Posts: 1,441
2/16/10 1:56 P

If the problem is gluten, then one needs to eliminate all wheat, rye, barley and oats (except specifically labeled gf).
One misconception I repeatedly see is people only consider celiac disease not gluten sensitivity. Only a small percentage of those with gluten sensitvity will have CD. Gluten sensitivity does not show on the celiac blood screening tests. Either one, requires an elimination of all gluten.
If you have a wheat allergy, it will not show on the Celliac blood screenings but it will show on an allergy test. It is really important to understand these differences.
Today, I came across this link The Gluten Free Quick Start Guide from Living Without Magazine www.livingwithout.com/resources/gluten_fre
e.html She also has handy tips under the tab 'Newly Diagnosed'.
Barb (dx 1981)

Edited by: GFNOMAD at: 2/16/2010 (14:42)

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2/16/10 1:18 P

I agree about talking to your DR. Ask to be tested for food allergies and Celiac Disease.
The shaking makes me think neuropathy or sciatica but talk to a Dr to find the cause.

Posts: 1,921
2/16/10 1:17 P

I agree about talking to your DR. Ask to be tested for food allergies and Celiac Disease.
The shaking makes me think neuropathy or sciatica but talk to a Dr to find the cause.

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2/16/10 11:43 A

I added to your blog. The spasming is a bit different, you might want to have that checked like suggested.

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2/16/10 11:40 A

Have you talked to a doctor, nutritionist or naturopath? Someone who will look at everything going on and see what's up?

Sounds like wheat could be part of it, but the spasming is a little worrisome...

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2/16/10 11:08 A

I guess I just don't know if it actually is the wheat or if there are other factors playing into how I'm feeling...

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2/16/10 9:22 A

My system, as I tell people around me all the time since I tested negative for Celiac (after a 3 month challenge, yuck!) is that I feel crummy when I eat it, and great when I don't, and that's enough for me to happily stay away. If that works for you, don't worry about what everyone else says.

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2/16/10 9:09 A

It is a good time for me to respond to this because I just "fell off my wheat free wagon" the last couple of days. I am not celiac but have gluten "allergy" evidently. The first thing I notice is body aches, all over, like I have the flu! But that doesn't usually happen for a few hours. My stomach gets all grumbly and sick feeling and I get all bloated. I can tell by the way my rings fit and the fact I feel like I have to keep "sucking my stomach in". I also get very grumpy, whether that is because I am feeling so bad or something else, don't know. I want to keep denying that it is the wheat but every time I do this to myself, I come fact to face with the truth. It is a struggle for me because I absolutely love whole wheat. I guess I need to come to the place where I love feeling good even more!

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2/16/10 9:01 A

I agree that you should listen to your body. I am irritable, bloated and my joints are achy if I eat wheat.
If others won't listen, just do what is right for you. They might eventually see the difference and become a believer that what we put in our mouths directly affects how we feel and how our body works.

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2/16/10 8:48 A

Sounds like me, and I still haven't quit eating wheat, I'm afraid. Also sounds like you'd be better off listening to your body than to other people!

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2/16/10 1:35 A

Can you guys please read my most recent blog...

http://www.sparkpeople.com/mypage_public_journal_individual.asp?blog_id=2886999

For the most part everyone I tell about going wheat free is like "why?" Even my trainer. I explain the symptoms and they all say "that doesn't sound like wheat intolerance".

During the two weeks I didn't eat it I felt amazing. Happy, not bloated, had energy etc... So here I am after a week of eating wheat and feeling horrible. I'm irritated, tired, and my "guts" hurt, like they are grumbly. (I don't know the technical term). I don't know if how I am feeling is related to eating it or not...

I would like some of your guys' (and gals) opinions on what you think is happening...

Thank you!
-Cari

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