Author: Sorting Last Post on Top ↓ Message:
CRULES Posts: 1
1/13/10 7:33 P

Reply
Interested in those who also have heart disease (heart attack at 48), thyroid disease (overactive) and any other autoimmune/absorption of vitamin/mineral issues.

My response to a gluten-free diet was immediate - within a couple days - no bloating, not waking up with nausea every morning - amazing! First was diagnosed by biopsy w/ Celiac; further bloodwork (genetic marker and gluten antibody) indicated that I am not celiac but gluten intolerant w/ damage to small intestine indicating Celiac. All I know for sure is that when I stray from the gluten-free diet, I'm back to extreme weakness, nausea, constipation and miserable bloating. Originally was diagnosed w/ ovarian cancer that had metastasized to liver (they found a mass on ovary - benign - and liver enzymes were off the charts at the time). I was perfectly happy to avoid gluten instead! That was 5 years ago. Find it kind of challenging in a good way, but difficult to lose weight b/c I feel deprived and am constantly trying to "feed" some need I have.

When I was the sickest,I lost 25 pounds and looked sickly but fantastic. As soon as I discovered what I COULD eat, I gained that back plus more.

Would love to find a way to balance since this extra weight isn't good for my heart, cholesterol and blood pressure. Would love to get off some of the meds I'm on. WOuld appreciate any input!

BEADDEB Posts: 118
1/13/10 3:07 P

My SparkPage
Send Private Message
Reply
Margaret, that is wonderful! I have a niece with narcolepsy. I'll mention this to her.

I have:

Crohn's disease
Asthma
Joint Pain
Fatigue
ADD
Multiple allergies

I had the bloodwork for celiac disease and it came back normal. I have a friend whose husband has crohn's disease also with negative bloodwork and has benefitted from a gluten free diet. So, I thought I'd give it a try since I had to go off one of my meds because it elevated my triglycerides to over 500.

I've only been on this diet for less than a week and have seen some moderate improvements. Hopefully, they aren't coincidental.

How long were most of you on a GF diet before you knew it was beneficial?

Deb


 current weight: 125.0 
 
181.8
167.6
153.4
139.2
125
MZZCHIEF's Photo MZZCHIEF Posts: 9,372
1/8/10 1:46 P

My SparkPage
Send Private Message
Reply
Optimism!

: )
Mzzchief

New decade. Big world.
Hello, 60!

Never underestimate the value of getting out of your own way.

Team leader of Thyroid Community. www.sparkpeople.com/myspark/groups_i
ndividual.asp?gid=732


New Thyroid Community Team Members, please read:
www.sparkpeople.com/myspark/team_mes
sageboard_thread.asp?board=261x732x489
68909&src=email


 current weight: 147.0 
 
156
150.75
145.5
140.25
135
MARGARETFLYNT's Photo MARGARETFLYNT Posts: 40
1/8/10 2:04 A

My SparkPage
Send Private Message
Reply
I don't have celiac disease or gluten intolerance, but I do have narcolepsy. While looking for homeopathic remedies for my narcolepsy, everyone said that a gluten free diet really helps. After just a week of being gluten free I have not had to take any medicine, and I haven't fallen asleep!



 Pounds lost: 48.4 
 
0
15
30
45
60
OUTOFIDEAS's Photo OUTOFIDEAS Posts: 407
9/7/09 12:21 P

My SparkPage
Send Private Message
Reply
Aargh! We're a pretty pathetic bunch, aren't we? Or we might be if we weren't making ourselves aware of healthier options and working to achieve them. Keep on reaching for the stars, team!!!

Edited by: OUTOFIDEAS at: 1/8/2010 (15:23)
"Truth, and therefore, success, is generally found at the balance point between two opposing tensions." (D. L Veach, writer and artist)


 current weight: 166.0 
 
193
176.75
160.5
144.25
128
MZZCHIEF's Photo MZZCHIEF Posts: 9,372
9/7/09 11:41 A

My SparkPage
Send Private Message
Reply
Hypothyroid disease.
Computer addiction.

: )
Mzzchief

New decade. Big world.
Hello, 60!

Never underestimate the value of getting out of your own way.

