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DOTSLADY's Photo DOTSLADY Posts: 10,024
8/3/09 8:52 P

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Parents must be desperate for a "cure" to think diet is a "cure" ... this is getting down to semantics. Who said CURE anyway? We don't have a CURE for celiac, but we have a treatment.

I know people where diet and supplements have helped treat, but not "cure" their kids' autism symptoms. These brothers also 'treat' their Tourettes with diet and supplements - it helped their sleep also. From this mother I learned of Dr. Maryann Block at www.blockcenter.com . They stop treatment, their health reverts. Much like when I stop my diet, I gain weight! It's a treatment, not a cure :P.

... as for "implementing with appropriate care" that's another ball of wax, huh? DAN doctors are few I understand.

KNOWLEDGE = POWER. BODY = TEMPLE. FOOD = MEDICINE. PREVENTION IS THE CURE. YOU ARE WHAT YOU ABSORB!
One person's food is another person's poison.
__________
Celiac Disease: An autoimmune reaction from eating gluten grains: wheat, rye, barley and contaminated oats=nutrient deficiency=cancer. Have 1 of 300 symptoms? bit.ly/cdsymptoms
CD stories: bit.ly/cdstories
Nutrition/Cancer: bit.ly/Quillinnutrition


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LORITOT's Photo LORITOT Posts: 379
8/3/09 7:30 P

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I agree with you, if you search long enough you will find a study that either supports or refutes whatever you want. That is why I just feel strongly that parents need to be careful not to put all of their hope in a diet as a cure for Autism. It may help some kids but it is not a cure and needs to be implemented with appropriate care.

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DOTSLADY's Photo DOTSLADY Posts: 10,024
8/3/09 1:10 P

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For every study, there's another study:

"Autism May Be Linked to Mom's Autoimmune Disease"
www.forbes.com/feeds/hscout/2009/07/
06
/hscout628750.html


KNOWLEDGE = POWER. BODY = TEMPLE. FOOD = MEDICINE. PREVENTION IS THE CURE. YOU ARE WHAT YOU ABSORB!
One person's food is another person's poison.
__________
Celiac Disease: An autoimmune reaction from eating gluten grains: wheat, rye, barley and contaminated oats=nutrient deficiency=cancer. Have 1 of 300 symptoms? bit.ly/cdsymptoms
CD stories: bit.ly/cdstories
Nutrition/Cancer: bit.ly/Quillinnutrition


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DOTSLADY's Photo DOTSLADY Posts: 10,024
8/1/09 11:15 P

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I found this NY Times article: www.nytimes.com/2009/07/28/health/28
au
tism.html?_r=1&em=&pagewanted=print


The researchers looked through 18 years of "files" ...

Interesting lines:

“The diets are not easy to follow and can sometimes cause nutritional deficiencies.”

...the diets aren't easy (true) and can "sometimes" cause nutritional deficiencies ...

um, and eating mac&cheese, sugar cereals w/milk and chicken fingers all the time doesn't?

and, "constipation may be due to children not consuming enough fiber or drinking enough water."

... Well, I consumed a ton o'(insoluble)fiber and was constipated (yes, I drank water, too). But yes, this could be true.

They were negative to celiac panels. I wonder if they have leaky gut from all the meds? Did they have a lactulose/mannitol test? I wish I could have commented on the article to ask.

another article: www.autism-community.com/misleading-
st
udy-about-autism-and-gi-issues/


emoticon emoticon emoticon emoticon emoticon emoticon

Edited by: DOTSLADY at: 8/1/2009 (23:23)
KNOWLEDGE = POWER. BODY = TEMPLE. FOOD = MEDICINE. PREVENTION IS THE CURE. YOU ARE WHAT YOU ABSORB!
One person's food is another person's poison.
__________
Celiac Disease: An autoimmune reaction from eating gluten grains: wheat, rye, barley and contaminated oats=nutrient deficiency=cancer. Have 1 of 300 symptoms? bit.ly/cdsymptoms
CD stories: bit.ly/cdstories
Nutrition/Cancer: bit.ly/Quillinnutrition


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LORITOT's Photo LORITOT Posts: 379
7/29/09 10:10 P

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I will look and see if I still have the article at work. If I do I will send you the info tomorrow.

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DOTSLADY's Photo DOTSLADY Posts: 10,024
7/29/09 4:31 P

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Well, I'd like to read the study, but I can't find it. I see articles w/references to it.

The conviction in Dr. Synderman's voice was so strong; I just rubbed me the wrong way.

KNOWLEDGE = POWER. BODY = TEMPLE. FOOD = MEDICINE. PREVENTION IS THE CURE. YOU ARE WHAT YOU ABSORB!
One person's food is another person's poison.
__________
Celiac Disease: An autoimmune reaction from eating gluten grains: wheat, rye, barley and contaminated oats=nutrient deficiency=cancer. Have 1 of 300 symptoms? bit.ly/cdsymptoms
CD stories: bit.ly/cdstories
Nutrition/Cancer: bit.ly/Quillinnutrition


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JENCORINNE's Photo JENCORINNE Posts: 1,933
7/28/09 12:10 A

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anyone that has taken any kind of statistics class can tell you that you can make any statistics/study show whatever you want it to say, it just depends on the slant it's presented by.

