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DOTSLADY's Photo DOTSLADY Posts: 10,019
1/13/07 1:57 A

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Frostyy- thanks for sharing that. I have heard many times people say that if it quacks like a duck ... just to go ahead and eat gluten free. No biopsy required. I understand this is controversial. I'd have done the same if in your shoes though.

My MIL was diagnosed in the 70s also. She was told to go off wheat and then when she felt better, that should could go back on it! So for years she suffered until getting a rediagnosis in her late 60s and after a broken hip with 2 subsequent surgeries because she didn't heal. It was torturous, poor thing. She's skin and bones.

I will look at Bette's fruit cocktail torte. We're having an ice-storm this weekend and will need something to cheer us up from being inside!

Angel



KNOWLEDGE = POWER. BODY = TEMPLE. FOOD = MEDICINE. PREVENTION IS THE CURE. YOU ARE WHAT YOU ABSORB!
One person's food is another person's poison.
__________
Celiac Disease: An autoimmune reaction from eating gluten grains: wheat, rye, barley and contaminated oats=nutrient deficiency=cancer. Have 1 of 300 symptoms? bit.ly/cdsymptoms
CD stories: bit.ly/cdstories
Nutrition/Cancer: bit.ly/Quillinnutrition


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FROSTYY Posts: 17
1/13/07 1:47 A

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Hi Dotslady;
I've had allergies most of my life, and was diagnosed as allergic to wheat when I was in my early thirties. So I switched to rye and oats and barley, and you know what that led to - a continued decline in energy, fantastic weight loss (down to 98 pounds), and life became really difficult. What with kids involved in various activities, living in the country, working full time, teaching Sunday school and taking accounting courses at night, life became almost overwhelming.
And of course, I cheated periodically to see if I could tolerate wheat again. Sometimes I could - for a day or so.
Eventually, in my late thirties, another allergist finally asked what my symptoms were when I failed to react to anything because my body was so stressed. When I told him, he said I was probably gluten intolerant, and to avoid, wheat, oats, rye and barley. What a difference! In a month, I was feeling a whole lot better, and my energy was returning. A couple of times I tried eating my favorite baked things and paid the price. If I avoided the gluten containg things I was fine - the moment I ate any of them, my body reacted unfavorably. You know how it goes at first.
As this was back in the 1970s, celiac disease was considered most uncommon. The phrase, "It's all in your head." was the usual comment I heard. I did contact the local celiac association and got some good info from them, but didn't attend meetings - my life was overfull at the time. Google didn't exist in those days - desktop computers were in their infancy. I didn't get the biopsy done either. If the symptoms were there when I ate glutinous foods and absent when I left them alone, then that was and still is good enough for me. Even a little sets me off now.
I love to cook, so I use Bette's books a whole lot. The fruit cocktail torte is a favorite with the whole family. It's often requested by the kids when given a choice of desserts.


DOTSLADY's Photo DOTSLADY Posts: 10,019
1/11/07 1:19 P

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Welcome Frosty - even though I feel like I know you already! emoticon

How many years have you been diagnosed, rather, how many years have you mistakenly eaten flour? EEKGADS! I was horrified to read that. Have you googled celiac or ever gone to a support group meeting in your area? A lot has been updated through the years!

And I have several gf cookbooks, a couple of Bette's - rarely use them. I'm glad to have them in case I should want to though.

KNOWLEDGE = POWER. BODY = TEMPLE. FOOD = MEDICINE. PREVENTION IS THE CURE. YOU ARE WHAT YOU ABSORB!
One person's food is another person's poison.
__________
Celiac Disease: An autoimmune reaction from eating gluten grains: wheat, rye, barley and contaminated oats=nutrient deficiency=cancer. Have 1 of 300 symptoms? bit.ly/cdsymptoms
CD stories: bit.ly/cdstories
Nutrition/Cancer: bit.ly/Quillinnutrition


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1/11/07 9:59 A

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Hi Frostyy. I too have a couple GF cookbooks, but I very rarely use them. I probably only used them a few times overall, although the dumplings you mention sound pretty tempting! I haven't had dumplings in 24 years!! I sure miss those. I made a few cakes from one of the cookbooks. My sister in law was very instrumental in my getting the cookbooks. She cooks for me all the time when there is a family function.