Team leader of Thyroid Community. www.sparkpeople.com/myspark/groups_i
ndividual.asp?gid=732


New Thyroid Community Team Members, please read:
www.sparkpeople.com/myspark/team_mes
sageboard_thread.asp?board=261x732x489
68909&src=email


 current weight: 147.0 
 
156
150.75
145.5
140.25
135
ONLYWITHHISHELP's Photo ONLYWITHHISHELP SparkPoints: (13,135)
Fitness Minutes: (13,359)
Posts: 1,587
9/3/09 10:08 P

My SparkPage
Send Private Message
Reply
PCOS
Diabetes
IBS
Asthma
Thyroid nodules in my neck/hoarseness off and on



I am sure I have forgotten some! LOL

My IBS has totally cleared up since going gluten free, my asthma is not so bad....

--Michelle--

With God's help I can do this!
ANNIEFOFANNIE's Photo ANNIEFOFANNIE Posts: 3
8/31/09 11:39 P

My SparkPage
Send Private Message
Reply
I am 52 and am not officially diagnosed with celiac or gluten intollerant but had a doctor take me off of it. I have had depression and periphial neuropathy in my hands and feet. I have been constipated for as long as I can remember and have had hemmoroid surgery. I wonder if I have or had PCOS and one of my daughters may have it. I had an partial historectomy in my mid 30's because of a sore that wouldn't heal. I believe I have gout and had surgery on both feet for plantar faceitis. I have had panic attacks that seem to be doing better and my short term memory is terrible. I also have little red bumps on my arms and thighs that I have had since about the 7th grade and when I stay off of the gluten it mostly clears up. I also have a lactose intollerance and notice phlem in the back of my throat and have a cough when I eat dairy. I had bloating and gas and feel much better off of gluten and dairy. I have a vitamin D deficiency, the doctor said it was the lowest he had seen. Last year I was treated for Breast Cancer and had lumpectomy and radiation. Not sure I am remembering everything.

 current weight: 193.0 
 
196
180.75
165.5
150.25
135
OUTOFIDEAS's Photo OUTOFIDEAS Posts: 407
8/31/09 1:42 P

My SparkPage
Send Private Message
Reply
You are absolutely on target concerning the "chronic systemic inflammation." I already had multiple allergies, "spastic colon", arthritis, CFIDS, Fibromyalgia, Asthma, and Hypothyroidism before being finally diagnosed as Celiac in 2005. I am struggling hard to avoid tumbling into Diabetes as well. Need I add that I have been treated for clinical depression? Eating Gluten free is making a major difference in flare ups in each auto-immune dysfunction for me.

"Truth, and therefore, success, is generally found at the balance point between two opposing tensions." (D. L Veach, writer and artist)


 current weight: 166.0 
 
193
176.75
160.5
144.25
128
YOSOYLINDA's Photo YOSOYLINDA Posts: 5,948
8/31/09 9:23 A

My SparkPage
Send Private Message
Reply
I haven't gotten tested or anything about celiac, but I was told years ago that wheat was one of my food allergies. I've never really given it up, although I've cut way back the past month. I'm feeling better already and have started losing a bit of weight.

My only other problem is knee/hip pain, and I've been diagnosed with osteoarthritis in both knees already. Even with cutting down, I think I see a relation between the gluten and the pain. This weekend, I wasn't careful, and the past two days I'm suffering more again! Could be something else, but I don't really think so.

At my age, I think I'm lucky not to have other issues, so I'm trying to do something now--before things get worse.

Linda C

Linda C
Oklahoma (CST)

"Food is essential to life; Therefore, make it good."
--S. Truett Cathy (Chick-Fil-A)

Come on 5%!!!!!

Member Since Nov 06!


 Pounds lost: 0.0 
 
0
9.75
19.5
29.25
39
SHAZZIEBABES's Photo SHAZZIEBABES Posts: 127
8/31/09 3:44 A

My SparkPage
Send Private Message
Reply
I was diagnosed with CD in 2002 although my blood test came back negative so futher biopsies revealed that my villi were completely flat. I was really quite ill for quite a few years to the extent where I was just collapsing. I was then told it was IBS and they still maintain this aswell as the CD. Unfortunately I still have alot of the symptoms although my CD is very strictly GF, depression still comes in bouts but not as severe as before,fatigue, pathches of DH come and go, tingling in my arms and legs, headaches but again not as severe, constipation and diahroea come and go. However I am not as bad as before the diagnosis which is good and I certainly do feel much better than pre-diagnosis!
emoticon

 current weight: 303.0 
 
319
314.5
310
305.5
301
JENCORINNE's Photo JENCORINNE Posts: 1,933
8/31/09 1:57 A

