Update: It doesn't seem to matter what I eat. I've been 100%GF for the last two weeks. (About 90% GF since May) and I'm still having stomach/digestive problems.
I can't remember when the big bad symptoms returned but it was sometime over the weekend. Which really sucks! I was really careful! No nuts, milk or gluten touched my lips and I had to walk really quickly to the bathroom. (We were out having a picnic).
So, what do I do? It's been about 5 months since I first went to the doctor. Do I go see another doctor? The best thing is that since I can tell the pharmasict that I have been to the doctor and they've said everything is normal I can get some GastroSoothe pills. (Hyoscine Butylbromide tablets) they have been my life savers over the last year.
Two months ago, I did a detox. Lots of pills everyday, with lots of vitamins and natural things. I started feeling normal with these, and felt so wonderful afterwards. I emailed the company and you can take them everyday. Maybe that's what my stomach needs...
I've got into a good routine of having fruit for breakfast and dinners dessert. Just need to get vegetables into my diet.
Hi Girlvoilent, I usually know down to the hour and as much as 4 days back what caused each of the last 50 head and stomach aches. I laugh at myself on the challenge program where you have to deliberately cause yourself pain and harm at least one more time to confirm which food item causes from the milder discomforts and the extreme I will remember that one, pain. Since I took the big huddle of gluten free by choice even though the antibodies in the white blood cells were not present; I have found dozens of ways and other choices to improve my responses at and to making food choices and my out-look on food. So here I go again deliberately causing pain today and journaling it so my future will look brighter!
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Fitness Minutes: (99,301) Posts: 18,683 10/22/09 12:15 P
I see NO reason for you to eat gluten if you know it makes you feel bad.
I do not know if there a set time for you to consume gluten before taking the tests. I did for a week and ate it 3 meals a day and thought that would be enough and my test was negative and I felt really bad.
I did not bother for the biopsy as I was told I had to have gluten for that too (not by my Dr, just people w/ Celiac) and I was not willing to injest again as the end result is the same. Do not eat gluten.
I've heard different things about the blood test and wondering if others might put their 2 cents in for me. I know just because it comes back negative, that it doesn't means she won't have celiac. That is so frustrating. I wish the testing were better for this disease without having to get a biopsy. I am having my daughter (20 months) tested for celiac. She went to a GI around her 1 yr birthday and the doctor wanted to rule out allergies first. She has seen 2 allergists and the test (blood & skin) have come back negative. We had moved in between her seeing these 2 allergists. Since it hasn't improved every time I've tried to give her gluten, then I decided it was time to go to a GI again. Her and I have been on a GF diet since she was about 3 months old. This GI doctor said she needs to eat gluten for about 2 weeks, then can have the blood test done. Is that long enough? The last GI doctor said it would need to be 1 to 2 months before doing the blood test. She just started eating gluten yesterday. I am actually surprised her bottom hasn't broken out in a rash yet. In the past, every time she ate gluten she'd get a rash within the next day. I figured I might want to eat gluten as well and get tested for it too. I have no IBS symptoms when I am on the GF diet and feel TONS better emotionally and physically. I already feel like crap since eating the gluten since yesterday. And I am so bloated! I look like I'm in my 2nd trimester with a pregnancy & I'm not pregnant!
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My test was negative as well, I was off gluten for a month, than ate it for a week and took the test. I was told by many it was not long enough back on gluten and I had to do it again.. or I had to also be on gluten for the biopsy.
Basically.. I said pound gluten to that, I am not going to consume it intentionally again for weeks for a test which really will not 'fix' anything.
If you can eat a little gluten, you are lucky. I cannot eat any. two bites of a cupcake has everything shutting down on me within 30 minutes. Much easier to abstain if you ask me!
current weight: 107.0
Fitness Minutes: (55,643) Posts: 34,042 10/18/09 7:53 P
I know frustration like this. I am just getting back up out of bed today. I have been bedridden for 3-4 days. All I can figure is I reacted to something in the GF stuffing mix I made for thanksgiving. I have been so careful to keep gluten out of my diet, and have felt so much better for so long. Now to have this happen. It really sucks. They still have no idea why I am as sick as I am. My celiac test came back negative earlier this year - while I was still eating wheat. All I know is giving up gluten has helped me feel so much better. I am going to stick to it, and also stick to my new thing - if man made it, I won't eat it.
Katrina Saskatchewan Time Zone
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I went to the doctor about 4 months ago and had all the blood and stool tests. The Gluten Allergy test came back negative, but since I hadn't been eating gluten for a few months before that I don't take that result seriously.
I've realised that I can have small amounts of gluten without any "running to the toilets" or stomach aches.
A month ago I did a detox for a week, which was great. I felt so much better afterwards until last week when the yucky symptoms came back.
I know I am allergic to nuts and seeds (also found out about a slight allergy to kiwifriut), could it just be a cross contamination from that since I have been really careful with gluten.
I just needed to get this out and see if anyone has any advice. I am trying to have fruit and some fiber everyday and drink enough water. I just wish there was a simple test to check for whatever this problem is! I am 24 yrs old and hate having to think about what I can and can't eat.
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