I have found that Swiss Chalet is pretty safe to eat at, and if you have it, Red Lobster. I have found the Red Lobster restaurant close to us will substitute a breaded dish for a broiled one with no problems. Sometimes it is nice to be special!
Pyeway

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FROSTYY Posts: 17
1/11/07 9:31 A

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Hi, everyone. I'm new to Sparks People and this group. It is good to find out a lot of the information that I've read here.

And yes, I gained weight once I could start eating again.

I can relate to you Pyeway - I was diagnosed way back when also. Kingsmill was the only supplier of GF bread here in Canada - they were affiliate with the University of Toronto, and it was $6.00 a loaf then, when you could find it. Rice was a staple of my diet. So I learned to cook and bake GF stuff for myself. A physiotherapist I was going to told me about a GF cookbook. Since then, the author has put out several books, and one of them deals with comfort foods - you can actually make dumplings that taste OK. She's done a lot of research on using alternate flours, and most of her stuff is REALLY good. Not good for weight gain, though, since it's eggs, fat or sugar that usually gives "our". food its flavor.

The author is:
Bette Hagman and the original book is
"The Gluten Free Gourmet".
Now there are several "The Gluten Free Gournmet Cooks....." books.

Like the rest of you I tend to gorge on things I really like or can eat safely, especially when I'm travelling, which we do fairly frequently now that we're retired. Eating in restaurants is like playing Russian roulette - so many servers have no idea what gluten is. So I often say I'm allergic to wheat (most understand allergies thanks to peanuts), but have no idea that white flour, crackers or pasta etc. are made from wheat. This is especially true south of the Mason Dixon line where wheat is equated to whole wheat only.Thank God for Immodium! It helps, at least with the diarreah.

Frosty

Edited by: FROSTYY at: 1/11/2007 (09:33)
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1/10/07 8:35 P

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If I was you Mah, I think I'd go back to the doctor who told you to eat all you want and tell him that you might as well go to a 3rd world country. Being in one and not having anything to eat, or far from enough, is the same as eating gluten when you shouldn't. The diarrhea, malabsorption of what you are eating, equals other diseases, chronic diarrhea, no nutrients necessary for growth etc. What an idiot. Buy your doctor a book on Celiac Disease and tell obviously he hasn't finished his education.

All the best to you.

Pyeway

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MAH2001 Posts: 5
1/10/07 4:02 P

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Replying to Pyeway, I can only say that the lack of knowledge about celiac disease by doctors in general has made me very skeptical when a doctor tells me anything. I really don't have much faith in them any more. My own doctor told me as long as I wasn't having diarrhea I could eat as much gluten as I wanted! Another reason to have no faith. mah

DOTSLADY's Photo DOTSLADY Posts: 10,019
1/10/07 7:38 A

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Bonus! emoticon

KNOWLEDGE = POWER. BODY = TEMPLE. FOOD = MEDICINE. PREVENTION IS THE CURE. YOU ARE WHAT YOU ABSORB!
One person's food is another person's poison.
__________
Celiac Disease: An autoimmune reaction from eating gluten grains: wheat, rye, barley and contaminated oats=nutrient deficiency=cancer. Have 1 of 300 symptoms? bit.ly/cdsymptoms
CD stories: bit.ly/cdstories
Nutrition/Cancer: bit.ly/Quillinnutrition


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1/10/07 5:08 A

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Isn't it strange how one doctor will put us on one diet,yet not knowing about, or bother to tell us about the one diet we should be on?? That really upsets me!

My doctor when I was diagnosed was one of the people telling me my pain was all in my head, that I needed counselling, and basically to stop bothering her. When I finally put my foot down to see a specialist, and was diagnosed Celiac, my doctor said, "Oh, yeah, celiac disease. I know about it"!! I was so ticked off. She knew about celiac disease, yet kept saying over the years that I was really sick. Wasn't a good scene. And she was from Europe, which has a very high population who have celiac disease.

