When I was "gold standard" diagnosed only four years ago it was my understanding it was important especially when dealing with doctors; that DOCTORS wouldn't take you seriously without that diagnosis. Indeed, when I visited new doctors, they wanted that paperwork (almost disbelieving maybe because I wasn't rail thin and starving looking). :P
You hit the nail re: family members and an official diagnosis. I know some families wouldn't take it seriously without it, but others are fine without. That's personal.
I know one person who had definite DH-type symptoms and or canker sores (running down her throat). Her celiac panel was negative, so she did genetic testing and she had two genes, one from each parent. She went gf and hasn't looked back. She thought she had a red food allergy for years :P.
Official diagnosis on your insurance might be used against you for future coverage, OR it would allow further studies/testing if you need it, too. I often ask for further blood tests and they're covered. Once I had a denial, but the codes were wrong: I had to have them change my dx code for a celiac diagnosis.
I've also read some kids are denied coverage.
Edited by: DOTSLADY at: 12/11/2009 (14:51)
KNOWLEDGE = POWER. BODY = TEMPLE. FOOD = MEDICINE. PREVENTION IS THE CURE. YOU ARE WHAT YOU ABSORB!
One person's food is another person's poison.
Celiac Disease: An autoimmune reaction from eating gluten grains: wheat, rye, barley and contaminated oats=nutrient deficiency=cancer. Have 1 of 300 symptoms? bit.ly/cdsymptoms
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|2,881 Days since: gluten