Posts: 2,701
7/25/09 10:39 A

I found this on the link Nomad sent to me about the Celiac group in Dallas! I have recently taken a saliva hormone test and my progesterone was nihl.
I find this info very interesting and thought others might as well!


"Did you know that most Celiacs have a hormone imbalance that plays havoc with your body that must be treated to restore your health and well being? This usually includes an inadequate amount of Progesterone which some treat with hormone therapy. Check out two informative newsletters about Hormones by visiting http://www.bk2health.com/newsletter.php. Click on Hormones(part 1 and part 2) under 2007 Newsletters"

Posts: 413
7/24/09 11:53 P

I read somewhere that some doctors recommend consuming gluten for at least two months before being tested .

Posts: 1,441
7/24/09 2:50 P

There are several Dallas support groups. Google with the words Dallas gluten free (also try celiac) support and you'll find listings. An example is dfwceliac.org/
This method of finding support groups works for any city or area.

Edited by: GFNOMAD at: 7/24/2009 (14:53)

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Posts: 2,701
7/24/09 2:23 P

A gluten free group that meets once a month for dinner out!! That sounds good to me. Anybody here live in the Dallas area and want to start our own group???

Or maybe just home dinners. I've got a great recipe for Stuffed Poblano Peppers, yummm, it's vegetarian too.

Posts: 1,427
7/24/09 1:41 P

Hi Big"E" and congrats on that procedure. I love my support group. It is organized by someone who knows how. Elizabeth schedules a gluten-free restaurant meal each month and changes the hour to allow for more chances to attend. I truly feel more confident about my gluten-Free issues with this hands on or as I call it face to face support group; it’s the other allergies that keep me from eating out. Those hidden things sure hurt. Also the books out there help too…Dr Green’s book, the one by Claudia Cringle was funny.

Posts: 1,441
7/24/09 12:35 P

For an explanation of Cd, gluten intolerance and gluten sensitivity, read theglutensyndrome.net/primer.pdf , in particular page 3. For copyright reasons I can't copy and paste. Some researchers consider CD as a subset of gluten intolerance and is the only one that has been studied.
IMO, if you have positive antibodies with a negative biopsy, then it's been caught before you've done too much damage. Why continue eating gluten until you get really sick?


Edited by: GFNOMAD at: 7/24/2009 (12:45)

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Posts: 2,701
7/24/09 12:09 P

I didn't know there were support services available?
What type of services?

Posts: 87
7/23/09 4:55 P

I didn't think that Gluten Intolerance will show positive antibodies and a high antigen..my was pretty high?

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Posts: 425
7/23/09 4:17 P

I had my biopsy on Monday but did a three week gluten challenge prior to that. I still feel for you and I hate sitting around waiting for test results. I'm with GFNOMAD in that testing is going to change in the next few years but, until then we are stuck with the biopsy as the golden seal. Most insurance companies will not provide maintenance aftercare without it. Though I understand that intolerance is as physically devastating as CD, some insurance plans do not even offer support services for intolerance.

My last doctor did not understand CD, he had diagnosed by blood test and basically turned me loose. When I asked about support services and resources he basically asked me to recommend material for him because he really didn't know much. He did refer me to a local support group; I have yet to contact them. After I got tired of playing guessing games, I got a new doctor who is more aggressive. I just want to have solid answers, stay on my diet, and get a great support team so I can stay healthy.

I wish the same for you! =)

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Posts: 1,441
7/23/09 3:55 P

Some doctors will give a clinical diagnosis based on symptoms and the positive antibodies. Others will only diagnose CD based on the biopsy. You may not have CD at this point but be gluten intolerant.
Either way, a gf diet for life is recommended. With gluten intolerance, damage is being done to areas of the body. I always recommend reading www.glutensensitivity.net and her gluten primer. Very informative. There are lots of infomative books such as Gluten Free for Dummies by Connie Sarros and The Gluten-free Bible by Jax Peters Lowell. Try your public library.
I think the whole area of diagnosis and definitions will change over the next five years. Barb

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Posts: 87
7/23/09 3:04 P

I had my biopsy for Celiac Disease today. The path won't be back for 10 days but the doctor said he saw two erosive areas in my stomach and biopsied but he tested for H plyloris. He also found alot of redness on the duodenum. He said he did not see indications on Celiac disease. I was only a strict gluten free diet for almost 4 weeks. Would it really show much if I have been compliant that long. My labs were high and with a position EMA. I was extremely sick when I was on gluten, so the MD left me off the gluten for the test. I still don't think MDs know enough about it because he said maybe we can do a trial of gluten later. I told him I would never touch it again. I thought the way I feel off the gluten and the positve antibodies and the high antigen will make the diagnosis???

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