Oh well, I'm "cured" now and I'm not crazy!! Bonus.

Pyeway

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DOTSLADY's Photo DOTSLADY Posts: 10,019
1/9/07 10:47 P

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Hi Hikingchic - glad to meet a fellow gf living person! It's so comforting to be with others who "understand."

Pye - I can't imagine what it was like back then for you without all the products avail today. Ya know, 13 years ago I had a friend who told me about a book, 20-Day Rejuvenation Diet by Jeff Bland. I went on his diet: wheat and sugar free. I lost a ton of weight (and this was right after thyroid diagnosis and taking Synthroid) - and never felt better in my life. Well, the only thing I could find to eat "mainstream" were rice crackers from Costco. It was cold turkey vegetarianism - I felt so alone in the world! Then we moved, I stressed and I stopped the diet.

Can you see the irony here? Man, why didn't anyone tell me about celiac disease!?

KNOWLEDGE = POWER. BODY = TEMPLE. FOOD = MEDICINE. PREVENTION IS THE CURE. YOU ARE WHAT YOU ABSORB!
One person's food is another person's poison.
__________
Celiac Disease: An autoimmune reaction from eating gluten grains: wheat, rye, barley and contaminated oats=nutrient deficiency=cancer. Have 1 of 300 symptoms? bit.ly/cdsymptoms
CD stories: bit.ly/cdstories
Nutrition/Cancer: bit.ly/Quillinnutrition


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1/9/07 7:56 P

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Welcome Hikingchic. Because we do not absorb anything before being diagnosed, once we are our bodies crave carbohydrates, hence trying breads, pastas etc. We now have opportunities available to us that don't make us sick either, so we all figure trying a little of this, trying a little of that won't hurt. It won't as long as we moderate it, but there is so much out there to try, and enjoy!

When I was first diagnosed, that was NOTHING to eat except plain, dry rice cakes. You know the ones they have now in caramel, chocolate chip etc? Try eating those plain, no flavours, no options, nothing. I tried making pizzas out of them, coating them in peanut butter and jam, anything to make them more appealing - nothing helped. There are SO many products out there now for us - anything the "normal" population can eat, is now pretty much available to us. Yeah! Thank God for progress. Those of you who have just been recently diagnosed are very lucky compared to what we had back then.

Pyeway

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1/9/07 3:44 P

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Hi! I too am new to SP and the GF team. I was diagnosed with Celiac last fall after being sick about a year and now looking back can see that it had started at least 6 years ago. I hadn't heard of it before and it all sounded very bizarre. My mom tested positive as well after having issues with Celiac for almost 40 years so I feel very fortunate to be diagnosed when I was.

Anyways, before I was diagnosed, I had lost 10 lbs in 2 weeks. Within 2 months after being on a gluten-free diet, I gained that back. Currently I'm up even more. I think part of it is bad eating habits since I usually could eat however much I wanted to and was always hungry. Then on top of that, sampling all of the GF goodies that I could enjoy. It is very strange because even before diagnosis, I was not a big bread, pastry, or pasta eater. So why do I have to try them now? emoticon I have since cut back on the GF breads, pastas, cookies, etc.

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11/26/06 2:58 P

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HI Yak2Shoe. Welcome to Spark and to the celiac group. Pretzels and shortbread are from Glutino. I believe they are canadian. However, if you can't get/find them where you are, the Hospital for Sick Children here in Toronto has a Speciality Food Shop,where the sell and ship GF items world wide. The link to them is: www.sickkids.ca. Try that. If you can't find the stop that way, type in sick kids hospital + toronto. I was there last week as they had an open house where you could go try products that different manufactors make. I tasted some amazing carrot cake! I don't know anything about thyroid, sorry.

