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LORITOT's Photo LORITOT Posts: 379
7/15/09 10:20 P

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Hi. I am fairly recently diagnosed with gluten and dairy intolerance and have three kids. My daughter is pescatarian (fish eating vegetarian) (and my son is a major carnivore!)so meal prep at our house is interesting to say the least. I try to cook a meal that everyone can eat some portion of but often cook mine separately (ie I might make Salmon for all of us but prepare mine differently since my kids love teriyaki or tonight I made pasta for all of us, but made GF pasta for me in a separate pot.) I have made some wonderful GF recipes that everyone in my house will eat, or they may supplement with something easy to fix like chicken nuggets, soup etc)I do keep separate jars of pb, butter etc for me so there is no cross contamination).

As far as events...I always bring a dish to share that I know I can eat. I have yet to find anyone who is put off by that. We recently vacationed with my family and my parents called several restaurants ahead of time to see which one could accomodate me. I feel like people are very supportive if you explain it to them. Good luck. You can do it.

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KJEANNE's Photo KJEANNE SparkPoints: (39,604)
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7/15/09 5:14 P

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I was diagnosed with DH at age 19. That was 36 years ago. The only thing I could do was go GF. There were a tiny handful of GF foods at that time.

I remember the third day after starting the GF dist. It was the first day I had a perfect bowel movement. No hard painful pellets. When I was temped to cheat, I remembered how wonderful that felt.

I had to travel a lot for my job and I ALWAYS had to quiz our server about how the food was prepared. At first I was embarrassed to ask but after having a few reactions, I decided to ask. My health was at stake. The team I traveled with could even order for me since they had heard all the questions I would typically ask!

As for my family, I did buy the Good Food Gluten Free cookbook and made some foods for all of us. My grown daughters still fondly remember the GF pizza crust I used to make. They loved it. They would also have foods w/gluten but we would work hard to make sure there was no cross contamination.

I never made a big deal about being GF. Some people will never understand what you are going though (they always will suggest an Italian restaurant when itís time to eat out!) others will be great support. One person is no better than the other. Just be patient and remind them about you dietary needs.


Do not look where you fell, but where you slipped.
African proverb


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KAILANSMOM04's Photo KAILANSMOM04 SparkPoints: (0)
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7/14/09 10:21 A

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I found different Chex cereals and am in Heaven.. although I did not find the chocolate one yet. I also found that Walmart sells rice spaghetti! I'm going to try it today. I've had one day GF so far and I am quite proud :-)

Thanks for the slow cooker link. I love using my crockpot, so I am certain this will come in handy! :)

Shawna
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"The miracle isn't that I finished. The miracle is that I had the courage to start." -John "The Penguin" Bingham-


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LUCASWE's Photo LUCASWE Posts: 29
7/13/09 8:42 P

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If you cook with a crock pot, or have thought of getting one, here is a great site with gf recipes. The author of the blog gives comments after each recipe. crockpot365.blogspot.com/

One caution about putting your children on a totally gf diet right away. If you decide to have them tested for celiac at a later date, they will need to consume gluten containing food. The one exception to this is if you have them tested for the gene, to see if they carry it. This doesn't mean that they will develope celiac, but are a "carrier".

I also strongly urge you to find a local support group. Disclaimer: I am chairman of a local support group. I was diagnosed 35 years ago, but only found the support group about 8 years ago.

 
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YOSOYLINDA's Photo YOSOYLINDA Posts: 5,948
7/13/09 7:48 P

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Yes, there's a chocolate, and it's really good. I haven't given any to my grandson yet, and don't know if I will, since it'll disappear fast once he gets his hands on it. Luckily, it doesn't cost any more than other cereals. 8-)

You know, there'll always be "well-intentioned" people who just don't get it--and GF will have to fight with diabetics, I'm sure--but it's starting to get out there for others to learn about. It has to get easier!

Linda C

Linda C
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"Food is essential to life; Therefore, make it good."
--S. Truett Cathy (Chick-Fil-A)

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7/13/09 4:01 P

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Wow! Thank you for your post. I'll have to check out that book. I just ordered the Dummies book, too.

Shawna
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"The miracle isn't that I finished. The miracle is that I had the courage to start." -John "The Penguin" Bingham-


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JULIE_MAY's Photo JULIE_MAY Posts: 2,432
7/13/09 2:31 P

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I can really relate to your situation. I was diagnosed with celiac in Dec. 08, but neither of my sons (age 14 and 17) tested positive and I haven't had my 10 yo daughter tested yet. Once I explained the disease to my family, they became like my personal watchdogs. My 14 yo son has been known to snatch food out of my hand that I was only going to "taste." They were already used to watching out for me because I am deathly allergic to shellfish.