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LORITOT's Photo LORITOT Posts: 379
7/27/09 7:20 P

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I am an occupational therapist and have been working with kids for 25 years. I think every study that comes out needs to be viewed cautiously (how many in the study? who funded it etc) I do not entirely disagree with the issues addressed in this latest study. I do think that some children do better on a GF/DF diet because they may have some sensitivities, not necessarily because it "heals" ASD. I have seen all too many families rush in without proper information and put their kids on all kids of diets, supplements etc and are devastated when it does not "cure" their child or worse, it creates other health problems, which they then can not figure out the cause of, because they have tried so many things all at once. I think the study author makes a valid point that a specialized diet can help some children (with and without ASD) but families should seek out adequate information first and they need to have their child's health monitored for appropriate nutrition.

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ILLINITEACHER52 Posts: 7,257
7/27/09 6:38 P

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I am working with children with Autism this summer and 3 of 8 are on the gfcf diet. It makes a difference to them! I wish they would all try it. There is more information needed. There is no harm in trying it as long as people have enough information about how to be sure a child is getting all the calcium and nutrients he/she needs from other foods or sources. I think we are making progress but some reports cause a step backward when we are trying to make giant leaps forward.

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USE2BAGODDESS's Photo USE2BAGODDESS Posts: 2,703
7/27/09 5:08 P

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It is so sad, isn't it?

It may have been a different study, but I'm sure they have figured out how to manipulate the numbers so that it will turn out the way the want it.

Besides, who do you think funds most of these studies? The pharmaceutical companies who want to sell us drugs or possibly the food industry that wants to convice us that we can eat anything we want. We are not able to alter our health by what we consume!! I guess I am just grouchy today. I think I will go take another nap!

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DOTSLADY's Photo DOTSLADY Posts: 10,024
7/27/09 4:41 P

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I'm a fan of Mark Hyman's also, and I know where he's coming from. I thought this study was a "new" one, but haven't gone so far as to find and read it (so was surprised he had already written about it?)!

Anyway, I think these newsy blurbs keep unknowing people in the dark or confused or both. I have a friend whose son has Asperger's and couldn't manage the diet: this will be fodder for their not trying anymore.

KNOWLEDGE = POWER. BODY = TEMPLE. FOOD = MEDICINE. PREVENTION IS THE CURE. YOU ARE WHAT YOU ABSORB!
One person's food is another person's poison.
__________
Celiac Disease: An autoimmune reaction from eating gluten grains: wheat, rye, barley and contaminated oats=nutrient deficiency=cancer. Have 1 of 300 symptoms? bit.ly/cdsymptoms
CD stories: bit.ly/cdstories
Nutrition/Cancer: bit.ly/Quillinnutrition


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USE2BAGODDESS's Photo USE2BAGODDESS Posts: 2,703
7/27/09 4:29 P

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In a book by Dr. Mark Hyman called The UltraMind Solution he addresses this issue and states that what they did in that study was to increase the number of participants to the point that they washed out the ones who were affected.

His book is very very good at explaning the mechanisms at work, and why diet works better for some than others. It has to do with the bodys ability to detoxify. Some are better than others.

He talks about what you can do, eat, and supplement to make up the difference if you are having problems. The same goes for Alzheimer's and many other problems that are caused by weak body systems.

In other words, I think their study is hogwash!

I have zero trust in our media, and not a whole lot more for the majority of our medical community. Everybody is either out to make a buck or cover their butt!

Edited by: USE2BAGODDESS at: 7/27/2009 (16:29)
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DOTSLADY's Photo DOTSLADY Posts: 10,024
7/27/09 3:48 P

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bit.ly/todayshowautismstudy

I'm kinda freaking out about what I saw on the Today Show with Dr. Nancy Snyderman's report about a study stating there's "no link between the gut and signs and symptoms of autism." In particular, constipation from diet and meds (they just need more water?).
Hmmm. I'd emoticon your thoughts and experiences.

Maybe we need to reclassify, rename or make subsets of autism spectrum? SOME of these kids definitely respond to different diet. I think this is very misleading ... am I alone on that? I realize not all kids "have" celiac, but as we know, gluten can abuse "sensitives" as well.

Edited by: DOTSLADY at: 7/27/2009 (15:52)
KNOWLEDGE = POWER. BODY = TEMPLE. FOOD = MEDICINE. PREVENTION IS THE CURE. YOU ARE WHAT YOU ABSORB!
One person's food is another person's poison.
__________
Celiac Disease: An autoimmune reaction from eating gluten grains: wheat, rye, barley and contaminated oats=nutrient deficiency=cancer. Have 1 of 300 symptoms? bit.ly/cdsymptoms
CD stories: bit.ly/cdstories
Nutrition/Cancer: bit.ly/Quillinnutrition


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