Good luck to you. Keep us informed.
Pyeway

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YAK2SHOE's Photo YAK2SHOE Posts: 13
11/26/06 2:44 P

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I am new to this group but so glad I found you! I have spent the last hour reading every message and could relate to each one of them in some way. I was diagnosed with celiac last year about this time. I have been trying to do the gluten free diet on my own and finding it very hard. I too, lost weight after going gluten free. 25lbs, but I was very greatful for the loss! I have not tried many of the gluten free goodies but the ones I have tried were not good! SO where ARE these pretzels and shortbreads??? emoticon

Pyeway, I also have hypothyroidism which adds to the weight problem, good to have it checked. At first I was hyPERthryoid but after the treatment for that I went the other way...??? Put me on synthroid but couldnt level me out until they found the celiac disorder. Now that I can absord the synthroid I am once again on an even keel. Starting to loose weight again. Seems Celiac and Thyriod go hand in hand.

No one is guaranteed hapiness. Life just gives each person time and space. It's up to us to fill it with joy.

author unknown


 
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11/15/06 8:01 A

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No, I've never had my thryoid tested. I guess a lot of people gain weight in middle age, but what does the population consider as middle age? I'm 46. I've now got a belly and love handles, all of which I hate. I'm almost tempted to go back to eating gluten so I'll lose weight!
Pyeway

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DOTSLADY's Photo DOTSLADY Posts: 10,019
11/13/06 11:10 P

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Pyeway, have you ever had your thyroid tested? And don't most people gain a little weight middle age?!

KNOWLEDGE = POWER. BODY = TEMPLE. FOOD = MEDICINE. PREVENTION IS THE CURE. YOU ARE WHAT YOU ABSORB!
One person's food is another person's poison.
__________
Celiac Disease: An autoimmune reaction from eating gluten grains: wheat, rye, barley and contaminated oats=nutrient deficiency=cancer. Have 1 of 300 symptoms? bit.ly/cdsymptoms
CD stories: bit.ly/cdstories
Nutrition/Cancer: bit.ly/Quillinnutrition


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11/13/06 6:35 P

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Sorry. I know most people gain weight after being diagnosed, but I didn't until I reached my 19-20th year post diagnosis?? I'm not sure how long it was until I started gaining weight. I did know that celiac's tend to gain weight middle age. I researched this wonderful diet when I was first diagnosed for a paper in college and that is what I found. I was still very slim and a flat stomach after 3 kids until 3-4 years ago. How sad is that? I hate being GF!
Pyeway

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DOTSLADY's Photo DOTSLADY Posts: 10,019
11/13/06 2:19 P

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Well, you're blowing my weight gain theory out the door Pyeway! I guess I'll post a query to get more stories!

KNOWLEDGE = POWER. BODY = TEMPLE. FOOD = MEDICINE. PREVENTION IS THE CURE. YOU ARE WHAT YOU ABSORB!
One person's food is another person's poison.
__________
Celiac Disease: An autoimmune reaction from eating gluten grains: wheat, rye, barley and contaminated oats=nutrient deficiency=cancer. Have 1 of 300 symptoms? bit.ly/cdsymptoms
CD stories: bit.ly/cdstories
Nutrition/Cancer: bit.ly/Quillinnutrition


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11/13/06 9:32 A

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I didn't gain any weight once I was finally diagnosed. I started to gain weight the last few years only. Middle age spread?? The high calorie GF breads sure don't help. I'm still trying to find a lower calorie bread to use. They all seem to be about the same.

Welcome all new members. I haven't been on in quite a while. Busy, too busy. Fulltime work, evening classes, researching resorts for my daughters wedding, and finally, in my spare time, trying to finish a cross stitch picture for my daughter's wedding.

Pyeway

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DOTSLADY's Photo DOTSLADY Posts: 10,019
11/4/06 4:24 P

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Welcome Mizwizn! I'm glad to hear you're doing better. I'm of the opinion that most celiacs gain weight after diagnosis and going gluten-free. I was thinking it was because the villi were absorbing again ... I never thought about the extra calories from trying new foods!

From my experience, and I have documented my food in a diary, I gained 20 lbs after going gluten free. Mostly in my 2nd-4th months. I was seeing a nutritionist who wanted to treat my obesity before my celiac/nutrient needs, so I kept the diary. I didn't even explore much gf food, except the bread, which I ended up tossing, toasted or not. I was pretty paranoid to eat anything not a whole food, so I didn't try. I was too sick to think to even read labels - what a chore that was. Well, life was such a chore, really.