I still feel very self-conscious around others (in eating situations) when I have to speak up about needing gf foods. However, when I set my mind to eating healthfully - veggies, fruits, proteins - it's not such an issue. It's really no different than someone who is limiting certain foods because of dieting or allergies. For visiting your family, I would print out one of the articles that Dotslady provided so that they can understand the serious consequences of NOT following a gf diet. (My sister didn't take it seriously at first.) Celiac is NOT a gluten intolerance or allergy; it is an autoimmune DISEASE. I suffered from terrible symptoms for 30 years before being diagnosed.

As for my family, there is no way my teenagers or my husband want to follow a gf diet, so I continue to feed them as before and just keep my flour, etc. in separate containers. The gf bakery is really expensive and I've only gone there 3 times as a "treat" to myself or when I really wanted a loaf of bread. One of these days, when I have more time, I will experiment more on my own. One book that was very helpful to me was "The First Year: Celiac Disease and Living Gluten-Free: An Essential Guide for the Newly Diagnosed" by Jules Dowler. She has put together an "all-purpose gluten-free flour" blend that you can substitute in most any recipe. I made low-fat brownies with it and froze them individually for my treats. My 17-yo ate two of them and got sick, so I think gluten-free must have an opposite effect on him!

One more thing (sorry this is so long), but I cheated the other day and I will never do it again. I had some soft sourdough bread in the house and was feeling down and deprived, so I ate just three bites. My stomach had terrible spasms for the rest of that day, all night, and the next day. Felt like a baby was kicking me. Believe me, cheating even a LITTLE bit is damaging to your intestines and I, for one, do not want to end up with intestinal cancer.

So, keep your chin up, take your own food as a back-up plan, and eat lots of fruit and veggies! Just remember, it's YOUR health that's at stake here and that is much more important than someone else being a little inconvenienced. (Wow, am I ever on the soapbox today!)
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7/13/09 2:14 P

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Ohh... there's a chocolate chex?? I know my kids and I will love that :)

Shawna
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"The miracle isn't that I finished. The miracle is that I had the courage to start." -John "The Penguin" Bingham-


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YOSOYLINDA's Photo YOSOYLINDA Posts: 5,948
7/13/09 2:06 P

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I've only tried the Chocolate Chex so far, and it's really good! Plus, there are GF recipes you can use it in for snacks and stuff. Good luck! Linda C

Linda C
Oklahoma (CST)

"Food is essential to life; Therefore, make it good."
--S. Truett Cathy (Chick-Fil-A)

Come on 5%!!!!!

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7/13/09 2:02 P

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Thank you all for the help and all the info! I need to buy some Chex cereal! I bet the kids will like that, too. Husband can finish off all the granola :-)

Shawna
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"The miracle isn't that I finished. The miracle is that I had the courage to start." -John "The Penguin" Bingham-


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YOSOYLINDA's Photo YOSOYLINDA Posts: 5,948
7/13/09 1:45 P

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I went through several of the GF sites, and there's really a lot of stuff out there (even stuff kids eat all the time) that's OK.

Examples I was excited about include: some of the Chex cereals, peanut butter, potatoes, bananas, severl Hormel products (i.e., beef tamales, chili w/ beans, bean and ham soup), Kid's Kitchen Beans & Weiners, Spam (sorry, I love it!), Little Sizzlers Original Sausage Links/Patties, etc.)

I know those are "junkie" things, and probably not the best, but some of them are easily portable as well.

Good luck!

Linda C

Linda C
Oklahoma (CST)

"Food is essential to life; Therefore, make it good."
--S. Truett Cathy (Chick-Fil-A)

Come on 5%!!!!!

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DOTSLADY's Photo DOTSLADY Posts: 10,024
7/13/09 1:44 P

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Nope. It's no problem!

KNOWLEDGE = POWER. BODY = TEMPLE. FOOD = MEDICINE. PREVENTION IS THE CURE. YOU ARE WHAT YOU ABSORB!
One person's food is another person's poison.
__________
Celiac Disease: An autoimmune reaction from eating gluten grains: wheat, rye, barley and contaminated oats=nutrient deficiency=cancer. Have 1 of 300 symptoms? bit.ly/cdsymptoms
CD stories: bit.ly/cdstories
Nutrition/Cancer: bit.ly/Quillinnutrition


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7/13/09 1:41 P

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Sorry about the DH thing. I didn't know about Dermatitis Herpeformitis and can I edit my title to fix it??

Shawna
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"The miracle isn't that I finished. The miracle is that I had the courage to start." -John "The Penguin" Bingham-


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JENCORINNE's Photo JENCORINNE Posts: 1,933
7/13/09 1:12 P

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just FYI in the celiac world or at leastin mine DH means Dermatitis Herpeformitis - a skin condition that only CD's can get. I thought that was what you were referring to when you put DH.
As far as when people ask me about cheating - I tell them sure but I'll spend the rest of the night in the bathroom, and be unpleasant to be around for the next week. That seems to stop people.

