/and my friends won't know the difference, especially if they don't know. Many of the ready made gf foods have soy ingredients, and soy makes me sick and I'm not supposed to have soy anyway. Had breast cancer in 1992 and was estrogen related and soy manufactures estrogen in the system, so docs say no soy. But, I think I'll be happy with the bread recipes - I want a sandwich so bad. Will let you know how it comes out. Echo

Echo from Tucson, AZ
JENCORINNE's Photo JENCORINNE Posts: 1,933
3/27/10 4:03 P

My SparkPage
Send Private Message
Reply
emoticon about the kids!
You have to take of you so you'll be there for future achievements, and as you get better you will be there in the future.

 current weight: 230.0 
 
265
242.5
220
197.5
175
CINDYTW Posts: 5,783
3/27/10 3:37 P

Send Private Message
Reply
For me it took a few days to notice the diet was really making a difference, then a week or 2 to notice significant improvement. My symptoms tended more toward pain and constipation so I am not sure about the running to the bathroom. My other digestive symptoms (not feeling good after I eat, a weird sensation in the back of my throat, nausea and bloating) took about 2 or 3 weeks to go away completely. I was also constantly hungry and that has just started to settle down after over a month. There is a light at the end of the tunnel! You will feel better and better each day and one day you will notice you actually feel GOOD!

 current weight: 187.8 
 
195
181.25
167.5
153.75
140
GREENCHILLI's Photo GREENCHILLI SparkPoints: (0)
Fitness Minutes: (148)
Posts: 67
3/27/10 3:32 P

Send Private Message
Reply
I didn't think there was a cookie cutter answer, but I had to ask.

On a good note, hubby just called and all 3 passed their test for the next belt level! He's going to take them to Dairy Queen to celebrate...which I should be there for. I just have to keep telling myself it'll get better.

 current weight: 200.0 
 
203
186
169
152
135
JENCORINNE's Photo JENCORINNE Posts: 1,933
3/27/10 3:30 P

My SparkPage
Send Private Message
Reply
I wish there was a cookie cutter answer but it varies greatly from person to person. Some after a few days some months and anywhere in between.
After my body dumped the inflammation(about 2 weeks) I felt better but it wasn't until I got glutened a few months later did I realize how much better I felt and figured out how long I've been dealing with CD(about 20 years).

 current weight: 230.0 
 
265
242.5
220
197.5
175
GREENCHILLI's Photo GREENCHILLI SparkPoints: (0)
Fitness Minutes: (148)
Posts: 67
3/27/10 3:16 P

Send Private Message
Reply
How long will it take for my digestive track to calm down? I'm sitting here missing my girls' taekwon-do testing because I couldn't stop using the bathroom. This is the stuff I am NOT supposed to miss. I'm sick of missing things. It's depressing for me and for them. It's only day 2, but I'm so looking forward to being able to do things.

 current weight: 200.0 
 
203
186
169
152
135
Page: 1 of (1)  

Report Innappropriate Post

Other Celiac Disease and Gluten-Free General Team Discussion Forum Posts

Topics: Last Post:
Fiber 12/8/2013 5:53:31 AM
inflamation 2/20/2014 2:25:02 PM
Potatoes?? 4/7/2014 10:24:55 AM
Low-FODMAP Diet, Anyone tried with success? 12/16/2013 9:49:19 AM
Does anyone grind their own flour? 12/22/2013 11:15:24 AM

Thread URL: http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=0x948x33007213

Review our Community Guidelines