I plan on visiting that nutritionist and telling her what it's like to be celiac now that I'm better. She has no idea (she went on and on about how much food there WAS to eat and being "positive" about my change ... I didn't even care about that: I just wanted her to give me a menu of what to buy so I could prepare a meal mindlessly - which I was!)

And for gf cookies - I have tried one box of each of Pamela's: her shortbread is very rich and delish I think. I tried the pretzels - they're hard as a rock and not salty enough. I'm usually disappointed in gf food, so I try to save my money if I can.

I haven't had bread in 9 months now. I miss toast. That's where I USED to go overboard! It was an addicition I think. I used to have bread or pasta daily! I liked the hearty crusty old breads with I Can't Believe It's Not Butter. I'm glad I got to have them at all I guess?

Now I overindulge on potato chips.





KNOWLEDGE = POWER. BODY = TEMPLE. FOOD = MEDICINE. PREVENTION IS THE CURE. YOU ARE WHAT YOU ABSORB!
One person's food is another person's poison.
__________
Celiac Disease: An autoimmune reaction from eating gluten grains: wheat, rye, barley and contaminated oats=nutrient deficiency=cancer. Have 1 of 300 symptoms? bit.ly/cdsymptoms
CD stories: bit.ly/cdstories
Nutrition/Cancer: bit.ly/Quillinnutrition


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MIZWIZN Posts: 17
11/4/06 3:35 P

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Hi, I am new to SP. Glad I found this group. I was diagnosed with Celiac 2 yrs ago. I hadn't even heard of it before. When finally diagnosed was 93 lbs., and I'm 5'4". Now I'm 108 and feel so much better. Yes, I tend to binge on GF foods, especially the breads and rolls. I buy them at the local Wild Oats store. Bread is the thing I missed most when going GF. I have always loved sandwiches, now sometimes I have them for lunch and dinner. I found myself eating my GF candy, ice cream and lots of rice cakes. I didn't want to weigh 93 lbs., but I have a small frame and if I keep eating so much GF food, which I find is so high in calories, I'll soon be overweight. I failed to mention what it is doing with my budget as some bread is nearly $6.00 a loaf.

 
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10/19/06 6:44 P

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I'm not sure what it was actually, I'll have to check. I'll let you know.
Pyeway

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GLUTENFREEBABE's Photo GLUTENFREEBABE Posts: 73
10/19/06 1:28 P

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What's the brand of the shortbread cookies you like? I tried glutino, but found them a bit pastey. Totally edible, but not in an eat-the-whole-box way (at least for me...everyone's tastes are different).

 
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10/18/06 8:46 P

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I love the pretzels too. I tend to go for the shortbread cookies! Just like I used to have with my tea. I have eaten a whole box in one sitting, too many times. I love fruits and veggies, but I sure hate preparing them. Too much work. Have to get used to it I guess. Maybe the kids will chip in and help! hahahahahahhaha.......
Pyeway

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GLUTENFREEBABE's Photo GLUTENFREEBABE Posts: 73
10/18/06 2:27 P

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I can totally relate. I don't remember the last time I had had an oreo (even before going GF), but when I found out Kinnikinnick made GF ones, I had to have them! It was the same way with alot of things. Now, I'm trying to return to the way I was eating before (which wasn't very high in starches anyway...just whole wheat bread for the most part), deal with the fact that my body is absorbing better, and get past a few pounds gained when I was injured and unable to exercise. I too feel lucky that my gain wasn't more, and I'm feeling so much better to be emphasizing salads and other naturally GF foods. It'll balance out if we remember that having to avoid gluten is not license to have no other limits on our consumption.

and yes -- yummy pretzels!

