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FITCHIC8's Photo FITCHIC8 Posts: 187
12/15/09 2:55 P

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NORMAMURIEL- Thank you for sharing your story. I have had the most horrible scalp for as long as I can remember, but for the past several months (before going gluten free) my hair was falling out like crazy & I was getting medium sized scabs on my scalp too! I also got them along the side of my face, sometimes on the back of my neck & on my back. I am very slowly healing but noticing a huge difference already. I still have the old ones, but there's not the new ones forming. The old ones are starting to heal, I cannot wait until I get my thick hair back again!


Thank you PEACHES!! I will keep that in mind. I have been suffering with fatigue for most of my life. I don't know if that is from my fibromyalgia or thyroid. Will definitely have to talk to my Dr.! Thanks again!

Edited by: FITCHIC8 at: 12/16/2009 (09:16)
"Be Happy Healthy & Stong!" ~Lauren
NORMAMURIEL Posts: 106
12/15/09 8:12 A

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I had these horrible scabs all thru out my hair coming down the side of my face for years. One doctor thought it was dandruff and gave me a shampoo. My hair was falling out so bad my husband marveled that I had any hair at all, it was very thin on top. Before my diagnosis the doctor scrapped off a huge scab that was on my forehead going up at least 2 inches into my scalp. Long story short I go back to the doctor a few months after the diagnosis and he asked me when he could scrap of the rest and I told him they disappeared after starting the diet. He didn't believe me and looked thru my scalp. He was amazed as I was, it took a little while but one day it just dawned on me they were all gone, and I no longer plug up the shower drain. I can also tell when I get gluten because those scabs now appear down my back, but go away after my system cleans itself out again.

FITCHIC8's Photo FITCHIC8 Posts: 187
12/14/09 2:18 P

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Thank you Peaches! I have been suffering from major fatigue. Since I went gluten free around Thanksgiving time I am feeling so much better. My skin is better, energy is better, I can see the abs I worked so hard for because the bloating is gone, and best of all my stomach doesn't hurt anymore. I am so happy that I took the time to research! I am in the process of looking for a new Dr. I will keep you posted :)

"Be Happy Healthy & Stong!" ~Lauren
PEACHESII's Photo PEACHESII Posts: 781
12/13/09 1:35 P

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Dash and Fitch ... just a heads up that undiagnosed Celiac Disease can lead to hypothyroidism ... it may not show up in a TSH (the normal thyroid test), but you should ask to be tested for thyroid antibodies.

Evidently thyroid protein is very similar to gluten protein from the body's perspective. So, if you are suffering from fatigue, this is another avenue to pursue.

I have celiac disease and am intolerant of casein (dairy) and soy. I also have Hashimoto's thyroiditis.

You'll need to educate yourself, because doctors seem to go into a trance when it comes to thyroid and they either don't want to treat it or they want to treat it with ineffective synthetic medications that leave patients with lingering hypo symptoms.

The research I've seen shows a 50% correlation of CD to Hashi's, but I'm in a lot of thyroid groups and I'm seeing a higher correlation.

PeachesII

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FITCHIC8's Photo FITCHIC8 Posts: 187
12/12/09 11:18 A

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whew that would get expensive! thank goodness you discovered gluten free :0)

"Be Happy Healthy & Stong!" ~Lauren
DASHCRAFT0329's Photo DASHCRAFT0329 SparkPoints: (1,012)
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12/12/09 12:09 A

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It is. I have eczema in my hair that nothing would cure (except the shampoo called Loprox with a $50 copay for an 8 oz bottle). It's better now, and I only have to use the shampoo about once a month.

If I'm going to pay $50 on my hair, I'd like to have a cut and/or a color too not just flake free scalp.

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FITCHIC8's Photo FITCHIC8 Posts: 187
12/11/09 7:24 P

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DASHCRAFT- My eczema is going away too! Isn't it wonderful!

"Be Happy Healthy & Stong!" ~Lauren
FITCHIC8's Photo FITCHIC8 Posts: 187
12/11/09 7:23 P

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Thank you for this thread! I was in the ER back in May for severe stomach pain & abdominal bloating & the Dr.'s did NOTHING for me. Gave me muscle relaxers & sent me home! I have been to numerous Dr.'s in my life, and none of them EVER suggested going gluten free. I was diagnosed with IBS at 13 years old, and was never given any help with it. I know that I cannot eat gluten, simply put because since I went off gluten in early November- I haven't had ANY of the HORRIBLE symptoms in my body I used to have. My arms & legs used to get numb & tingly, I used to have to sleep after every meal, thought I was going to throw up every time I ate & had SEVERE abdominal bloating & cramping whenever I ate, it was a horrific way to live, and I have suffered with these symptoms for most of my life. And now finally ALL the symptoms are going away ( except for the fatigue, but I have fibromyalgia as well). I wish that Dr.'s would spend more time learning about this condition as it is very serious (Celiac Disease).

"Be Happy Healthy & Stong!" ~Lauren
DOTSLADY's Photo DOTSLADY Posts: 10,015
12/11/09 2:54 P

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emoticon Dash!