I don't have kids so can't offer much there but I'd suggest to have them tested since it is a genetic disease. They look healthy in that adorable picture, but if they have the gene you and they need to be aware.
I know it it better for you to have a GF house but that's not always an option. Some people will get a small cart and storage cupboard to put gluten food in, and have a separate toaster, etc for the gluten people in the house.

I bring my own food to family and friend activities. I just tell them my health is more important that hurt feelings. I know I offended my 90 year old grandpa when I started bringing my own food but he's OK with it now, especially when I explained that I was following Dr's orders that seemed to make it easier.
It was comical at Thanksgiving when I showed up with my own stuffing and pie. But then my cousin found for me a GFCF vegan sweet potato pie. I'm only GF but my aunt can't have dairy(not CF but lactose intolerant) so it was safe for both of us.

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DOTSLADY's Photo DOTSLADY Posts: 10,024
7/13/09 12:40 P

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You've got LOTS going on! It's WONDERFUL your Dh will try gf with you (when you wrote DH in the thread header, I was thinking "dermatitis herpetiformis" LOL)!

Everyone handles this differently, and I can offer up what my experience is and you can weigh it with others' responses to what works for your lifestyle. There's an adjustment period obviously.

One thought with taking out your gluten items is that you could take them to your family event if possible. Does your family know or understand what this all means yet? You've GOT to read Living GF for Dummies (Dh, too, then he won't ask you to cheat)! Have an "intervention" when you visit the family, too - they've GOT to understand this so they won't be offended. You are not impolite to take care of your health!

Maybe make a copy of the NIDDK's quick overview/info for them (links below). They should know anyway, because they could have it and maybe consider testing themselves (see the thread re: UC Irvine study!).

I'd make my own food and take it with me cause I think it's easier than depending on what's available and worrying about cross-contamination. Once Dh reads the book, he shouldn't ask about "cheating just a little" anymore.

My HOME is gf, but my Dh and Dd are not gf outside the home. I find peace in my own home, and they still get to eat "normal" otherwise. It's no sweat for them to not eat gluten. We are also not big gf manufactured food eaters. But everyone's different. Gluten-Free Girl's Dh, Chef, has a gluteny-bread drawer and counter space to himself I read a long time ago.

digestive.niddk.nih.gov/ddiseases/pu
bs
/celiac/


and I think this is a printable version pdf (I can't open pdf's on my laptop):

digestive.niddk.nih.gov/ddiseases/pu
bs
/celiac/celiac.pdf


and another good link: www.todaysdietitian.com/newar
chives/06
0109p50.shtml


I hope this helps some. I hope you get more ideas! emoticon emoticon

Edited by: DOTSLADY at: 7/13/2009 (12:53)
KNOWLEDGE = POWER. BODY = TEMPLE. FOOD = MEDICINE. PREVENTION IS THE CURE. YOU ARE WHAT YOU ABSORB!
One person's food is another person's poison.
__________
Celiac Disease: An autoimmune reaction from eating gluten grains: wheat, rye, barley and contaminated oats=nutrient deficiency=cancer. Have 1 of 300 symptoms? bit.ly/cdsymptoms
CD stories: bit.ly/cdstories
Nutrition/Cancer: bit.ly/Quillinnutrition


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KAILANSMOM04's Photo KAILANSMOM04 SparkPoints: (0)
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7/13/09 12:07 P

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My DH (husband) just doesn't understand how important it is to follow and stick to a GF diet. We have a pantry full of non-GF foods, but I was also surprised to see that we have a lot of GF food already! YAY!!! I can eat until I do more research and learn what I should buy.

Anyway, DH said he'd follow the diet with me, but I don't know how to feed my kids. Is it easier to have everyone follow the diet, or is it okay to feed my kids non-GF foods??

Also, we're going out of town in three weeks to spend two weeks with family. DH said, "will it really be awful if you cheat a little??" I feel like a total inconvenience if I tell them. We'll have our own house where I can make the majority of our meals, but there will be a lot of meals with tons of family and I won't have a clue what to eat! Maybe I could just bring my own GF dishes?? Would that be impolite?

I am so full of questions and kind of lost. I feel so stupid cleaning out our pantry of non-GF food. I will donate what has not been opened, but that's a lot of money!!

Edited by: KAILANSMOM04 at: 7/13/2009 (13:39)
Shawna
******************
"The miracle isn't that I finished. The miracle is that I had the courage to start." -John "The Penguin" Bingham-


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