 
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9/6/06 1:59 P

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Hi all. I tend to try a product once, overindulge,then usually don't eat it again as I seem to overdose on it! I just can't seem to justify the cost for items just for me! Although some of the GF stuff is good, most of it isn't. I eat some GF bread every morning as toast, then rely on leftovers for lunch, or a salad. I look at all the GF stuff on the shelves now, and not alot of it appeals to me.
Pyeway

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9/6/06 1:25 P

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Hi all -
I love the pretzels. It had been years since I had a pretzel and when I found the GF pretzels I ate the whole bag at one setting. That was before I found Spark People though. I haven't had a pretzel since I started my new lifestyle. I'd rather be normal weight then eat pretzels or those wonderful GF cookies that are so high in calorie. I do buy the animal crackers once in awhile. But I can't seem to do them in moderation either. Once the bag is open they are gone. So I save them for a special treat when I've lost weight and want to reward myself.

Eveline

Being a Christian isn't about religion. It's about a relationship with the One who made us. I'm so thankful to be one of His.

I can do all things through Christ who strengthens me. Philippians 4:13

Do not ask the Lord to guide your footstep, unless you are willing to move your feet.

God grant me the serenity to accept those I cannot change, to change the one I can,
and the wisdom to know itís me.


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GFNOMAD's Photo GFNOMAD Posts: 1,513
9/6/06 11:12 A

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Hi all,
I'm new to this group. I normally hang out in my local area group which is not a gf group.
Quote: "I totally meant to just talk about overdoing trying GF stuff, but I ended up bearing my soul, lol! I feel so much better to just be honest somewhere and for it to really be okay!"
This is so good! We all need to unload sometimes and our friends/family just don't want to hear about it.
I go on binges. I lost 7lbs when I was on holiday and now seem to have gained most of it back over the summer. I can't resist a bargain. I just finished a quart of Breyer's Heavenly Hash ice cream which was on sale for 1/2 price.
Yes, I know I shouldn't have but it was so good. Just kept going back for another bowl.
We often lose those social events of sharing around food (like the cookie thing). Pot Lucks are really hard. I get tired of asking what is in something and really miss all the tasting that is part of social occasions. That's why I love GF Pot Lucks with GF support groups.
I can't go near the Pretzels. If I do, even though I am counting and know the amount in a serving, I still seem to finish the package before I should. For me, they always add another lb.
Barb (gf since 1981)

Edited by: GFNOMAD at: 9/6/2006 (13:38)
Been to Tombouctou and back! Truely! (Timbuktu in English) photos and more Travel Adventures at www.flickr.com/photos/cdnnomad/sets
Recognizing Celiac Disease www.recognizingceliacdisease.
com/21.html

10 Tests that could save your life www.50plus.com/health/10-tests-that-
could-save-your-life/1676/

Dr. Alejandro Junger - 'Healing the gut' (from Dr. Oz) www.doctoroz.com/videos/3-day-jumpst
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9/4/06 3:12 P

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Overboard on GF foods? You bet!
My first summer as GF, I gained 15 pounds. 1 - I have always havd a huge appetite, and since I wasn't eating gluten, I guess my body was able to digest everything. 2 - It was summer in Houston. Since it takes a while to figure out what you CAN eat, I had stumbled upon Dreyer's ice cream (Edie's, up north)
Summer in Houston is miserable. Just walking out to your mailbox will put you in a sweat. And my eczema is triggered by heat. Looking back, I realize some variety of popsicles would have been a much better choice, but I had not yet joined a support group, so I didn't know which ones I could eat.
The first GF baked goods I found were awful. I almost wish it had stayed that way. Then I discovered Pamela's, Kinnikinnick, and Gluten Free Pantry. My waistline has never been the same since. I'm sure there's a bit of psychology to the whole thing. It's often been weeks since I had a brownie, muffin, donut, etc.. so I end up eating the whole GF box in just a few sittings!
So I/m having to learn to snack on naturally GF fruits and veggies instead of Glutino pretzels.
(but they're sooo good!)

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MEGHOUSE's Photo MEGHOUSE Posts: 764
9/4/06 10:55 A

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Hi WINNINGONE -- Janie, is it?

I don't have much time at the moment but read your first entry and was excited to read that we have so much in common. I'm 23 and have lived in Ohio my whole life--as well as for college. I was just diagnosed in June and ironically, not being able to eat so many of my favorite foods led me to binge on all the new, safe foods--including plates of melted cheese, ha!