KNOWLEDGE = POWER. BODY = TEMPLE. FOOD = MEDICINE. PREVENTION IS THE CURE. YOU ARE WHAT YOU ABSORB!
One person's food is another person's poison.
__________
Celiac Disease: An autoimmune reaction from eating gluten grains: wheat, rye, barley and contaminated oats=nutrient deficiency=cancer. Have 1 of 300 symptoms? bit.ly/cdsymptoms
CD stories: bit.ly/cdstories
Nutrition/Cancer: bit.ly/Quillinnutrition


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DASHCRAFT0329's Photo DASHCRAFT0329 SparkPoints: (1,012)
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12/8/09 11:44 P

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Oh my gosh! This thread just confirmed what I was feeling. I've known that I had a wheat allergy and soy allergy for 3 years but blood tests all come back that I'm negative for celiac. I have always cheated and just put up with the symptoms until recently when they got much worse. I also have been diagnosed recently with Lupus. My rhumatologist doesn't think there is a connection, with the wheat allergies, the psoriasis and eczema and the lupus. After reading some of this information I see that my thoughts were confirmed even if the doctor doesn't believe it.

Now that I've been gluten free for 8 weeks, my eczema, psoriasis and tummy problems are almost non-existent. I have another ANA blood test to check my lupus levels in about 5 weeks. I can't wait to see if that test is better too. I had been considering another celiac test but didn't want to start eating the gluten and feel horrible again. I think I just confirmed it myself. I don't need a doc to tell me that I'm celiac.

Thanks for all the information. I'm glad that I found it!

I love the receipes at www.livingwithout.com (love the magazine too) and I also love the Quinoa pasta that I recently found too. It's made being gf tolerable. Oh yea, I get gf pizza dough from Picazzo Pizza here in Arizona.

Blessing to you all!

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NORMAMURIEL Posts: 106
10/12/09 7:54 A

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Look at it this way, the sign says it is OK to cross, yet the traffic that is wizing by tells you otherwise. Do you cross because of the sign or do you stay put because you know you are going to get hit?

Deciding if a doctors diagnosis is the answer or what you body is telling you is the same thing. If you were expecting a miracle cure with immediate results when you went GF you set yourself up for failure. It can take a while; you have to remember even the pills and shots the doctors given don't work immediately you can expect a diet change to do any different. I also wonder if you are getting gluten in your system and don't even know it. Since you went back on the gluten I would stay the course, but you really need to thing thru what you are going to do after the results. Maybe spend this time reading up on the disease and what all those hidden pit falls are.

DEBARM29 Posts: 9
10/12/09 12:31 A

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I am a nurse also and do eduction on CD and GI. Stuff like this makes me crazy. If you have issues with anemia or anything else have been gluten free and go back to eating it and feel bad then you are gluten intolerant. There is NO test for GI and NO test that is 100% reliable for Celiac Disease, and NO test to diagnose early Celiac disease. The only test you can do is to go off gluten completely for 6 wks to 6 months. If you feel better then NEVER eat it again. If your don't feel any different then try a gluten challenge and eat it at every meal after that. Get sick???? Then stay away from it. It does not matter what a test show. If you are GI you have to diagnose yourself. The doctors cannot diagnose gluten intolerance. Again, in November you test could be negative, it means nothing.
If you are Gluten intolerant you are doing damage to your nervous system and ruining you health with every bite you eat. Hope this helps.

PUMA8406's Photo PUMA8406 Posts: 717
10/9/09 2:13 P

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yipes sorry i meant to update :c)

since i wasn't really feeling too different going non-gluten, i told her this, and finally (after like a trillion calls back and forth with nurses), she said to go ahead and go back to eating normally until november when i have a 3 month follow up appointment, and she'll go ahead and do the celiac panel at that point. so we'll see!! now i'm just going to see if my body reacts any differently to going back and eating gluten. so far, i think i just jumped back into it too quick, cuz the first 2 days my tummy was a bit upset. but since (it's now been 6 days) it's been ok. we'll have to see what the b12 and iron levels are, too, from my appt wednesday. anyway. there's me!

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DOTSLADY's Photo DOTSLADY Posts: 10,015
10/7/09 8:17 P

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Did she call back and what did she say?


KNOWLEDGE = POWER. BODY = TEMPLE. FOOD = MEDICINE. PREVENTION IS THE CURE. YOU ARE WHAT YOU ABSORB!
One person's food is another person's poison.
__________
Celiac Disease: An autoimmune reaction from eating gluten grains: wheat, rye, barley and contaminated oats=nutrient deficiency=cancer. Have 1 of 300 symptoms? bit.ly/cdsymptoms
CD stories: bit.ly/cdstories
Nutrition/Cancer: bit.ly/Quillinnutrition


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ELVENSONG1's Photo ELVENSONG1 Posts: 2,078
10/2/09 7:47 A

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They can always tthe Elisa test for Gluten without you having to eat gluten and test for other IgE allergies as well.

Kerry

Co-Leader of The China Study

Student at Hogwarts

Have a Happy Day Everyone!


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PUMA8406's Photo PUMA8406 Posts: 717
10/1/09 10:31 P

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so, just as was predicted might happen, this crazy hematologist has decided "well since you don't feel any different going gf, why don't we go ahead and try the celiac panel just to be sure" and i'm thinking HHEELLLLLLLOOO i haven't been EATING gluten, so it won't be accurate!!! i called the nurse and said this, and i'm waiting for a call back after she talks to the hema. i also asked if she would be testing for pernicious anemia as well, since the gf didn't really make for much change in my lack of energy, so perhaps it could be for other reasons that i'm not absorbing iron and b12. but you'd think that would be something she would have known before saying yes to the celiac panel test.... doctors can be frustrating sometimes. sorry, just venting :c) i'll talk to the doc whenever i get that call.

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