My SparkPage
Send Private Message
Reply
my whole body inflammation/pain is gone - 15lbs in 2 weeks just going GF.
my allergies are almost completely gone - 1 attack after going GF that I can't point to being glutened. My Dr put it that to think of a scale one side has gluten and the other allergies. my body was weighed so heavily in fighting gluten that there wasn't anything left to fight the allergies.
CD has made me pre-diabetic, working on getting this off my chart, and low functional thyroid. Also messing with my hypothalamus - my body does not like temperature changes.
no more constipation that would switch to diarrhea at random times
depression gone, fuzzy brain gone, uncertainty pretty much gone, better balance.
And so much more....

As far as not finding medical support of inflammation and CD - I've seen it somewhere. Plus my Dr believes in it - he's a Naturopath and that might be a difference.


Edited by: JENCORINNE at: 8/31/2009 (02:00)
 current weight: 230.0 
 
265
242.5
220
197.5
175
BLUEROSE73's Photo BLUEROSE73 SparkPoints: (121,884)
Fitness Minutes: (59,141)
Posts: 34,045
8/31/09 12:28 A

My SparkPage
Send Private Message
Reply
Well, my bloodwork for celiac came back negative. However, out of frustration I gave up wheat about 4 months ago now.

My asthma has almost disappeared.
My joint pain/swelling is gone.
My severe abdominal pain and swelling is gone - no more trips to the ER for morphine with no answers.
My depression is teetering - I am struggling being out of work, but I have been able to hold on.
for the most part, my eyes are better - they would also swell and I never produced enough tears.

It is amazing how much better I am doing now that I have cut wheat out of my diet. I am going to have my colonoscopy redone here in the next few months, and see if my intestines are healing up as well as It feels they are.

Katrina
Saskatchewan Time Zone

You can not change yesterday - it's done.
You can only dream of tomorrow.
The only day you can change is today.
What are you going to do today to reach your goals of tomorrow?

It's supposed to be hard. If it wasn't hard, everyone would do it. The hard is what makes it GREAT

Go little Turtle Go!


 current weight: 212.2 
 
238
227.25
216.5
205.75
195
PHOUKALADY's Photo PHOUKALADY SparkPoints: (10,046)
Fitness Minutes: (9,777)
Posts: 178
8/31/09 12:20 A

My SparkPage
Send Private Message
Reply
I am not officially diagnosed as gluten intolerant/celiac disease. Doesn't matter. I stopped eating wheat and related grains two and a half months ago as a last ditch effort to deal with migraines that had become a daily handicap.

Within three days, the diarrhea that I had thought was due to my lack of a gallbladder, had disappeared.

So had the worsening pain in my toe and finger joints.

Over the next month, my depression improved enough that I felt comfortable discontinuing my SSRI subscription.

My mild asthma vanished.

My heart arrhythmia got better.

My blood pressure decreased.

Within six weeks, my migraines had gone from daily torture to once a week, and when I finally gave up sodas (caramel color, dontcha know), they've almost entirely disappeared.

My hayfever is almost a thing of the past. My sinuses and ears are almost clog free.

I still have ADD. I have no doubt that if I get hit with enough stress, my depression will reappear. And, of course, there's the PCOS I was diagnosed with eighteen years ago.

What I suspect, but haven't been able to find any support in medical documentation, is that gluten intolerance is related to/correlated with/possibly causes chronic systemic inflammation.

All of the above illnesses I've listed have some connection to inflammation. They're caused by it or made worse by it or cause it in turn.

I'm curious what your experience has been. Will you share it with me?



"No act of kindness, no matter how small, is ever wasted." - Aesop


 current weight: 283.0 
 
283
262.25
241.5
220.75
200
Page: 1 of (1)  

Report Innappropriate Post

Other Celiac Disease and Gluten-Free General Team Discussion Forum Posts

Topics: Last Post:
Team Chatter 9/14/2014 11:13:34 AM
I'm an idiot (brain fart moment) 6/14/2014 3:27:25 AM
Does gluten intolerance ever go away? 11/1/2013 12:35:48 PM
Anyone with Skin Issues? 11/10/2014 7:26:31 PM
Pizza Lessons 10/23/2013 11:51:56 AM

Thread URL: http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=0x948x28068459

Review our Community Guidelines