I'm just under 5'7" and gained about 15 lbs. in 3 months--after reaching and maintaining my goal weight since January (ugh).

I'm sorry you had such a rough year and can identify with people not understanding the disease. I feel like so many of my friends and family think it's all "in my head" and no one's very helpful in terms of me losing the weight I gained because I'm still at a normal weight (except all my clothes are awfully tight!).

Anyhow, welcome! I'll be back later.

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9/3/06 8:05 P

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Definitely! The pretzels are awesome! Thankfully, once I "overdose" on a food, I tend not to go back! Could be as big as a barn by now.

Pyeway

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SASSIBRIX's Photo SASSIBRIX Posts: 946
9/3/06 7:40 P

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Yes, I agree. I did find the best GF pretzels and went overboard on them. Anyone else like Glutino pretzels? emoticon I try to look at the packages now to see what a serving size is before eating something GF and to see what the calorie count is. And I only take one slice of GF bread at a time out of the freezer. It helps a little.

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9/3/06 7:30 P

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Hey Winningone! I have also eaten a whole bag of something tasty GF! Usually the shortbread cookies I have found. Shortbread cookies and tea!! Yum! We've all done it so don't be hard on yourself. Just know you are out of that negative situation now and can, and will, control what you eat from now on. Take care!
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9/3/06 7:24 P

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Thank you SO much for your supportive responses!

I totally meant to just talk about overdoing trying GF stuff, but I ended up bearing my soul, lol! I feel so much better to just be honest somewhere and for it to really be okay! I'm so glad I found this group!

Anyway!
I think I tend to be very curious and it encourages an impulse to buy all the special GF things I've been learning about. But then I'm stuck with a whole package (if it's good or not) and I feel guilty dumping it.

Plus, sometimes my, erm, "gluten-enabled?" friends see my GF food like it's inedible to them or substandard, so I can't expect to share any GF stuff like I might share a "normal" snack or cookie. I have to try to sell them on it, so it's not, "want a cookie?", it's "want a GF cookie? It's made in Spain and I swear it's really not that bad."

Winn
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9/3/06 6:51 P

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WINNINGONE- I can totally relate to the taste testing. I've been doing too much of that lately. I just made another trip to Whole Foods this morning. I've just recently recommitted to staying gluten and dairy free and I've been trying EVERYTHING I can find. I need to cut it out before I start gaining weight. I was just psyched to find so many options. I love Whole Foods. On a side note, thank goodness you're not living with such a negative woman anymore. Nobody needs that.

*maia

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9/3/06 3:42 P

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Whoa! What a terrible thing for someone to do. But it is not unusual for people not to believe you when you say you must not eat GF foods. I had trouble with my mother for years. This lady definitely had issues. It is a good thing you now realize that the problem is with her and not with you. You go girl!

I also have to stay away from all dairy and egg whites, which makes overeating cheese a nonissue (although I love the stuff). But overeating GF processed foods was never a problem for me. I never found them to be especially good. My big problem has always been potato chips and dark chocolate. We have only found one kind of GF bread that is good and that is the kind we found at Whole Foods in Phoenix. A local bakery makes it. When we get to Phx, we load up and put them in the freezer.

With your height, you may not lose much weight, but will likely gain it in muscle tone. So, even if you lose weight, your inches may stay they same too - know what I mean? - as long as you are doing some strength training along with the healthy eating.

I know you will do well here. I lost almost 25 lbs. since January and have been able to maintain it. I still have a few to go (those last few are always the hardest!) Good luck!



