I was diagnosed by accident by the gastroenterologist. My primary doc sent me for a colonscopy cause of low ferritin (iron deficiency w/out anemia), but I asked him for endoscopy cause of something I'd googled - he found scalloping/celiac).
He did blood labs after the endoscopy (positive), then I had a followup at month 6 gluten free to see how the diet was working. I've had annual checkups for celiac panels for three years, then this last visit he checked my fat soluble vitamin levels. I think those should have been done at the first visit though.
A specialized 'celiac' doc might be a tough order. The gastro referred me to a nutritionist (the experience wasn't as helpful as I'd have liked, but that's only my experience).
I would suggest, if you can, to go to a celiac support meeting in your area and talk to people for their suggestions/referrals. You might also talk to the health food store manager. Oftentimes the support groups have classes there, so they might have ideas, too.
Just google your "city/state celiac support" to see what comes up.
Edited by: DOTSLADY at: 12/20/2009 (01:54)
KNOWLEDGE = POWER. BODY = TEMPLE. FOOD = MEDICINE. PREVENTION IS THE CURE. YOU ARE WHAT YOU ABSORB!
One person's food is another person's poison.
Celiac Disease: An autoimmune reaction from eating gluten grains: wheat, rye, barley and contaminated oats=nutrient deficiency=cancer. Have 1 of 300 symptoms? bit.ly/cdsymptoms
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|2,877 Days since: gluten