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9/3/06 3:40 P

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Welcome to the group WINNINGONE. Wow, you've had quite a year!! I'd like to say a few things, both as a fellow celiac, but also as a mom. First, having gone away to school was a stressful experience as you well know now. I know for a fact that pretty much all students gain weight while they are at school. It's the hectic schedules, late nights, not cooking properly for yourself etc etc. What you are mostly eating is carbs, and bad carbs at that. I think everyone who is diagnosed as a celiac goes thru the "tasting" everything phase! We haven't had any "good" food we could tolerate for so long, it's natural to want to sample everything. Now that you have, you know what is out there to eat, know there is a variety to eat, but also eat a balanced diet. You know the food groups, what you should eat, what you should get out of it, so now as an educated, both school and celiac life, you can take control once again of your life. I know you can! As a mom, I am ashamed at the way that woman treated you. She sounds like she mentally abused anyone who came in contact with her! I'm pretty sure by the sound of it she treated her own kids, if she had any, and her husband the same way. She wanted to control everything in her house, including you. You were smart to know it was happening, but couldn't escape due to a lot of reasons. You should feel good you got away from her with only a few pounds gained; it could have been so much worse - physical abuse, she could have changed the locks on you therefore you would have had to go thru the courts system to get your stuff out, tinkered with your car if you had one there etc. You know she mistreated you now you can move on to a healthy life, both mentally and physically. You have the power in you to pick yourself up, dust yourself off, and move on. Remember to limit your food to when you are hungry, and stick to your diet. Otherwise I'm afraid that evil woman has won! It's okay to sample all the goodies out there, but space it all out, it's not going anywhere.

Good luck to you. I'll be watching for more of your messages to see how you are doing. I wish you well.
Brenda

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9/3/06 2:51 P

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I'm 22 and looking to lose around 4 to 8 pounds of weight I gained through trying to sample every gluten free product in existance.

I've been happily diagnosed for a year and a few months. Last year, as I was adjusting, I was away for school renting a room from a woman who wanted to be my mother AND my competition. I internalized a lot of the abuse and it really helped me to sabotage my diet. Some of my weight came from confusion as I was trying to redo my whole diet (and the woman kept telling me I was puny and weak and nearly accused me of eating improperly. She went so far as to imply I was making up Celiac Disease and really was just trying to go "lo-carb" or mask disordered eating!!! I'm very short, five-feet, so my weight range is a lot smaller than average, but so am I. I'm athletic and quite small-boned. My CD was only active for a few years, so I wasn't losing weight yet (but I did have to eat a lot to keep it on and that was ALSO very uncomfortable! I also kept up some of my over-eating type habits after diagnosis, which wasn't good and I suddenly felt stuffed all the time. It took a little while to realize I was eating enough to make me sick!) My friends told me the lady was attacking me because she was jealous of me. It seemed ridiculous for a 40+ woman to be trying to get even with a college kid. All I knew was that it felt awful to have her criticizing me.

So I ate to prove her wrong, and I ate a lot of crappy food as long as I wasn't allergic to it. I was getting depressed during the winter (I was in Ohio and there's no sunlight for months) and starting to REALLY eat eccentricly, like globs of cheese melted on plates and snacks at 3 in the morning if I woke up, which after a while I always did. I figured out I could safely eat many candy bars and chips, so I frequently would buy different kinds and brands to taste test ("which cheese puff tastes best? I haven't had a Muskateer bar for a while...and look, there's three limited edition flavors, too!"), and did that all the time. I gained my weight in gluten free cookies, brownies, and snacks (you can sorta flip out and want to taste all of them. I didn't even like cookies and brownies THAT much before and suddenly I was eating multiple servings every day!!)To add to all that, I was always grazing and never eating regular meals because of my school schedual. It's kinda amazing I've only gained 8 pounds from the way I was eating, but I think it's because I have muscles naturally and it must rev my metabolism a bit. Anyway, it was no way to live and I think my body composition didn't appreciate it much, either.

So that's my story! It's taken a few months to just get psychologically and emotionally over being totally NEUROTIC from the whole experience and I've had to do a lot of work to normalize my eating to begin with. I've conquered the really bizarre habits and now I'm ready to focus on losing some excess fat by getting into a truely healthy way of eating for the rest of my life! I may not lose too much weight (I definately don't want to lose _more_ than my goal) , but I figure I could reduce my body fat ratio a bit since I gained it all in sugar and fat! (and spite!?!?)

Edited by: SLIMPLIFY at: 9/3/2006 (15:14)
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